Guest guest Posted May 16, 2002 Report Share Posted May 16, 2002 I think a lot of our problems are caused by accidents then exaserabated by lack of sleep. I'm finally going to a sleep study next month. Stop by and read some of teh stories/poetry about everyday courage, pain, handling illness, finding strength within at www.emergingcourageous.com Peace and God Bless. Marilyn --- danamshifflett danamshifflett@...> wrote: > Hi everyone! I've just joined and would like to > introduce myself. > I'm a single 28 year old female from land. I > was diagnosed with > fibro 2 years ago. It took the doctors a couple of > years to come to > that conclusion. I've been in 4 car accidents and > think this could > be the cause, because of the muscle injuries > sustained but I'm not > sure. At times the pain is unbearable. Which I > know everyone hear > really understands. I've been going through a flare > up of crohn's > disease which seems to make the fibro worsen which > of course doubles > the pain that I have. I've missed alot of work > recently but they've > been really understanding and good to me, thank > goodness! I've been > having alot of problems with sleeping and have a > real hard time > getting out of the bed in the morning, I can hardly > sit up my back > hurts me so bad, I have to kinda roll to a sitting > position and sit > there for a minute! I was thinking of asking my > doctor for > medication to help me sleep through the pain at > night, what is a good > one? I also have chronic headaches and not always > sinus ones. Since > I'm giving my story I just found out friday that I > also have > degenerative disc disease which would explain why my > back hurts so > severely at times too, as I said above I have > crohn's, arthritis and > PCOS too. I have also suffered 2 bouts of > costochondritis. I do my > best to keep a positive attitude but sometimes it's > hard. Thank you > for listening, I know there are plenty out there who > suffer alot > worse than I do! Below is the questionaire I > answered. > Bless you all and be well! > > Age range: 28 years old > > > Male/female: Female > > > What are the symptoms? Back and neck pain into my > shoulders and > legs; tiredness due to lack of sleep, anxiety > attacks, chronic > headaches, joint pain, etc…the list goes one! > > > Has you illness been diagnosed? Yes > > > How long did you suffer before you got help? A few > years. > > > Is there a time that you can remember when it > started? Started > noticing around 1996. > > > Some of us have found lack of exercise we are > overweight. Have you > found this to be a problem also? I was overweight > for quite a few > years but have recently lost 30 lbs. > > > Are you on disability? No > > > If you are any pointers for others trying to get on > disability? N/A > > > What have you found that helps ease the pain, warm > baths, medications > etc.? I have tried acupuncture which helped a little > but didn't > last long, pain medications, muscle relaxers and > light massage but > not much else. > > > Do you have sleep problems? How do you deal with it? > Yes. I'll > take pain medicine to help me fall asleep but > looking into something > to help me stay asleep through the night. Sometimes > a body pillow > will help me. > > > Do you have family that understands your illness? > They try to > understand but they do get impatient with me because > they don't fully > understand….because they can't see it. > > > Some have found certain foods causes problems with > CFS or Fibro, have > you? I haven't come across any foods for fibro but > plenty with my > crohn's and IBS. > > > What type of Doctor have you found that has helped > you the most The > pain management doctor I've just recently started > seeing and my > primary care doc. > > Looking forward to talking with everyone! > Dana > > > ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2002 Report Share Posted May 16, 2002 I think a lot of our problems are caused by accidents then exaserabated by lack of sleep. I'm finally going to a sleep study next month. Stop by and read some of teh stories/poetry about everyday courage, pain, handling illness, finding strength within at www.emergingcourageous.com Peace and God Bless. Marilyn --- danamshifflett danamshifflett@...