Guest guest Posted March 15, 2005 Report Share Posted March 15, 2005 on 3/15/05 7:41 AM, LaCretia Mozingo at lacretiamo@... wrote: > >> So what do you think would have happened if you did not take the >> cortisone? > > I believe that the adrenals would continue to be damaged and eventually to > the point that you get 's disease (which is perminent) > >> Doyou thik your adrenals woudl not have healed and you would have needed to >> then start taking it for good? > > Yes it is possible and then again the body may have eventually been able to > heal by itself. The only way I could see the body doing this is if you were > somewhere in which you were albe to rest and stay away from stress for a > long period of time (say a year) I have read folks who have done > this...they quit their job and move to the country to rest for a while. I sort of did that, It has been 17 months now...of course I still had some emotional stress out here....majorly....but otherthat that - solitude. (The solitude practically droive me crazy, LOL!) > >>> There are many disadvatages to taking steroid treatment. >> In YOUR personal experience, can you tell me what they are? > > My personal experience with Cortef is that it limits you in the biggest way. > You receive 20mg a day and a normal person will produce about 30-40mg a > day. Already you can see that you only have so much available to you and > when you run out...crash! What exactly do you mean by CRASH? I started takiong CORTISONE again yesterday...felt better, but the last dose of 2.5 mg I took at 10:30 PM. I was slepeing fine until I woke up at 3:30 AM with my heart pounding. I took a small nibble of CORTISONE, and it went promptly away. Is this kind of thing to be expected when you begin taking CORTISONE? Are these the kinds of things you mean by " crashing " >So, say for instance one day you have a very > stressful day...boss is yelling at you and you are overworked... bam... you > burn the 20mg too fast and end up not having enough Cortef to finish your > day thus crashing from there. There is also the issue of keeping your > electrolites in check. They easily get out of balance and cause many > issues... for one if the salt is low enough in the body and the water in > your body is high...then you get symptoms of severe nausea to vomiting, > muscle weakness, a severe fatigue. If your potassium drops...you get muscle > cramps and twitches compared to the fatigue that you would get with low > salt. Keeping these balanced without the body's normal mechanisms (you are > supplimenting and thus shutting the adrenals down so the body's normal > mechnisms are shut down to a point also) is difficult. >Knowing what happens > when salt is low vs. when potassium is low helps you to know which to > manipulate to get your body back to it's natural balance. These two > (salt/potassium) are critical for energy to be made in your cells. They are > like a seesaw...if one goes down the other goes up and vise versa. The need > to be balanced. Any kind of vacation or extra activities require you to up > you dosage in order to avoid a crash afterwards. Not to mention now you > have an appeitite (before diagnoeses I could barely eat without gagging) you > gain weight. For me this was good in the beginning but you soon see that > the eating can get out of control and so can your weight. If the body is > able to do these things it's much better of course and it has built in > sensors to determine when salt/potassium needs adjusting. I think the worse > part is when you run out of Cortef in your body and crash. I call it > running out of spoons...(you had to read the article on youdontlooksick.com > to understand the spoon theory) You have to go to bed from there and hope > it doesn't last 2-3 days...as it can. > > I hope this helps. You are more than welcome to ask me any questions you > have. I will say that now that I am down to 5mg.. I know some people will > think how when I say this but, I actually feel my body doing the work > somewhat now and I can feel a more consistent state through the day than the > ups and down's the cortef would give me through the day before. I have had > a couple of what I would call hyper states in that it feels like the > adrenals are beginning to putter back on and off trying to work again. > Remember Cortef has a 4 hr life and at the end of the 4hrs you feel it and > have to take another dose to come back up again. Thus getting the ups and > down feelings all day long! Should I take it 6 times a day then, night time as well? I already ended up dong that last night, lOL! Darn that makes it tought becasue I have to take DMSA+ALA precisely every 3 hours or less, evenall through the night. Hmmm...... I got the 20 mg pills because they were the least expensive, but I am assuming that a 5 mg pill would be easier to deal with. > > PS. I am now reading up on something I found interesting about folks that > have Thyroid issues and adrenal issues called Euvolemic Hyponatremia. This > I feel is the name of the episodes a person gets when vomiting and going to > the bathroom constently. Oooh.....a couple of months ago I was gong tothe bathroom ALL the time, like maybe 20 ties a day or so.....and it is not diabetes. Thismyust be it. I would vomit a lot too, but it was becasue i ahd food cravingsand then the following reations to them. I wonder if that qualifies for this? Do you iknow anything about food allergies getting worse when one " CRASHES " . Food allergies is one of the reasons I wanted to try CORTISONE> But what I notice, is that after taking it for a couple of weeks, I started getting MORE food intolerences again. Thanks once more for your sharing, Inga ..,¸¸,.»