Re: medical merry-go-round -frustrated, hurting, and still in the dark and other problems - my life is just h*ll (long)

[Guest guest]

I think the malpractice attorney sounds like a good idea. Maybe see

if you can get into legal aid.

>

> had to cut and paste- mispelled name~~

>

>

> Re: Here is an update and I can't believe that I am still looking

for answers and not getting treated!!!!!

> Re:

> Re: first, after jumping throught their hoops and waiting 3 weeks-

the ortho doc who was supposed to see me for my arm refused to give

me an appointment-he thinks the current doc is treating me the right

way. i am so frustrated and even angry.

> Re:

> Re: OK- then i go to the pain management doc for the post op visits

after the esi's. noticed that buuring pain was relieved but that is

all- i still have the aching pain on lower back and also once the

burning pain was releuived i am now feeling the dull ache higher in

my back (which make sense - the CT scan showed herniations at every

level of my lumbar spine)

> Re:

> Re: EMG results showed

> Re: 1.) bilateral C4-C5 nerve root irritation

> Re: 2.) bilateral L4-L5 and L5-S1 nerve root irritation

> Re: 3.) ulner neuropathy left elbow

> Re:

> Re: Also found out that the jerk who did the emg WAS NOT a doctor-

she called him a tech and explained that he is a doctor in another

country but not here in the US- how do I know he actually knew what

he was doing?????? The paim management doc is the one who intreprets

the test and writes up the report- the tech's name is no where on the

paperworek. - that sounds weird to me........

> Re:

> Re: could the nerves in the neck that are irritated be causing any

of the problem in my arms- no one knows. everyone is passing the buck.

> Re:

> Re: Do i go back to the ortho guy who did the surgery on my

shoulder - (who told me to go somewhere else) with the reesults of

the emg and see what he says? In addition no one seem to know what

the painful lump is at my shoulder- is scar tissue painful??

> Re: after she pushed on that lump - it made the entire shoulder to

ache the rest of the day.

> Re:

> Re: She then told me the the ulner nerve problem cpould be causing

the pain spasms in the upper arm- since I have been having the pain

spasms since last July- and the elbow problem just started - that

can't be correct.

> Re:

> Re: she thought about injecting the elbow with cortisone but then

decided not to do it.

> Re:

> Re: icing on the cake - i told her that the ortho doc wanted me to

see a rhematologsit to rule out fibro and she became very interested-

she told me that she didn't think i had fibro and she decided to do

the tender points exam.

> Re:

> Re: she told me that she chooses the points on the sternum, elbow,

hips and knees- the neck and shoulders she had alreay examined and

she knew they were sore to the touch- all tender points that she did

were very painful. She then counted and came up with more than 11

painful tender points.

> Re:

> Re: She then wavered back and forth telling me that I had fibro

or ,maybe it is fibro- then she started looking for other reasons

that the temder points were painful. It appeared that she did not

want to be the one who daignosed whether or not I have fibro. She

did not give me a definative diagnosis- told me to go to the

rheumatologit and see what he says. so I am still in limbo.....still

in pain.....still very confused and frustrated.

> Re:

> Re: She wants me to get a MRI of my shoulder and she wants the

closed unit to be used since they give better pictures. explained

that I need the open MRI- she explained the places will sedate you -

but it is not by a doctor- it is a paramedic. She also wanted me to

go back to the same place who really screwed up my CT scan - I can't

think that I would go back to that place- and allow then to be

responsible to sedate me without harming me.

> Re: ****************************************************

> Re: Since I then knew that there was something wrong in my neck, I

decided to see a neurologist, on my own. This guy is very straight

forward, and not afraid to dispute what other doctors have said.

> Re:

> Re: He was blown away by the amount of narcotics I was taking. But

neurologists are ones that don't prescribe narcotics- he told me I

needed more anti-depressant and more neurontin. He was also

overwhelmed with the list of all my surgeries and current problems.

> Re:

> Re: Bottom line - according to the neurologist: I have a orthopedic

problem in my shoulder and he thinks that the nerves were damaged

during the shoiulder surgery and the pain spasms are related to the

shoulder and need to be treated by an ortho doc.

> Re:

> Re: The ulner nerve problem because I have been leaning on my

elbows- and I really don't know if this is true or not. My left arm

has been in my lap most of the time since that is where I can rest it

amnd decrease the chance of the spasm from happening. I really don't

think that I have been leaning on my elbows but I am not sure that I

would remeber it if I did do it.

