Guest guest Posted March 14, 2009 Report Share Posted March 14, 2009 Hey all, Just a couple of questions here. My case is being transferred to washington university school of medicine department for specialized medicine. I dont know how to feel about this. my GI has already told me that he has never treated PSC before and hes been in the business for quite a while and that I will go the the university for more attention and because there are no doctors on staff within 50 miles of me that are qualified to remove/replace my stents.(side question, i have had the chills for 2-3 days and an on/off fever between 100-102. advice?) Im happy he was honest with me and I know that wash-u has an excellent staff, but i am a little leary of being a guinea pig for med students. I wont mind if it helps us all out with this but more often than not I feel like the doctors just want to try new drugs for the drug companies more than actual healing. I am very tired from everything lately, I slept for 17 hours yesterday after leaving work early and have been receiving flack from work. PSC and construction trades dont mix. sorry for the rant but im feeling overwhelmed and depressed. ROB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2009 Report Share Posted March 14, 2009 Thanks, I know that it could help teach another generation doctors but its a little daunting. Thank you for the reassurance and I am glad someone else has had a similar experience. ROB > > Rob > > I had my treatment and transplant at University of Michigan and the young doctors were great.? The are learning and I felt like I really contributed to their education.? My best advice is to ask every question you can think of.? If they don't know the answer, they will find out.? It is their job to?learn and you will know more about liver disease than some of them.? Tell them what you need and they will work for you.? I had?interns and residents?volunteer to do blood draws from my central line when the nurses could not do it.? They examine you, check all the lab work then discuss everything with the specialists and carry out the orders.? They will not try any experimental drugs on you unless you are informed. > > Keep in mind that you can become one of their teachers, and that they are?are learning the most up-to-date information on PSC, transplants and patient care, and don't have the " know it all doctor " attitude that?some people have mentioned.? > ? > Take Care > MizKit > > > Hey Guys > > > > > > > Hey all, > Just a couple of questions here. My case is being transferred to washington university school of medicine department for specialized medicine. I dont know how to feel about this. my GI has already told me that he has never treated PSC before and hes been in the business for quite a while and that I will go the the university for more attention and because there are no doctors on staff within 50 miles of me that are qualified to remove/replace my stents.(side question, i have had the chills for 2-3 days and an on/off fever between 100-102. advice?) > Im happy he was honest with me and I know that wash-u has an excellent staff, but i am a little leary of being a guinea pig for med students. I wont mind if it helps us all out with this but more often than not I feel like the doctors just want to try new drugs for the drug companies more than actual healing. I am very tired from everything lately, I slept for 17 hours yesterday after leaving work early and have been receiving flack from work. PSC and construction trades dont mix. sorry for the rant but im feeling overwhelmed and depressed. > ROB > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2009 Report Share Posted March 14, 2009 Rob, I am sure there are many positives with being at a teaching hospital. Fransen from Idaho Falls had an overall good experience at University of Utah, but there were some concerns. I can't remember. I had my infant son at a teaching hospital when he was very sick. One of the student doctors did some kind of nasal gastric tube thing the wrong way and closed off his airway. It scared me to death. It had to be done again by an experienced RN. It was awful. I think the generating new ideas and lack of arrogance is great, I don't think I would especially want any of them touching me for procedural things or making life and death decisions. My daughter who is an RN says that a rare few doctors do some pretty outrageous things when patients are under general anesthsia like inviting people in to watch without your permission, or allowing someone ill qualified do parts of the surgery etc. It's very important to me to know who is doing what and who will be in there. I don't want my huge or shriveled liver or something being shown off to hospital administration or anything like that. After I'm dead, they can learn all they want from my body. I'm a little more particular about my body while I'm still using it. I hope it all works very well for you. Cheryl ID Hey Guys > > > > > > > > > > > > > > Hey all, > > Just a couple of questions here. My case is being transferred to washington university school of medicine department for specialized medicine. I dont know how to feel about this. my GI has already told me that he has never treated PSC before and hes been in the business for quite a while and that I will go the the university for more attention and because there are no doctors on staff within 50 miles of me that are qualified to remove/replace my stents.