§«,¸¸,.·´¯`·.,¸¸,.»§« ,¸¸,.·´¯`·.,¸¸,.»§«·.,¸¸ .,¸¸,.»§«,¸¸,.·´¯`·.,¸¸,.»§« ,¸¸,.·´¯`·.,¸¸,.»§«·.,¸¸ > > LaCretia > > >> >> on 3/14/05 9:41 AM, LaCretia Mozingo at lacretiamo@... wrote: >> >>> Ingrid. >>> I have been on adrenal treatment for a year. This is what my doctor >> planned >>> for me. She started it last year and said that I would need to be on >> this >>> therapy for one year for my adrenals to repair. The one year mark just >> came >>> up in February so, we started the weaning process. This is very >>> important...you can't just quite. I went down from 20mg a day to now >> taking >>> 5mg. This week I will stop taking it at all on Thursday of this week!!! >> I'm >>> so ready. >> So what do you think would have happened if you did not take the >> cortisone? >> >> Doyou thik your adrenals woudl not have healed and you would have needed to >> then start taking it for good? >> >>> There are many disadvatages to taking steroid treatment. >> In YOUR personal experience, can you tell me what they are? >> >>> >>> BTW... you are not bugging me at all. I love to share and wish someone >>> would have taught me what I know now >> >> Thanks, >> Inga >>> >>> LaCretia >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2005 Report Share Posted March 15, 2005 on 3/15/05 7:41 AM, LaCretia Mozingo at lacretiamo@... wrote: > >> So what do you think would have happened if you did not take the >> cortisone? > > I believe that the adrenals would continue to be damaged and eventually to > the point that you get 's disease (which is perminent) > >> Doyou thik your adrenals woudl not have healed and you would have needed to >> then start taking it for good? > > Yes it is possible and then again the body may have eventually been able to > heal by itself. The only way I could see the body doing this is if you were > somewhere in which you were albe to rest and stay away from stress for a > long period of time (say a year) I have read folks who have done > this...they quit their job and move to the country to rest for a while. I sort of did that, It has been 17 months now...of course I still had some emotional stress out here....majorly....but otherthat that - solitude. (The solitude practically droive me crazy, LOL!) > >>> There are many disadvatages to taking steroid treatment. >> In YOUR personal experience, can you tell me what they are? > > My personal experience with Cortef is that it limits you in the biggest way. > You receive 20mg a day and a normal person will produce about 30-40mg a > day. Already you can see that you only have so much available to you and > when you run out...crash! What exactly do you mean by CRASH? I started takiong CORTISONE again yesterday...felt better, but the last dose of 2.5 mg I took at 10:30 PM. I was slepeing fine until I woke up at 3:30 AM with my heart pounding. I took a small nibble of CORTISONE, and it went promptly away. Is this kind of thing to be expected when you begin taking CORTISONE? Are these the kinds of things you mean by " crashing " >So, say for instance one day you have a very > stressful day...boss is yelling at you and you are overworked... bam... you > burn the 20mg too fast and end up not having enough Cortef to finish your > day thus crashing from there. There is also the issue of keeping your > electrolites in check. They easily get out of balance and cause many > issues... for one if the salt is low enough in the body and the water in > your body is high...then you get symptoms of severe nausea to vomiting, > muscle weakness, a severe fatigue. If your potassium drops...you get muscle > cramps and twitches compared to the fatigue that you would get with low > salt. Keeping these balanced without the body's normal mechanisms (you are > supplimenting and thus shutting the adrenals down so the body's normal > mechnisms are shut down to a point also) is difficult. >Knowing what happens > when salt is low vs. when potassium is low helps you to know which to > manipulate to get your body back to it's natural balance. These two > (salt/potassium) are critical for energy to be made in your cells. They are > like a seesaw...if one goes down the other goes up and vise versa. The need > to be balanced. Any kind of vacation or extra activities require you to up > you dosage in order to avoid a crash afterwards. Not to mention now you > have an appeitite (before diagnoeses I could barely eat without gagging) you > gain weight. For me this was good in the beginning but you soon see that > the eating can get out of control and so can your weight. If the body is > able to do these things it's much better of course and it has built in > sensors to determine when salt/potassium needs adjusting. I think the worse > part is when you run out of Cortef in your body and crash. I call it > running out of spoons...