New to Group

November 1, 2002

Hi,

It was nice to hear you, I hope all is going well . )

New To Group

> Hi, my name is Tammy. I have an 8 year old daughter with C.F. I was

> told about this group by another C.F. mom. I found alot of the

> messages posted very interesting , and just wanted to say hi.

>

> PLEASE do not post religious emails to the list.

>

> -------------------------------------------

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

January 20, 2003

Hi Trish,

I'm sorry to hear that you have had such problems, but glad you found this

board. I'm in Atlanta, GA and should I may be of any service to you please

contact me either thru the board or directly at Poncho9191@.... Hope you

are having a good day

Best wishes, Poncho - GA

January 20, 2003

Hi Trish,

I'm sorry to hear that you have had such problems, but glad you found this

board. I'm in Atlanta, GA and should I may be of any service to you please

contact me either thru the board or directly at Poncho9191@.... Hope you

are having a good day

Best wishes, Poncho - GA

January 20, 2003

Hi Trish,

I'm sorry to hear that you have had such problems, but glad you found this

board. I'm in Atlanta, GA and should I may be of any service to you please

contact me either thru the board or directly at Poncho9191@.... Hope you

are having a good day

Best wishes, Poncho - GA

January 20, 2003

tjbornagain@...> wrote:

> Hi, My name is Trish . I live in Monticello Ga. I've had chronic

pancreatitis since 1996. I feel so blessed to have found this group...> Thank

you and God Bless, TRish >>>

Hi Trish, my name is Ed Kline I live in Panama City

Beach Fl. we get alot of visitors here from your area.

You ever been here? I have CP to. They suspect other

problems in my belly but I just think pancreatitis

messes up all the other organs in the area. good liuck

January 20, 2003

tjbornagain@...> wrote:

> Hi, My name is Trish . I live in Monticello Ga. I've had chronic

pancreatitis since 1996. I feel so blessed to have found this group...> Thank

you and God Bless, TRish >>>

Hi Trish, my name is Ed Kline I live in Panama City

Beach Fl. we get alot of visitors here from your area.

You ever been here? I have CP to. They suspect other

problems in my belly but I just think pancreatitis

messes up all the other organs in the area. good liuck

January 20, 2003

tjbornagain@...> wrote:

> Hi, My name is Trish . I live in Monticello Ga. I've had chronic

pancreatitis since 1996. I feel so blessed to have found this group...> Thank

you and God Bless, TRish >>>

Hi Trish, my name is Ed Kline I live in Panama City

Beach Fl. we get alot of visitors here from your area.

You ever been here? I have CP to. They suspect other

problems in my belly but I just think pancreatitis

messes up all the other organs in the area. good liuck

January 20, 2003

Hi Trish,

Welcome to the forum. I too am relatively new to this and am very

thankful to have found it. I also go to MUSC and I live just outside

of Columbia, SC. I have seen Dr. Hawes and he has placed stents

in my pancreas a couple of times, has done ERCP and EUS several

times. He referred me to Dr. in May 2002 and Dr.

performed a Whipple on me May 13, 2002. Since then Dr.

has taken care of me.

It is nice to have you aboard and I only have praise for this group.

There are some very good people here and a lot of support.

Floyd

Columbia, SC

On 20 Jan 2003 at 16:01, tjbornagain tjbornagain@...

wrote:

To: pancreatitis

"

tjbornagain@...>

Date sent: Mon, 20 Jan 2003 16:01:08 -0000

Subject: New to Group

Send reply to: pancreatitis

[ Double-click this line for list subscription options ]

Hi,

My name is Trish . I live in Monticello Ga. I've had chronic

pancreatitis since 1996. I feel so blessed to have found this group.

I have been feeling so alone. It really helps to hear other's stories

and how you're all handling things.

I have trouble dealing with the pain and not being able to eat much.

I really have't found anything that does't cause me more pain. I'm in

the process of being tested for Crohn's and colitis. Has any one else

developed any intestinal problems along with the pancreatits?

I've had IBS since 1997. My intestines started having spasms along

with my pancreas. I also go to MUSC and see Dr. Hawes, He is

wonderful. I've 3 stents placed and also had my pancreas drained

and

flatten out, because the spasms cause the tail to fold up.

I don't mean to ramble on. I just have so much to ask everyone.

My Doctor in Atalnta wants to do exploratory sugery to check out

my

intestine and scar tissue and take out my appendix in the next

couple

of weeks, then I'll be going back to MUSC for another stent.

