Guest guest Posted January 27, 2009 Report Share Posted January 27, 2009 Thanks Wim, I watched your videos, nice view! Did you post the first video you talked about to you tube? I'd like to watch that as well. What do you do for a living (I know you use your mind, but in what way?) I am an electrical engineer that now works from of the home about 30hrs a week. I also like to take naps in the afternoon. Ian (52) PSC 89 Hi:I have posted to the group a couple of times under the made-up name . My real name is Wim. I have been coming out into the open about my condition and have put a set of videos on YouTube to help acquiantances (some long distance) to get a feel of what it is like to have PSC. Perhaps members of the group will receive some benefit from this as well. I plan to set up a FaceBook page soon also.About the videos on YouTube: Look for WimTube002a, WimTube002b, and WimTube002c.Or perhaps the links below will get you there: http://www.youtube.com/watch?v=b2b51CpI-tMhttp://www.youtube.com/watch?v=51xai8zw_-U Wim (aka ) -- Ian Cribb P.Eng. (6... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2009 Report Share Posted January 27, 2009 Thanks Wim, I watched your videos, nice view! Did you post the first video you talked about to you tube? I'd like to watch that as well. What do you do for a living (I know you use your mind, but in what way?) I am an electrical engineer that now works from of the home about 30hrs a week. I also like to take naps in the afternoon. Ian (52) PSC 89 Hi:I have posted to the group a couple of times under the made-up name . My real name is Wim. I have been coming out into the open about my condition and have put a set of videos on YouTube to help acquiantances (some long distance) to get a feel of what it is like to have PSC. Perhaps members of the group will receive some benefit from this as well. I plan to set up a FaceBook page soon also.About the videos on YouTube: Look for WimTube002a, WimTube002b, and WimTube002c.Or perhaps the links below will get you there: http://www.youtube.com/watch?v=b2b51CpI-tMhttp://www.youtube.com/watch?v=51xai8zw_-U Wim (aka ) -- Ian Cribb P.Eng. (6... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2009 Report Share Posted January 27, 2009 Thanks Wim, I watched your videos, nice view! Did you post the first video you talked about to you tube? I'd like to watch that as well. What do you do for a living (I know you use your mind, but in what way?) I am an electrical engineer that now works from of the home about 30hrs a week. I also like to take naps in the afternoon. Ian (52) PSC 89 Hi:I have posted to the group a couple of times under the made-up name . My real name is Wim. I have been coming out into the open about my condition and have put a set of videos on YouTube to help acquiantances (some long distance) to get a feel of what it is like to have PSC. Perhaps members of the group will receive some benefit from this as well. I plan to set up a FaceBook page soon also.About the videos on YouTube: Look for WimTube002a, WimTube002b, and WimTube002c.Or perhaps the links below will get you there: http://www.youtube.com/watch?v=b2b51CpI-tMhttp://www.youtube.com/watch?v=51xai8zw_-U Wim (aka ) -- Ian Cribb P.Eng. (6... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 I found the video very interesting. its about time more people knew about this horrible disease and what better way to put a video on you tube.I hope all goes well with your appointment and that they can do something to help with your horrible symptoms hugs k Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 I found the video very interesting. its about time more people knew about this horrible disease and what better way to put a video on you tube.I hope all goes well with your appointment and that they can do something to help with your horrible symptoms hugs k Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 I found the video very interesting. its about time more people knew about this horrible disease and what better way to put a video on you tube.I hope all goes well with your appointment and that they can do something to help with your horrible symptoms hugs k Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 What a great description of PSC, please let us know how we can get this video out to more people and when you get on facebook let us know. Bettyann (SC) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 What a great description of PSC, please let us know how we can get this video out to more people and when you get on facebook let us know. Bettyann (SC) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 I noticed you go to Dr. Raiford too! I'll be seeing him again Feb. 2. He's really a great guy and a great doctor... athan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 I noticed you go to Dr. Raiford too! I'll be seeing him again Feb. 2. He's really a great guy and a great doctor... athan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 > I watched your videos, nice view! Did you post the first video you talked > about to you tube? I'd like to watch that as well. Wim's first video is at: http://www.youtube.com/watch?v=7PdANKSTWUw&feature=channel_page It speaks less of PSC and more about what has brought him to be open about PSC. Tim R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 > I watched your videos, nice view! Did you post the first video you talked > about to you tube? I'd like to watch that as well. Wim's first video is at: http://www.youtube.com/watch?v=7PdANKSTWUw&feature=channel_page It speaks less of PSC and more about what has brought him to be open about PSC. Tim R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 Wim thank you for sharing your story. I just emailed the links to my husband who has PSC and is currently in the hospital for c diff which he got from the high levels of antibiotics he was on 2 weeks ago when he was there for an infection in the bile duct. He is at the point of needing a transplant. They are going to do some of the work up stuff while he's in hospital. The doctors are ready to get him listed, as are we. You did a marvelous job explaining this difficult disease. Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 Wim thank you for sharing your story. I just emailed the links to my husband who has PSC and is currently in the hospital for c diff which he got from the high levels of antibiotics he was on 2 weeks ago when he was there for an infection in the bile duct. He is at the point of needing a transplant. They are going to do some of the work up stuff while he's in hospital. The doctors are ready to get him listed, as are we. You did a marvelous job explaining this difficult disease. Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 Wim, Any chance you are dutch or from dutch decent? I am a former dutchie. Chaim Boermeester > > Hi: > > I have posted to the group a couple of times under the made-up name > . My real name is Wim. I have been coming out into the open about > my condition and have put a set of videos on YouTube to help > acquiantances (some long distance) to get a feel of what it is like > to have PSC. Perhaps members of the group will receive some benefit > from this as well. I plan to set up a FaceBook page soon also. > > About the videos on YouTube: > > Look for WimTube002a, WimTube002b, and WimTube002c. > > Or perhaps the links below will get you there: > > > > > > > > Wim (aka ) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 Wim, Any chance you are dutch or from dutch decent? I am a former dutchie. Chaim Boermeester > > Hi: > > I have posted to the group a couple of times under the made-up name > . My real name is Wim. I have been coming out into the open about > my condition and have put a set of videos on YouTube to help > acquiantances (some long distance) to get a feel of what it is like > to have PSC. Perhaps members of the group will receive some benefit > from this as well. I plan to set up a FaceBook page soon also. > > About the videos on YouTube: > > Look for WimTube002a, WimTube002b, and WimTube002c. > > Or perhaps the links below will get you there: > > > > > > > > Wim (aka ) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 Thanks for doing this! I just wish I could get my sister to watch -- she simply doesn't WANT to listen to what I tell her. Penny > > Hi: > > I have posted to the group a couple of times under the made-up name > . My real name is Wim. I have been coming out into the open about > my condition and have put a set of videos on YouTube to help > acquiantances (some long distance) to get a feel of what it is like > to have PSC. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 Thanks for doing this! I just wish I could get my sister to watch -- she simply doesn't WANT to listen to what I tell her. Penny > > Hi: > > I have posted to the group a couple of times under the made-up name > . My real name is Wim. I have been coming out into the open about > my condition and have put a set of videos on YouTube to help > acquiantances (some long distance) to get a feel of what it is like > to have PSC. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 Thanks for doing this! I just wish I could get my sister to watch -- she simply doesn't WANT to listen to what I tell her. Penny > > Hi: > > I have posted to the group a couple of times under the made-up name > . My real name is Wim. I have been coming out into the open about > my condition and have put a set of videos on YouTube to help > acquiantances (some long distance) to get a feel of what it is like > to have PSC. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 Wim, You did a great job! I'm 1 year post transplant, after 25 years of PSC and the one thing, in your video, that hit me the hardest was the chills from the inside! It was miserable! I still have that happen occasionally, for whatever reason, but not nearly as often as I did pre-tx. Good luck to you and thanks for sharing. (MO) PSC and UC '84, chronic pancreatitis '97, many other inconvenient diagnosis, but tx'd 1/7/08 Get instant access to the latest most popular FREE games while you browse with the Games Toolbar - Download Now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 This was great - thanks for sharing. Marie To: From: jdruk59@...Date: Wed, 28 Jan 2009 04:41:45 +0000Subject: PSC on YouTube Hi: I have posted to the group a couple of times under the made-up name . My real name is Wim. I have been coming out into the open about my condition and have put a set of videos on YouTube to help acquiantances (some long distance) to get a feel of what it is like to have PSC. Perhaps members of the group will receive some benefit from this as well. I plan to set up a FaceBook page soon also. About the videos on YouTube: Look for WimTube002a, WimTube002b, and WimTube002c. Or perhaps the links below will get you there: Wim (aka ) Windows Live™: E-mail. Chat. Share. Get more ways to connect. Check it out. Quote Link to comment Share on other sites More sharing options...
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