Re: It isn't fair!!!

[Guest guest]

> Sorry but I guess it is my turn to vent...My pain has only been

going on

> of all of you. Please forgive me if this is the case.

>

Hi Sherri,

Well, I'm awake also. Please know that we all REALLY do understand.

I'm not a doctor, but as much water as you're drinking seems to

warrent a few bathroom trips. If your legs are swollen, you're

drinking water and not urinating, you are definitely retaining a lot

of water. Is your doctor aware of this? If she's not, you should

call her. Please make sure you don't miss your Tuesday appt. It's

really important. I hate dr. appointments....as I usually come out

of the building wishing I could punch the doctor's lights out. But

with your symptoms, it's important that you see your doctor.

It's alright to vent on this list....we're all listening. I'm sure

when everyone wakes up tomorrow, you'll get a lot of replies to your

vent. Meanwhile, please know that you're not awake alone. I also

dislike these sleepless nights. I usually try to have a good book on

hand, or a craft to work on. Sometimes the pain won't let me work on

a craft, so I quietly watch TV.

Please let us know how your doctor's appt. goes on Tuesday.

Feel Better!

Debmeter

[Guest guest]

Your right it isn't fair I just got 3 hrs sleep, I woke up hurting so I took my

pain pill and I wait until it takes effect so maybe I can get a few more hrs of

sleep, I don't know how you can stand this without any pain meds, I get 3 a day

and when I get up like this in the middle of the night it causes me to run short

because they only give me so many a month, I saw a new nurse pract.at the pain

clinic and she did give me 10 extra pills a month, which I am very thankful for,

because like you said we are the only ones that understand this, be sure and

tell the Dr. that you need something for the pain and not no Advil or any of

those drugs because they don't help this pain.I take a small dose of pain meds

but it is better than anything else I have taken. I had about 2 weeks of good

days but I can see that they are over I sure wish they would last longer.I do

hope you get to feeling better. Audie

It isn't fair!!!

Sorry but I guess it is my turn to vent...My pain has only been going on

since February but I am so tired of hurting. I will see my Dr. Tues and

hope she will give me something for pain. Sor far all I have gotten are

muscle relaxers.

I am also having a big problem with swelling in my legs and ankles. She did

give me a water pill but it isn't helping. Also, I can drink a gallon of

water every day and hardly ever pee. Is this normal? I don't think so.

I know there are so many of you out there who have been suffering much

longer than I am and I feel a little guilty for venting about this because

of all of you. Please forgive me if this is the case.

Guess I need to go to bed now, why I don't know except my eyes are hurting

staying open. Just another restless, sleepless and painful night ahead.

Hope morning comes fast...

Thanks for listening you all. I really appreciate you being here. No one

else understands.

Hugs,

Sherri

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[Guest guest]

Sherri,

So sorry to hear you were hurting so bad on Saturday. I hope you're

feeling better by now. Don't feel guilty for being in pain, and

needing to vent. All of us need to do this, whether we've been in

pain for 1 year, or 20 years. Pain is still pain. Venting is very

beneficial. We are here for you. Take care.

[Guest guest]

Sherri,

So sorry to hear you were hurting so bad on Saturday. I hope you're

feeling better by now. Don't feel guilty for being in pain, and

needing to vent. All of us need to do this, whether we've been in

pain for 1 year, or 20 years. Pain is still pain. Venting is very

beneficial. We are here for you. Take care.

[Guest guest]

Sherri~

I'm sorry that your having a horrible time and hurting so bad. All I have

tried has been muscle relaxers. I think I've found a winner in Zanaflex. I have

tried a couple and they really didn't help long. I hope your doctor can

prescribe you something that works. It's hard to function when you feel cruddy.

Just wanted you to know that I'm thinking of you and we all understand. Take

care!

~

---------------------------------

[Guest guest]

Sherri~

I'm sorry that your having a horrible time and hurting so bad. All I have

tried has been muscle relaxers. I think I've found a winner in Zanaflex. I have

tried a couple and they really didn't help long. I hope your doctor can

prescribe you something that works. It's hard to function when you feel cruddy.

Just wanted you to know that I'm thinking of you and we all understand. Take

care!

~

---------------------------------

[Guest guest]

Sherri~

I'm sorry that your having a horrible time and hurting so bad. All I have

tried has been muscle relaxers. I think I've found a winner in Zanaflex. I have

tried a couple and they really didn't help long. I hope your doctor can

prescribe you something that works. It's hard to function when you feel cruddy.

Just wanted you to know that I'm thinking of you and we all understand. Take

care!

~

---------------------------------

[Guest guest]

I want to thank you all for your kind words. I went back to the doctor

today all ready to blow up at her and tell her I would find another doc if

she didn't help me. Wow, she gave me ultracet for pain! I also brought a

few articles from the web with me to show her and she asked if she could

keep them hoping to learn something!! I was really shocked. Guess that's

what I get for getting all worked up. The pain hasn't really eased up the

past few days either. Been really hot and muggy outside and my shoulder

hurts worse when it gets chilled by the a/c so I keep going in and out.

Wonder I don't have pneumonia!!

The ultracet that she has given me today is 37.5 mg of tramadol with 325 mg

of tylenol. The directions say to take 1-2 pills every 6-8 hours. So far,

they may have taken the edge off but I still feel alot of pain. Could any

of you tell me what mg you are taking?

Thanks again so much, I love this group, you all understand!!

BTW, my dh has a " backache " past couple days. He wants alot of sympathy but

I just can not give it to him. I know I sound mean but I have had this pain

for almost 5 months straight w/o one minute pain free!! I told him that but

it doesn't really seem to matter

Hugs,

Sherri

[Guest guest]

Could any

of you tell me what mg you are taking?

--------------------------------------------------------------------------------\

--------------

Sherri,

I take 650 mg Darvocet for pain. It really helps, although I must go to sleep

when it kicks in.

Which brings up a question to all. I am very hesitant to share with

friends/family who ask what meds I am taking. I guess I don't want them to get

in my face about the possible addictive qualities of most of the drugs I take.

(My cousin did that to me.) I am on 150mg of Effexor XR, 10mg Xanax, 10mg

Flexiril, 10 mg Elavil, 80 mg Robaxin. Of course I only use them when I am

desperate, the only one I take daily is the Effexor. I should buy stock in

Ibuprofin because I eat those like candy.

Do any of you have these issues? If so, how do you handle those situations?

I am having a very difficult time with brain fog these days. I am worried that

it is affecting my work. I am an Interior Designer and must be extremely

detailed. I must say that I am far less detailed than I used to be.

Tonight I fell asleep at 5:30 and my son woke me up at 8:30. I completely missed

dinner. (Good thing my husband can take care of the kids.) I always feel guilty

if I take a rest. I feel as if I should be taking care of everyone. I know I'm

being silly, but that's how I feel.

My husband (bless him) is so very supportive of me. But he has his own problems

too. He has Diabetes and I know there are times when he just wants to lay down

and sleep. So I let him.

I've been reading people's posts regarding excersize. I am unable to ride a

bike. The last time I did, my legs locked up and I fell. I had to stay on the

ground for about 10 mins till my legs would work again. Believe it or not, I can

play tennis! I thought I'd never be able to do that again. A friend asked me to

play, I hesitantly agreed, but it felt wonderful. I did experience some severe

shoulder pain after the first time. But after that all I had was a little

soreness. Weird, how you can do some things and not others. Walking is the best

and I try to do that, but I'm soooo TIRED!

Sorry, I'm done rambling. Thanks for letting me share. I hope everyone is having

a good evening.