bladder no sleep :dropping over dead

[Guest guest]

I am not sure if I have a constant bladder infection or bladder spasms.

But, sometimes when I am finishing up urinating, I get intense pain in the

area between my bladder and urethra. I haven't told my doctor about this.

As i've been trying to get her to address my pain for a year now. I think

that if I get ANY pain management, then it will trickle down....if I could

get a LITTLE relief from the migraine-spasms, etc, I think that everything

would get better.

I stopped taking ALL meds 3 weeks ago (100 mg of zoloft once a day is the

only med that my doc would allow me). I haven't slept more than 45 min in

about 2 weeks, I wake up with spasms, massive headaches, just about the time

I doze off, I get spasms, and am up again....I got to sleep about 7 AM this

morning and slept pretty good until 10 AM though...which is about the best

i've slept all week! I've tried benadryl and melatonin for sleep, and other

natural or mild type of sleeping pills.....my sister was prescribed valium

for no particular reason and she keeps trying to give me one - she says it

will help me sleep....I've also been working 35-40 hours a week during this

time, my IBS is also doing me in; so I avoid eating whenever I can...I think

that i've given up on doctors and pain control and am just going to go on

and try to live like a normal person...until either I get stronger and

adjust or I drop over--and I hope that I drop over soon as i'm so tired.

I'm going to go to no mail for awhile, as I'm having trouble reading the

digest--I will try to read the posts at yahoogroups on weekends.

I am not able to go on any antidepressants, at all, ever again....they cause

me to have NO sex drive and my husband and I fight about it constantly, and

the problems far outweight the antidepressants benefit for me.

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[Guest guest]

In a message dated 08/14/2002 11:44:15 PM US Eastern Standard Time,

kmnewberry@... writes:

> I stopped taking ALL meds 3 weeks ago

,

Oh dear lord honey...you are where I was at a year ago....I can

deffinately speak on this subject. As I did this exactly a year ago. I quit

taking all 15 of my pills. Granted some of them I couldn't stop cold turkey,

but I weaned myself off of EVERYTHING within two weeks. Let me tell you sugar

this isn't the way to go....please believe me when I say this....I can't

explain to you in email how much damage this does to your body. I'm begging

you please DO NOT do this.

It might seem like the right thing to do right now, but it isn't....by

going off of your medication you are going to throw your body into such a

HUGE FLARE...that you won't be able to stand it. I have been one constant

flare for the past month...going on two months.

Sweety if the anti-depressants aren't working for you then by all

means find another alternative. Have you tried St. s Wart?

I myself wouldn't be able to live without my anti-depressants as

depression is a major issue for me. If I was to go off of them I would be a

mess within 24 hours . No joke!!

When I went off of my medication and went " no mail " I was wanting to

return to " normal life " , but by doing these two things I only made things 50

x's worse. Not only did I ignore my body and its physical aliments I was

ignoring my mental needs of talking to people who could relate. If I could go

back and do it all over again I would deffiantely do it differently.

I am dealing with a bladder infection right now as we speak. I went to

the herb store and bought me some Cranberry capsules and I am drinking lots

of water and Cranberry juice and it is getting better slowly. There are

sooo many options and different routes you could choose. I'm not here to

preach to you and tell you.....that you have to do this to get better, be

cause I'm not sure exactly what I've done that makes me better....lol and as

we all know.....EVERYTHING DOESN'T WORK FOR EVERYONE!!!

I have found over the last two years what helps me the most is

massage, hot tubs, and lots of sleep. Yesterday I slept a TON of hours...lol

If I can just get past the feeling guilty for not doing something instead of

sleeping.

I would suggest finding a different doctor too. I have been through 5

in the past two years now. I FINALLY got an appointment at the Cleveland

Clinic in Cinncinati, Ohio Sept 12th. They rank 5th in the nation for

Rheumatology. Don't give up....if you don't like the next doctor keep

looking....I know this sounds oh too easy, but in all reality its one heck of

a B#$# within itself. Not to mention the constant nagging of this disease.

Have you ever tried Rice socks? For warm moist heat?? I have found

that they work tremendously for me as well. Warm moist heat seems to help me

more than anything. I have done alot of research on Aromatherapy as well.

Which I have found different things works wonders as well.

Where do you live? Is there anyone else on this list that lives in the

same state as you or even relatively close to you?? Post where you live and

maybe you can get some pointers on options in your area for doctors, yoga,

water exersice, meditation, etc.

Another option that you could try is calling your local Arthritis

Foundation Chapter. See what they have to tell you about the local docs, and

options for pain relief and support groups. Unfortunately the closest one for

me is an hour away, and I don't know about anyone else, but driving wears me

out!!!

Well , I hope you seriously reconsider going off your

medications. If you feel you need to go " no mail " then do so, but seriously

reconsider going off your meds. I can't explain to you in an email what doing

this does to your body. Please don't give up on treatment and keep in touch.

If you want to talk one on one....please don't hesistate to email me

seperately....that goes for anyone!! Just put something in the subject line

about FMS...cuz I will delete ya if I don't recognize ya...lol

Lots of hugzzz and prayerzzz

Allicia