Guest guest Posted March 24, 2009 Report Share Posted March 24, 2009 Lan, Thanks for your reply. I'm afraid you are right about my son's liver. Feel free to send me the mom photo list. That would be great! I feel better just getting a bit of this off my chest. Knowing that as rare as these things seem they are a lot more common than one thinks, and not feeling alone always helps. Being able to touch base with those in similar situations and read what others are going through is great support for me as a newbie to this situation. Son 9 w/ liver disease 09 Hi , And welcome, we are very sorry about your sons diagnosis (fuzzy diagnosis), either way it sounds like your son is well on his way to needing a liver transplant. There are lots of moms that are members, several with young children with PSC. I see that you are on facebook as well, so I will send you a photo list of some of the PSC MOMS. Ian (52) PSC 89 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2009 Report Share Posted March 24, 2009 , I already seny you the list yesterday by personal email. If you did not get it check in your spam, maybe your conputer did not recongnised me and therefore stuck the email in spam. The is also a support group for just PSC MOMS, I think most the MOMS belong to both groups. Email me privately if you can't find the list and I will resend it. My email address should be at the top of this email. Ian Lan, Thanks for your reply. I'm afraid you are right about my son's liver. Feel free to send me the mom photo list. That would be great! I feel better just getting a bit of this off my chest. Knowing that as rare as these things seem they are a lot more common than one thinks, and not feeling alone always helps. Being able to touch base with those in similar situations and read what others are going through is great support for me as a newbie to this situation. Son 9 w/ liver disease 09 Hi , And welcome, we are very sorry about your sons diagnosis (fuzzy diagnosis), either way it sounds like your son is well on his way to needing a liver transplant. There are lots of moms that are members, several with young children with PSC. I see that you are on facebook as well, so I will send you a photo list of some of the PSC MOMS. Ian (52) PSC 89 -- Ian Cribb P.Eng.cell: (6...Enefen - Reviewer/Designerwww.enefen.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2009 Report Share Posted March 24, 2009 , I already seny you the list yesterday by personal email. If you did not get it check in your spam, maybe your conputer did not recongnised me and therefore stuck the email in spam. The is also a support group for just PSC MOMS, I think most the MOMS belong to both groups. Email me privately if you can't find the list and I will resend it. My email address should be at the top of this email. Ian Lan, Thanks for your reply. I'm afraid you are right about my son's liver. Feel free to send me the mom photo list. That would be great! I feel better just getting a bit of this off my chest. Knowing that as rare as these things seem they are a lot more common than one thinks, and not feeling alone always helps. Being able to touch base with those in similar situations and read what others are going through is great support for me as a newbie to this situation. Son 9 w/ liver disease 09 Hi , And welcome, we are very sorry about your sons diagnosis (fuzzy diagnosis), either way it sounds like your son is well on his way to needing a liver transplant. There are lots of moms that are members, several with young children with PSC. I see that you are on facebook as well, so I will send you a photo list of some of the PSC MOMS. Ian (52) PSC 89 -- Ian Cribb P.Eng.cell: (6...Enefen - Reviewer/Designerwww.enefen.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2009 Report Share Posted March 24, 2009 , I already seny you the list yesterday by personal email. If you did not get it check in your spam, maybe your conputer did not recongnised me and therefore stuck the email in spam. The is also a support group for just PSC MOMS, I think most the MOMS belong to both groups. Email me privately if you can't find the list and I will resend it. My email address should be at the top of this email. Ian Lan, Thanks for your reply. I'm afraid you are right about my son's liver. Feel free to send me the mom photo list. That would be great! I feel better just getting a bit of this off my chest. Knowing that as rare as these things seem they are a lot more common than one thinks, and not feeling alone always helps. Being able to touch base with those in similar situations and read what others are going through is great support for me as a newbie to this situation. Son 9 w/ liver disease 09 Hi , And welcome, we are very sorry about your sons diagnosis (fuzzy diagnosis), either way it sounds like your son is well on his way to needing a liver transplant. There are lots of moms that are members, several with young children with PSC. I see that you are on facebook as well, so I will send you a photo list of some of the PSC MOMS. Ian (52) PSC 89 -- Ian Cribb P.Eng.cell: (6...Enefen - Reviewer/Designerwww.enefen.com Quote Link to comment Share on other sites More sharing options...
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