Guest guest Posted June 14, 2002 Report Share Posted June 14, 2002 Can a blood test tell whether you have fibro or cfs? It's too bad your doctor doesn't have *better* answers...this gets so frustrating I'm sure! What are clinoril and vanflex? Pain meds? Keep us posted ! Char mboulis@... wrote: > I am very upset and frustrated. Have you ever felt like you are just > totally ignored no matter how much you try to talk with someone? > I went in this morning and his nurse asked how I was. I said I do not > feel good and she said I look exhausted. I told her my symptoms, that > they have been constant since April and that I have been having these > off and on since summer 1999. Of course, this stuff was in my initial > complaints to my GP, who told me it was a " virus " , then " lupus " and > then he sent me to my rheumy. I showed the nurse all the papers I > brought in, made it clear I did not want him to think I was being > disrespectful---she said he would not think that, that he is open to > suggestions and such from patients. Well, after he did his usual > exam, he asked how things were from a few weeks ago. I started telling > him about the symptoms and such, tried to show him what I found on > the internet---he refused to look at any of it. He told me > that CFS is not a disease---it is a complex set of symptoms and that > when a physician cannot find an absolute cause, this is basically the > catch all diagnosis. I mentioned FM (which I pronounced wrong and he, > in a sarcastic tone, made a point of correcting me on it) and he said > basically the same thing---symptoms with unknown cause so diagnosis of > FM is given and that it also is " just symptoms " . I asked him what is > wrong with me then---he said it is my cryoglobulinemia. Just a few > weeks ago, he told me flat out that > fatigue, brain fog, loss of short term memory and headaches are NOT > from cryo. When I reminded him of this, he got very perturbed. > I told him that I have gone on inactive status at work and that I am > due to start back to school in 10 weeks---what can I do? He said he > did not know and then prescribed me Clinoril and Zanflex (I think that > is the name). He wants to see me in 6 weeks and wants me to go through > another round of $700 worth of bloodwork, which I cannot afford (our > insurance pays 70% of it but with me not working, it is too much of a > financial strain). Needless to say, I am a little more than upset. I > did not know whether to scream or cry. I called my husband at work and > he wants me to call our insurance carrier and ask for a > referral---this rheumy is the only one in our area. My husband said if > needed, we'd go to Cleveland (65 miles away). Thank > God I have a supportive husband! Have any of you ever been told or > heard that CFS and FM are not diseases? That is why I was surpised > when someone said the Arthritis Foundation recognizes FM. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2002 Report Share Posted June 14, 2002 Can a blood test tell whether you have fibro or cfs? It's too bad your doctor doesn't have *better* answers...this gets so frustrating I'm sure! What are clinoril and vanflex? Pain meds? Keep us posted ! Char mboulis@... wrote: > I am very upset and frustrated. Have you ever felt like you are just > totally ignored no matter how much you try to talk with someone? > I went in this morning and his nurse asked how I was. I said I do not > feel good and she said I look exhausted. I told her my symptoms, that > they have been constant since April and that I have been having these > off and on since summer 1999. Of course, this stuff was in my initial > complaints to my GP, who told me it was a " virus " , then " lupus " and > then he sent me to my rheumy. I showed the nurse all the papers I > brought in, made it clear I did not want him to think I was being > disrespectful---she said he would not think that, that he is open to > suggestions and such from patients. Well, after he did his usual > exam, he asked how things were from a few weeks ago. I started telling > him about the symptoms and such, tried to show him what I found on > the internet---he refused to look at any of it. He told me > that CFS is not a disease---it is a complex set of symptoms and that > when a physician cannot find an absolute cause, this is basically the > catch all diagnosis. I mentioned FM (which I pronounced wrong and he, > in a sarcastic tone, made a point of correcting me on it) and he said > basically the same thing---symptoms with unknown cause so diagnosis of > FM is given and that it also is " just symptoms " . I asked him what is > wrong with me then---he said it is my cryoglobulinemia. Just a few > weeks ago, he told me flat out that > fatigue, brain fog, loss of short term memory and headaches are NOT > from cryo. When I reminded him of this, he got very perturbed. > I told him that I have gone on inactive status at work and that I am > due to start back to school in 10 weeks---what can I do? He said he > did not know and then prescribed me Clinoril and Zanflex (I think that > is the name). He wants to see me in 6 weeks and wants me to go through > another round of $700 worth of bloodwork, which I cannot afford (our > insurance pays 70% of it but with me not working, it is too much of a > financial strain). Needless to say, I am a little more than upset. I > did not know whether to scream or cry. I called my husband at work and > he wants me to call our insurance carrier and ask for a > referral---this rheumy is the only one in our area. My husband said if > needed, we'd go to Cleveland (65 miles away). Thank > God I have a supportive husband! Have any of you ever been told or > heard that CFS and FM are not diseases? That is why I was surpised > when someone said the Arthritis Foundation recognizes FM. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2002 Report Share Posted June 14, 2002 Can a blood test tell whether you have fibro or cfs? It's too bad your doctor doesn't have *better* answers...this gets so frustrating I'm sure! What are clinoril and vanflex? Pain meds? Keep us posted ! Char mboulis@... wrote: > I am very upset and frustrated. Have you ever felt like you are just > totally ignored no matter how much you try to talk with someone? > I went in this morning and his nurse asked how I was. I said I do not > feel good and she said I look exhausted. I told her my symptoms, that > they have been constant since April and that I have been having these > off and on since summer 1999. Of course, this stuff was in my initial > complaints to my GP, who told me it was a " virus " , then " lupus " and > then he sent me to my rheumy. I showed the nurse all the papers I > brought in, made it clear I did not want him to think I was being > disrespectful---she said he would not think that, that he is open to > suggestions and such from patients. Well, after he did his usual > exam, he asked how things were from a few weeks ago. I started telling > him about the symptoms and such, tried to show him what I found on > the internet---he refused to look at any of it. He told me > that CFS is not a disease---it is a complex set of symptoms and that > when a physician cannot find an absolute cause, this is basically the > catch all diagnosis. I mentioned FM (which I pronounced wrong and he, > in a sarcastic tone, made a point of correcting me on it) and he said > basically the same thing---symptoms with unknown cause so diagnosis of > FM is given and that it also is " just symptoms " . I asked him what is > wrong with me then---he said it is my cryoglobulinemia. Just a few > weeks ago, he told me flat out that > fatigue, brain fog, loss of short term memory and headaches are NOT > from cryo. When I reminded him of this, he got very perturbed. > I told him that I have gone on inactive status at work and that I am > due to start back to school in 10 weeks---what can I do? He said he > did not know and then prescribed me Clinoril and Zanflex (I think that > is the name). He wants to see me in 6 weeks and wants me to go through > another round of $700 worth of bloodwork, which I cannot afford (our > insurance pays 70% of it but with me not working, it is too much of a > financial strain). Needless to say, I am a little more than upset. I > did not know whether to scream or cry. I called my husband at work and > he wants me to call our insurance carrier and ask for a > referral---this rheumy is the only one in our area. My husband said if > needed, we'd go to Cleveland (65 miles away). Thank > God I have a supportive husband! Have any of you ever been told or > heard that CFS and FM are not diseases? That is why I was surpised > when someone said the Arthritis Foundation recognizes FM. > Quote Link to comment Share on other sites More sharing options...
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