Re: any thoughts/help appreciated

[Guest guest]

Lori,

If the hepatologist was dismissive of liver concerns, then I would be

greatly encouraged by that. Some of the enzyemes in the

typical " LFT " panel are not necessarily liver related. They are used

as a part of a bigger picture and more important that any individual

level is the ratios of level a to level b.

But again, if the hepatologist isn't concerned, then I wouldn't be

either!!

Rick

>

> This is info on me- not my son who has PSC but i don't know who else

> to ask ?? I will of course be talking to my drs soon but am hoping

to

> get some ideas before my CT scan today ??

> A little background info-

> I have had elevated LFTs for a while (that are not always high ??)

and

> have had bile duct dilations on imaging. My first liver biopsy

showed

> early bridging fibrosis but no cause identified. My 2nd biospy

showed

> increased eosinophils (autoimmune ??) The hepatologist I saw was

quite

> dismissive of my enlarged liver and spleen- said that 'when you gain

> weight' (I have) your liver and spleen get larger...

> I have recently been tentatively been diagnosed with some

autoimmune +

> ?? issues. I have had a pleural effusion drained on my right side

that

> was thought to possibly be liver related ? In the ER they kept

> repeating my LFTs and pancreatic enzymes...

> The effusion was exudative and had a lot of eosinophils in it as

well

> as 11,000 WBCs and 20,000 RBCs and LDH ratio >2 ...

> I saw my hematologist 2 days ago, because he is always helpful even

if

> not his 'area' and he wanted me to see a pulmonologist yesterday.

The

> pulmonologist did labs yesterday and ordered a chest and abdomen CT

> scan today. Here are my abnormal labs from yesterday-

> does any of this sound liver related ???

> Sorry to ask- but like I said I don't know who to ask- my

hepatologist

> (that I won't be going back to) will not be helpful and when I

tried a

> few days ago my GI's office said he couldn't see me until the end of

> January....

>

> ALT H at 61

> WBC 12.7 H normal up to 9.22

> MCH low

> platelets H 533 normal up to 412

> basophils 1.8 H normal up to 1.7

> lymphocytes auto 2.96 H normal up to 2.93

> neutrophils 8.14 H normal up to 6.16

> eosinophils .89 normal up to .40

> basophils .22 normal high up to .10

>

> thanks in advance for anyone who may have some insight ??

>

> Lori

> lucky mom blessed with triplets

> www.caringbridge.org/visit/bradenwild

>

[Guest guest]

Lori,

If the hepatologist was dismissive of liver concerns, then I would be

greatly encouraged by that. Some of the enzyemes in the

typical " LFT " panel are not necessarily liver related. They are used

as a part of a bigger picture and more important that any individual

level is the ratios of level a to level b.

But again, if the hepatologist isn't concerned, then I wouldn't be

either!!

Rick

>

> This is info on me- not my son who has PSC but i don't know who else

> to ask ?? I will of course be talking to my drs soon but am hoping

to

> get some ideas before my CT scan today ??

> A little background info-

> I have had elevated LFTs for a while (that are not always high ??)

and

> have had bile duct dilations on imaging. My first liver biopsy

showed

> early bridging fibrosis but no cause identified. My 2nd biospy

showed

> increased eosinophils (autoimmune ??) The hepatologist I saw was

quite

> dismissive of my enlarged liver and spleen- said that 'when you gain

> weight' (I have) your liver and spleen get larger...

> I have recently been tentatively been diagnosed with some

autoimmune +

> ?? issues. I have had a pleural effusion drained on my right side

that

> was thought to possibly be liver related ? In the ER they kept

> repeating my LFTs and pancreatic enzymes...

> The effusion was exudative and had a lot of eosinophils in it as

well

> as 11,000 WBCs and 20,000 RBCs and LDH ratio >2 ...

> I saw my hematologist 2 days ago, because he is always helpful even

if

> not his 'area' and he wanted me to see a pulmonologist yesterday.

The

> pulmonologist did labs yesterday and ordered a chest and abdomen CT

> scan today. Here are my abnormal labs from yesterday-

> does any of this sound liver related ???

> Sorry to ask- but like I said I don't know who to ask- my

hepatologist

> (that I won't be going back to) will not be helpful and when I

tried a

> few days ago my GI's office said he couldn't see me until the end of

> January....

>

> ALT H at 61

> WBC 12.7 H normal up to 9.22

> MCH low

> platelets H 533 normal up to 412

> basophils 1.8 H normal up to 1.7

> lymphocytes auto 2.96 H normal up to 2.93

> neutrophils 8.14 H normal up to 6.16

> eosinophils .89 normal up to .40

> basophils .22 normal high up to .10

>

> thanks in advance for anyone who may have some insight ??