MUSC is the only place I trust with my pancreas since the dye

during

an ERCP in Atlanta is what started this whole mess.

If any one can give me any advice. I would be so thankful.

Thank you and God Bless,

TRish

PANCREATITIS Association, Intl.

Online e-mail group

To reply to this message hit & quot;reply & quot; or send

an e-mail to: Pancreatitis (AT) Yahoo

January 20, 2003

Hi Trish,

Welcome to the forum. I too am relatively new to this and am very

thankful to have found it. I also go to MUSC and I live just outside

of Columbia, SC. I have seen Dr. Hawes and he has placed stents

in my pancreas a couple of times, has done ERCP and EUS several

times. He referred me to Dr. in May 2002 and Dr.

performed a Whipple on me May 13, 2002. Since then Dr.

has taken care of me.

It is nice to have you aboard and I only have praise for this group.

There are some very good people here and a lot of support.

Floyd

Columbia, SC

On 20 Jan 2003 at 16:01, tjbornagain tjbornagain@...

wrote:

To: pancreatitis

"

tjbornagain@...>

Date sent: Mon, 20 Jan 2003 16:01:08 -0000

Subject: New to Group

Send reply to: pancreatitis

[ Double-click this line for list subscription options ]

Hi,

My name is Trish . I live in Monticello Ga. I've had chronic

pancreatitis since 1996. I feel so blessed to have found this group.

I have been feeling so alone. It really helps to hear other's stories

and how you're all handling things.

I have trouble dealing with the pain and not being able to eat much.

I really have't found anything that does't cause me more pain. I'm in

the process of being tested for Crohn's and colitis. Has any one else

developed any intestinal problems along with the pancreatits?

I've had IBS since 1997. My intestines started having spasms along

with my pancreas. I also go to MUSC and see Dr. Hawes, He is

wonderful. I've 3 stents placed and also had my pancreas drained

and

flatten out, because the spasms cause the tail to fold up.

I don't mean to ramble on. I just have so much to ask everyone.

My Doctor in Atalnta wants to do exploratory sugery to check out

my

intestine and scar tissue and take out my appendix in the next

couple

of weeks, then I'll be going back to MUSC for another stent.

MUSC is the only place I trust with my pancreas since the dye

during

an ERCP in Atlanta is what started this whole mess.

If any one can give me any advice. I would be so thankful.

Thank you and God Bless,

TRish

PANCREATITIS Association, Intl.

Online e-mail group

To reply to this message hit & quot;reply & quot; or send

an e-mail to: Pancreatitis (AT) Yahoo

January 20, 2003

Hi Trish,

Welcome to the forum. I too am relatively new to this and am very

thankful to have found it. I also go to MUSC and I live just outside

of Columbia, SC. I have seen Dr. Hawes and he has placed stents

in my pancreas a couple of times, has done ERCP and EUS several

times. He referred me to Dr. in May 2002 and Dr.

performed a Whipple on me May 13, 2002. Since then Dr.

has taken care of me.

It is nice to have you aboard and I only have praise for this group.

There are some very good people here and a lot of support.

Floyd

Columbia, SC

On 20 Jan 2003 at 16:01, tjbornagain tjbornagain@...

wrote:

To: pancreatitis

"

tjbornagain@...>

Date sent: Mon, 20 Jan 2003 16:01:08 -0000

Subject: New to Group

Send reply to: pancreatitis

[ Double-click this line for list subscription options ]

Hi,

My name is Trish . I live in Monticello Ga. I've had chronic

pancreatitis since 1996. I feel so blessed to have found this group.

I have been feeling so alone. It really helps to hear other's stories

and how you're all handling things.

I have trouble dealing with the pain and not being able to eat much.

I really have't found anything that does't cause me more pain. I'm in

the process of being tested for Crohn's and colitis. Has any one else

developed any intestinal problems along with the pancreatits?

I've had IBS since 1997. My intestines started having spasms along

with my pancreas. I also go to MUSC and see Dr. Hawes, He is

wonderful. I've 3 stents placed and also had my pancreas drained

and

flatten out, because the spasms cause the tail to fold up.

I don't mean to ramble on. I just have so much to ask everyone.

My Doctor in Atalnta wants to do exploratory sugery to check out

my

intestine and scar tissue and take out my appendix in the next

couple

of weeks, then I'll be going back to MUSC for another stent.

MUSC is the only place I trust with my pancreas since the dye

during

an ERCP in Atlanta is what started this whole mess.