(you had to read the article on youdontlooksick.com > to understand the spoon theory) You have to go to bed from there and hope > it doesn't last 2-3 days...as it can. > > I hope this helps. You are more than welcome to ask me any questions you > have. I will say that now that I am down to 5mg.. I know some people will > think how when I say this but, I actually feel my body doing the work > somewhat now and I can feel a more consistent state through the day than the > ups and down's the cortef would give me through the day before. I have had > a couple of what I would call hyper states in that it feels like the > adrenals are beginning to putter back on and off trying to work again. > Remember Cortef has a 4 hr life and at the end of the 4hrs you feel it and > have to take another dose to come back up again. Thus getting the ups and > down feelings all day long! Should I take it 6 times a day then, night time as well? I already ended up dong that last night, lOL! Darn that makes it tought becasue I have to take DMSA+ALA precisely every 3 hours or less, evenall through the night. Hmmm...... I got the 20 mg pills because they were the least expensive, but I am assuming that a 5 mg pill would be easier to deal with. > > PS. I am now reading up on something I found interesting about folks that > have Thyroid issues and adrenal issues called Euvolemic Hyponatremia. This > I feel is the name of the episodes a person gets when vomiting and going to > the bathroom constently. Oooh.....a couple of months ago I was gong tothe bathroom ALL the time, like maybe 20 ties a day or so.....and it is not diabetes. Thismyust be it. I would vomit a lot too, but it was becasue i ahd food cravingsand then the following reations to them. I wonder if that qualifies for this? Do you iknow anything about food allergies getting worse when one " CRASHES " . Food allergies is one of the reasons I wanted to try CORTISONE> But what I notice, is that after taking it for a couple of weeks, I started getting MORE food intolerences again. Thanks once more for your sharing, Inga ..,¸¸,.»§«,¸¸,.·´¯`·.,¸¸,.»§« ,¸¸,.·´¯`·.,¸¸,.»§«·.,¸¸ .,¸¸,.»§«,¸¸,.·´¯`·.,¸¸,.»§« ,¸¸,.·´¯`·.,¸¸,.»§«·.,¸¸ > > LaCretia > > >> >> on 3/14/05 9:41 AM, LaCretia Mozingo at lacretiamo@... wrote: >> >>> Ingrid. >>> I have been on adrenal treatment for a year. This is what my doctor >> planned >>> for me. She started it last year and said that I would need to be on >> this >>> therapy for one year for my adrenals to repair. The one year mark just >> came >>> up in February so, we started the weaning process. This is very >>> important...you can't just quite. I went down from 20mg a day to now >> taking >>> 5mg. This week I will stop taking it at all on Thursday of this week!!! >> I'm >>> so ready. >> So what do you think would have happened if you did not take the >> cortisone? >> >> Doyou thik your adrenals woudl not have healed and you would have needed to >> then start taking it for good? >> >>> There are many disadvatages to taking steroid treatment. >> In YOUR personal experience, can you tell me what they are? >> >>> >>> BTW... you are not bugging me at all. I love to share and wish someone >>> would have taught me what I know now >> >> Thanks, >> Inga >>> >>> LaCretia >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2005 Report Share Posted March 15, 2005 on 3/15/05 7:41 AM, LaCretia Mozingo at lacretiamo@... wrote: > >> So what do you think would have happened if you did not take the >> cortisone? > > I believe that the adrenals would continue to be damaged and eventually to > the point that you get 's disease (which is perminent) > >> Doyou thik your adrenals woudl not have healed and you would have needed to >> then start taking it for good? > > Yes it is possible and then again the body may have eventually been able to > heal by itself. The only way I could see the body doing this is if you were > somewhere in which you were albe to rest and stay away from stress for a > long period of time (say a year) I have read folks who have done > this...they quit their job and move to the country to rest for a while. I sort of did that, It has been 17 months now...of course I still had some emotional stress out here....majorly....but otherthat that - solitude. (The solitude practically droive me crazy, LOL!) > >>> There are many disadvatages to taking steroid treatment. >> In YOUR personal experience, can you tell me what they are? > > My personal experience with Cortef is that it limits you in the biggest way. > You receive 20mg a day and a normal person will produce about 30-40mg a > day. Already you can see that you only have so much available to you and > when you run out...crash! What exactly do you mean by CRASH? I started takiong CORTISONE again yesterday...felt better, but the last dose of 2.5 mg I took at 10:30 PM. I was slepeing fine until I woke up at 3:30 AM with my heart pounding. I took a small nibble of CORTISONE, and it went promptly away. Is this kind of thing to be expected when you begin taking CORTISONE? Are these the kinds of