> wrote: > Hi everyone! I've just joined and would like to > introduce myself. > I'm a single 28 year old female from land. I > was diagnosed with > fibro 2 years ago. It took the doctors a couple of > years to come to > that conclusion. I've been in 4 car accidents and > think this could > be the cause, because of the muscle injuries > sustained but I'm not > sure. At times the pain is unbearable. Which I > know everyone hear > really understands. I've been going through a flare > up of crohn's > disease which seems to make the fibro worsen which > of course doubles > the pain that I have. I've missed alot of work > recently but they've > been really understanding and good to me, thank > goodness! I've been > having alot of problems with sleeping and have a > real hard time > getting out of the bed in the morning, I can hardly > sit up my back > hurts me so bad, I have to kinda roll to a sitting > position and sit > there for a minute! I was thinking of asking my > doctor for > medication to help me sleep through the pain at > night, what is a good > one? I also have chronic headaches and not always > sinus ones. Since > I'm giving my story I just found out friday that I > also have > degenerative disc disease which would explain why my > back hurts so > severely at times too, as I said above I have > crohn's, arthritis and > PCOS too. I have also suffered 2 bouts of > costochondritis. I do my > best to keep a positive attitude but sometimes it's > hard. Thank you > for listening, I know there are plenty out there who > suffer alot > worse than I do! Below is the questionaire I > answered. > Bless you all and be well! > > Age range: 28 years old > > > Male/female: Female > > > What are the symptoms? Back and neck pain into my > shoulders and > legs; tiredness due to lack of sleep, anxiety > attacks, chronic > headaches, joint pain, etc…the list goes one! > > > Has you illness been diagnosed? Yes > > > How long did you suffer before you got help? A few > years. > > > Is there a time that you can remember when it > started? Started > noticing around 1996. > > > Some of us have found lack of exercise we are > overweight. Have you > found this to be a problem also? I was overweight > for quite a few > years but have recently lost 30 lbs. > > > Are you on disability? No > > > If you are any pointers for others trying to get on > disability? N/A > > > What have you found that helps ease the pain, warm > baths, medications > etc.? I have tried acupuncture which helped a little > but didn't > last long, pain medications, muscle relaxers and > light massage but > not much else. > > > Do you have sleep problems? How do you deal with it? > Yes. I'll > take pain medicine to help me fall asleep but > looking into something > to help me stay asleep through the night. Sometimes > a body pillow > will help me. > > > Do you have family that understands your illness? > They try to > understand but they do get impatient with me because > they don't fully > understand….because they can't see it. > > > Some have found certain foods causes problems with > CFS or Fibro, have > you? I haven't come across any foods for fibro but > plenty with my > crohn's and IBS. > > > What type of Doctor have you found that has helped > you the most The > pain management doctor I've just recently started > seeing and my > primary care doc. > > Looking forward to talking with everyone! > Dana > > > ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2002 Report Share Posted May 16, 2002 I think a lot of our problems are caused by accidents then exaserabated by lack of sleep. I'm finally going to a sleep study next month. Stop by and read some of teh stories/poetry about everyday courage, pain, handling illness, finding strength within at www.emergingcourageous.com Peace and God Bless. Marilyn --- danamshifflett danamshifflett@...> wrote: > Hi everyone! I've just joined and would like to > introduce myself. > I'm a single 28 year old female from land. I > was diagnosed with > fibro 2 years ago. It took the doctors a couple of > years to come to > that conclusion. I've been in 4 car accidents and > think this could > be the cause, because of the muscle injuries > sustained but I'm not > sure. At times the pain is unbearable. Which I > know everyone hear > really understands. I've been going through a flare > up of crohn's > disease which seems to make the fibro worsen which > of course doubles > the pain that I have. I've missed alot of work > recently but they've > been really understanding and good to me, thank > goodness! I've been > having alot of problems with sleeping and have a > real hard time > getting out of the bed in the morning, I can hardly > sit up my back > hurts me so bad, I have to kinda roll to a sitting > position and sit > there for a minute! I was thinking of asking my > doctor for > medication to help me sleep through the pain at > night, what is a good > one? I also have chronic headaches and not always > sinus ones. Since > I'm giving my story I just found out friday that I > also have > degenerative disc