Re: Back at Club Med......

[Guest guest]

Strange - that's the second time my response showed up without my

response! I'll try this one on the web (sorry).

I'd like to express my appreciation of the views of other hepatologists

(especially the non-US ones). Every post (minus names) goes to my

hepatologist.

What I've experienced since stopping Urso is:

Some bowel changes - more intermittent gas pain (no change in

habits)

Noticeably more joint aches/pain (I think)

Mild URQ pain every couple of days (generally associated with fat

intake )

I hope Chaim is doing better very soon.

Arne

[Guest guest]

Chaim,Hope you feel better soon.DarcySent from my Verizon Wireless BlackBerryFrom: "e_boermeester" Date: Sat, 06 Dec 2008 20:16:39 -0000To: < >Subject: Back at Club Med...... Chaim is back in the hospital today (almost a month since the previous time) after 2 days of feeling like crap and having a high fever with chills--although we didn't let the fever get to more than 39.6 C. His Lft's are fine and WBC's pretty good, only the bilirubin is a bit high, I think he said 1.3 or 1.6 mg/dl. No antibiotics yet though. My guess is they will do an ERCP. How else are they going to know what is going on and do something if there's an infection? Hopefully tomorrow morning he'll be seen by gastro/ hept. specialist and then we'll know a bit more. We just don't get it and of course it's scary. But relative to others, we have it pretty easy... I do have some good news though, last Tuesday we attended our 2nd yearly conference with the Israeli Hepatitis Foundation, which has now changed their name to " The Israeli Healthy Liver Foundation " (of which we are a part of). We had the opportunity to ask a panel of top Israeli Hepatologists and gastroentrologists about what they though of the results of Lindor's high Urso study. They were unanimous in their opinion about not jumping the gun and to continue taking Urso until a) further research is done b)Lindor's study & results were properly and thoroughly reviewed by a group of his peers, even if Lindor is one of the top in the field. This also being Chaim's hepatologist's view, we were reassured to hear this. My best to all of you, Ellen

[Guest guest]

Chaim,Hope you feel better soon.DarcySent from my Verizon Wireless BlackBerryFrom: "e_boermeester" Date: Sat, 06 Dec 2008 20:16:39 -0000To: < >Subject: Back at Club Med...... Chaim is back in the hospital today (almost a month since the previous time) after 2 days of feeling like crap and having a high fever with chills--although we didn't let the fever get to more than 39.6 C. His Lft's are fine and WBC's pretty good, only the bilirubin is a bit high, I think he said 1.3 or 1.6 mg/dl. No antibiotics yet though. My guess is they will do an ERCP. How else are they going to know what is going on and do something if there's an infection? Hopefully tomorrow morning he'll be seen by gastro/ hept. specialist and then we'll know a bit more. We just don't get it and of course it's scary. But relative to others, we have it pretty easy... I do have some good news though, last Tuesday we attended our 2nd yearly conference with the Israeli Hepatitis Foundation, which has now changed their name to " The Israeli Healthy Liver Foundation " (of which we are a part of). We had the opportunity to ask a panel of top Israeli Hepatologists and gastroentrologists about what they though of the results of Lindor's high Urso study. They were unanimous in their opinion about not jumping the gun and to continue taking Urso until a) further research is done b)Lindor's study & results were properly and thoroughly reviewed by a group of his peers, even if Lindor is one of the top in the field. This also being Chaim's hepatologist's view, we were reassured to hear this. My best to all of you, Ellen