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RE: PSC on YouTube

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Thanks Wim,

I watched your videos, nice view! Did you post the first video you talked about to you tube? I'd like to watch that as well. What do you do for a living (I know you use your mind, but in what way?) I am an electrical engineer that now works from of the home about 30hrs a week. I also like to take naps in the afternoon.

Ian (52) PSC 89

Hi:I have posted to the group a couple of times under the made-up name . My real name is Wim. I have been coming out into the open about my condition and have put a set of videos on YouTube to help

acquiantances (some long distance) to get a feel of what it is like to have PSC. Perhaps members of the group will receive some benefit from this as well. I plan to set up a FaceBook page soon also.About the videos on YouTube:

Look for WimTube002a, WimTube002b, and WimTube002c.Or perhaps the links below will get you there:

http://www.youtube.com/watch?v=b2b51CpI-tMhttp://www.youtube.com/watch?v=51xai8zw_-U

Wim (aka ) -- Ian Cribb P.Eng.

(6...

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Thanks Wim,

I watched your videos, nice view! Did you post the first video you talked about to you tube? I'd like to watch that as well. What do you do for a living (I know you use your mind, but in what way?) I am an electrical engineer that now works from of the home about 30hrs a week. I also like to take naps in the afternoon.

Ian (52) PSC 89

Hi:I have posted to the group a couple of times under the made-up name . My real name is Wim. I have been coming out into the open about my condition and have put a set of videos on YouTube to help

acquiantances (some long distance) to get a feel of what it is like to have PSC. Perhaps members of the group will receive some benefit from this as well. I plan to set up a FaceBook page soon also.About the videos on YouTube:

Look for WimTube002a, WimTube002b, and WimTube002c.Or perhaps the links below will get you there:

http://www.youtube.com/watch?v=b2b51CpI-tMhttp://www.youtube.com/watch?v=51xai8zw_-U

Wim (aka ) -- Ian Cribb P.Eng.

(6...

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Thanks Wim,

I watched your videos, nice view! Did you post the first video you talked about to you tube? I'd like to watch that as well. What do you do for a living (I know you use your mind, but in what way?) I am an electrical engineer that now works from of the home about 30hrs a week. I also like to take naps in the afternoon.

Ian (52) PSC 89

Hi:I have posted to the group a couple of times under the made-up name . My real name is Wim. I have been coming out into the open about my condition and have put a set of videos on YouTube to help

acquiantances (some long distance) to get a feel of what it is like to have PSC. Perhaps members of the group will receive some benefit from this as well. I plan to set up a FaceBook page soon also.About the videos on YouTube:

Look for WimTube002a, WimTube002b, and WimTube002c.Or perhaps the links below will get you there:

http://www.youtube.com/watch?v=b2b51CpI-tMhttp://www.youtube.com/watch?v=51xai8zw_-U

Wim (aka ) -- Ian Cribb P.Eng.

(6...

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I found the video very interesting. its about time more people knew

about this horrible disease and what better way to put a video on you

tube.I hope all goes well with your appointment and that they can do

something to help with your horrible symptoms hugs k

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I found the video very interesting. its about time more people knew

about this horrible disease and what better way to put a video on you

tube.I hope all goes well with your appointment and that they can do

something to help with your horrible symptoms hugs k

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I found the video very interesting. its about time more people knew

about this horrible disease and what better way to put a video on you

tube.I hope all goes well with your appointment and that they can do

something to help with your horrible symptoms hugs k

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Wim thank you for sharing your story. I just emailed the links to my husband who

has PSC

and is currently in the hospital for c diff which he got from the high levels of

antibiotics he

was on 2 weeks ago when he was there for an infection in the bile duct. He is at

the point of

needing a transplant. They are going to do some of the work up stuff while he's

in hospital.

The doctors are ready to get him listed, as are we. You did a marvelous job

explaining this

difficult disease. Thank you!

