Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 My son had his tx 3 years ago next month. He is 23. He went for a checkup and a new Dr to the group told him he wants to take off of the prograf as there are no studies on the long term use of prograf. The problem is he could not take celcept so his choices to prevent rejection are limited. Thoughts? Marti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 MartiI would ask the doctor about weaning him off it. Trying half a dose for a month and if that goes well you could half the dose again for the next month. Talk with the doctor about your concerns.Ian My son had his tx 3 years ago next month. He is 23. He went for a checkup and a new Dr to the group told him he wants to take off of the prograf as there are no studies on the long term use of prograf. The problem is he could not take celcept so his choices to prevent rejection are limited. Thoughts? Marti -- Ian Cribb P.Eng. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 MartiI would ask the doctor about weaning him off it. Trying half a dose for a month and if that goes well you could half the dose again for the next month. Talk with the doctor about your concerns.Ian My son had his tx 3 years ago next month. He is 23. He went for a checkup and a new Dr to the group told him he wants to take off of the prograf as there are no studies on the long term use of prograf. The problem is he could not take celcept so his choices to prevent rejection are limited. Thoughts? Marti -- Ian Cribb P.Eng. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2009 Report Share Posted February 7, 2009 I belong to another group for transplant patients and this has been discussed there several times. Some transplant centers/doctors are experimenting with removing all but a very small dose of one immune suppressant medication. No one has volunteered that they suffered due to the reduction in meds, but as you, I would be skeptical and let the doctor know how you feel. Ask him what the other medication’s track record is – that may well ease your mind. I have taken Prograf and Cellcept since my transplant. My Cellcept has been reduced twice – at six months and one year. I currently take 500 mg twice a day. My Prograf was last reduced in January, 2008. I now take 2mg twice a day. Joe PSC & UC - 1990; Liver Transplant - 2007 My son had his tx 3 years ago next month. He is 23. He went for a checkup and a new Dr to the group told him he wants to take off of the prograf as there are no studies on the long term use of prograf. The problem is he could not take celcept so his choices to prevent rejection are limited. Thoughts? Marti Quote Link to comment Share on other sites More sharing options...
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