If any one can give me any advice. I would be so thankful.

Thank you and God Bless,

TRish

PANCREATITIS Association, Intl.

Online e-mail group

To reply to this message hit & quot;reply & quot; or send

an e-mail to: Pancreatitis (AT) Yahoo

January 20, 2003

Hello in Hawaii,

My name is Floyd. Welcome to PAI and the wonderful people that

are here. I have only signed up for just a couple of days now and

can already tell that I have come to the right place.

I too am having a good day and have for the last week or so. Not

bad as I had not had more than two good days in a row since July

2002. If you have any questions feel free to ask. Also, I would

like to hear more about your diet and the naturopathic physician. I

am very interested in alternative medicines and diets.

Thank you

God Bless,

Floyd

Columbia, SC

To: pancreatitis

"

protea@...>

Date sent: Tue, 21 Jan 2003 02:35:26 -0000

Subject: New to group

Send reply to: pancreatitis

[ Double-click this line for list subscription options ]

I've gotten so much information and encouragement from reading

the

posts I've received in the past couple of weeks while I've been

figuring out how the website operates. Now it is time to introduce

myself.

My name is and I live in Hawaii. Even in Paradise, there can

be

health problems. I was diagnosed with acute pancreatitis in

November,

2001 when I went to the emergency room at our local hospital with

chest pain. No cause has ever been determined, although I have

had

ultrasound, CT scans, HIDAscan, and MRCP. For over a year

now, I

have

had pain and/or pressure deep in the center of my chest almost

daily.

I've seen 3 different gastroenterologists and 4 different PCPs

(changed insurance mid-year), but gotten the most help from a

friend

who is a naturopathic physician. The MDs insist " there is no diet

for

pancreatitis " and trying to determine what I can eat without pain

has

been a major preoccupation and nearly impossible on my own. The

support groups, web info, and my naturopath's recommendations

have

helped immeasurably. I am very fortunate to have tremendous

support

from my family. And my supervisors at work have been very

understanding.

You can probably tell from my positive comments that today is a

good

day. It does make a difference, doesn't it?

My thanks to all of you who have shared your experiences and

knowledge. I look forward to " meeting " you all via the internet.

Aloha!

PANCREATITIS Association, Intl.

Online e-mail group

To reply to this message hit & quot;reply & quot; or send

an e-mail to: Pancreatitis (AT) Yahoo

January 20, 2003

Hello in Hawaii,

My name is Floyd. Welcome to PAI and the wonderful people that

are here. I have only signed up for just a couple of days now and

can already tell that I have come to the right place.

I too am having a good day and have for the last week or so. Not

bad as I had not had more than two good days in a row since July

2002. If you have any questions feel free to ask. Also, I would

like to hear more about your diet and the naturopathic physician. I

am very interested in alternative medicines and diets.

Thank you

God Bless,

Floyd

Columbia, SC

To: pancreatitis

"

protea@...>

Date sent: Tue, 21 Jan 2003 02:35:26 -0000

Subject: New to group

Send reply to: pancreatitis

[ Double-click this line for list subscription options ]

I've gotten so much information and encouragement from reading

the

posts I've received in the past couple of weeks while I've been

figuring out how the website operates. Now it is time to introduce

myself.

My name is and I live in Hawaii. Even in Paradise, there can

be

health problems. I was diagnosed with acute pancreatitis in

November,

2001 when I went to the emergency room at our local hospital with

chest pain. No cause has ever been determined, although I have

had

ultrasound, CT scans, HIDAscan, and MRCP. For over a year

now, I

have

had pain and/or pressure deep in the center of my chest almost

daily.

I've seen 3 different gastroenterologists and 4 different PCPs

(changed insurance mid-year), but gotten the most help from a

friend

who is a naturopathic physician. The MDs insist " there is no diet

for

pancreatitis " and trying to determine what I can eat without pain

has

been a major preoccupation and nearly impossible on my own. The

support groups, web info, and my naturopath's recommendations

have

helped immeasurably. I am very fortunate to have tremendous

support

from my family. And my supervisors at work have been very

understanding.

You can probably tell from my positive comments that today is a

good

day. It does make a difference, doesn't it?

My thanks to all of you who have shared your experiences and

knowledge. I look forward to " meeting " you all via the internet.

Aloha!

PANCREATITIS Association, Intl.

Online e-mail group

To reply to this message hit & quot;reply & quot; or send

an e-mail to: Pancreatitis (AT) Yahoo

January 20, 2003

Hello in Hawaii,

My name is Floyd. Welcome to PAI and the wonderful people that

are here. I have only signed up for just a couple of days now and

can already tell that I have come to the right place.

