Guest guest Posted January 23, 2009 Report Share Posted January 23, 2009 Chaim, Arne has been known to recommend drinking lots of water. Water might be hard to come by in Israel, but do your best! I am praying you get some relieve. Ian Hello everyone,I have been " suffering " the last week or so from pain in the famousRUQ area. I know this is a well known symptom of PSC, but I amwondering what causes it and what can be done about it. I am up for an ERCP on Monday, and I am hoping that will help (I remember readingsomething like that). I don't think it is an infection, since I don'thave any fever and I feel okay except for the pain.Any insight will be appreciated, Chaim Boermeester, Israel -- Ian Cribb P.Eng. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2009 Report Share Posted January 23, 2009 Chaim, Arne has been known to recommend drinking lots of water. Water might be hard to come by in Israel, but do your best! I am praying you get some relieve. Ian Hello everyone,I have been " suffering " the last week or so from pain in the famousRUQ area. I know this is a well known symptom of PSC, but I amwondering what causes it and what can be done about it. I am up for an ERCP on Monday, and I am hoping that will help (I remember readingsomething like that). I don't think it is an infection, since I don'thave any fever and I feel okay except for the pain.Any insight will be appreciated, Chaim Boermeester, Israel -- Ian Cribb P.Eng. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2009 Report Share Posted January 23, 2009 Chaim, Arne has been known to recommend drinking lots of water. Water might be hard to come by in Israel, but do your best! I am praying you get some relieve. Ian Hello everyone,I have been " suffering " the last week or so from pain in the famousRUQ area. I know this is a well known symptom of PSC, but I amwondering what causes it and what can be done about it. I am up for an ERCP on Monday, and I am hoping that will help (I remember readingsomething like that). I don't think it is an infection, since I don'thave any fever and I feel okay except for the pain.Any insight will be appreciated, Chaim Boermeester, Israel -- Ian Cribb P.Eng. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2009 Report Share Posted January 24, 2009 Your ERCP may help as it did for me last year when I was suffering really bad from pain.If it doesn't please do ask for some pain meds. I have morphine now if my pains really bad. good luck hope you are in less pain soon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2009 Report Share Posted January 24, 2009 Thanks! I hope the ERCP will help. This is a new experience for me. I can't say I am in SERIOUS pain, but it was bad enough not to go to the gym this morning and make finding a comfortable sleeping position hard at night. Regards, Chaim Boermeester, Israel > > Your ERCP may help as it did for me last year when I was suffering > really bad from pain.If it doesn't please do ask for some pain meds. I > have morphine now if my pains really bad. good luck hope you are in > less pain soon > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2009 Report Share Posted January 24, 2009 Thanks! I hope the ERCP will help. This is a new experience for me. I can't say I am in SERIOUS pain, but it was bad enough not to go to the gym this morning and make finding a comfortable sleeping position hard at night. Regards, Chaim Boermeester, Israel > > Your ERCP may help as it did for me last year when I was suffering > really bad from pain.If it doesn't please do ask for some pain meds. I > have morphine now if my pains really bad. good luck hope you are in > less pain soon > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2009 Report Share Posted January 24, 2009 I have basically a discomfort in my abdomen in the RUQ, that becomes a sharp pain when I sneeze, yawn, hick-up, breath deep, burp, cough, stretch or move in a certain way. I only now start to realize how often a day such things happen. Yesterday I drank some diet Sprite with dinner. Big mistake! No soda pop for me for a while. > > Does the pain last for a long time? If I ever have pain it seems to be short sharp pains. > > Sent from my iPhone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2009 Report Share Posted January 24, 2009 Bob has found over the years that he can not tolerate any artificial sweetener. Ginger ale works wonders for him. dee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2009 Report Share Posted January 24, 2009 Yes! I do have shortness of breath. I don't know how that is related to the RUQ pain though. Regards, Chaim Boermeester, Israel > > For years I would get RUQ pain every 4 to 6 weeks, but no fever. I took antibiotics (cipro or flagyl) and I would start to feel better in a few days. More recently (last few years) the pain is almost constant and I get no relief from antibiotics. There is no good explanation for the pain. I too find it hard to sleep at night because of the pain and exercise is very hard if not impossible. Do you have shortness of breath? