Re: a question about oddball symptoms

[Guest guest]

-Go to your doctor. Can you imagine if you have a serious stroke. The

medical bills will be the least of your worries. Pay 10 bucks a

month. Dont let our health care system kill you.

-- In @y..., " rosesrafterman "

wrote:

> Hi all, I have not been very active since joining, but have been

> reading the posts on and off, when I am both home and well enough

to

> spend time at the computer. Mostly, on work days I am just checking

> mail quickly, then offline, and when I feel good and have the day

> off, I tend to be with my kids.

> I have a question for ya'll though... but I have to lay out my

train

> of thought first.

> Last weekend I had what my fiancee described as a grand mal

siezure

> (she has epilepsy, so knows one when she see one). I have no

history

> of siezures, excepting a few when I was in my late teens while

taking

> a drug I was allergic to.

> From all I have read about different types of siezures, some of

the

> symptoms we have resemble some types of siezures (the fits of

> trembling, jerky motions while sleeping, the foggy fade outs when

> exhaustion takes over and we keep pushing, even what I call " silent

> migraines (all the symptoms of a migraine excepting the soul

rending

> pain) fit the description of one type or class of siezure or

another.

> So here is my question. How many of you have experienced seizures

of

> any type, without being diagnosed with a siezure disorder such as

> epilepsy?

> I haven't seen any mention of it in any of the sources I have

> researched, and cannot afford to see my Dr at this time, as I have

no

> insurance (my Dr prescribes my meds on a quarterly basis, and only

> sees me to renew them unless it is a real crisis, so as to reduce

my

> medical bills).

> Any help you can give me would be appreceited, as I have to decide

> whether to try to find the money for all the tests the Dr will

likely

> order, or to let it go and see what happens.

> thanks all...

> Mike

[Guest guest]

-Go to your doctor. Can you imagine if you have a serious stroke. The

medical bills will be the least of your worries. Pay 10 bucks a

month. Dont let our health care system kill you.

-- In @y..., " rosesrafterman "

wrote:

> Hi all, I have not been very active since joining, but have been

> reading the posts on and off, when I am both home and well enough

to

> spend time at the computer. Mostly, on work days I am just checking

> mail quickly, then offline, and when I feel good and have the day

> off, I tend to be with my kids.

> I have a question for ya'll though... but I have to lay out my

train

> of thought first.

> Last weekend I had what my fiancee described as a grand mal

siezure

> (she has epilepsy, so knows one when she see one). I have no

history

> of siezures, excepting a few when I was in my late teens while

taking

> a drug I was allergic to.

> From all I have read about different types of siezures, some of

the

> symptoms we have resemble some types of siezures (the fits of

> trembling, jerky motions while sleeping, the foggy fade outs when

> exhaustion takes over and we keep pushing, even what I call " silent

> migraines (all the symptoms of a migraine excepting the soul

rending

> pain) fit the description of one type or class of siezure or

another.

> So here is my question. How many of you have experienced seizures

of

> any type, without being diagnosed with a siezure disorder such as

> epilepsy?

> I haven't seen any mention of it in any of the sources I have

> researched, and cannot afford to see my Dr at this time, as I have

no

> insurance (my Dr prescribes my meds on a quarterly basis, and only

> sees me to renew them unless it is a real crisis, so as to reduce

my

> medical bills).

> Any help you can give me would be appreceited, as I have to decide

> whether to try to find the money for all the tests the Dr will

likely

> order, or to let it go and see what happens.

> thanks all...

> Mike

[Guest guest]

-Go to your doctor. Can you imagine if you have a serious stroke. The

medical bills will be the least of your worries. Pay 10 bucks a

month. Dont let our health care system kill you.

-- In @y..., " rosesrafterman "

wrote:

> Hi all, I have not been very active since joining, but have been

> reading the posts on and off, when I am both home and well enough

to

> spend time at the computer. Mostly, on work days I am just checking

> mail quickly, then offline, and when I feel good and have the day

> off, I tend to be with my kids.

> I have a question for ya'll though... but I have to lay out my

train

> of thought first.

> Last weekend I had what my fiancee described as a grand mal

siezure

> (she has epilepsy, so knows one when she see one). I have no

history

> of siezures, excepting a few when I was in my late teens while

taking

> a drug I was allergic to.

