Guest guest Posted July 5, 2002 Report Share Posted July 5, 2002 Hello, I'm June. I joined this group to learn more about Fibro and CFS. My husband is suffering from excessive daytime sleepiness. He has had the sleep studies, has a c-pap machine, and even had part of his throat removed to try to stop the snoring. He's miserable and making the rest of us miserable also. I wouldn't be suprised if he actually had CFS or poss even Fibro. WE don't know what else to try. He stopped using the c-pap machine because he's allergic to the material on the mask. Thank you for letting me join, June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2002 Report Share Posted July 5, 2002 Dear June, This group is awesome! Please, suggest to your husband to " sign in " with us. You both might learn together how to manage a chronic illness. Just jump in and assk anything!! We are also here to vent our problems, knowing that some friends here will understand and commiserate with you! Here are some sites that might interest you as well: (different information sites) www.emergingcourageous.com www.fibromyalgiachat.com/ www.coralconnection.net/lk5720/ www.immunesupport.com/chat (drug companies / patient assistant programs) www.freemeds.com www.themedicineprogram.com/ www.needymeds.com I hope that you have an understanding physician. I beliee that having your primary doctor(s) on your side! Welcome to the group! ~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2002 Report Share Posted July 5, 2002 Dear June, This group is awesome! Please, suggest to your husband to " sign in " with us. You both might learn together how to manage a chronic illness. Just jump in and assk anything!! We are also here to vent our problems, knowing that some friends here will understand and commiserate with you! Here are some sites that might interest you as well: (different information sites) www.emergingcourageous.com www.fibromyalgiachat.com/ www.coralconnection.net/lk5720/ www.immunesupport.com/chat (drug companies / patient assistant programs) www.freemeds.com www.themedicineprogram.com/ www.needymeds.com I hope that you have an understanding physician. I beliee that having your primary doctor(s) on your side! Welcome to the group! ~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2002 Report Share Posted July 5, 2002 Dear June, This group is awesome! Please, suggest to your husband to " sign in " with us. You both might learn together how to manage a chronic illness. Just jump in and assk anything!! We are also here to vent our problems, knowing that some friends here will understand and commiserate with you! Here are some sites that might interest you as well: (different information sites) www.emergingcourageous.com www.fibromyalgiachat.com/ www.coralconnection.net/lk5720/ www.immunesupport.com/chat (drug companies / patient assistant programs) www.freemeds.com www.themedicineprogram.com/ www.needymeds.com I hope that you have an understanding physician. I beliee that having your primary doctor(s) on your side! Welcome to the group! ~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2002 Report Share Posted July 6, 2002 , Thank you so much for your warm welcome. I'm not sure if my husband has CFS and or Fibro, but he is suffering and I'm sure we will take away some helpful information. We are going on vacation, and upon our return, we want to take him to a new doctor to persue a better life for him. What kind of doctor could you recommend? I'm thinking an endocrinologist, and also someone who specializes in CFS. We may see a cardiologist to rule out/assure him a heart prob. Thanks so much. June > Dear June, > This group is awesome! Please, suggest to your husband to " sign > in " with us. You both might learn together how to manage a chronic > illness. Just jump in and assk anything!! We are also here to vent > our problems, knowing that some friends here will understand and > commiserate with you! > Here are some sites that might interest you as well: > > (different information sites) > www.emergingcourageous.com > www.fibromyalgiachat.com/ > www.coralconnection.net/lk5720/ > www.immunesupport.com/chat > > (drug companies / patient assistant programs) > www.freemeds.com > www.themedicineprogram.com/ > www.needymeds.com > > I hope that you have an understanding physician. I beliee that > having your primary doctor(s) on your side! > > Welcome to the group! ~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2002 Report Share Posted July 6, 2002 , Thank you so much for your warm welcome. I'm not sure if my husband has CFS and or Fibro, but he is suffering and I'm sure we will take away some helpful information. We are going on vacation, and upon our return, we want to take him to a new doctor to persue a better life for him. What kind of doctor could you recommend? I'm thinking an endocrinologist, and also someone who specializes in CFS. We may see a cardiologist to rule out/assure him a heart prob. Thanks so much. June > Dear June, > This group is awesome! Please, suggest to your husband to " sign > in " with us. You both might learn together how to manage a chronic > illness. Just jump in and assk anything!! We are also here to vent > our problems, knowing that some friends here will understand and > commiserate with you! > Here are some sites that might interest you as well: > > (different information sites) > www.emergingcourageous.com > www.fibromyalgiachat.com/ > www.coralconnection.net/lk5720/ > www.immunesupport.com/chat > > (drug companies / patient assistant programs) > www.freemeds.com > www.themedicineprogram.com/ > www.needymeds.com > > I hope that you have an understanding physician. I beliee that > having your primary doctor(s) on your side! > > Welcome to the group! ~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2002 Report Share Posted July 7, 2002 Welcome, June. I do hope that we can give you help, comfort and support. As us about anything that you feel you are not sure of and someone will be able to help you. I am so sorry that your husband is so miserable. We all know how that goes as we have been there too. Take care, Irene Books may well be the only true magic Alice Hoffman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2002 Report Share Posted July 7, 2002 Welcome, June. I do hope that we can give you help, comfort and support. As us about anything that you feel you are not sure of and someone will be able to help you. I am so sorry that your husband is so miserable. We all know how that goes as we have been there too. Take care, Irene Books may well be the only true magic Alice Hoffman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 June writes, > . What kind of doctor could you recommend? I'm > thinking an endocrinologist, and also someone who specializes in > CFS. We may see a cardiologist to rule out/assure him a heart prob. I would also recommend a rheumatologist. Take care, Irene Books may well be the only true magic Alice Hoffman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 June writes, > . What kind of doctor could you recommend? I'm > thinking an endocrinologist, and also someone who specializes in > CFS. We may see a cardiologist to rule out/assure him a heart prob. I would also recommend a rheumatologist. Take care, Irene Books may well be the only true magic Alice Hoffman Quote Link to comment Share on other sites More sharing options...
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