> Re:

> Re: He told me that the misalignment that I currently have in my

spine (which the PM doc blames for alot of my spinal pain) was NOT

there preoperatively- according to the preop MRI.

> Re:

> Re: In fact he told me that from looking at the MRI films - I had

DDD more than a herniated disk - so everything the spinal surgeon

told me before surgery and last month has been lies. There is nothing

surgical that can be done- so I will have the pain the rest of my

life.

> Re: ****************************************************

> Re: so I get home and get into a hugh fight with husband- we don't

have money to pay for the insurance and medications, may not have the

money to pay the mortage.

> Re:

> Re: His friend tried acupuncture and it relieved alot of his pain

so I need to try acupuncture- even if insurance doesn't cover it. My

PM doctor is trained in acupuncture- if she thought it would hrlp-

don't you think she would have suggested it?

> Re:

> Re: Then he throws at me the stuff a " wellness " doc has been

talking about on the radio - " all your symptoms could be cause by low

hormomes and low thyroid " (even though I am on HRT and thyroid )

> Re:

> Re: you need to go to the radio doc and see what he can do since

the medical docs and their drugs don't seem to be helping. Even

though this doc doesn't take any insurance and his charges for his

full treatment plan is like over $2000. I ended up in tears of

course. and I really don't know what to do.

> Re:

> Re: He tell me that the meds are not working - I try to explain

that my pain would be worse if I wasn't on the pills- he tells me

that the doctors aren't doing anything- well. the ortho doc won't see

me - my current ortho doc tell me to go elswhere-the spinal doc has

been lying to me all along. I am in limbo, I try and explain how I

feel and the fear I have every day, the fear that something is really

wrong and everyone is missing it. The fear that the spasms will

increase in frequescy - afraid of the next spasm and trying to will

it away. I try and explain how I feel when I can't fall asleep at

night, and how the terrible cramps in my calf walk me up in so much

pain. I tell him that there are times that I cannot remember the name

of something- meds won't affect you that way- all your memory would

be affected - but fibro has specific sysptoms and he call it a made

up disease that no one know much about. I realize that he loves me

and wants me to get better but this is not the w!

> Re: ay to do it.

> Re:

> Re: I am so tired of fighting for good medical care. We have Cobra

until October if we can make the payments. Once we miss a month we

lose the rest of the coverage. We looked into other coverages- and

they are even more expensive and cover less. Bill needs his diabetic

meds and I have my meds that I take- don't know how we are going to

afford that without insurance.

> Re:

> Re: Sorry that I have bent your ears with my problems - I would

appreciate any comments, suggestions etc -esp on the results of the

fibo test and what the neurologist told me. (We think we need to

look for a malpractice attorney.)

> Re:

> Re:

> Re: --

> Re: _______________________________________________

> Re: Sign-up for your own FREE Personalized E-mail at Mail.com

> Re: http://www.mail.com/?sr=signup

> Re:

> Re:

>

> --

> _______________________________________________

> Sign-up for your own FREE Personalized E-mail at Mail.com

> http://www.mail.com/?sr=signup

[Guest guest]

I think the malpractice attorney sounds like a good idea. Maybe see

if you can get into legal aid.

>

> had to cut and paste- mispelled name~~

>

>

> Re: Here is an update and I can't believe that I am still looking

for answers and not getting treated!!!!!

> Re:

> Re: first, after jumping throught their hoops and waiting 3 weeks-

the ortho doc who was supposed to see me for my arm refused to give

me an appointment-he thinks the current doc is treating me the right

way. i am so frustrated and even angry.

> Re:

> Re: OK- then i go to the pain management doc for the post op visits

after the esi's. noticed that buuring pain was relieved but that is

all- i still have the aching pain on lower back and also once the

burning pain was releuived i am now feeling the dull ache higher in

my back (which make sense - the CT scan showed herniations at every

level of my lumbar spine)

> Re:

> Re: EMG results showed

> Re: 1.) bilateral C4-C5 nerve root irritation

> Re: 2.) bilateral L4-L5 and L5-S1 nerve root irritation

> Re: 3.) ulner neuropathy left elbow

> Re:

> Re: Also found out that the jerk who did the emg WAS NOT a doctor-

she called him a tech and explained that he is a doctor in another

country but not here in the US- how do I know he actually knew what

he was doing?????? The paim management doc is the one who intreprets

the test and writes up the report- the tech's name is no where on the

paperworek. - that sounds weird to me........