> From all I have read about different types of siezures, some of

the

> symptoms we have resemble some types of siezures (the fits of

> trembling, jerky motions while sleeping, the foggy fade outs when

> exhaustion takes over and we keep pushing, even what I call " silent

> migraines (all the symptoms of a migraine excepting the soul

rending

> pain) fit the description of one type or class of siezure or

another.

> So here is my question. How many of you have experienced seizures

of

> any type, without being diagnosed with a siezure disorder such as

> epilepsy?

> I haven't seen any mention of it in any of the sources I have

> researched, and cannot afford to see my Dr at this time, as I have

no

> insurance (my Dr prescribes my meds on a quarterly basis, and only

> sees me to renew them unless it is a real crisis, so as to reduce

my

> medical bills).

> Any help you can give me would be appreceited, as I have to decide

> whether to try to find the money for all the tests the Dr will

likely

> order, or to let it go and see what happens.

> thanks all...

> Mike

[Guest guest]

hi. i had a severe grand mal seizure years ago, tests proved

inconclusive, and in hindsight doctors think the chronic fatigue

syndrome played a MAJOR role. i do have seizure like symptoms still,

but the chronic fatigue syndrome produces the symptoms, making me

feel like i'm going to pass out or collapse. the chronic fatigue

syndrome has ruined my life with the MANY strange and disabling

symptoms. still, let them do the tests but make sure they know you

have cfs or fibromyalgia that is a contributing/main factor. good

luck.

[Guest guest]

hi. i had a severe grand mal seizure years ago, tests proved

inconclusive, and in hindsight doctors think the chronic fatigue

syndrome played a MAJOR role. i do have seizure like symptoms still,

but the chronic fatigue syndrome produces the symptoms, making me

feel like i'm going to pass out or collapse. the chronic fatigue

syndrome has ruined my life with the MANY strange and disabling

symptoms. still, let them do the tests but make sure they know you

have cfs or fibromyalgia that is a contributing/main factor. good

luck.

[Guest guest]

Mike

Go to your doctor. Make payment arrangements where you have to, but get it

checked out to make sure that it's nothing more serious than the FM or CFS. I

too have periods of black outs and the symptoms that you have described and

everything so far seems to come up negative. It's very frustrating having FM

due to the fact that there are no conclusive tests that they can run to give you

a definative answer and therefore, lot's of people seem to hold that all of the

symptoms are all in your mind. Good luck.

rosesrafterman wrote:Hi all, I have not been very active since joining, but

have been

reading the posts on and off, when I am both home and well enough to

spend time at the computer. Mostly, on work days I am just checking

mail quickly, then offline, and when I feel good and have the day

off, I tend to be with my kids.

I have a question for ya'll though... but I have to lay out my train

of thought first.

Last weekend I had what my fiancee described as a grand mal siezure

(she has epilepsy, so knows one when she see one). I have no history

of siezures, excepting a few when I was in my late teens while taking

a drug I was allergic to.

From all I have read about different types of siezures, some of the

symptoms we have resemble some types of siezures (the fits of

trembling, jerky motions while sleeping, the foggy fade outs when

exhaustion takes over and we keep pushing, even what I call " silent

migraines (all the symptoms of a migraine excepting the soul rending

pain) fit the description of one type or class of siezure or another.

So here is my question. How many of you have experienced seizures of

any type, without being diagnosed with a siezure disorder such as

epilepsy?

I haven't seen any mention of it in any of the sources I have

researched, and cannot afford to see my Dr at this time, as I have no

insurance (my Dr prescribes my meds on a quarterly basis, and only

sees me to renew them unless it is a real crisis, so as to reduce my

medical bills).

Any help you can give me would be appreceited, as I have to decide

whether to try to find the money for all the tests the Dr will likely

order, or to let it go and see what happens.

thanks all...

Mike

[Guest guest]

Mike

Go to your doctor. Make payment arrangements where you have to, but get it

checked out to make sure that it's nothing more serious than the FM or CFS. I

too have periods of black outs and the symptoms that you have described and

everything so far seems to come up negative. It's very frustrating having FM

due to the fact that there are no conclusive tests that they can run to give you

a definative answer and therefore, lot's of people seem to hold that all of the

symptoms are all in your mind. Good luck.

rosesrafterman wrote:Hi all, I have not been very active since joining, but

have been

reading the posts on and off, when I am both home and well enough to

spend time at the computer. Mostly, on work days I am just checking

mail quickly, then offline, and when I feel good and have the day

off, I tend to be with my kids.