(side question, i have had the chills for 2-3 days and an on/off fever between 100-102. advice?) > > Im happy he was honest with me and I know that wash-u has an excellent staff, but i am a little leary of being a guinea pig for med students. I wont mind if it helps us all out with this but more often than not I feel like the doctors just want to try new drugs for the drug companies more than actual healing. I am very tired from everything lately, I slept for 17 hours yesterday after leaving work early and have been receiving flack from work. PSC and construction trades dont mix. sorry for the rant but im feeling overwhelmed and depressed. > > ROB > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2009 Report Share Posted March 14, 2009 Rob, I am sure there are many positives with being at a teaching hospital. Fransen from Idaho Falls had an overall good experience at University of Utah, but there were some concerns. I can't remember. I had my infant son at a teaching hospital when he was very sick. One of the student doctors did some kind of nasal gastric tube thing the wrong way and closed off his airway. It scared me to death. It had to be done again by an experienced RN. It was awful. I think the generating new ideas and lack of arrogance is great, I don't think I would especially want any of them touching me for procedural things or making life and death decisions. My daughter who is an RN says that a rare few doctors do some pretty outrageous things when patients are under general anesthsia like inviting people in to watch without your permission, or allowing someone ill qualified do parts of the surgery etc. It's very important to me to know who is doing what and who will be in there. I don't want my huge or shriveled liver or something being shown off to hospital administration or anything like that. After I'm dead, they can learn all they want from my body. I'm a little more particular about my body while I'm still using it. I hope it all works very well for you. Cheryl ID Hey Guys > > > > > > > > > > > > > > Hey all, > > Just a couple of questions here. My case is being transferred to washington university school of medicine department for specialized medicine. I dont know how to feel about this. my GI has already told me that he has never treated PSC before and hes been in the business for quite a while and that I will go the the university for more attention and because there are no doctors on staff within 50 miles of me that are qualified to remove/replace my stents.(side question, i have had the chills for 2-3 days and an on/off fever between 100-102. advice?) > > Im happy he was honest with me and I know that wash-u has an excellent staff, but i am a little leary of being a guinea pig for med students. I wont mind if it helps us all out with this but more often than not I feel like the doctors just want to try new drugs for the drug companies more than actual healing. I am very tired from everything lately, I slept for 17 hours yesterday after leaving work early and have been receiving flack from work. PSC and construction trades dont mix. sorry for the rant but im feeling overwhelmed and depressed. > > ROB > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2009 Report Share Posted March 14, 2009 Rob, I am sure there are many positives with being at a teaching hospital. Fransen from Idaho Falls had an overall good experience at University of Utah, but there were some concerns. I can't remember. I had my infant son at a teaching hospital when he was very sick. One of the student doctors did some kind of nasal gastric tube thing the wrong way and closed off his airway. It scared me to death. It had to be done again by an experienced RN. It was awful. I think the generating new ideas and lack of arrogance is great, I don't think I would especially want any of them touching me for procedural things or making life and death decisions. My daughter who is an RN says that a rare few doctors do some pretty outrageous things when patients are under general anesthsia like inviting people in to watch without your permission, or allowing someone ill qualified do parts of the surgery etc. It's very important to me to know who is doing what and who will be in there. I don't want my huge or shriveled liver or something being shown off to hospital administration or anything like that. After I'm dead, they can learn all they want from my body. I'm a little more particular about my body while I'm still using it. I hope it all works very well for you. Cheryl ID Hey Guys > > > > > > > > > > > > > > Hey all, > > Just a couple of questions here. My case is being transferred to washington university school of medicine department for specialized medicine. I dont know how to feel about this. my GI has already told me that he has never treated PSC before and hes been in the business for quite a while and that I will go the the university for more attention and because there are no doctors on staff within 50 miles of me that are qualified to remove/replace my stents.(side question, i have had the chills for 2-3 days and an on/off fever between 100-102. advice?) > > Im happy he was honest with me and I know that wash-u has an excellent staff, but i am a little leary of being a guinea pig for med students. I wont mind if it helps us all out with this but more often than not I feel like the doctors just want to try new drugs for the drug companies more than actual healing. I am very tired from everything lately, I slept for 17 hours yesterday after leaving work early and have been receiving flack from work. PSC and construction trades dont mix. sorry for the rant but im feeling overwhelmed and depressed. > > ROB > > > > > > Quote Link to comment Share on other sites More sharing options...
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