Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 hi~ welcome to the group i was diagnosed when i was 19 and i thought that my life was over. they told me that there was nothing that i could do about the illness, but i've been going to see a specialist who is also a chiopractor and he's my miracle worker stick in there, we'll help ya out luv, ali --- Leckie leckie@...> wrote: > Hi. My name is and I live in NJ. I just > celebrated (if you could say that) my 38th birthday > although I feel like 90. Yesterday I was officially > diagnosed with fibro. It was a hard pill to swallow > even though I knew that this would be the diagnosis > since I've suffered for a few years now. > > My adult life has always been filled with alot of > stresses but I thought I handled them well however > my health always suffered. In 1997 I contracted > parvovirus and since then, I've never been right. > I've also had Lyme disease too but all my bloodwork > for bacterial infections were negative. So, here I > sit with my new diagnosis and trying to find out how > to cope with it. > > The fatigue is horrendous and the pain is horrible. > When someone asks what type of pain I have - all I > can tell them is that if they were to grab my arm > even lightly, it would make me want to scream and > for hours afterward I would feel their fingerprints > on me. Does that make sense? > > I hope to find out useful information on this group! > > L. > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 -Hi, I talked to a lady in a chat whose child died of parvo virus. She has a group for people who have it. From what I understand it can cause life long problems in some people. If I can find the group I will let you know if you are interested. -- In @y..., " Leckie " wrote: > Hi. My name is and I live in NJ. I just celebrated (if you could say that) my 38th birthday although I feel like 90. Yesterday I was officially diagnosed with fibro. It was a hard pill to swallow even though I knew that this would be the diagnosis since I've suffered for a few years now. > > My adult life has always been filled with alot of stresses but I thought I handled them well however my health always suffered. In 1997 I contracted parvovirus and since then, I've never been right. I've also had Lyme disease too but all my bloodwork for bacterial infections were negative. So, here I sit with my new diagnosis and trying to find out how to cope with it. > > The fatigue is horrendous and the pain is horrible. When someone asks what type of pain I have - all I can tell them is that if they were to grab my arm even lightly, it would make me want to scream and for hours afterward I would feel their fingerprints on me. Does that make sense? > > I hope to find out useful information on this group! > > L. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 -Hi, I talked to a lady in a chat whose child died of parvo virus. She has a group for people who have it. From what I understand it can cause life long problems in some people. If I can find the group I will let you know if you are interested. -- In @y..., " Leckie " wrote: > Hi. My name is and I live in NJ. I just celebrated (if you could say that) my 38th birthday although I feel like 90. Yesterday I was officially diagnosed with fibro. It was a hard pill to swallow even though I knew that this would be the diagnosis since I've suffered for a few years now. > > My adult life has always been filled with alot of stresses but I thought I handled them well however my health always suffered. In 1997 I contracted parvovirus and since then, I've never been right. I've also had Lyme disease too but all my bloodwork for bacterial infections were negative. So, here I sit with my new diagnosis and trying to find out how to cope with it. > > The fatigue is horrendous and the pain is horrible. When someone asks what type of pain I have - all I can tell them is that if they were to grab my arm even lightly, it would make me want to scream and for hours afterward I would feel their fingerprints on me. Does that make sense? > > I hope to find out useful information on this group! > > L. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 -Hi, I talked to a lady in a chat whose child died of parvo virus. She has a group for people who have it. From what I understand it can cause life long problems in some people. If I can find the group I will let you know if you are interested. -- In @y..., " Leckie " wrote: > Hi. My name is and I live in NJ. I just celebrated (if you could say that) my 38th birthday although I feel like 90. Yesterday I was officially diagnosed with fibro. It was a hard pill to swallow even though I knew that this would be the diagnosis since I've suffered for a few years now. > > My adult life has always been filled with alot of stresses but I thought I handled them well however my health always suffered. In 1997 I contracted parvovirus and since then, I've never been right. I've also had Lyme disease too but all my bloodwork for bacterial infections were negative. So, here I sit with my new diagnosis and trying to find out how to cope with it. > > The fatigue is horrendous and the pain is horrible. When someone asks what type of pain I have - all I can tell them is that if they were to grab my arm even lightly, it would make me want to scream and for hours afterward I would feel their fingerprints on me. Does that make sense? > > I hope to find out useful information on this group! > > L. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2002 Report Share Posted September 9, 2002 Hello everybody. I'm . I'm so excited about finding this club that I couldn't help but write even though it's 2:30am. I'm disabled with CFS and possibly FMS, but I am still wondering if it isn't due to something else. I would like to share what my symptoms are and if anyone reading this experiences the same thing, please let me know, because my symptoms seem to differ somewhat from what others with this disease experience and I need to know what I am experiencing here. This is what happens to me: (1) I'm exposed to a cold, possibly flu virus. (2) I develop mild cold/flu symptoms the first couple of days: sneezing, sore throat, runny nose, achey chest, low grade fever, fever blisters, queezy stomach/abdominal pain, and/or headache. (3) Some of the cold symptoms subside (usually the sneezing, runny nose and sore throat). About the same time, I get hit with a fatigue that just envelopes me. It sets in with the " brain fog " . My hair often starts to fall out, and I often develop oral fever blisters. I feel awful all over, so it's hard to pinpoint where in my body the malaise is coming from. Sometimes I think it's in my chest because my chest kinda aches, and other times I think it's coming from my abdomen because my tummy hurts...but then my neck and back ache too...This may go on for a week or it may go on for a month. Then it all subsides and I'm back to " normal " again. Only thing is, a month or two later it all happens again. Sometimes I go 3 to 4 months before it happens again and sometimes it's just a couple of weeks. I have had this condition since 1995. " Normal " isn't so normal though, because I have been an insomniac all of my adult life, and if I don't get at least 8 1/2 hours of solid sleep I'm a wreck. I also have chronic back and neck problems/pain that isn't terrible, just annoying, especially when I'm sick. Lately (the last 9 months) I have been depressed and taking antidepressents, and the antidepressents have not helped my physical symptoms. Does this sound like CFS or Fibro to anyone? I don't have aids. Quote Link to comment Share on other sites More sharing options...
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