Guest guest Posted August 6, 2002 Report Share Posted August 6, 2002 Hi everyone! Finally getting around to introducing myself after lurking for several weeks. So far this seems like a really great group and I look forward to corresponding with everybody. My name is , I'm 37 and was diagnosed with fibro in October of 2000. I live in Houston, TX and have been married for 13 years to a wonderfully supportive husband. I probably would have gone off the deep end years ago without him. :-) >What are the symptoms? In no certain order.... General muscle/joint pain and stiffness, chronic muscle tension (especially in neck & shoulders, causing pain), fatigue, Myofascial Pain Syndrome, Irritable Bowel Syndrome, reactive hypoglycemia & insuline resistance, cognitive problems (fibrofog), sleep problems, chronic headaches (sinus, TMJ & tension), sensitivity to loud noises & strong odors (especially cigarette smoke), Tinnitus, Carpal Tunnel Syndrome, suseptibility to skin infections & rashes, heat intolerant. >Has you illness been diagnosed? Yes. >How long did you suffer before you got help? Approximately 4 years. All spent bouncing from doctor to doctor. >Is there a time that you can remember when it started? Sort of. I recall going on an extended vacation in early 1996 and experiencing an unusual amount of fatigue. It continued to worsen slowly and over time the muscle pain and cognitive problems began to set in. Followed closely by everything else. >Some of us have found lack of exercise we are overweight. Have you found this to be a problem also? Yes. Seems like I've done nothing but gain weight since I became ill. And the anti-depressant I'm on doesn't help. >Are you on disability? Nope, still trying to plug away at my job of 7 years, though I've cut back drastically on my hours. >What have you found that helps ease the pain, warm baths, medications etc.? Going on Zoloft right after I was diagnosed helped with the worst of the muscle pain from the fibro. Cutting way back on sodas has helped as well. The pain from the extreme muscle tension and MPS, however, are another story. >Do you have sleep problems? How do you deal with it? Yes, I do. I've found that in some instances 3 to 6 MGs of melatonin just before bed can help me drop off to sleep fairly quickly. (30 minutes or so as opposed to several hours) Other times, however, I can't get to sleep until around 3 or 4 am. Or else if I do drop off to sleep without any problem I wake up at some un-Godly hour and can't get back to sleep. >Some have found certain foods causes problems with CFS or Fibro, have you? Only in regards to my hypoglycemia and IBS. I find I feel best when I avoid refined sugars and starches and eat a diet of protein balanced with complex carbohydrates and veggies. Indulging in too much rich or fatty foods can aggravate my IBS, as can overeating. Initially the complex carbs & fiber triggered my IBS, but after gradually including more of these types of foods into my diet I found I had no problem with them. >What type of Doctor have you found that has helped you the most? So far, none. I'm still on the great sympathetic, competant, informed doctor quest. Either they're sympathetic but have no clue how to help you... or they're apathetic 'specialists' who figure since there's no known 'cure' that you're on your own... or they're downright condescending and arrogant. Hope those answers helped somebody in some way. Personally I'm still searching for that balance that has been a consistent thread lately. Recently 'fired' both my doctors after continually being prescribed either drugs that made me extrememly ill or else weren't doing anything more than just heavily sedating me. So I'm still in the process of physically recouping from all that and trying to better refine my diet (read: eat like I should!) :-) Plus trying to find the right combination of supplements. Look forward to hearing from everyone! - __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2002 Report Share Posted August 6, 2002 Welcome! What is it with Texas??? Something in the water? LOL Missy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2002 Report Share Posted August 6, 2002 Welcome! What is it with Texas??? Something in the water? LOL Missy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2002 Report Share Posted August 7, 2002 LOL Nah, I think it's the heat! ;-) - --- parrot004@... wrote: > Welcome! What is it with Texas??? Something in the > water? LOL > > Missy __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2002 Report Share Posted August 7, 2002 LOL Nah, I think it's the heat! ;-) - --- parrot004@... wrote: > Welcome! What is it with Texas??? Something in the > water? LOL > > Missy __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2002 Report Share Posted August 7, 2002 LOL Nah, I think it's the heat! ;-) - --- parrot004@... wrote: > Welcome! What is it with Texas??? Something in the > water? LOL > > Missy __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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