Re: Another question/Donna

[Guest guest]

Dear Sherri,

I am sorry to hear that you were dx'd with all this! The first year after I

was dx'd was one of the worst and I didn't have a computer back then to look

into things. I had a bit of medical background and so I wasn't totally

clueless, It was my own research that found what was wrong with me before the

doctors did. I always felt that they would find out what was wrong with me

and fix me and I could go back to my career. NOT! So the first year was

filled with all sorts of muck! I did all they said to do and then found they

were not telling me everything, boy was I mad at my wonderful doc for trying

to protect me! Truth is better even if it is something you don't want to

hear, than a lie that will deceive you and mislead you!

I found that finding a good pharmisist is the best thing we can do sometimes,

they can tell you many things a doc doesn't have time to tell you. If you

have questions about medications, try calling a couple of pharmacys and

getting their opinions. Even for us oldies but goodies in fibroland, getting

the right medications and the mix of it all can be a chanllenge! You may

find some that work togther for a time and then have to switch. Then you

find some more that seem to work and something else comes up. It can be

frustrating, but that is where your support systems can come in and help. An

arm around another in a time of trial by fire, is the best thing I know!

There were times when I failed to use medications because I was afraid of

addiction or what ever and I suffered needlessly. I have used pain

medications for years, but the way I use them make them still work for me

after years of use and I am very careful with what I use and why. I tried

just about everything, but I have found my mix and am comfortable with it and

do not get drugged or too used to the medications that make the difference in

life between being able to function at all and laying in bed crying or

sitting up and crying, which ever it is that one does when in too much pain

to function.

First thing I would tell anyone that is recently dx'd, get information, but

don't get it all at once! It can be too overwhelming! Get it dose of info,

take a rest and digest it and then hit it another day. I took it all in at

once and man was I ready for a loony bin! I was ready to give up and call

Jack Kavorkian! That isn't the answer to all of this. We have good days and

we must live for them and our families. When the bad day hits or weeks of

bad days, keep in mind it will pass and it will be okay and that there is

still a lot in life that we can do and we need to hang on when we feel we

can't, for there is a brighter day coming.

May life be kind to you!

Donna/Silverlocket

[Guest guest]

Dear Sherri,

I am sorry to hear that you were dx'd with all this! The first year after I

was dx'd was one of the worst and I didn't have a computer back then to look

into things. I had a bit of medical background and so I wasn't totally

clueless, It was my own research that found what was wrong with me before the

doctors did. I always felt that they would find out what was wrong with me

and fix me and I could go back to my career. NOT! So the first year was

filled with all sorts of muck! I did all they said to do and then found they

were not telling me everything, boy was I mad at my wonderful doc for trying

to protect me! Truth is better even if it is something you don't want to

hear, than a lie that will deceive you and mislead you!

I found that finding a good pharmisist is the best thing we can do sometimes,

they can tell you many things a doc doesn't have time to tell you. If you

have questions about medications, try calling a couple of pharmacys and

getting their opinions. Even for us oldies but goodies in fibroland, getting

the right medications and the mix of it all can be a chanllenge! You may

find some that work togther for a time and then have to switch. Then you

find some more that seem to work and something else comes up. It can be

frustrating, but that is where your support systems can come in and help. An

arm around another in a time of trial by fire, is the best thing I know!

There were times when I failed to use medications because I was afraid of

addiction or what ever and I suffered needlessly. I have used pain

medications for years, but the way I use them make them still work for me

after years of use and I am very careful with what I use and why. I tried

just about everything, but I have found my mix and am comfortable with it and

do not get drugged or too used to the medications that make the difference in

life between being able to function at all and laying in bed crying or

sitting up and crying, which ever it is that one does when in too much pain

to function.

