Re: Results of stopping URSO

[Guest guest]

There is nothing very alarming in those numbers. I had a real spike when I stopped taking it for a month. I would be tempted to try another month URSO free and see if the numbers continue to rise.

Ian

I received my blood test results (1 month after terminating high dose Urso). I've posted an image of my results in the files section (http://health.groups.yahoo.com/group//files/, under Liver Panel Tests). I've reported the long term increase in ALK phosphatase in the past. At the rate it's going, I wouldn't reach the high end of the "normal" band for 25 years.

The only real change is a sharp increase in ALT. Although still within the normal range for this lab, it's clearly higher than it's been since diagnosis in 2000. Unfortunately, the distribution for ALT is not normal (that is, not a classic bell shape), but skewed to the left side. See http://www.aafp.org/afp/990415ap/2223.html.

So, although in the "normal" range, it's not so normal for me. He said he would write a prescription for low dose Urso, if I chose. The URQ pain I experienced shortly after stopping Urso has pretty much disappeared now, and I really have no other symptoms. I'm inclined to go back on it at the reduced dosage.

He did say he wouldn't normally do this, but as I'm a pretty "savvy" patient (thanks everyone!), he would be OK with it. He also wished he had plots like this from all his patients (it's an engineer thing – sorry).

I wasn't too wild about this in the first place; I restarted Urso an hour ago.

Arne

UC 1977, PSC 2000

Alive and well in Minnesota

-- Ian Cribb P.Eng.

[Guest guest]

There is nothing very alarming in those numbers. I had a real spike when I stopped taking it for a month. I would be tempted to try another month URSO free and see if the numbers continue to rise.

Ian

I received my blood test results (1 month after terminating high dose Urso). I've posted an image of my results in the files section (http://health.groups.yahoo.com/group//files/, under Liver Panel Tests). I've reported the long term increase in ALK phosphatase in the past. At the rate it's going, I wouldn't reach the high end of the "normal" band for 25 years.

The only real change is a sharp increase in ALT. Although still within the normal range for this lab, it's clearly higher than it's been since diagnosis in 2000. Unfortunately, the distribution for ALT is not normal (that is, not a classic bell shape), but skewed to the left side. See http://www.aafp.org/afp/990415ap/2223.html.

So, although in the "normal" range, it's not so normal for me. He said he would write a prescription for low dose Urso, if I chose. The URQ pain I experienced shortly after stopping Urso has pretty much disappeared now, and I really have no other symptoms. I'm inclined to go back on it at the reduced dosage.

He did say he wouldn't normally do this, but as I'm a pretty "savvy" patient (thanks everyone!), he would be OK with it. He also wished he had plots like this from all his patients (it's an engineer thing – sorry).

I wasn't too wild about this in the first place; I restarted Urso an hour ago.

Arne

UC 1977, PSC 2000

Alive and well in Minnesota

-- Ian Cribb P.Eng.

[Guest guest]

There is nothing very alarming in those numbers. I had a real spike when I stopped taking it for a month. I would be tempted to try another month URSO free and see if the numbers continue to rise.

Ian

I received my blood test results (1 month after terminating high dose Urso). I've posted an image of my results in the files section (http://health.groups.yahoo.com/group//files/, under Liver Panel Tests). I've reported the long term increase in ALK phosphatase in the past. At the rate it's going, I wouldn't reach the high end of the "normal" band for 25 years.

The only real change is a sharp increase in ALT. Although still within the normal range for this lab, it's clearly higher than it's been since diagnosis in 2000. Unfortunately, the distribution for ALT is not normal (that is, not a classic bell shape), but skewed to the left side. See http://www.aafp.org/afp/990415ap/2223.html.

So, although in the "normal" range, it's not so normal for me. He said he would write a prescription for low dose Urso, if I chose. The URQ pain I experienced shortly after stopping Urso has pretty much disappeared now, and I really have no other symptoms. I'm inclined to go back on it at the reduced dosage.

He did say he wouldn't normally do this, but as I'm a pretty "savvy" patient (thanks everyone!), he would be OK with it. He also wished he had plots like this from all his patients (it's an engineer thing – sorry).

I wasn't too wild about this in the first place; I restarted Urso an hour ago.

Arne

UC 1977, PSC 2000

Alive and well in Minnesota

-- Ian Cribb P.Eng.

[Guest guest]

Arne,

Your work here is impressive! Advocating for yourself takes on a whole new meaning with you.

Keep up the good work.

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[Guest guest]

You are amazing Arne, I bet your Dr. does his homework before you come in for your visits!!LeeI received my blood test results (1 month after terminating high dose Urso). I’ve posted an image of my results in the files section (http://health.groups.yahoo.com/group//files/, under Liver Panel Tests). I’ve reported the long term increase in ALK phosphatase in the past. At the rate it’s going, I wouldn’t reach the high end of the “normal” band for 25 years.

[Guest guest]

You are amazing Arne, I bet your Dr. does his homework before you come in for your visits!!LeeI received my blood test results (1 month after terminating high dose Urso). I’ve posted an image of my results in the files section (http://health.groups.yahoo.com/group//files/, under Liver Panel Tests). I’ve reported the long term increase in ALK phosphatase in the past. At the rate it’s going, I wouldn’t reach the high end of the “normal” band for 25 years.