disease which would explain why my > back hurts so > severely at times too, as I said above I have > crohn's, arthritis and > PCOS too. I have also suffered 2 bouts of > costochondritis. I do my > best to keep a positive attitude but sometimes it's > hard. Thank you > for listening, I know there are plenty out there who > suffer alot > worse than I do! Below is the questionaire I > answered. > Bless you all and be well! > > Age range: 28 years old > > > Male/female: Female > > > What are the symptoms? Back and neck pain into my > shoulders and > legs; tiredness due to lack of sleep, anxiety > attacks, chronic > headaches, joint pain, etc…the list goes one! > > > Has you illness been diagnosed? Yes > > > How long did you suffer before you got help? A few > years. > > > Is there a time that you can remember when it > started? Started > noticing around 1996. > > > Some of us have found lack of exercise we are > overweight. Have you > found this to be a problem also? I was overweight > for quite a few > years but have recently lost 30 lbs. > > > Are you on disability? No > > > If you are any pointers for others trying to get on > disability? N/A > > > What have you found that helps ease the pain, warm > baths, medications > etc.? I have tried acupuncture which helped a little > but didn't > last long, pain medications, muscle relaxers and > light massage but > not much else. > > > Do you have sleep problems? How do you deal with it? > Yes. I'll > take pain medicine to help me fall asleep but > looking into something > to help me stay asleep through the night. Sometimes > a body pillow > will help me. > > > Do you have family that understands your illness? > They try to > understand but they do get impatient with me because > they don't fully > understand….because they can't see it. > > > Some have found certain foods causes problems with > CFS or Fibro, have > you? I haven't come across any foods for fibro but > plenty with my > crohn's and IBS. > > > What type of Doctor have you found that has helped > you the most The > pain management doctor I've just recently started > seeing and my > primary care doc. > > Looking forward to talking with everyone! > Dana > > > ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2002 Report Share Posted May 17, 2002 I'm very curious to know more about your experience with Dr. Rothenberg. She was recommended by my derm for PhotoDerm, but i have found that she is very expensive - $500 per treatment. If it helps, my derm is Dr. Ramsey Markus at Baylor College of Medicine in the Medical Center. I have been very pleased with him. Hope all gets better. Regards. > Hi, I'm new to the group and this is my first message. I've had > rosacea for 15 years now. I started getting a red rash after the > birth of my second child. My rosacea has gotten worse over the last > 2 years and I've had 6 photofacial treatments from Dr. Gayle > Rothenberg in Houston. After the 6th treatments, the stinging and > burning has gotten worse. I've been putting ice on my face in the > morning and using Sage products. This has helped put it just relieves > the symptoms. Has anyone had the ETS microsurgical procedure from > the doctor in San ? It is very expensive, but I think worth > it if it relieves the redness and blushing. Please let me know . > Thanks Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2002 Report Share Posted May 17, 2002 I'm very curious to know more about your experience with Dr. Rothenberg. She was recommended by my derm for PhotoDerm, but i have found that she is very expensive - $500 per treatment. If it helps, my derm is Dr. Ramsey Markus at Baylor College of Medicine in the Medical Center. I have been very pleased with him. Hope all gets better. Regards. > Hi, I'm new to the group and this is my first message. I've had > rosacea for 15 years now. I started getting a red rash after the > birth of my second child. My rosacea has gotten worse over the last > 2 years and I've had 6 photofacial treatments from Dr. Gayle > Rothenberg in Houston. After the 6th treatments, the stinging and > burning has gotten worse. I've been putting ice on my face in the > morning and using Sage products. This has helped put it just relieves > the symptoms. Has anyone had the ETS microsurgical procedure from > the doctor in San ? It is very expensive, but I think worth > it if it relieves the redness and blushing. Please let me know . > Thanks Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2002 Report Share Posted May 17, 2002 I'm very curious to know more about your experience with Dr. Rothenberg. She was recommended by my derm for PhotoDerm, but i have found that she is very expensive - $500 per treatment. If it helps, my derm is Dr. Ramsey Markus at Baylor College of Medicine in the Medical Center. I have been very pleased with him. Hope all gets better. Regards. > Hi, I'm new to the group and this is my first message. I've had > rosacea for 15 years now. I started getting a red rash after the > birth of my second child. My rosacea has gotten worse over the last > 2 years and I've had 6 photofacial treatments from Dr. Gayle > Rothenberg in Houston. After the 6th treatments, the stinging and > burning has gotten worse. I've been putting ice on my face in the > morning and using Sage products. This has helped put it just relieves > the symptoms. Has anyone had the ETS microsurgical procedure from > the doctor in San ? It is very expensive, but I think worth > it if it relieves the redness and blushing. Please let me know . > Thanks Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2002 Report Share Posted June 2, 2002 Yes, these are the trio of death. Exactly what I have. However, if you think about each one as a complicating factor or the others, managing this trio of death becomes easier. Let's start with the acne. This should be responsive to Minocin 100 mg bid. Serendipitiously, the rosacea should respond to this, as well. If this doesn't work, after a good three month trial, move onto Zithromax 250 qd. Here's where the complicating factor comes it. Seborrhic dermatitis is exacerbated by overgrowth of p. ovale yeast caused by the Minocylcline. This is most apparent on the scalp, so you must add ZNP to scalp for 10 mg every day. You cannot afford to miss a day of the scalp treatment, you cannot afford to become lax and do the every other day or three times a week sd treatment, because these regimens assume no concurrent antibiotic use, which you need for the other two conditions. In order to keep the gi system in shape, you must take acidophilus, as much as you need, everday, in order to prevent yeast syndrome and other gi problems. Another good thing, especially if you have acne on the trunk is to, every day, apply triaz 10% cleanser to the affected areas, leave on for 10 minutes, and then take a shower. This is necessary to prevent the emergence of resistant p. acnes, gram negatives, and yeast. However, you cannot apply this to your face because you have rosacea. Therefore, apply Sulfoxyl regular to your face (5% bp, 2% sulfur lotion). It is best not to add other topicals to your face because they will be comedogenic and aggravate your underlying acne. That means, no metro triplets, noritate, as these are very thick acnegenic formulations. And no gold bond. Another option is to go for low dose Accutane 10 mg qod. The topicals stay the same as above, but you stop all the antibiotics. Ideally, if you only had acne, you would go for 2mg/kd/d for the first two weeks, and then 1 mg/kd/d for the remaining 16 weeks, but you cannot due that due to the complicating factor of rosacea. This means that your acne will take longer to clear. It can be helped along slightly faster doing the topicals as described above. > Hello all, > > It's nice to know there are people out there who can share in my > various torments! > > I was recently diagnosed with rosacea, seb. derm. and acne vulgaris- - > ugh! Is there anyone who has all three diagnoses too? Is there any > hope? > > Deryk Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2002 Report Share Posted June 2, 2002 Yes, these are the trio of death. Exactly what I have. However, if you think about each one as a complicating factor or the others, managing this trio of death becomes easier. Let's start with the acne. This should be responsive to Minocin 100 mg bid. Serendipitiously, the rosacea should respond to this, as well. If this doesn't work, after a good three month trial, move onto Zithromax 250 qd. Here's where the complicating factor comes it. Seborrhic dermatitis is exacerbated by overgrowth of p. ovale yeast caused by the Minocylcline. This is most apparent on the scalp, so you must add ZNP to scalp for 10 mg every day. You cannot afford to miss a day of the scalp treatment, you cannot afford to become lax and do the every other day or three times a week sd treatment, because these regimens assume no concurrent antibiotic use, which you need for the other two conditions. In order to keep the gi system in shape, you must take acidophilus, as much as you need, everday, in order to prevent yeast syndrome and other gi problems. Another good thing, especially if you have acne on the trunk is to, every day, apply triaz 10% cleanser to the affected areas, leave on for 10 minutes, and then take a shower. This is necessary to prevent