First thing I would tell anyone that is recently dx'd, get information, but

don't get it all at once! It can be too overwhelming! Get it dose of info,

take a rest and digest it and then hit it another day. I took it all in at

once and man was I ready for a loony bin! I was ready to give up and call

Jack Kavorkian! That isn't the answer to all of this. We have good days and

we must live for them and our families. When the bad day hits or weeks of

bad days, keep in mind it will pass and it will be okay and that there is

still a lot in life that we can do and we need to hang on when we feel we

can't, for there is a brighter day coming.

May life be kind to you!

Donna/Silverlocket

[Guest guest]

Dear Sherri,

I am sorry to hear that you were dx'd with all this! The first year after I

was dx'd was one of the worst and I didn't have a computer back then to look

into things. I had a bit of medical background and so I wasn't totally

clueless, It was my own research that found what was wrong with me before the

doctors did. I always felt that they would find out what was wrong with me

and fix me and I could go back to my career. NOT! So the first year was

filled with all sorts of muck! I did all they said to do and then found they

were not telling me everything, boy was I mad at my wonderful doc for trying

to protect me! Truth is better even if it is something you don't want to

hear, than a lie that will deceive you and mislead you!

I found that finding a good pharmisist is the best thing we can do sometimes,

they can tell you many things a doc doesn't have time to tell you. If you

have questions about medications, try calling a couple of pharmacys and

getting their opinions. Even for us oldies but goodies in fibroland, getting

the right medications and the mix of it all can be a chanllenge! You may

find some that work togther for a time and then have to switch. Then you

find some more that seem to work and something else comes up. It can be

frustrating, but that is where your support systems can come in and help. An

arm around another in a time of trial by fire, is the best thing I know!

There were times when I failed to use medications because I was afraid of

addiction or what ever and I suffered needlessly. I have used pain

medications for years, but the way I use them make them still work for me

after years of use and I am very careful with what I use and why. I tried

just about everything, but I have found my mix and am comfortable with it and

do not get drugged or too used to the medications that make the difference in

life between being able to function at all and laying in bed crying or

sitting up and crying, which ever it is that one does when in too much pain

to function.

First thing I would tell anyone that is recently dx'd, get information, but

don't get it all at once! It can be too overwhelming! Get it dose of info,

take a rest and digest it and then hit it another day. I took it all in at

once and man was I ready for a loony bin! I was ready to give up and call

Jack Kavorkian! That isn't the answer to all of this. We have good days and

we must live for them and our families. When the bad day hits or weeks of

bad days, keep in mind it will pass and it will be okay and that there is

still a lot in life that we can do and we need to hang on when we feel we

can't, for there is a brighter day coming.

May life be kind to you!

Donna/Silverlocket

[Guest guest]

Hello Sherri,

I just was diagnosed Last Friday. I have hurting since

May. First they diagnosed plurasy, then

costchondritis, now Fibro. I started taking elavil

Friday night to help me sleep, the first two nights it

took me awhile to get to sleep, but Sunday night,

Monday and Tuesday nights I woke up on the Elavil

every hour on the hour with a startled wake up. I

think I slept better hurting then I do now. So the

doctor told me today, to double my dose. We'll see.

He has me on Ultracet for the pain, and it does take

the edge off of it. I didn't want to take any type

narcotic pain medicine because most of them just put

me out and I have three children.

But I'll let you know how the Elavil works for the

sleep concern.

I smoke too and I do need to quit as well. It is sooo

hard.

Last night I started a veggie and fruit diet for a

week. I read here this week that it helps, so I

thought I would try it out for a week and see.

Take care

a Faye

--- Sherri B slb@...> wrote:

> First of all, thank you for your response! I am

> really kinda confused about

> all this also. I was just diagnosed in February.

> This is the first day

> since February that I can actually tolerate life

> Still not sleeping

> great but better than before.

>

> This is an email list. Everyone who is subbed to

> this group will get all

> the messages, even the ones you post. Makes for a

> great support network

>

> I did start taking prozac almost 3 weeks ago. Don't

> know if that is helping

> or not either. I quit taking everything a couple

> weeks ago also. Just

> taking prozac and tylenol.

