Guest guest Posted January 4, 2009 Report Share Posted January 4, 2009 -----Original Message----- Ian: I visited the caringbridge website you setup…. I suspect you could be a little premature at setting up a site already. Hi Geraldine, I don’t think you’re premature at all with your Caringbridge site! It’s a free service and nothing is easier or faster at keeping family & friends informed. Having PSC, I don’t have to tell you about the fatigue factor, so anything that makes your life easier is a plus and IMHO you should do whatever makes you feel good! Can’t tell you how many times I’ve gone back to Ken’s site for a date or procedure he had – it’s a great diary too! When Ken was so sick, and things were happening so fast, we would have never been able to keep all of the family and friends up to date. Besides, what better way to tell people about PSC-Partners and our search for a cure? I use Ken’s too, to plug and promote organ donation. You’ll be surprised at how many people you’ll meet just through your Caringbridge site. We have quite a few people reading Ken’s, just because they accidentally landed on it. You’re not too early. HTH Barb in Texas - Together in the Fight - Whatever it Takes! Son Ken (34) UC 91 PSC 99, LTX 6/21 & 6/30 2007 @ Baylor/Dallas .._,___ Quote Link to comment Share on other sites More sharing options...
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