> Re:

> Re: could the nerves in the neck that are irritated be causing any

of the problem in my arms- no one knows. everyone is passing the buck.

> Re:

> Re: Do i go back to the ortho guy who did the surgery on my

shoulder - (who told me to go somewhere else) with the reesults of

the emg and see what he says? In addition no one seem to know what

the painful lump is at my shoulder- is scar tissue painful??

> Re: after she pushed on that lump - it made the entire shoulder to

ache the rest of the day.

> Re:

> Re: She then told me the the ulner nerve problem cpould be causing

the pain spasms in the upper arm- since I have been having the pain

spasms since last July- and the elbow problem just started - that

can't be correct.

> Re:

> Re: she thought about injecting the elbow with cortisone but then

decided not to do it.

> Re:

> Re: icing on the cake - i told her that the ortho doc wanted me to

see a rhematologsit to rule out fibro and she became very interested-

she told me that she didn't think i had fibro and she decided to do

the tender points exam.

> Re:

> Re: she told me that she chooses the points on the sternum, elbow,

hips and knees- the neck and shoulders she had alreay examined and

she knew they were sore to the touch- all tender points that she did

were very painful. She then counted and came up with more than 11

painful tender points.

> Re:

> Re: She then wavered back and forth telling me that I had fibro

or ,maybe it is fibro- then she started looking for other reasons

that the temder points were painful. It appeared that she did not

want to be the one who daignosed whether or not I have fibro. She

did not give me a definative diagnosis- told me to go to the

rheumatologit and see what he says. so I am still in limbo.....still

in pain.....still very confused and frustrated.

> Re:

> Re: She wants me to get a MRI of my shoulder and she wants the

closed unit to be used since they give better pictures. explained

that I need the open MRI- she explained the places will sedate you -

but it is not by a doctor- it is a paramedic. She also wanted me to

go back to the same place who really screwed up my CT scan - I can't

think that I would go back to that place- and allow then to be

responsible to sedate me without harming me.

> Re: ****************************************************

> Re: Since I then knew that there was something wrong in my neck, I

decided to see a neurologist, on my own. This guy is very straight

forward, and not afraid to dispute what other doctors have said.

> Re:

> Re: He was blown away by the amount of narcotics I was taking. But

neurologists are ones that don't prescribe narcotics- he told me I

needed more anti-depressant and more neurontin. He was also

overwhelmed with the list of all my surgeries and current problems.

> Re:

> Re: Bottom line - according to the neurologist: I have a orthopedic

problem in my shoulder and he thinks that the nerves were damaged

during the shoiulder surgery and the pain spasms are related to the

shoulder and need to be treated by an ortho doc.

> Re:

> Re: The ulner nerve problem because I have been leaning on my

elbows- and I really don't know if this is true or not. My left arm

has been in my lap most of the time since that is where I can rest it

amnd decrease the chance of the spasm from happening. I really don't

think that I have been leaning on my elbows but I am not sure that I

would remeber it if I did do it.

> Re:

> Re: He told me that the misalignment that I currently have in my

spine (which the PM doc blames for alot of my spinal pain) was NOT

there preoperatively- according to the preop MRI.

> Re:

> Re: In fact he told me that from looking at the MRI films - I had

DDD more than a herniated disk - so everything the spinal surgeon

told me before surgery and last month has been lies. There is nothing

surgical that can be done- so I will have the pain the rest of my

life.

> Re: ****************************************************

> Re: so I get home and get into a hugh fight with husband- we don't

have money to pay for the insurance and medications, may not have the

money to pay the mortage.

> Re:

> Re: His friend tried acupuncture and it relieved alot of his pain

so I need to try acupuncture- even if insurance doesn't cover it. My

PM doctor is trained in acupuncture- if she thought it would hrlp-

don't you think she would have suggested it?

> Re:

> Re: Then he throws at me the stuff a " wellness " doc has been

talking about on the radio - " all your symptoms could be cause by low

hormomes and low thyroid " (even though I am on HRT and thyroid )

> Re:

> Re: you need to go to the radio doc and see what he can do since

the medical docs and their drugs don't seem to be helping. Even

though this doc doesn't take any insurance and his charges for his

full treatment plan is like over $2000. I ended up in tears of

course. and I really don't know what to do.