>

> Does anyone know if you can take Zyban while you are

> taking prozac? Really

> need to quit smoking...

>

> Hugs,

> Sherri

>

>

__________________________________________________

[Guest guest]

Hello Sherri,

I just was diagnosed Last Friday. I have hurting since

May. First they diagnosed plurasy, then

costchondritis, now Fibro. I started taking elavil

Friday night to help me sleep, the first two nights it

took me awhile to get to sleep, but Sunday night,

Monday and Tuesday nights I woke up on the Elavil

every hour on the hour with a startled wake up. I

think I slept better hurting then I do now. So the

doctor told me today, to double my dose. We'll see.

He has me on Ultracet for the pain, and it does take

the edge off of it. I didn't want to take any type

narcotic pain medicine because most of them just put

me out and I have three children.

But I'll let you know how the Elavil works for the

sleep concern.

I smoke too and I do need to quit as well. It is sooo

hard.

Last night I started a veggie and fruit diet for a

week. I read here this week that it helps, so I

thought I would try it out for a week and see.

Take care

a Faye

--- Sherri B slb@...> wrote:

> First of all, thank you for your response! I am

> really kinda confused about

> all this also. I was just diagnosed in February.

> This is the first day

> since February that I can actually tolerate life

> Still not sleeping

> great but better than before.

>

> This is an email list. Everyone who is subbed to

> this group will get all

> the messages, even the ones you post. Makes for a

> great support network

>

> I did start taking prozac almost 3 weeks ago. Don't

> know if that is helping

> or not either. I quit taking everything a couple

> weeks ago also. Just

> taking prozac and tylenol.

>

> Does anyone know if you can take Zyban while you are

> taking prozac? Really

> need to quit smoking...

>

> Hugs,

> Sherri

>

>

__________________________________________________

[Guest guest]

Hello Sherri,

I just was diagnosed Last Friday. I have hurting since

May. First they diagnosed plurasy, then

costchondritis, now Fibro. I started taking elavil

Friday night to help me sleep, the first two nights it

took me awhile to get to sleep, but Sunday night,

Monday and Tuesday nights I woke up on the Elavil

every hour on the hour with a startled wake up. I

think I slept better hurting then I do now. So the

doctor told me today, to double my dose. We'll see.

He has me on Ultracet for the pain, and it does take

the edge off of it. I didn't want to take any type

narcotic pain medicine because most of them just put

me out and I have three children.

But I'll let you know how the Elavil works for the

sleep concern.

I smoke too and I do need to quit as well. It is sooo

hard.

Last night I started a veggie and fruit diet for a

week. I read here this week that it helps, so I

thought I would try it out for a week and see.

Take care

a Faye

--- Sherri B slb@...> wrote:

> First of all, thank you for your response! I am

> really kinda confused about

> all this also. I was just diagnosed in February.

> This is the first day

> since February that I can actually tolerate life

> Still not sleeping

> great but better than before.

>

> This is an email list. Everyone who is subbed to

> this group will get all

> the messages, even the ones you post. Makes for a

> great support network

>

> I did start taking prozac almost 3 weeks ago. Don't

> know if that is helping

> or not either. I quit taking everything a couple

> weeks ago also. Just

> taking prozac and tylenol.

>

> Does anyone know if you can take Zyban while you are

> taking prozac? Really

> need to quit smoking...

>

> Hugs,

> Sherri

>

>

__________________________________________________

[Guest guest]

First of all, thank you for your response! I am really kinda confused about

all this also. I was just diagnosed in February. This is the first day

since February that I can actually tolerate life Still not sleeping

great but better than before.

This is an email list. Everyone who is subbed to this group will get all

the messages, even the ones you post. Makes for a great support network

I did start taking prozac almost 3 weeks ago. Don't know if that is helping

or not either. I quit taking everything a couple weeks ago also. Just

taking prozac and tylenol.

Does anyone know if you can take Zyban while you are taking prozac? Really

need to quit smoking...

Hugs,

Sherri