new here from jackie

[Guest guest]

Hi, I'm Jackie, I've been diagnosed for a few years now and am still

trying to find a way to get better. I filled out the questions below

and I'll post more soon, maybe even make a folder - cool option.

Looking forward to meeting everyone,

Jackie

Age range:

almost 40

Male/female: female

What are the symptoms? wow, this would be a long answer. when I first

went to get a dx, I had a typed out list a mile long. most of all,

pain. I have fms, cfs and I forget the abbreviation but it's the

myofacial pain syndrome.

Has you illness been diagnosed? yes

How long did you suffer before you got help? years

Is there a time that you can remember when it started? some things

have been since childhood and some built up, others came suddenly

like the stabbing pains in my ribs etc.

Some of us have found lack of exercise we are overweight. Have you

found this to be a problem also?

I'm sure the lessened activity has contributed to my weightgain, but

I am also

interested in finding out more about hashimoto's thyroiditis which

doesn't show to most doctors in our bloodwork because to them the

levels look enough within " normal " range that they rule out a thyroid

problem. When I get insurance again I'm going dtraight to an

endocrinologist. Many people are getting relief from fibro by

treating this illness. They say fibro is a sympton of it. It's worth

a try because I have 97% of all the symptoms for HT.

Are you on disability? no

If you are any pointers for others trying to get on disability? n/a

What have you found that helps ease the pain, warm baths, medications

etc.?

BEXTRA works for me, it is a new nsaid (like advil) just released

last november. It is usually rx'ed for arthritis and menstrual cramps

but it is helping my fibro pain! (and I have tried all the anti d's,

flexeril and usual meds)

Do you have sleep problems? How do you deal with it? I am sleeping

better now that I have less pain.

Do you have family that understands your illness? yes totally

Some have found certain foods causes problems with CFS or Fibro, have

you? sugar

What type of Doctor have you found that has helped you the most? my

GP, not my rheumy.