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Re: OK, my body and my blood disagree...

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Posted
Posted

this is a typical reason why I do not believe in adjusting meds by test

results solely! Your tests are a great example of how wrong they can be! Your

temperature & pulse is screaming HYPO!!! But your blood says something

different. I am sure Janie has a good doctor, so best of luck with getting

yourself feeling better!

*Artistic Grooming * Hurricane, WV

Fat cat? Diabetes? Listowner for overweight or hypothyroid cats

http://groups.yahoo.com/group/hypokitties/

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Posted
Posted

this is a typical reason why I do not believe in adjusting meds by test

results solely! Your tests are a great example of how wrong they can be! Your

temperature & pulse is screaming HYPO!!! But your blood says something

different. I am sure Janie has a good doctor, so best of luck with getting

yourself feeling better!

*Artistic Grooming * Hurricane, WV

Fat cat? Diabetes? Listowner for overweight or hypothyroid cats

http://groups.yahoo.com/group/hypokitties/

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Posted
Posted

,

Your symptoms and labs sound like mine did many years ago. I had all

of the classic hypo symptoms - but the lab work screamed hyper. I

ended up being diagnosed with a very large " hot " thyroid nodule. When

it was removed, I ended up with only a small part of my thyroid

remaining. So, I became completely hypo - but no treatment for

another 4-5 years - and then only 50ug Synthroid.

I think with the " hot " nodule - it is putting out T4 - but it is

definitely not usable by the body. The body screams fatigue - the

temperature is low and pulse rate remain slow - but the docs are

pretty determined to remove the hyperfunctioning nodule so that they

can " prevent " hyperthyoidism. In any case - it would be worth an

ultrasound - or an x-ray with iodine tracer to find out. If you end

up with a nodule - you have to weigh the pros and cons. How much is

the nodule interfering with swallowing? Does it feel like it is

choking you?

At least you are prepared to supplement as required. Keep searching

for the answers.

Winona

" Ross, R " wrote:

> My morning temps were in the 95-96 range, like always, and pulse in

the 60's.

> So, first of all, if I have no antibodies, what's in my throat? I

> haven't swallowed any frogs that I know of.

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Posted
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,

Your symptoms and labs sound like mine did many years ago. I had all

of the classic hypo symptoms - but the lab work screamed hyper. I

ended up being diagnosed with a very large " hot " thyroid nodule. When

it was removed, I ended up with only a small part of my thyroid

remaining. So, I became completely hypo - but no treatment for

another 4-5 years - and then only 50ug Synthroid.

I think with the " hot " nodule - it is putting out T4 - but it is

definitely not usable by the body. The body screams fatigue - the

temperature is low and pulse rate remain slow - but the docs are

pretty determined to remove the hyperfunctioning nodule so that they

can " prevent " hyperthyoidism. In any case - it would be worth an

ultrasound - or an x-ray with iodine tracer to find out. If you end

up with a nodule - you have to weigh the pros and cons. How much is

the nodule interfering with swallowing? Does it feel like it is

choking you?

At least you are prepared to supplement as required. Keep searching

for the answers.

Winona

" Ross, R " wrote:

> My morning temps were in the 95-96 range, like always, and pulse in

the 60's.

> So, first of all, if I have no antibodies, what's in my throat? I

> haven't swallowed any frogs that I know of.

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Posted
Posted

Hi . It's not really confusing---you can be a classic thyroid

hormone resistant guy. That means that though your " blood " levels

look excellent, it doesn't mean that your tissues are getting the

thyroid hormones. And that seems to strongly be the case with you.

You will be seeing the doc (Dr. J) at the office where I see his

Nurse Practitioner Judith. And to give you hope--I went with my

husband for HIS appointment to see the same doc. And Dr. J kept

saying to my husband--How do you FEEL?? He didn't care that my

husband's TSH was 4.2 and his free T3 was low in the range if my

husband kept saying he felt fine. Now that is the opposite of your

situation, but I WAS impressed that he was more concerned with how he

FELT.