> Re:

> Re: He tell me that the meds are not working - I try to explain

that my pain would be worse if I wasn't on the pills- he tells me

that the doctors aren't doing anything- well. the ortho doc won't see

me - my current ortho doc tell me to go elswhere-the spinal doc has

been lying to me all along. I am in limbo, I try and explain how I

feel and the fear I have every day, the fear that something is really

wrong and everyone is missing it. The fear that the spasms will

increase in frequescy - afraid of the next spasm and trying to will

it away. I try and explain how I feel when I can't fall asleep at

night, and how the terrible cramps in my calf walk me up in so much

pain. I tell him that there are times that I cannot remember the name

of something- meds won't affect you that way- all your memory would

be affected - but fibro has specific sysptoms and he call it a made

up disease that no one know much about. I realize that he loves me

and wants me to get better but this is not the w!

> Re: ay to do it.

> Re:

> Re: I am so tired of fighting for good medical care. We have Cobra

until October if we can make the payments. Once we miss a month we

lose the rest of the coverage. We looked into other coverages- and

they are even more expensive and cover less. Bill needs his diabetic

meds and I have my meds that I take- don't know how we are going to

afford that without insurance.

> Re:

> Re: Sorry that I have bent your ears with my problems - I would

appreciate any comments, suggestions etc -esp on the results of the

fibo test and what the neurologist told me. (We think we need to

look for a malpractice attorney.)

> Re:

> Re:

> Re: --

> Re: _______________________________________________

> Re: Sign-up for your own FREE Personalized E-mail at Mail.com

> Re: http://www.mail.com/?sr=signup

> Re:

> Re:

>

> --

> _______________________________________________

> Sign-up for your own FREE Personalized E-mail at Mail.com

> http://www.mail.com/?sr=signup

[Guest guest]

I think the malpractice attorney sounds like a good idea. Maybe see

if you can get into legal aid.

>

> had to cut and paste- mispelled name~~

>

>

> Re: Here is an update and I can't believe that I am still looking

for answers and not getting treated!!!!!

> Re:

> Re: first, after jumping throught their hoops and waiting 3 weeks-

the ortho doc who was supposed to see me for my arm refused to give

me an appointment-he thinks the current doc is treating me the right

way. i am so frustrated and even angry.

> Re:

> Re: OK- then i go to the pain management doc for the post op visits

after the esi's. noticed that buuring pain was relieved but that is

all- i still have the aching pain on lower back and also once the

burning pain was releuived i am now feeling the dull ache higher in

my back (which make sense - the CT scan showed herniations at every

level of my lumbar spine)

> Re:

> Re: EMG results showed

> Re: 1.) bilateral C4-C5 nerve root irritation

> Re: 2.) bilateral L4-L5 and L5-S1 nerve root irritation

> Re: 3.) ulner neuropathy left elbow

> Re:

> Re: Also found out that the jerk who did the emg WAS NOT a doctor-

she called him a tech and explained that he is a doctor in another

country but not here in the US- how do I know he actually knew what

he was doing?????? The paim management doc is the one who intreprets

the test and writes up the report- the tech's name is no where on the

paperworek. - that sounds weird to me........

> Re:

> Re: could the nerves in the neck that are irritated be causing any

of the problem in my arms- no one knows. everyone is passing the buck.

> Re:

> Re: Do i go back to the ortho guy who did the surgery on my

shoulder - (who told me to go somewhere else) with the reesults of

the emg and see what he says? In addition no one seem to know what

the painful lump is at my shoulder- is scar tissue painful??

> Re: after she pushed on that lump - it made the entire shoulder to

ache the rest of the day.

> Re:

> Re: She then told me the the ulner nerve problem cpould be causing

the pain spasms in the upper arm- since I have been having the pain

spasms since last July- and the elbow problem just started - that

can't be correct.

> Re:

> Re: she thought about injecting the elbow with cortisone but then

decided not to do it.

> Re:

> Re: icing on the cake - i told her that the ortho doc wanted me to

see a rhematologsit to rule out fibro and she became very interested-

she told me that she didn't think i had fibro and she decided to do

the tender points exam.