the emergence of resistant p. acnes, gram negatives, and yeast. However, you cannot apply this to your face because you have rosacea. Therefore, apply Sulfoxyl regular to your face (5% bp, 2% sulfur lotion). It is best not to add other topicals to your face because they will be comedogenic and aggravate your underlying acne. That means, no metro triplets, noritate, as these are very thick acnegenic formulations. And no gold bond. Another option is to go for low dose Accutane 10 mg qod. The topicals stay the same as above, but you stop all the antibiotics. Ideally, if you only had acne, you would go for 2mg/kd/d for the first two weeks, and then 1 mg/kd/d for the remaining 16 weeks, but you cannot due that due to the complicating factor of rosacea. This means that your acne will take longer to clear. It can be helped along slightly faster doing the topicals as described above. > Hello all, > > It's nice to know there are people out there who can share in my > various torments! > > I was recently diagnosed with rosacea, seb. derm. and acne vulgaris- - > ugh! Is there anyone who has all three diagnoses too? Is there any > hope? > > Deryk Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2002 Report Share Posted October 31, 2002 In a message dated 10/31/2002 12:33:21 PM Central Standard Time, bubbatj@... writes: > Hi, my name is Tammy. I have an 8 year old daughter with C.F. I was > told about this group by another C.F. mom. I found alot of the > messages posted very interesting , and just wanted to say hi. Hi Tammy I have three girls 10,8 and 5 my oldest and youngest have CF. You will love this group it is a great place to vent when you need it and I am sure there will be times you will need it. We all do. Welcome!! Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2002 Report Share Posted October 31, 2002 In a message dated 10/31/2002 12:33:21 PM Central Standard Time, bubbatj@... writes: > Hi, my name is Tammy. I have an 8 year old daughter with C.F. I was > told about this group by another C.F. mom. I found alot of the > messages posted very interesting , and just wanted to say hi. Hi Tammy I have three girls 10,8 and 5 my oldest and youngest have CF. You will love this group it is a great place to vent when you need it and I am sure there will be times you will need it. We all do. Welcome!! Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2002 Report Share Posted October 31, 2002 In a message dated 10/31/2002 12:33:21 PM Central Standard Time, bubbatj@... writes: > Hi, my name is Tammy. I have an 8 year old daughter with C.F. I was > told about this group by another C.F. mom. I found alot of the > messages posted very interesting , and just wanted to say hi. Hi Tammy I have three girls 10,8 and 5 my oldest and youngest have CF. You will love this group it is a great place to vent when you need it and I am sure there will be times you will need it. We all do. Welcome!! Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2002 Report Share Posted October 31, 2002 Hi Tammy, I am fairly new as well and very glad I found the group. I have learned a lot and gotten a lot of new ideas. My daughter is 10 and has CF. She is having a fairly decent year. Last year she missed over 6 weeks of school. How about your daughter? Is she well? Is she in school? I look forward to getting to know you. Jacqui Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2002 Report Share Posted October 31, 2002 Hi Tammy, I am fairly new as well and very glad I found the group. I have learned a lot and gotten a lot of new ideas. My daughter is 10 and has CF. She is having a fairly decent year. Last year she missed over 6 weeks of school. How about your daughter? Is she well? Is she in school? I look forward to getting to know you. Jacqui Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2002 Report Share Posted October 31, 2002 Hi Tammy, I am fairly new as well and very glad I found the group. I have learned a lot and gotten a lot of new ideas. My daughter is 10 and has CF. She is having a fairly decent year. Last year she missed over 6 weeks of school. How about your daughter? Is she well? Is she in school? I look forward to getting to know you. Jacqui Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2002 Report Share Posted October 31, 2002 WELCOME ,ENJOY!! LOVE & HUGS< GRANDMOMBEV New To Group Hi, my name is Tammy. I have an 8 year old daughter with C.F. I was told about this group by another C.F. mom. I found alot of the messages posted very interesting , and just wanted to say hi. PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2002 Report Share Posted October 31, 2002 WELCOME ,ENJOY!! LOVE & HUGS< GRANDMOMBEV