things you mean by " crashing " >So, say for instance one day you have a very > stressful day...boss is yelling at you and you are overworked... bam... you > burn the 20mg too fast and end up not having enough Cortef to finish your > day thus crashing from there. There is also the issue of keeping your > electrolites in check. They easily get out of balance and cause many > issues... for one if the salt is low enough in the body and the water in > your body is high...then you get symptoms of severe nausea to vomiting, > muscle weakness, a severe fatigue. If your potassium drops...you get muscle > cramps and twitches compared to the fatigue that you would get with low > salt. Keeping these balanced without the body's normal mechanisms (you are > supplimenting and thus shutting the adrenals down so the body's normal > mechnisms are shut down to a point also) is difficult. >Knowing what happens > when salt is low vs. when potassium is low helps you to know which to > manipulate to get your body back to it's natural balance. These two > (salt/potassium) are critical for energy to be made in your cells. They are > like a seesaw...if one goes down the other goes up and vise versa. The need > to be balanced. Any kind of vacation or extra activities require you to up > you dosage in order to avoid a crash afterwards. Not to mention now you > have an appeitite (before diagnoeses I could barely eat without gagging) you > gain weight. For me this was good in the beginning but you soon see that > the eating can get out of control and so can your weight. If the body is > able to do these things it's much better of course and it has built in > sensors to determine when salt/potassium needs adjusting. I think the worse > part is when you run out of Cortef in your body and crash. I call it > running out of spoons...(you had to read the article on youdontlooksick.com > to understand the spoon theory) You have to go to bed from there and hope > it doesn't last 2-3 days...as it can. > > I hope this helps. You are more than welcome to ask me any questions you > have. I will say that now that I am down to 5mg.. I know some people will > think how when I say this but, I actually feel my body doing the work > somewhat now and I can feel a more consistent state through the day than the > ups and down's the cortef would give me through the day before. I have had > a couple of what I would call hyper states in that it feels like the > adrenals are beginning to putter back on and off trying to work again. > Remember Cortef has a 4 hr life and at the end of the 4hrs you feel it and > have to take another dose to come back up again. Thus getting the ups and > down feelings all day long! Should I take it 6 times a day then, night time as well? I already ended up dong that last night, lOL! Darn that makes it tought becasue I have to take DMSA+ALA precisely every 3 hours or less, evenall through the night. Hmmm...... I got the 20 mg pills because they were the least expensive, but I am assuming that a 5 mg pill would be easier to deal with. > > PS. I am now reading up on something I found interesting about folks that > have Thyroid issues and adrenal issues called Euvolemic Hyponatremia. This > I feel is the name of the episodes a person gets when vomiting and going to > the bathroom constently. Oooh.....a couple of months ago I was gong tothe bathroom ALL the time, like maybe 20 ties a day or so.....and it is not diabetes. Thismyust be it. I would vomit a lot too, but it was becasue i ahd food cravingsand then the following reations to them. I wonder if that qualifies for this? Do you iknow anything about food allergies getting worse when one " CRASHES " . Food allergies is one of the reasons I wanted to try CORTISONE> But what I notice, is that after taking it for a couple of weeks, I started getting MORE food intolerences again. Thanks once more for your sharing, Inga ..,¸¸,.»§«,¸¸,.·´¯`·.,¸¸,.»§« ,¸¸,.·´¯`·.,¸¸,.»§«·.,¸¸ .,¸¸,.»§«,¸¸,.·´¯`·.,¸¸,.»§« ,¸¸,.·´¯`·.,¸¸,.»§«·.,¸¸ > > LaCretia > > >> >> on 3/14/05 9:41 AM, LaCretia Mozingo at lacretiamo@... wrote: >> >>> Ingrid. >>> I have been on adrenal treatment for a year. This is what my doctor >> planned >>> for me. She started it last year and said that I would need to be on >> this >>> therapy for one year for my adrenals to repair. The one year mark just >> came >>> up in February so, we started the weaning process. This is very >>> important...you can't just quite. I went down from 20mg a day to now >> taking >>> 5mg. This week I will stop taking it at all on Thursday of this week!!! >> I'm >>> so ready. >> So what do you think would have happened if you did not take the >> cortisone? >> >> Doyou thik your adrenals woudl not have healed and you would have needed to >> then start taking it for good? >> >>> There are many disadvatages to taking steroid treatment. >> In YOUR personal experience, can you tell me what they are? >> >>> >>> BTW... you are not bugging me at all. I love to share and wish someone >>> would have taught me what I know now >> >> Thanks, >> Inga >>> >>> LaCretia >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
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