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Hey all,

Just a couple of questions here. My case is being transferred to washington

university school of medicine department for specialized medicine. I dont know

how to feel about this. my GI has already told me that he has never treated PSC

before and hes been in the business for quite a while and that I will go the the

university for more attention and because there are no doctors on staff within

50 miles of me that are qualified to remove/replace my stents.(side question, i

have had the chills for 2-3 days and an on/off fever between 100-102. advice?)

Im happy he was honest with me and I know that wash-u has an excellent staff,

but i am a little leary of being a guinea pig for med students. I wont mind if

it helps us all out with this but more often than not I feel like the doctors

just want to try new drugs for the drug companies more than actual healing. I am

very tired from everything lately, I slept for 17 hours yesterday after leaving

work early and have been receiving flack from work. PSC and construction trades

dont mix. sorry for the rant but im feeling overwhelmed and depressed.

ROB

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Rob

I had my treatment and transplant at University of Michigan and the young doctors were great. The are learning and I felt like I really contributed to their education. My best advice is to ask every question you can think of. If they don't know the answer, they will find out. It is their job to learn and you will know more about liver disease than some of them. Tell them what you need and they will work for you. I had interns and residents volunteer to do blood draws from my central line when the nurses could not do it. They examine you, check all the lab work then discuss everything with the specialists and carry out the orders. They will not try any experimental drugs on you unless you are informed.

Keep in mind that you can become one of their teachers, and that they are are learning the most up-to-date information on PSC, transplants and patient care, and don't have the "know it all doctor" attitude that some people have mentioned.

Take Care

MizKit

Hey Guys

Hey all,

Just a couple of questions here. My case is being transferred to washington university school of medicine department for specialized medicine. I dont know how to feel about this. my GI has already told me that he has never treated PSC before and hes been in the business for quite a while and that I will go the the university for more attention and because there are no doctors on staff within 50 miles of me that are qualified to remove/replace my stents.(side question, i have had the chills for 2-3 days and an on/off fever between 100-102. advice?)

Im happy he was honest with me and I know that wash-u has an excellent staff, but i am a little leary of being a guinea pig for med students. I wont mind if it helps us all out with this but more often than not I feel like the doctors just want to try new drugs for the drug companies more than actual healing. I am very tired from everything lately, I slept for 17 hours yesterday after leaving work early and have been receiving flack from work. PSC and construction trades dont mix. sorry for the rant but im feeling overwhelmed and depressed.

ROB

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Rob,

I am currently being treated at the U of MD, a teaching hospital. My. DR is

familiary with PSC and with Dr. Lindor's work (we discussed this last week), but

he by no means an expert in the field. In fact he told me last week tha I am

puzzling to him, I am to most doctors though. But anyway, he always has a

hepatology fellow with him as he is a full professor. The fellow sees me first

and then my Dr comes in, Thus far I have been impressed with the fellows, they

have been very thorough in examining me. My Dr. would be present at any medical

procedures I have done to oversee the task, we have already discussed his

protocol for invasive procedures and the fellows.

I encourage you to ask a lot of questions and know the protocol of the facility

or Doctor you work with.

I had an MRCP this morning and it will be my Dr. who I speak with next week to

get the results, not the fellow. My Dr. needs the MRCP results to determine how

he should treat me at this time.

Let them know how you feel, find out what their experience is and who will be

present for oversight when procedures are done.

It helped me. I figured I would share my experience with a teaching hospital

with you.

Dawn

>

> Hey all,

> Just a couple of questions here. My case is being transferred to washington

university school of medicine department for specialized medicine. I dont know

how to feel about this. my GI has already told me that he has never treated PSC

before and hes been in the business for quite a while and that I will go the the

university for more attention and because there are no doctors on staff within

50 miles of me that are qualified to remove/replace my stents.(side question, i

have had the chills for 2-3 days and an on/off fever between 100-102. advice?)

> Im happy he was honest with me and I know that wash-u has an excellent staff,

but i am a little leary of being a guinea pig for med students. I wont mind if

it helps us all out with this but more often than not I feel like the doctors

just want to try new drugs for the drug companies more than actual healing. I am

very tired from everything lately, I slept for 17 hours yesterday after leaving

work early and have been receiving flack from work. PSC and construction trades

dont mix. sorry for the rant but im feeling overwhelmed and depressed.

> ROB

>

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