I too am having a good day and have for the last week or so. Not

bad as I had not had more than two good days in a row since July

2002. If you have any questions feel free to ask. Also, I would

like to hear more about your diet and the naturopathic physician. I

am very interested in alternative medicines and diets.

Thank you

God Bless,

Floyd

Columbia, SC

To: pancreatitis

"

protea@...>

Date sent: Tue, 21 Jan 2003 02:35:26 -0000

Subject: New to group

Send reply to: pancreatitis

[ Double-click this line for list subscription options ]

I've gotten so much information and encouragement from reading

the

posts I've received in the past couple of weeks while I've been

figuring out how the website operates. Now it is time to introduce

myself.

My name is and I live in Hawaii. Even in Paradise, there can

be

health problems. I was diagnosed with acute pancreatitis in

November,

2001 when I went to the emergency room at our local hospital with

chest pain. No cause has ever been determined, although I have

had

ultrasound, CT scans, HIDAscan, and MRCP. For over a year

now, I

have

had pain and/or pressure deep in the center of my chest almost

daily.

I've seen 3 different gastroenterologists and 4 different PCPs

(changed insurance mid-year), but gotten the most help from a

friend

who is a naturopathic physician. The MDs insist " there is no diet

for

pancreatitis " and trying to determine what I can eat without pain

has

been a major preoccupation and nearly impossible on my own. The

support groups, web info, and my naturopath's recommendations

have

helped immeasurably. I am very fortunate to have tremendous

support

from my family. And my supervisors at work have been very

understanding.

You can probably tell from my positive comments that today is a

good

day. It does make a difference, doesn't it?

My thanks to all of you who have shared your experiences and

knowledge. I look forward to " meeting " you all via the internet.

Aloha!

PANCREATITIS Association, Intl.

Online e-mail group

To reply to this message hit & quot;reply & quot; or send

an e-mail to: Pancreatitis (AT) Yahoo

July 31, 2004

in Richmond, It sure does sound familiar, doesn't it everybody? Are you with a private company or SS? I have private insurance along with my public employee pension, but together it isn't

one third what I was earning when I was forced to retire nine years ago. I just don't get how they

think we are actually ANXIOUS to live on less than living money when we were making good salaries

while able to work. They are just cheating to meet the profit bottom line for their company. That's

where it's really at. I reported my company to the state regulatory agency over insurance companies, and they got after them right away. I even got a check for back pay they had owed me

for almost the whole time I have been off work. It wasn't a fortune, but it was the principle of the

thing that got to me.

I hope things work out for you, but be prepared for it to take some time. Keep writing to the group,

it helps ease the frustrations both of the disease and of the idiots we have to deal with on a daily

basis. Hugs, MM aka: Mike, one of the moderators

July 31, 2004

in Richmond, It sure does sound familiar, doesn't it everybody? Are you with a private company or SS? I have private insurance along with my public employee pension, but together it isn't

one third what I was earning when I was forced to retire nine years ago. I just don't get how they

think we are actually ANXIOUS to live on less than living money when we were making good salaries

while able to work. They are just cheating to meet the profit bottom line for their company. That's

where it's really at. I reported my company to the state regulatory agency over insurance companies, and they got after them right away. I even got a check for back pay they had owed me

for almost the whole time I have been off work. It wasn't a fortune, but it was the principle of the

thing that got to me.

I hope things work out for you, but be prepared for it to take some time. Keep writing to the group,

it helps ease the frustrations both of the disease and of the idiots we have to deal with on a daily

basis. Hugs, MM aka: Mike, one of the moderators

August 1, 2004

I'm 36 (diagnosed with Lupus in '88) and 10 yrs. ago it took me over 2

yrs. of fighting to get my disability...I TRIED working this year and

it only lasted for a week. Of course it was during the summertime and

I completely agree about the seasons. Welcome to the group...it's a

GREAT family.

Blessings,

In Cali

> Hello!

>

> I am a " retired " RN; 59 years old; on disability for lupus for

11 years.

>

> As a rehabilitation nurse specialist, I have learned to pace my

activities an dfeel like I have gotten as good as it gets.

>

> Last summer, my disability insurance company offered to make a

settlement and close my account. Since the amount was ridiculously

low, my husband laughed at them and told them, " No " .

