Guest guest Posted March 14, 2005 Report Share Posted March 14, 2005 I just wanted to tell everybody that for the last few weeks I have been feeling really good, just great, really!! So, all you sufferers out there, hang in there. There is hope! I had a total meltdown when I started thyroid over two years ago due to adrenal problems and I was in terrible health a misery for at least a year. I contemplated suicide numberous times, because who wants such a miserable life. I was on two grains for most of my first year and I was so impaired and felt awful most of the time. My adrenals were not getting better. I was also on Cortef, and then later IsoCort. Thanks to a great article by Dr. Derry on thyroid doses, I realized that my dose was too low and that it was safe to go much higher. I then took my care into my own hands and began to raise my thyroid up very slowly, with lots of ups and downs and frustrating periods of feeling lousy. It took me a long time to get my dose up to about 3- 3/4 grains. I finally decided that this was my best dose after trying higher doses and not feeling well at all. I had many improvements, but could not do a lot of activity due to adrenal problems. Then, just recently I decided it was time to get off the IsoCort and see what happened. I have dropped it down by half. It was very difficult at first. But, the payoff was just so worth it. The IsoCort, which had helped me in the beginning had become a detriment to my final recovery. I am now feeling just great and am working outside on the house and keeping busy all day. Yesterday, I took a hike and felt really good and did not crash. I have good energy all day. I have a theory now that cortisones overly suppress the pituitary, just like low dose thyroid does and in this way keeps you always a little low on cortisone and unable to respond to daily minor stresses and extra activity. So, I have learned that you should not stay on them any longer than you need to as they will limit you. I can see that I am going to be totally well and normal as I am very close to it right now. I believe that I will will be doing great when I finally get off the last of the IsoCort and my adrenals return to mostly normal function in a few months. I might be just a tad limited in strenuous activity, but I am not sure this will be true yet. I just want everybody to know that you can actually feel good. Hypothyroidism is not a miserable life sentence. It takes time to recover your health - up to 3 years. You need to be free to adjust your thyroid meds where they need to be to make you feel the best and be healthy. This is absolutely, absolutely, essential to recovery. I just feel like celebrating. So, everybody, hang in there and fight for what you need. Don't accept it when a doctor says that's the best you can have and that you are " normal " when you know you are not. To do so is to waste precious time from your life. Tish Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2005 Report Share Posted March 14, 2005 WOW Tish that is SO great! You may find once your adrenal situation is totally back to normal you can raise even a tad more than you have. I am a firm believer that as our bodies heal we can tolerate more Armour and actually will need more as we get to our goals of good health. I started thinking this way recently after being on the same thyroid dosage for many months and then suddenly realizing I need more still! Also I need a BUCNCH more when I am ill, something to store for future reference! Artistic Grooming Hurricane, West Virginia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2005 Report Share Posted March 14, 2005 I love good news stories like this, there's hope for us all Lynda (in the UK) Feeling really good after over 2 years I just wanted to tell everybody that for the last few weeks I have been feeling really good, just great, really!! So, all you sufferers out there, hang in there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2005 Report Share Posted March 14, 2005 I found when I first started to reduce my IsoCort, I had to drop my thyroid dose as I was getting lots of hyper symptoms. I ended up having to do a lot of temperature taking and pulse reading to make sure my thyroid levels didn't creep up in the blood. I ended up having to drop down to about 3 grains for about a week. Now, things seem to have stabilized and I am back up to about 3-1/2 grains. When I was on the IsoCort, I was on 3-3/4 grains. So, I think when you first start to drop cortisone, you may have to temporarily adjust thyroid down so as not to get a lot of thyroid build-up in the blood from temporary low cortisol and end up beating yourself up with hyper symptoms. Tish Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2005 Report Share Posted March 14, 2005 I found when I first started to reduce my IsoCort, I had to drop my thyroid dose as I was getting lots of hyper symptoms. I ended up having to do a lot of temperature taking and pulse reading to make sure my thyroid levels didn't creep up in the blood. I ended up