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2009 Report Share Posted January 24, 2009 Yes! I do have shortness of breath. I don't know how that is related to the RUQ pain though. Regards, Chaim Boermeester, Israel > > For years I would get RUQ pain every 4 to 6 weeks, but no fever. I took antibiotics (cipro or flagyl) and I would start to feel better in a few days. More recently (last few years) the pain is almost constant and I get no relief from antibiotics. There is no good explanation for the pain. I too find it hard to sleep at night because of the pain and exercise is very hard if not impossible. Do you have shortness of breath? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2009 Report Share Posted January 24, 2009 Yes! I do have shortness of breath. I don't know how that is related to the RUQ pain though. Regards, Chaim Boermeester, Israel > > For years I would get RUQ pain every 4 to 6 weeks, but no fever. I took antibiotics (cipro or flagyl) and I would start to feel better in a few days. More recently (last few years) the pain is almost constant and I get no relief from antibiotics. There is no good explanation for the pain. I too find it hard to sleep at night because of the pain and exercise is very hard if not impossible. Do you have shortness of breath? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 , A while ago I had symptoms very similar to what you are discribing and they did some tests but I cannot remeber what they were called. But they determined that I was suffering from Spasms of the Sphicter of Odi. I was placed on a smooth muscle relaxer for a little while and it helped a lot, for the post part the don't happen any more, if the medication did not work, there was a surgical option. I don't know if this is what is happening to you, but I thought I would through it out there. Dawn > > > > > Hello Chaim, >  > I am sorry to hear that you are suffering from the URQ pain. I have been, too, but for a good amount of time, now. Initially, it started as a mild pain in my right upper, then very gradually progressed into a constant, moderate and sometimes intense and pinchy, kind of pain, that radiates into my upper right shoulder, back and if it is intense, then into the left parts, too and even the center. It would stay for a day or more and then i would go back into a mild to moderate, pain. I have read that some PSC'ers does have that same pattern. But, the majority and probably yours, might occur infrequently and with not much intensity, as mine. >  > Antibiotics, might helps only if there is fever [i.e., infection in the BD]. And you know that too much of them causes an unwanted resistance. My theory was the usual understanding of having cholangitis. But my URQ pain, can exist with or without fever or other PSC known symptoms. I would go days, in mild and then suddenly it elevates and can be intense, specially with my bowel irritation [iBD]. So only some months ago, my doctor came up with a reasonable explanation, in addition to cholangitis. That the nerves in membranes around the liver [as few in the groups has explained it too], might be sending some pain signals to other parts of the body. And in my case it is the IBD and UC, that is probably the cause.   >  > I am on constant pain meds, now. It is 30mg of Nortriptyline. But you you might not need them. The ERCP might help. And although my message is late, but good luck with the procedure and i do hope that you will feel much better, afterwards. >  > >  > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 , A while ago I had symptoms very similar to what you are discribing and they did some tests but I cannot remeber what they were called. But they determined that I was suffering from Spasms of the Sphicter of Odi. I was placed on a smooth muscle relaxer for a little while and it helped a lot, for the post part the don't happen any more, if the medication did not work, there was a surgical option. I don't know if this is what is happening to you, but I thought I would through it out there. Dawn > > > > > Hello Chaim, >  > I am sorry to hear that you are suffering from the URQ pain. I have been, too, but for a good amount of time, now. Initially, it started as a mild pain in my right upper, then very gradually progressed into a constant, moderate and sometimes intense and pinchy, kind of pain, that radiates into my upper right shoulder, back and if it is intense, then into the left parts, too and even the center. It would stay for a day or more and then i would go back into a mild to moderate, pain. I have read that some PSC'ers does have that same pattern. But, the majority and probably yours, might occur infrequently and with not much intensity, as mine. >  > Antibiotics, might helps only if there is fever [i.e., infection in the BD]. And you know that too much of them causes an unwanted resistance. My theory was the usual understanding of having cholangitis. But my URQ pain, can exist with or without fever or other PSC known symptoms. I would go days, in mild and then suddenly it elevates and can be intense, specially with my bowel irritation [iBD]. So only some months ago, my doctor came up with a reasonable explanation, in addition to cholangitis. That the nerves in membranes around the liver [as few in the groups has explained it too], might be sending some pain signals to other parts of the body. And in my case it is the IBD and UC, that is probably the cause.   >  > I am on constant pain meds, now. It is 30mg of Nortriptyline. But you you might not need them. The ERCP might help. And although my message is late, but good luck with the procedure and i do hope that you will feel much better, afterwards. >  > >  > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 Well, I am back from the ERCP. There is good news and there is not so good news as well. The ERCP went well, they managed to open up everything they planned to and more. The problem was afterward. Not yet half an hour after the ERCP I started shivering uncontrollably and developed a fever. In short, I was admitted to the hospital with (for me) massive cholangitis and was released late this afternoon (more than two days after the ERCP) on anti-biotics but feeling a lot better and having less pain in the RUQ area. It's not gone, but it is less. So, in the end, it seems it is mostly good news. I hope that this time I will manage to stay out of the hospital for longer than a few weeks. Chaim Boermeester, Israel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 Well, I am back from the ERCP. There is good news and there is not so good news as well. The ERCP went well, they managed to open up everything they planned to and more. The problem was afterward. Not yet half an hour after the ERCP I started shivering uncontrollably and developed a fever. In short, I was admitted to the hospital with (for me) massive cholangitis and was released late this afternoon (more than two days after the ERCP) on anti-biotics but feeling a lot better and having less pain in the RUQ area. It's not gone, but it is less. So, in the end, it seems it is mostly good news. I hope that this time I will manage to stay out of the hospital for longer than a few weeks. Chaim Boermeester, Israel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 Glad your home but I am a little surprised that they let you out so soon when I have a cholangitis attack and tablet anti botics don't work I have to go into hospital for IV anti botics and they usually give you 5 days at least of them before your allowed home. but maybe its different over there. I had an ERCP this time last year and its only a few months ago the pain came back so hopefully it will be the same for you or better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2009 Report Share Posted January 29, 2009 The good thing about social medicine is that you never see a serious bill for anything. In the last three months I had two ERCPs, a colonoscopy, a CT, three hospital stays of 2-4 days and I payed more for parking fees at the hospital than for all these procedures together. The bad thing is that in social medicine there is an incentive to get out of the hospital ASAP, maybe faster than is good. So far it was always enough (I never had to go back after being released) but it might be better to stay a little longer. I did not manage to see the results of the blood cultures before I left the hospital for example. Chaim Boermeester, Israel > > Glad your home but I am a little surprised that they let you out so > soon when I have a cholangitis attack and tablet anti botics don't > work I have to go into hospital for IV anti botics and they usually > give you 5 days at least of them before your allowed home. but maybe > its different over there. I had an ERCP this time last year and its > only a few months ago the pain came back so hopefully it will be the > same for you or better. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2009 Report Share Posted January 29, 2009 The good thing about social medicine is that you never see a serious bill for anything. In the last three months I had two ERCPs, a colonoscopy, a CT, three hospital stays of 2-4 days and I payed more for parking fees at the hospital than for all these procedures together. The bad thing is that in social medicine there is an incentive to get out of the hospital ASAP, maybe faster than is good. So far it was always enough (I never had to go back after being released) but it might be better to stay a little longer. I did not manage to see the results of the blood cultures before I left the hospital for example. Chaim Boermeester, Israel > > Glad your home but I am a little surprised that they let you out so > soon when I have a cholangitis attack and tablet anti botics don't > work I have to go into hospital for IV anti botics and they usually > give you 5 days at least of them before your allowed home. but maybe > its different over there. I had an ERCP this time last year and its > only a few months ago the pain came back so hopefully it will be the > same for you or better. > Quote Link to comment Share on other sites More sharing options...
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