Guest guest Posted March 3, 2009 Report Share Posted March 3, 2009 What is the best diet to go on for those with psc? I have avoided dairy products and kept a low sugar, low fat diet... but still have alot of diarrhea... and it seems like I am always hungry... food goes right through me so it is very hard for me to gain any weight despite how hard I try... any suggestions or adivce would be greatly appreciated...TrevTo: Sent: Tuesday, March 3, 2009 2:22:19 PMSubject: Update on 3/3/09 So far things are going great! Every day his skin color improves. This morning he was looking at his hands and he says "Oh my goodness, look at my hands!" I asked what was wrong with them and he says "nothing.... they look almost normal!" His face and eyes are improving as well. They got him up in a chair yesterday and he sat for about an hour. He ate a little bit of dinner last night but has been NPO since midnight because they took him back in for his fascia closure a few minutes ago. That should take a couple hours. When it's over he'll have a couple drains and his skin will be stapled. I saw his incisions for the first time yesterday. Not as bad as I expected. He doesn't want to look at it of course. He had a case of "ICU psychosis" the other night I guess. His mom stayed with him and he got pretty crazy from what she said. He wouldn't let anyone touch him and was convinced all of the doctors and nurses were trying to hurt him. He also kept hearing music playing that no one else could. LOL Thankfully he had a good night last night and a good day today. I asked him how he felt not compared to a week ago. He rolled his eyes and said "a million times better!" So far so good! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2009 Report Share Posted March 3, 2009 Yes, I concur. You need to get cleared for an IBD issue (Chron's or Colitis) and then get the appropriate med for that (Colazol, Azacol, etc.) and also introduce a probiotic to your diet (yoghurt, Kefir, etc.) as well as drinking lots of good H2O. Best, TrevMost psc patients have some form of IBD, many have ulcerative colitis. You will notice many people mention issues with their colon or lack of a colon. There are meds to help with the diarhea and make life much more pleasant. Talk to your doctor and don't leave the office without a prescription. I never heard of anyone having much success with over the counter treatments. You will end up having a colonoscopy to determine exactly what is happen in your inner plumbing but anything is better then searching for bathrooms. It is all part of the PSC adventure. For me, the diarhea was what finally determined my correct diagnosis. Two years after my transplant my colon was removed and I really don't miss it.Take CareMizKit Diet What is the best diet to go on for those with null? I have avoided dairy products and kept a low sugar, low fat diet... but still have null of diarrhea... and it seems like I am always hungry... food goes right through me so it is very hard for me to gain any weight despite how hard I try... any suggestions or null would be greatly appreciated... null Recent Activity 6 New Members Visit Your Group Ads on Yahoo! Learn more now. Reach customers searching for you. Group Charity Citizen Schools Best after school program in the US Support Group Lose lbs together Share your weight- loss successes. .. Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar! -- Don Vardell Jr.dvardell2@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 Trev, Like Abe said there are many diets around that help some people. Gluten free, dairy free, low fat are the ones I remember most. If I were you I would try to get rid of the diarrhea first, make sure you drink a lot and then try to find the diet or foods that seem to suit you best. I would never recommend to anyone eating raw meat, even if that was what I was doing and felt great with it. Chaim Boermeester, Israel From: [mailto: ] On Behalf Of musicalfarming Sent: Wednesday, March 04, 2009 10:34 To: Subject: Re: Diet Hi Trev There are many conflicting opinions around this topic, I never got much of any suggestions from my doctors, just to keep eating and keep up weight. In my experience avoiding refined foods especially hydrogented " cooked " fats helps, and also avoiding too many grain products and any other obviously unhealthy foods, fried, charred foods, excess sugar. abstaining from toxic food is one thing but being fed and satisfied is another. Raw foods have helped me alot, its taken perserverance and discipline but in my circumstances i will take any diet over having a liver transplant. There are many raw food diets, the one that has help me involves organic: vegetable juices, raw cultured milk products, pasture raised raw eggs, raw fish, raw meat, fruits, nuts, honey, these components can me made into enjoyable food. Most people think eating raw meat is crazy, but it has been part of many indiginous cultures for centuries and still is. This diet is definately an alternative one but when motivated and well informed of whats involved many people have been able to reverse incurable illness. I wont elaborate more, if you want more information look into the primal diet. Most mainstream doctors will write this off as mumbo jumbo but it does save lives, Empirical evidence has no say in allopatic medicine sadly. Oh and be careful of prescriptions! Blessings, Abe Psc01, uc 95 22yo > > What is the best diet to go on for those with psc? I have avoided dairy products and kept a low sugar, low fat diet... but still have alot of diarrhea... and it seems like I am always hungry... food goes right through me so it is very hard for me to gain any weight despite how hard I try... any suggestions or adivce would be greatly appreciated... > > Trev > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 I had good luck with Advocare’s meal replacement shakes, too. They have the right balance of protein and carbos – just don’t get the berry flavor. I haven’t met anyone who likes that. From: [mailto: ] On Behalf Of Sandi Pearlman Sent: Wednesday, March 04, 2009 10:26 PM To: Subject: Re: Diet Trev, Hi! I'm so sorry to hear about the issues that you're having. I've had/have a lot of the same problems myself. I've been advised to drink Carnation Instant Breakfast to get my nutrients and protein, calories, etc. by several PSC docs, dieticians and nutritionists. I still have trouble with " returning " it, but I know a lot of people for whom it has worked. I've also been advised to try some toast with peanut butter with the Instant Breakfast if I can. If you take one of the Carnation Breakfasts and have the peanut butter toast, you're well on your way to your daily nutritional quota and, theoretically, weight gain. Best of luck! Sandi in VA Quote Link to comment Share on other sites More sharing options...
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