having to drop down to about 3 grains for about a week. Now, things seem to have stabilized and I am back up to about 3-1/2 grains. When I was on the IsoCort, I was on 3-3/4 grains. So, I think when you first start to drop cortisone, you may have to temporarily adjust thyroid down so as not to get a lot of thyroid build-up in the blood from temporary low cortisol and end up beating yourself up with hyper symptoms. Tish Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2005 Report Share Posted March 14, 2005 I found when I first started to reduce my IsoCort, I had to drop my thyroid dose as I was getting lots of hyper symptoms. I ended up having to do a lot of temperature taking and pulse reading to make sure my thyroid levels didn't creep up in the blood. I ended up having to drop down to about 3 grains for about a week. Now, things seem to have stabilized and I am back up to about 3-1/2 grains. When I was on the IsoCort, I was on 3-3/4 grains. So, I think when you first start to drop cortisone, you may have to temporarily adjust thyroid down so as not to get a lot of thyroid build-up in the blood from temporary low cortisol and end up beating yourself up with hyper symptoms. Tish Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2005 Report Share Posted March 14, 2005 Thanks for sharing that. I'm happy for you and encouraged for me! Kate Feeling really good after over 2 years I just wanted to tell everybody that for the last few weeks I have been feeling really good, just great, really!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2005 Report Share Posted March 14, 2005 Thanks for sharing that. I'm happy for you and encouraged for me! Kate Feeling really good after over 2 years I just wanted to tell everybody that for the last few weeks I have been feeling really good, just great, really!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2005 Report Share Posted March 14, 2005 Thanks for sharing that. I'm happy for you and encouraged for me! Kate Feeling really good after over 2 years I just wanted to tell everybody that for the last few weeks I have been feeling really good, just great, really!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2005 Report Share Posted March 14, 2005 Tish, For all the help you have selflessly given me and others, you certainly deserve it. ~Inga on 3/14/05 7:25 AM, lkwetter at saltillo@... wrote: > > > I just wanted to tell everybody that for the last few weeks I have > been feeling really good, just great, really!! So, all you > sufferers out there, hang in there. There is hope! I had a total > meltdown when I started thyroid over two years ago due to adrenal > problems and I was in terrible health a misery for at least a year. > I contemplated suicide numberous times, because who wants such a > miserable life....... > >....... I just feel like celebrating. So, everybody, hang in there and fight > for what you need. Don't accept it when a doctor says that's the > best you can have and that you are " normal " when you know you are > not. To do so is to waste precious time from your life. > > Tish > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2005 Report Share Posted March 14, 2005 Tish, For all the help you have selflessly given me and others, you certainly deserve it. ~Inga on 3/14/05 7:25 AM, lkwetter at saltillo@... wrote: > > > I just wanted to tell everybody that for the last few weeks I have > been feeling really good, just great, really!! So, all you > sufferers out there, hang in there. There is hope! I had a total > meltdown when I started thyroid over two years ago due to adrenal > problems and I was in terrible health a misery for at least a year. > I contemplated suicide numberous times, because who wants such a > miserable life....... > >....... I just feel like celebrating. So, everybody, hang in there and fight > for what you need. Don't accept it when a doctor says that's the > best you can have and that you are " normal " when you know you are > not. To do so is to waste precious time from your life. > > Tish > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2005 Report Share Posted March 14, 2005 Tish, For all the help you have selflessly given me and others, you certainly deserve it. ~Inga on 3/14/05 7:25 AM, lkwetter at saltillo@... wrote: > > > I just wanted to tell everybody that for the last few weeks I have > been feeling really good, just great, really!! So, all you > sufferers out there, hang in there. There is hope! I had a total > meltdown when I started thyroid over two years ago due to adrenal > problems and I was in terrible health a misery for at least a year. > I contemplated suicide numberous times, because who wants such a > miserable life....... > >....... I just feel like celebrating. So, everybody, hang in there and fight > for what you need. Don't accept it when a doctor says that's the > best you can have and that you are " normal " when you know you are > not. To do so is to waste precious time from your life. > > Tish > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.