In response to your letter

[Guest guest]

8-26-02 Darcy, It was not our intention to ruffle your feathers or butt heads

with you.I have been so blessed as to not be personally afflicted with “MCS”,

Fibromyalgia, Chronic Fatigue or any of the other life altering conditions

discussed on your group and the thousands of others on line. I am the other

type of victim. The one who lost her Pop to toxic injuries, the one who deals

daily with her mother’s deteriorating health due to “MCS”, fibromyalgia, chronic

fatigue, and the list goes on. I am also one of the few who continue to stand by

their loved ones, one of the few that have taken the initiative to fight for all

those who can’t fight for themselves. But, unfortunately, we’ve learned first

hand the devastation caused from exposures to the multitude of toxic chemicals

found in our surrounding environments. Through our own pain, suffering, loss of

health and loved ones, the need to raise public awareness and education on this

growing problem became painfully clear. Thus the birth of the ”MCS” Beacon of

Hope Foundation. I joined your group to accomplish 2 things. First, to learn

more about the daily struggles and needs of others afflicted with FM, what may

work or not for them and in hope of discovering helpful, verifiable information

on FM (to benefit my mother and the others who contact us daily seeking help.)

Secondly to give your list members a chance to join the others who are afflicted

with Fibromyalgia, Chronic fatigue, ME, Gulf War Illness, ADD, ADHD, Cancer, MS,

Immune Dysfunction Syndrome, MCS and more in supporting National “MCS” Awareness

& Education Month! So Darcy, it comes down to this. I do not appreciate being

talked down to like a misbehaving two-year-old child (that dog just doesn’t run

with me.) There is also the fact remaining that we have read and reread your

“Welcome information” and see no mention of “NO” Sites Allowed and as we

believe, when information is shared we have the moral and legal need to be able

to verify it (thus the purpose of the availability of the source site) and as we

also have problems with some of your other “No No’s”, effective immediately, I

am withdrawing my name from your list. However, because we are firm believers

that if you are not a part of the solution…you are a part of the problem, we

will continue to be available and supportive to any one on or leaving your list

and they may reach us at the following contact numbers: “MCS” Beacon of Hope

Foundation , Director: 6519 - 31st. Street North St. Pete. Fl.

33702E-mail: juliamcs@... OR “MCS” Beacon of Hope

Foundation Peggy Troiano, Executive Director:656 Beidler Forest

RoadDorchester, S.C. 29437E-mail: mcsbeaconofhope@...

Or they may visit us at: " MCS " Beacon of Hope at: www.ncchem.com/mcsbeacon

Petition for National “MCS” Awareness and Education

Month:http://www.PetitionOnline.com/31032/petition.html We wish you well Your

Friends in health, & Peggy

Darcy Stockstill wrote:

All right, , it comes down to this. Links aren't permitted, the reason why

doesn't matter. If you continue to harp on this issue, you will go on moderated

mail. If that doesn't work, then you will be banned. I am at my limit on this

issue and will not tolerate further discussion on the matter.

Darcy

list co-moderator

Darcy,

We respect the decisions of the Moderator and yourself and appriciate your

position. We are just having a hard time understanding why you guys don't want

people to share good and helpful information on your site. Someone not too long

ago said: thats what the delete button was made for...unwanted info. Just hoping

you can shed some light on why this policy was put in to effect. Thanks! &

Peggy

There are many links that people want to post here that are wonderful and

worthwhile, but unfortunately, the policy at this point is that links are not

permitted. Since you posted two messages about this petition that included the

link, anyone in this group who feels like they want to sign, can go there.

Anyone who missed those messages can either look them up in the archives for the

link or email you off list to ask where to go.

Thanks

Darcy

list co-moderator

Darcy,

We understand that we all get lots of bulk mail, however we would think that as

the head of a support group you would want to offer your members the opportunity

to obtain all the help they can possibly get. In this particular situation we

are referring to the petition. How can we expect to get the recognition and

support that we all need if we are not allowed to share all the resources and

opportunities that are available on the internet? Your Friends In Health...

Working For A Healthier & Brighter Tommarrow For All! & Peggy

Darcy Stockstill wrote:

For those of you who want links, I'm sorry, but Missy, who owns the list does

not want them. This includes links to petitions. We normally don't have the

kind of fuss and arguments that we've had for the last two weeks. We normally

have a group full of members who give all kinds of support. I'd like to see the

group stop debating the rules which aren't up for debate, support the list by

sticking to the rules, and actually getting back to supporting each other. For

those of you who have been, it's GREATLY appreciated!!

Thanks

Darcy

list co-moderator

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