So....make it clear to Dr. J that you feel lousy no matter what your

blood is showing, and that you seem to fit a classic case of thyroid

hormone resistance where the blood levels look great (or even hyper)

yet your tissues don't seem to be getting it (thus the symptoms AND

your low temp).

Also, let me tell you that when he saw my records (apparently a while

ago) and that I was dosing with enough Armour to suppress my TSH

to .009, he put a paper in my records requiring that I sign a waver

which listed all the so-called risks of suppressing my TSH. Tell him

that you will be glad to sign any waiver..because to get the

treatment you need, you are going to have to take more Armour, which

in turn will make your free T3 sky high...and when you get up to 4-6

grains, and still need more, it will be time to add Cytomel.

He did try to tell my husband (and perhaps he was really speaking to

me!!) that if you take too much Armour, you risk osteoporosis. That's

a bunch of bull and I was shocked he was saying that. When I asked

Judith WHY he said that, she explained that he has to say that

because the MEDICAL ESTABLISHMENT believes that. And if you DID get

osteopororis while taking Armour (not because of Armour but

coincidentally), and sued, he would be in trouble...thus the waver.

I'm going to call Judith and ask her about Dr. J and your concerns,

and I will let you know.

Janie

> Well, I got blood tests done at healthcheck after 3 weeks at 3

grains.

> At the time I did this test, all of my hypo symptoms were coming

back.

> Actually, they weren't coming, they were here. Legs ached, brain

fried,

> had to stop halfway through sentences to gasp for breath. I'd

always

> figured I'd stop at 3 grains for a while and run tests, so I waited

as

> long as I could, and here are the tests:

>

> Laboratory Results

> Test Code Description Result Range Units

> 4532 ANTI-THYROGLOBULIN AB <20 < 40 - IU/ML

> 4534 ANTITHYROID PEROXIDASE <10 < 35 - IU/ML

> 3693 FREE THYROXINE (FT4) 1.8 0.8 - 1.8 NG/DL

> 4145 TRIIODOTHYRONINE FREE 5.1 2.3 - 4.2 PG/ML

> 4536 TSH (3RD GENERATION) 0.017 0.35 - 5.50 MCIU/ML

>

> My morning temps were in the 95-96 range, like always, and pulse in

the

> 60's.

>

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Posted
Posted

So is hormone resistance more common in men? Or are you just saying that that's

what the tests seem to indicate, not that guys are necessarily more susceptible

to it? I've been following the discussion about mercury with interest.

I'll sign anything he wants. The final decision on anything we do is mine, and

that makes it my responsibility. I wouldn't have it any other way. The

absolute last thing I want to do is put a good doc out of business. That's what

the medical review board is for.

Thanks X 1000000, not just for this, but for everything, Janie. There's a whole

bunch of people out here who would be stumbling through hell if it weren't for

you.

-- prr

" loboshe " usns@... wrote:

Hi . It's not really confusing---you can be a classic thyroid

hormone resistant guy. That means that though your " blood " levels

look excellent, it doesn't mean that your tissues are getting the

thyroid hormones. And that seems to strongly be the case with you.

You will be seeing the doc (Dr. J) at the office where I see his

Nurse Practitioner Judith. And to give you hope--I went with my

husband for HIS appointment to see the same doc. And Dr. J kept

saying to my husband--How do you FEEL?? He didn't care that my

husband's TSH was 4.2 and his free T3 was low in the range if my

husband kept saying he felt fine. Now that is the opposite of your

situation, but I WAS impressed that he was more concerned with how he

FELT.

So....make it clear to Dr. J that you feel lousy no matter what your

blood is showing, and that you seem to fit a classic case of thyroid

hormone resistance where the blood levels look great (or even hyper)

yet your tissues don't seem to be getting it (thus the symptoms AND

your low temp).

Also, let me tell you that when he saw my records (apparently a while

ago) and that I was dosing with enough Armour to suppress my TSH

to .009, he put a paper in my records requiring that I sign a waver

which listed all the so-called risks of suppressing my TSH. Tell him

that you will be glad to sign any waiver..because to get the

treatment you need, you are going to have to take more Armour, which

in turn will make your free T3 sky high...and when you get up to 4-6

grains, and still need more, it will be time to add Cytomel.