> Re:

> Re: she told me that she chooses the points on the sternum, elbow,

hips and knees- the neck and shoulders she had alreay examined and

she knew they were sore to the touch- all tender points that she did

were very painful. She then counted and came up with more than 11

painful tender points.

> Re:

> Re: She then wavered back and forth telling me that I had fibro

or ,maybe it is fibro- then she started looking for other reasons

that the temder points were painful. It appeared that she did not

want to be the one who daignosed whether or not I have fibro. She

did not give me a definative diagnosis- told me to go to the

rheumatologit and see what he says. so I am still in limbo.....still

in pain.....still very confused and frustrated.

> Re:

> Re: She wants me to get a MRI of my shoulder and she wants the

closed unit to be used since they give better pictures. explained

that I need the open MRI- she explained the places will sedate you -

but it is not by a doctor- it is a paramedic. She also wanted me to

go back to the same place who really screwed up my CT scan - I can't

think that I would go back to that place- and allow then to be

responsible to sedate me without harming me.

> Re: ****************************************************

> Re: Since I then knew that there was something wrong in my neck, I

decided to see a neurologist, on my own. This guy is very straight

forward, and not afraid to dispute what other doctors have said.

> Re:

> Re: He was blown away by the amount of narcotics I was taking. But

neurologists are ones that don't prescribe narcotics- he told me I

needed more anti-depressant and more neurontin. He was also

overwhelmed with the list of all my surgeries and current problems.

> Re:

> Re: Bottom line - according to the neurologist: I have a orthopedic

problem in my shoulder and he thinks that the nerves were damaged

during the shoiulder surgery and the pain spasms are related to the

shoulder and need to be treated by an ortho doc.

> Re:

> Re: The ulner nerve problem because I have been leaning on my

elbows- and I really don't know if this is true or not. My left arm

has been in my lap most of the time since that is where I can rest it

amnd decrease the chance of the spasm from happening. I really don't

think that I have been leaning on my elbows but I am not sure that I

would remeber it if I did do it.

> Re:

> Re: He told me that the misalignment that I currently have in my

spine (which the PM doc blames for alot of my spinal pain) was NOT

there preoperatively- according to the preop MRI.

> Re:

> Re: In fact he told me that from looking at the MRI films - I had

DDD more than a herniated disk - so everything the spinal surgeon

told me before surgery and last month has been lies. There is nothing

surgical that can be done- so I will have the pain the rest of my

life.

> Re: ****************************************************

> Re: so I get home and get into a hugh fight with husband- we don't

have money to pay for the insurance and medications, may not have the

money to pay the mortage.

> Re:

> Re: His friend tried acupuncture and it relieved alot of his pain

so I need to try acupuncture- even if insurance doesn't cover it. My

PM doctor is trained in acupuncture- if she thought it would hrlp-

don't you think she would have suggested it?

> Re:

> Re: Then he throws at me the stuff a " wellness " doc has been

talking about on the radio - " all your symptoms could be cause by low

hormomes and low thyroid " (even though I am on HRT and thyroid )

> Re:

> Re: you need to go to the radio doc and see what he can do since

the medical docs and their drugs don't seem to be helping. Even

though this doc doesn't take any insurance and his charges for his

full treatment plan is like over $2000. I ended up in tears of

course. and I really don't know what to do.

> Re:

> Re: He tell me that the meds are not working - I try to explain

that my pain would be worse if I wasn't on the pills- he tells me

that the doctors aren't doing anything- well. the ortho doc won't see

me - my current ortho doc tell me to go elswhere-the spinal doc has

been lying to me all along. I am in limbo, I try and explain how I

feel and the fear I have every day, the fear that something is really

wrong and everyone is missing it. The fear that the spasms will

increase in frequescy - afraid of the next spasm and trying to will

it away. I try and explain how I feel when I can't fall asleep at

night, and how the terrible cramps in my calf walk me up in so much

pain. I tell him that there are times that I cannot remember the name

of something- meds won't affect you that way- all your memory would

be affected - but fibro has specific sysptoms and he call it a made

up disease that no one know much about. I realize that he loves me

and wants me to get better but this is not the w!

> Re: ay to do it.

> Re:

> Re: I am so tired of fighting for good medical care. We have Cobra

until October if we can make the payments. Once we miss a month we

lose the rest of the coverage. We looked into other coverages- and

they are even more expensive and cover less. Bill needs his diabetic

meds and I have my meds that I take- don't know how we are going to

afford that without insurance.