>

> I was interviewed on the phone and also given questionaires to

answer. I answered all in truth, having nothing to hide. Ifreely

told them that I feel best in the Fall months when the weather is

cool, and before the flu season hits. (As you know, extreme heat of

summer, and cold of winter are always " bad " times. Additionally, I

have severe spring allergies. Virginia is " allergy central " in the

Spring!)

>

> In answer to the question as to my " routine " , I freely told them

that I go to a Bible study class on Tuesday mornings, and a

therapeutic Tai Chi class on Wednesdays, as I am able. The rest of

the time I stay at home, on the couch, or in bed.

>

> Quess what? They video taped me on select Tuesdays and

Wednesdays, once in October, once in November, and once in early

December! The buzzards never said anything about the rest of the time

being at home, even though I told them that I rested before and after

aech outing.

>

> They have used the evidence that I am able to have 2 outings a

week during the Fall months to " prove " that I am capable of hoding

down a full-time job!!!

>

> Last November, they paid for me to go to a physical therpist for

a physical function evaluation. The P.T. clearly wrote, and the

insurance company sited the results... " Although the patient gave

maximal effort in testing, per cardiac monitoring, she was unable to

complete any task given. Patient was unable to complete testing

session. Patient aided to car after resting. " the insurance company

quotes the P.T. evaluation and then state: " No conclusion can be drawn

as to relationship with lupus "

>

> Give me a break!!! What exactly do they think a lupus patient

would be able to accomplish given said physical functioning test!

>

> The insurance buzzards stated so clearly in there evaluation of

the video that I was " able to carry her purse and keys without

difficulty " . PUH-LEEZE!

>

> Any how. I naturally protested how ludicrous their

accusation/observation/conclusion. They were most polite and told me

that I could appeal their decision, and that they would send me the

paperwork.

>

> Well, we waited and waited, and called and called. After being

told on 3 separate occasions that the paperwork was " in the mail " , we

called the insurance company yet again.

>

> Are you ready for the next chapter? Somehow along the line, the

Hartford Company slipped up and actually hired a human. This said

human being explained to us that there is no " paperwork " and we had 30

days left of the 60 days allowed to file our appeal!

>

> We got a laywer the very next day, and I am well on my way to

preparing a " smoking hot " appeal. I have been fortunate enough to

obtain the attendance roll of the Bible Class, which plainly shows

that I am able to attend this no- stress, relaxed, 2 hour class mostly

in the Fall months. I was conspiculously absent during the flu season

of the winter and spring! How about that!

>

> My Tai Chi instructor has severe MS and at times has had to

teach the class from his wheelchair. Most of his students have

neuromuscular or orthopedic problems. I am probably among the

youngest pupil in his class. Without a doubt he will give me a letter

for the appeal.

>

> I have spent this entire week on the phone, and so far have

lined up an appointment with a rheumatologist, an Occupational

Therapist. I am awaiting an appointment with a psychologist and

possibly another O.T. I have already sent a request to a Licensed

Marriage and Family Therapist from whom I have been recieving therapy

for the past 6 months.

>

> Since the Hartford buzzards will not take the word of my

Internist, who diagnosed me 11 years ago, and whose wife also has

lupus, I thought that I would " get my own jury " !

>

> So...Dear New Friends. That is my story. Does this flim-flam

sound familiar to anyone? I surely would love to hear any advise or

similar stories!

>

> Richmond, VA

August 19, 2004

hi lynn and welcome, i am new to the group also

i do have a question for you i was recently placed on plaquenil and i

would like to know how long it took to help you i have been on it for

4 wks now.-

-- In LUPIES , " lynnb_nc " wrote:

> Hi, My name is Lynn and I just joined your group. I thought I would

> tell you a little bit about me. I am 45 years old and I was

> diagnosed with lupus about 10 years ago. I am currently taking

> Plaquenil for the lupus, it seems to help some but I still deal

with

> a lot of joint pains. I was also using some of the steroid creams

> for the rash , but they made me stop, because it was causing some

> scaring on my face. Funny....my doctor didn't tell me that it would

> cause scaring before I started using it.....Grrrr. Anyway, I stay

> home most the time and I do have a lot of free time on my hands and

> I thought it be nice to join a group like this. I have read some of

> your post and you all sound like some really nice people.Oh....and

> for the ones that live in Florida, my heart and prayers go out to

> all of you. I have been watching on the news about the destruction

> that hurricane Charley left behind. It was just awful.

> Hope you all have a nice day and look forward to meeting you all.

> Lynn

August 19, 2004