He did try to tell my husband (and perhaps he was really speaking to

me!!) that if you take too much Armour, you risk osteoporosis. That's

a bunch of bull and I was shocked he was saying that. When I asked

Judith WHY he said that, she explained that he has to say that

because the MEDICAL ESTABLISHMENT believes that. And if you DID get

osteopororis while taking Armour (not because of Armour but

coincidentally), and sued, he would be in trouble...thus the waver.

I'm going to call Judith and ask her about Dr. J and your concerns,

and I will let you know.

Janie

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Good morning . I'm just saying that's what your tests/symptoms

seem to indicate. When you have a free T3 that optimal, and your

symptoms that miserable, it's a good indication that your blood is

getting the message but your tissues are not. Then you have to

saturate them.

Janie

> So is hormone resistance more common in men? Or are you just

saying that that's what the tests seem to indicate, not that guys

are necessarily more susceptible to it? I've been following the

discussion about mercury with interest.

>

> I'll sign anything he wants. The final decision on anything we do

is mine, and that makes it my responsibility. I wouldn't have it

any other way. The absolute last thing I want to do is put a good

doc out of business. That's what the medical review board is for.

>

> Thanks X 1000000, not just for this, but for everything, Janie.

There's a whole bunch of people out here who would be stumbling

through hell if it weren't for you.

>

> -- prr

>

>

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Posted
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Good morning . I'm just saying that's what your tests/symptoms

seem to indicate. When you have a free T3 that optimal, and your

symptoms that miserable, it's a good indication that your blood is

getting the message but your tissues are not. Then you have to

saturate them.

Janie

> So is hormone resistance more common in men? Or are you just

saying that that's what the tests seem to indicate, not that guys

are necessarily more susceptible to it? I've been following the

discussion about mercury with interest.

>

> I'll sign anything he wants. The final decision on anything we do

is mine, and that makes it my responsibility. I wouldn't have it

any other way. The absolute last thing I want to do is put a good

doc out of business. That's what the medical review board is for.

>

> Thanks X 1000000, not just for this, but for everything, Janie.

There's a whole bunch of people out here who would be stumbling

through hell if it weren't for you.

>

> -- prr

>

>

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Posted
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I'm sorry, I meant to include Val and everyone else here who is so helpful and

generous. Without you guys, it really would be easy to give up sometimes, as

recent tragic events have shown.

thx! -- prr

" Ross, R " .Ross@...>

Thanks X 1000000, not just for this, but for everything, Janie. There's a

whole bunch of people out here who would be stumbling through hell if it weren't

for you.

-- prr

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Posted

I'm sorry, I meant to include Val and everyone else here who is so helpful and

generous. Without you guys, it really would be easy to give up sometimes, as

recent tragic events have shown.

thx! -- prr

" Ross, R " .Ross@...>

Thanks X 1000000, not just for this, but for everything, Janie. There's a

whole bunch of people out here who would be stumbling through hell if it weren't

for you.

-- prr

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Posted
Posted

your nose is growing!

Re: OK, my body and my blood disagree...

> I'm sorry, I meant to include Val and everyone else here who is so

helpful and generous.

I send and certain others a lot of money.

chortle chortle

------------------------------------------------------------------------------

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Posted
Posted

your nose is growing!

Re: OK, my body and my blood disagree...

> I'm sorry, I meant to include Val and everyone else here who is so

helpful and generous.

I send and certain others a lot of money.

chortle chortle

------------------------------------------------------------------------------

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Posted
Posted

Mmmm. Thin mints. Yeah, I can share those. If you want the Tagalongs, you'd

have to do something a little more heroic. Like drag me out of a burning

building. Or drag my mother-in-law into one. I really like Tagalongs. :-)

-- prr

Subject: Re: Re: OK, my body and my blood disagree...

" T " artisticgroom@... wrote:

>>I have some girl scout cookies I guess I could share... :-)<<

OOOOH, Any chocolate mint? I haven't had those in years!

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