>

> Lori

> lucky mom blessed with triplets

> www.caringbridge.org/visit/bradenwild

>

[Guest guest]

Lori,

If the hepatologist was dismissive of liver concerns, then I would be

greatly encouraged by that. Some of the enzyemes in the

typical " LFT " panel are not necessarily liver related. They are used

as a part of a bigger picture and more important that any individual

level is the ratios of level a to level b.

But again, if the hepatologist isn't concerned, then I wouldn't be

either!!

Rick

>

> This is info on me- not my son who has PSC but i don't know who else

> to ask ?? I will of course be talking to my drs soon but am hoping

to

> get some ideas before my CT scan today ??

> A little background info-

> I have had elevated LFTs for a while (that are not always high ??)

and

> have had bile duct dilations on imaging. My first liver biopsy

showed

> early bridging fibrosis but no cause identified. My 2nd biospy

showed

> increased eosinophils (autoimmune ??) The hepatologist I saw was

quite

> dismissive of my enlarged liver and spleen- said that 'when you gain

> weight' (I have) your liver and spleen get larger...

> I have recently been tentatively been diagnosed with some

autoimmune +

> ?? issues. I have had a pleural effusion drained on my right side

that

> was thought to possibly be liver related ? In the ER they kept

> repeating my LFTs and pancreatic enzymes...

> The effusion was exudative and had a lot of eosinophils in it as

well

> as 11,000 WBCs and 20,000 RBCs and LDH ratio >2 ...

> I saw my hematologist 2 days ago, because he is always helpful even

if

> not his 'area' and he wanted me to see a pulmonologist yesterday.

The

> pulmonologist did labs yesterday and ordered a chest and abdomen CT

> scan today. Here are my abnormal labs from yesterday-

> does any of this sound liver related ???

> Sorry to ask- but like I said I don't know who to ask- my

hepatologist

> (that I won't be going back to) will not be helpful and when I

tried a

> few days ago my GI's office said he couldn't see me until the end of

> January....

>

> ALT H at 61

> WBC 12.7 H normal up to 9.22

> MCH low

> platelets H 533 normal up to 412

> basophils 1.8 H normal up to 1.7

> lymphocytes auto 2.96 H normal up to 2.93

> neutrophils 8.14 H normal up to 6.16

> eosinophils .89 normal up to .40

> basophils .22 normal high up to .10

>

> thanks in advance for anyone who may have some insight ??

>

> Lori

> lucky mom blessed with triplets

> www.caringbridge.org/visit/bradenwild

>

[Guest guest]

Lori,

Is your ALP elevated? It is my understanding that almost everyone

with PSC has elevated ALP. It does sound like you have something

autoimmune going on. Do you have an autoimmune center where you

live. Being from land, we have one at Hopkins. Autoimmune

disorders can be very difficult to diagnose. Good luck

>

> This is info on me- not my son who has PSC but i don't know who else

> to ask ?? I will of course be talking to my drs soon but am hoping

to

> get some ideas before my CT scan today ??

> A little background info-

> I have had elevated LFTs for a while (that are not always high ??)

and

> have had bile duct dilations on imaging. My first liver biopsy

showed

> early bridging fibrosis but no cause identified. My 2nd biospy

showed

> increased eosinophils (autoimmune ??) The hepatologist I saw was

quite

> dismissive of my enlarged liver and spleen- said that 'when you gain

> weight' (I have) your liver and spleen get larger...

> I have recently been tentatively been diagnosed with some

autoimmune +

> ?? issues. I have had a pleural effusion drained on my right side

that

> was thought to possibly be liver related ? In the ER they kept

> repeating my LFTs and pancreatic enzymes...

> The effusion was exudative and had a lot of eosinophils in it as

well

> as 11,000 WBCs and 20,000 RBCs and LDH ratio >2 ...

> I saw my hematologist 2 days ago, because he is always helpful even

if

> not his 'area' and he wanted me to see a pulmonologist yesterday.

The

> pulmonologist did labs yesterday and ordered a chest and abdomen CT

> scan today. Here are my abnormal labs from yesterday-

> does any of this sound liver related ???

> Sorry to ask- but like I said I don't know who to ask- my

hepatologist

> (that I won't be going back to) will not be helpful and when I

tried a

> few days ago my GI's office said he couldn't see me until the end of

> January....

>

> ALT H at 61

> WBC 12.7 H normal up to 9.22

> MCH low

> platelets H 533 normal up to 412

> basophils 1.8 H normal up to 1.7

> lymphocytes auto 2.96 H normal up to 2.93

> neutrophils 8.14 H normal up to 6.16

> eosinophils .89 normal up to .40

> basophils .22 normal high up to .10

>

> thanks in advance for anyone who may have some insight ??

>

> Lori

> lucky mom blessed with triplets

> www.caringbridge.org/visit/bradenwild

>