Re: new to group and hello to anyone in the uk

[Guest guest]

Welcome, and you are right, trying to find the balance between doing

nothing and way too much, is hard. I constantly struggle with it. I

find my best way of doing things is to do a little something, and then

sit for a while. Speaking of which, I need to go throw a load of

laundry in! I wasn't up to doing it last week.

Darcy

[Guest guest]

Welcome, and you are right, trying to find the balance between doing

nothing and way too much, is hard. I constantly struggle with it. I

find my best way of doing things is to do a little something, and then

sit for a while. Speaking of which, I need to go throw a load of

laundry in! I wasn't up to doing it last week.

Darcy

[Guest guest]

Hi, I wanted to welcome to the group. This group is full of knowledge and full

of understanding people. I hope you ask any and all questions you may have. Take

care and hope you have a great evening.

~

sarapiano50 sarapiano50@...> wrote: I have had FMS for many years and

in the last ten years I have

developed RSD in my hands and left side in general. I work from home

as a piano teacher! and struggle to keep spirits up and to keep

positive. Its only pain is what I tell myself and I try to keep busy

doing crafts and reading and stroking my cats (cat-therapy).

Nevertheless, come the night comes the moment of truth. You can run

but you can't hide! I take a raft of medication - arthotec

antiepileptic drugs for rsd anti depressants etc etc....... I am

surprised that I can still stand somedays. The hardest part of

managing this condition is getting the balance right between doing

nothing and doing the amount that will not wipe you out for the next

three or four days. Its that balancing that is the worst part about

it to me. I am lucky in that my hubby helps as much as he can and

also that I am not at all houseproud anymore. If things are left then

they are left. If I am wiped out by doing too much then I allow

myself to rest until I begin to feel better and that has become a way

of life. Last night I fell asleep sitting on the edge of the bed

before I get undressed a record even for me!

My main regret is that my kids don't remember me as a young and

energetic woman. I am in constant pain in my neck shoulders and

hands and now more recently in my hips, I am gaining weight and it

would be great to find a cure. It will happen!

SEND POST TO: fibromyalgia-cfs

HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html

LIST OWNER: " Missy " Parrot004@...>

UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe

[Guest guest]

Darcy & Everyone~

I also have that same problem. When I feel cruddy I don't' do much. Make

dinner and that is about it. Now when I'm feeling good I over do it and I'm back

where I started the day before. Luckily I've been feeling almost back to normal

* except for the pain* for about a week. Thank- heavens!

When it comes to the laundry my husband does it and then he brings it up from

the basement and I fold it. Last month when I was feeling oh-so bad he folded it

and brought it up for me to put away, but since my kids know where their clothes

go they put them away for me. The bad thing about him bringing up the clothes is

that he puts it on my dining room table! I can never keep up. Last week I took

all of the kids winter things out of the closents and drawers and organized them

and put the summer things in and I am starting to catch up on that pile on the

table. It's irritating sometimes. But what are ya gonna do? Just gotta go with

it. Well, I am going to go lay down after I finish these e-mails. Take care

everyone!

~closets

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