> Re:

> Re: Sorry that I have bent your ears with my problems - I would

appreciate any comments, suggestions etc -esp on the results of the

fibo test and what the neurologist told me. (We think we need to

look for a malpractice attorney.)

> Re:

> Re:

> Re: --

> Re: _______________________________________________

> Re: Sign-up for your own FREE Personalized E-mail at Mail.com

> Re: http://www.mail.com/?sr=signup

> Re:

> Re:

>

> --

> _______________________________________________

> Sign-up for your own FREE Personalized E-mail at Mail.com

> http://www.mail.com/?sr=signup

[Guest guest]

Hello All-

I just read this all and it seems like to me that you need more

then ONE malpractice attorney. I don't know if you or your husband

works or not, but here is an idea if you don't; why dont you, him or

both apply for disability, social security and SSI??? I live in

Minnesota and here there is an insurance called Minnesota Care and

maybe there is somthing in Kansas like that and it goes by your

income, that is just something you can look into. I am sorry that you

are going through all of this, so if you need a shoulder to cry on or

an ear to listen to you just give me a call.

-

> >

> > had to cut and paste- mispelled name~~

> >

> >

> > Re: Here is an update and I can't believe that I am still looking

> for answers and not getting treated!!!!!

> > Re:

> > Re: first, after jumping throught their hoops and waiting 3 weeks-

> the ortho doc who was supposed to see me for my arm refused to give

> me an appointment-he thinks the current doc is treating me the

right

> way. i am so frustrated and even angry.

> > Re:

> > Re: OK- then i go to the pain management doc for the post op

visits

> after the esi's. noticed that buuring pain was relieved but that is

> all- i still have the aching pain on lower back and also once the

> burning pain was releuived i am now feeling the dull ache higher in

> my back (which make sense - the CT scan showed herniations at every

> level of my lumbar spine)

> > Re:

> > Re: EMG results showed

> > Re: 1.) bilateral C4-C5 nerve root irritation

> > Re: 2.) bilateral L4-L5 and L5-S1 nerve root irritation

> > Re: 3.) ulner neuropathy left elbow

> > Re:

> > Re: Also found out that the jerk who did the emg WAS NOT a doctor-

> she called him a tech and explained that he is a doctor in another

> country but not here in the US- how do I know he actually knew what

> he was doing?????? The paim management doc is the one who

intreprets

> the test and writes up the report- the tech's name is no where on

the

> paperworek. - that sounds weird to me........

> > Re:

> > Re: could the nerves in the neck that are irritated be causing

any

> of the problem in my arms- no one knows. everyone is passing the

buck.

> > Re:

> > Re: Do i go back to the ortho guy who did the surgery on my

> shoulder - (who told me to go somewhere else) with the reesults of

> the emg and see what he says? In addition no one seem to know what

> the painful lump is at my shoulder- is scar tissue painful??

> > Re: after she pushed on that lump - it made the entire shoulder

to

> ache the rest of the day.

> > Re:

> > Re: She then told me the the ulner nerve problem cpould be

causing

> the pain spasms in the upper arm- since I have been having the pain

> spasms since last July- and the elbow problem just started - that

> can't be correct.

> > Re:

> > Re: she thought about injecting the elbow with cortisone but then

> decided not to do it.

> > Re:

> > Re: icing on the cake - i told her that the ortho doc wanted me

to

> see a rhematologsit to rule out fibro and she became very

interested-

> she told me that she didn't think i had fibro and she decided to do

> the tender points exam.

> > Re:

> > Re: she told me that she chooses the points on the sternum,

elbow,

> hips and knees- the neck and shoulders she had alreay examined and

> she knew they were sore to the touch- all tender points that she

did

> were very painful. She then counted and came up with more than 11

> painful tender points.

> > Re:

> > Re: She then wavered back and forth telling me that I had fibro

> or ,maybe it is fibro- then she started looking for other reasons

> that the temder points were painful. It appeared that she did not

> want to be the one who daignosed whether or not I have fibro. She

> did not give me a definative diagnosis- told me to go to the

> rheumatologit and see what he says. so I am still in

limbo.....still

> in pain.....still very confused and frustrated.