New To Group Hi, my name is Tammy. I have an 8 year old daughter with C.F. I was told about this group by another C.F. mom. I found alot of the messages posted very interesting , and just wanted to say hi. PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2002 Report Share Posted October 31, 2002 Hi Tammy my name is Tammy aswell I also have a daughter that is 8 wcf wecome to the group hope all is well Tammy B New To Group > Hi, my name is Tammy. I have an 8 year old daughter with C.F. I was > told about this group by another C.F. mom. I found alot of the > messages posted very interesting , and just wanted to say hi. > > > > > PLEASE do not post religious emails to the list. > > > ------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2002 Report Share Posted October 31, 2002 Hi Tammy my name is Tammy aswell I also have a daughter that is 8 wcf wecome to the group hope all is well Tammy B New To Group > Hi, my name is Tammy. I have an 8 year old daughter with C.F. I was > told about this group by another C.F. mom. I found alot of the > messages posted very interesting , and just wanted to say hi. > > > > > PLEASE do not post religious emails to the list. > > > ------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2002 Report Share Posted October 31, 2002 Hi Tammy my name is Tammy aswell I also have a daughter that is 8 wcf wecome to the group hope all is well Tammy B New To Group > Hi, my name is Tammy. I have an 8 year old daughter with C.F. I was > told about this group by another C.F. mom. I found alot of the > messages posted very interesting , and just wanted to say hi. > > > > > PLEASE do not post religious emails to the list. > > > ------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2002 Report Share Posted October 31, 2002 Hello Tammy, Welcome to the group. When was your daughter diagnosed? I hope that she is doing well. Gale > Hi, my name is Tammy. I have an 8 year old daughter with C.F. I was > told about this group by another C.F. mom. I found alot of the > messages posted very interesting , and just wanted to say hi. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2002 Report Share Posted November 1, 2002 Hi, My daughter was diagnosed at 4mths old. She is doing well& has a very active life. Hope things are going well for you . Re: New To Group Hello Tammy, Welcome to the group. When was your daughter diagnosed? I hope that she is doing well. Gale > Hi, my name is Tammy. I have an 8 year old daughter with C.F. I was > told about this group by another C.F. mom. I found alot of the > messages posted very interesting , and just wanted to say hi. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2002 Report Share Posted November 1, 2002 Hi, My daughter was diagnosed at 4mths old. She is doing well& has a very active life. Hope things are going well for you . Re: New To Group Hello Tammy, Welcome to the group. When was your daughter diagnosed? I hope that she is doing well. Gale > Hi, my name is Tammy. I have an 8 year old daughter with C.F. I was > told about this group by another C.F. mom. I found alot of the > messages posted very interesting , and just wanted to say hi. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2002 Report Share Posted November 1, 2002 Hi, My daughter was diagnosed at 4mths old. She is doing well& has a very active life. Hope things are going well for you . Re: New To Group Hello Tammy, Welcome to the group. When was your daughter diagnosed? I hope that she is doing well. Gale > Hi, my name is Tammy. I have an 8 year old daughter with C.F. I was > told about this group by another C.F. mom. I found alot of the > messages posted very interesting , and just wanted to say hi. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2002 Report Share Posted November 1, 2002 Hi, It was nice to hear you, I hope all is going well . ) New To Group > Hi, my name is Tammy. I have an 8 year old daughter with C.F. I was > told about this group by another C.F. mom. I found alot of the > messages posted very interesting , and just wanted to say hi. > > > > > PLEASE do not post religious emails to the list. > > > ------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2002 Report Share Posted November 1, 2002 Hi, It was nice to hear you, I hope all is going well . ) New To Group > Hi, my name is Tammy. I have an 8 year old daughter with C.F. I was > told about this group by another C.F. mom. I found alot of the > messages posted very interesting , and just wanted to say hi. > > > > > PLEASE do not post religious emails to the list. > > > ------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
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