Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 > > > > > > > > Hello all, > > > > > > > > I am a new member recently diagnosed with PSC in jan 09. What a great > > > > blessing it is to have found this place! I have been learning more from > > > > everyone's post than I possible could with my doc's. AND I HAVE A LOT > > OF > > > > QUESTIONS! ha ha > > > > > > > > A little bit about my case... I had been suffering from excruating > > > > fatigue after a brutal bout with Epstien Barr Virus (mono) a few years > > back > > > > and felt as if I was getting some of my energy back when I had a > > cholangitis > > > > attack this past Nov 08. I had an ERCP done in Jan and after a quick > > > > recovery from that I felt like I had more energy than I have had in > > years. > > > > Wow, was I feeling good. Unfortunetly, that feeling was short-lived. I > > > > have found that the fatigue is returning. I used to be able to go all > > day > > > > long but lately I feel as if I loose steam halfway through my day. > > Also, I > > > > had been fairly active over the years in sports, and running, but for > > last > > > > six months find I am extremely sore after these activities and it takes > > > > longer for me to get my energy back. I was wondering if these problems > > are > > > > PSC related? or if it's just a part of getting old (Turned 40 last > > year.) > > > > haha > > > > I was wondering if anyone knows the " why " behind the fatigue. Is is > > diet > > > > related? Does anyone else have soreness with this disease? Thanks for > > > > letting me take my turn. > > > > > > > > Thank you and blessings to all of you! I feel as if I have an extended > > > > family now that I keep in my thoughts and prayers. > > > > > > > > Jeannie > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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