> > Re:

> > Re: She wants me to get a MRI of my shoulder and she wants the

> closed unit to be used since they give better pictures. explained

> that I need the open MRI- she explained the places will sedate you -

> but it is not by a doctor- it is a paramedic. She also wanted me to

> go back to the same place who really screwed up my CT scan - I

can't

> think that I would go back to that place- and allow then to be

> responsible to sedate me without harming me.

> > Re: ****************************************************

> > Re: Since I then knew that there was something wrong in my neck,

I

> decided to see a neurologist, on my own. This guy is very straight

> forward, and not afraid to dispute what other doctors have said.

> > Re:

> > Re: He was blown away by the amount of narcotics I was taking.

But

> neurologists are ones that don't prescribe narcotics- he told me I

> needed more anti-depressant and more neurontin. He was also

> overwhelmed with the list of all my surgeries and current problems.

> > Re:

> > Re: Bottom line - according to the neurologist: I have a

orthopedic

> problem in my shoulder and he thinks that the nerves were damaged

> during the shoiulder surgery and the pain spasms are related to

the

> shoulder and need to be treated by an ortho doc.

> > Re:

> > Re: The ulner nerve problem because I have been leaning on my

> elbows- and I really don't know if this is true or not. My left arm

> has been in my lap most of the time since that is where I can rest

it

> amnd decrease the chance of the spasm from happening. I really

don't

> think that I have been leaning on my elbows but I am not sure that

I

> would remeber it if I did do it.

> > Re:

> > Re: He told me that the misalignment that I currently have in my

> spine (which the PM doc blames for alot of my spinal pain) was NOT

> there preoperatively- according to the preop MRI.

> > Re:

> > Re: In fact he told me that from looking at the MRI films - I had

> DDD more than a herniated disk - so everything the spinal surgeon

> told me before surgery and last month has been lies. There is

nothing

> surgical that can be done- so I will have the pain the rest of my

> life.

> > Re: ****************************************************

> > Re: so I get home and get into a hugh fight with husband- we

don't

> have money to pay for the insurance and medications, may not have

the

> money to pay the mortage.

> > Re:

> > Re: His friend tried acupuncture and it relieved alot of his pain

> so I need to try acupuncture- even if insurance doesn't cover it.

My

> PM doctor is trained in acupuncture- if she thought it would hrlp-

> don't you think she would have suggested it?

> > Re:

> > Re: Then he throws at me the stuff a " wellness " doc has been

> talking about on the radio - " all your symptoms could be cause by

low

> hormomes and low thyroid " (even though I am on HRT and thyroid )

> > Re:

> > Re: you need to go to the radio doc and see what he can do since

> the medical docs and their drugs don't seem to be helping. Even

> though this doc doesn't take any insurance and his charges for his

> full treatment plan is like over $2000. I ended up in tears of

> course. and I really don't know what to do.

> > Re:

> > Re: He tell me that the meds are not working - I try to explain

> that my pain would be worse if I wasn't on the pills- he tells me

> that the doctors aren't doing anything- well. the ortho doc won't

see

> me - my current ortho doc tell me to go elswhere-the spinal doc has

> been lying to me all along. I am in limbo, I try and explain how I

> feel and the fear I have every day, the fear that something is

really

> wrong and everyone is missing it. The fear that the spasms will

> increase in frequescy - afraid of the next spasm and trying to will

> it away. I try and explain how I feel when I can't fall asleep at

> night, and how the terrible cramps in my calf walk me up in so much

> pain. I tell him that there are times that I cannot remember the

name

> of something- meds won't affect you that way- all your memory would

> be affected - but fibro has specific sysptoms and he call it a made

> up disease that no one know much about. I realize that he loves me

> and wants me to get better but this is not the w!

> > Re: ay to do it.

> > Re:

> > Re: I am so tired of fighting for good medical care. We have

Cobra

> until October if we can make the payments. Once we miss a month we

> lose the rest of the coverage. We looked into other coverages- and

> they are even more expensive and cover less. Bill needs his

diabetic

> meds and I have my meds that I take- don't know how we are going to

> afford that without insurance.

> > Re:

> > Re: Sorry that I have bent your ears with my problems - I would

> appreciate any comments, suggestions etc -esp on the results of the

> fibo test and what the neurologist told me. (We think we need to

> look for a malpractice attorney.)

> > Re:

> > Re:

> > Re: --

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