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Wim thank you for sharing your story. I just emailed the links to my husband who

has PSC

and is currently in the hospital for c diff which he got from the high levels of

antibiotics he

was on 2 weeks ago when he was there for an infection in the bile duct. He is at

the point of

needing a transplant. They are going to do some of the work up stuff while he's

in hospital.

The doctors are ready to get him listed, as are we. You did a marvelous job

explaining this

difficult disease. Thank you!

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Wim,

Any chance you are dutch or from dutch decent?

I am a former dutchie.

Chaim Boermeester

>

> Hi:

>

> I have posted to the group a couple of times under the made-up name

> . My real name is Wim. I have been coming out into the open about

> my condition and have put a set of videos on YouTube to help

> acquiantances (some long distance) to get a feel of what it is like

> to have PSC. Perhaps members of the group will receive some benefit

> from this as well. I plan to set up a FaceBook page soon also.

>

> About the videos on YouTube:

>

> Look for WimTube002a, WimTube002b, and WimTube002c.

>

> Or perhaps the links below will get you there:

>

>

>

>

>

>

>

> Wim (aka )

>

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Wim,

Any chance you are dutch or from dutch decent?

I am a former dutchie.

Chaim Boermeester

>

> Hi:

>

> I have posted to the group a couple of times under the made-up name

> . My real name is Wim. I have been coming out into the open about

> my condition and have put a set of videos on YouTube to help

> acquiantances (some long distance) to get a feel of what it is like

> to have PSC. Perhaps members of the group will receive some benefit

> from this as well. I plan to set up a FaceBook page soon also.

>

> About the videos on YouTube:

>

> Look for WimTube002a, WimTube002b, and WimTube002c.

>

> Or perhaps the links below will get you there:

>

>

>

>

>

>

>

> Wim (aka )

>

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Thanks for doing this! I just wish I could get my sister to watch --

she simply doesn't WANT to listen to what I tell her.

Penny

>

> Hi:

>

> I have posted to the group a couple of times under the made-up name

> . My real name is Wim. I have been coming out into the open about

> my condition and have put a set of videos on YouTube to help

> acquiantances (some long distance) to get a feel of what it is like

> to have PSC.

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Thanks for doing this! I just wish I could get my sister to watch --

she simply doesn't WANT to listen to what I tell her.

Penny

>

> Hi:

>

> I have posted to the group a couple of times under the made-up name

> . My real name is Wim. I have been coming out into the open about

> my condition and have put a set of videos on YouTube to help

> acquiantances (some long distance) to get a feel of what it is like

> to have PSC.

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Share on other sites

Thanks for doing this! I just wish I could get my sister to watch --

she simply doesn't WANT to listen to what I tell her.

Penny

>

> Hi:

>

> I have posted to the group a couple of times under the made-up name

> . My real name is Wim. I have been coming out into the open about

> my condition and have put a set of videos on YouTube to help

> acquiantances (some long distance) to get a feel of what it is like

> to have PSC.

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Wim,

You did a great job! I'm 1 year post transplant, after 25 years of PSC and the one thing, in your video, that hit me the hardest was the chills from the inside! It was miserable! I still have that happen occasionally, for whatever reason, but not nearly as often as I did pre-tx.

Good luck to you and thanks for sharing.

(MO)

PSC and UC '84, chronic pancreatitis '97, many other inconvenient diagnosis, but tx'd 1/7/08

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This was great - thanks for sharing. Marie

To: From: jdruk59@...Date: Wed, 28 Jan 2009 04:41:45 +0000Subject: PSC on YouTube

Hi:

I have posted to the group a couple of times under the made-up name

. My real name is Wim. I have been coming out into the open about

my condition and have put a set of videos on YouTube to help

acquiantances (some long distance) to get a feel of what it is like

to have PSC. Perhaps members of the group will receive some benefit

from this as well. I plan to set up a FaceBook page soon also.

About the videos on YouTube:

Look for WimTube002a, WimTube002b, and WimTube002c.

Or perhaps the links below will get you there:

Wim (aka )

Windows Live™: E-mail. Chat. Share. Get more ways to connect. Check it out.

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