I have a question for ya'll though... but I have to lay out my train

of thought first.

Last weekend I had what my fiancee described as a grand mal siezure

(she has epilepsy, so knows one when she see one). I have no history

of siezures, excepting a few when I was in my late teens while taking

a drug I was allergic to.

From all I have read about different types of siezures, some of the

symptoms we have resemble some types of siezures (the fits of

trembling, jerky motions while sleeping, the foggy fade outs when

exhaustion takes over and we keep pushing, even what I call " silent

migraines (all the symptoms of a migraine excepting the soul rending

pain) fit the description of one type or class of siezure or another.

So here is my question. How many of you have experienced seizures of

any type, without being diagnosed with a siezure disorder such as

epilepsy?

I haven't seen any mention of it in any of the sources I have

researched, and cannot afford to see my Dr at this time, as I have no

insurance (my Dr prescribes my meds on a quarterly basis, and only

sees me to renew them unless it is a real crisis, so as to reduce my

medical bills).

Any help you can give me would be appreceited, as I have to decide

whether to try to find the money for all the tests the Dr will likely

order, or to let it go and see what happens.

thanks all...

Mike

[Guest guest]

some of the symptoms we have resemble some types of siezures (the fits of

trembling,

jerky motions while sleeping

I had no idea jerky motions while sleeping could be related to siezures. I

don't really get them now, but there was a period of time when I did. I would

start jerking/twitching uncontrollably while I was asleep. The movement was

enough to wake me so that I was aware that I was jerking, but I didn't wake

up to a fully conscious state where I could get up and control myself. I

usually

fell back asleep, but remembered it the next day.

On rare occasions I did wake up. This was when my cat was in the bed with me.

Whenever I started this while she was in the bed she'd bite me. Not hard

enough

to break skin, but it always woke me up.

~Jen

[Guest guest]

some of the symptoms we have resemble some types of siezures (the fits of

trembling,

jerky motions while sleeping

I had no idea jerky motions while sleeping could be related to siezures. I

don't really get them now, but there was a period of time when I did. I would

start jerking/twitching uncontrollably while I was asleep. The movement was

enough to wake me so that I was aware that I was jerking, but I didn't wake

up to a fully conscious state where I could get up and control myself. I

usually

fell back asleep, but remembered it the next day.

On rare occasions I did wake up. This was when my cat was in the bed with me.

Whenever I started this while she was in the bed she'd bite me. Not hard

enough

to break skin, but it always woke me up.

~Jen

[Guest guest]

Mike~

I would suggest seeing your doctor to make sure it isn't anything much more

serious than your fms/cfs. Before I was diagnosed with fibro & cfs I started

" passing out. " My aunt, who is a nurse, thought I was siezureing, but thank

heavens it wasn't. I have a disorder that involves dysfunction of the autonomic

nervous system. I go to a cardiologist for it. I hope you find out what it is

soon. Take care of yourself.

~

---------------------------------

[Guest guest]

Mike~

I would suggest seeing your doctor to make sure it isn't anything much more

serious than your fms/cfs. Before I was diagnosed with fibro & cfs I started

" passing out. " My aunt, who is a nurse, thought I was siezureing, but thank

heavens it wasn't. I have a disorder that involves dysfunction of the autonomic

nervous system. I go to a cardiologist for it. I hope you find out what it is

soon. Take care of yourself.

~

---------------------------------

[Guest guest]

Mike~

I would suggest seeing your doctor to make sure it isn't anything much more

serious than your fms/cfs. Before I was diagnosed with fibro & cfs I started

" passing out. " My aunt, who is a nurse, thought I was siezureing, but thank

heavens it wasn't. I have a disorder that involves dysfunction of the autonomic

nervous system. I go to a cardiologist for it. I hope you find out what it is

soon. Take care of yourself.

~

---------------------------------

[Guest guest]

Mike wrote,

> Any help you can give me would be appreciated, as I have to decide

> whether to try to find the money for all the tests the Dr

> will likely

> order, or to let it go and see what happens.

> thanks all...

One disease that can cause seizures big time is MS. My sister has it and she

has had a number of seizures. When you can afford to, I would have testing done

to see if MS is there.

Take care,

Irene