Re: Garry

[Guest guest]

---Hello Missy,

I take 5 mgs a day for now. I have had 7 TIA's (mini strokes) that

is caused by micro bloodclots or anticoagulant lupus. I handle

everyday living with my kids and wife with the attitude of I am

doing everything I can to help out. My wife works full time, so I

look at it as playing Mr. Mom full time even when I can barely get

around. I put my family before my health all the time.

Most men look at the disease and other health issues like the

issues are just no big deal because they don't usually want to show

their tender side. I also had a hard time at first dealing with

everything because I was brought up with the attitude that men are

suppose to provide for their famillies no matter what happens. Call

it a males ego but men just try to concentrate on providing

necessities not necessarily support.

You might try and explain to him that lupus has no cure, yet and

that there is always a chance that you won't be here. Also, mention

that he needs to be prepared for the worse, so if it does happen

that he will be able to help the children. You might also try and

arrange for him to go with you to the Drs. appointment. My wife goes

to everyone of mine.

I hope this helps I don't really know what else to suggest because

it isn't easy to discuss learning something new and about lupus and

the effects of it to someone.

Love, Garry (Lupies Friend)

In LUPIES , " msw1642000 " wrote:

> I am fairly new to the group. I was wondering why are you on

> coumadin? What is your dose? I am on 12.5 now I need to get re

> tested for pro time in a couple of days I was on 10mg for a lot

> longer than I thought. I take a asprin in the am and coumadin of

a

> p.m I have had three clots DVT's in the same leg. I have 4

children

> and married for almost 5 years after wasting 13 years with my

first

> husband. I was wondering how you cope with daily living with your

> wife and children. Is a guys view of illness that much

different? I

> have a good husband I am not complaing, but is it hard for a man

to

> face such hardships of this disease as well as other health

issues.

> My husband whom I do love will not speak of the things that need

to

> be talked about before something happens that I won't be here to

help

> with. I want him to learn to read so he can help himself. He has

> relied on family to do his reading before me and now that I am

sick I

> want him to take on some of the responsibilty that you have to

read

> to make a decision. He is a very smart man when it comes to

common

> sense and working with his hands but if he has to read something

> forget it. He calls me from work to ask how to spell something or

> tell him what this says. I have two small children that will need

> his help when they start school. I was hoping he would take

intrest

> when our daughter turned about 2 she loves to read. She now at 4

> says read me the pictures dad. Or mommy read this daddy can't.

She

> is smart enough at her age to know daddy can not read. I guess I

am

> asking for a mans point of view I do not want to hurt his feeling

and

> I do want him to understand everything about this illness. Sorry

it

> turned out this long any suggestions would be greatly

appreciated.

> Love bunches MISSY (Lupies Friend)