Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 Hi Charity: My previous sleep study came out inconclusive. I did find out I had Restless Leg Sydrome and Periodic Limb Movements and that I slept excellent. That was the funniest one. They charged Medicare $5,000 which they didn't pay and only paid $2,000 and they did nothing for me. I am at a new sleep clinic. I think if they want you to do a new sleep study, they should eat up the cost because they didn't do something right. I would never go back there even if you decide to go back for one. I have two cousins with sleep apnea and they show up very clearly. Narcolepsy is a possibility and they were very careless to let you leave and drive thinking you may have Narcolepsy. Because I pushed myself for years at work, due to there not being a diagnosis called CFS/FMS, I finally completely broke down. I was so deathly sick with two years of bronchitis and pneumonia that when I finally went on SSDI and had to stop working, as sick as I was, I realized I should have stopped working years before but I could not get SSDI. If you have CFS/FMS, you may be overdoing it by still working and stressing yourself out. I am very frightened when you talk about driving and narcolepsy. I have a good idea. This is what I did now. Why not try a consultation with another sleep clinic. No sleep study, just a consultation. Where I am now which is one of the top hospitals in NYC, it took them 3 days to get my full history because I became so complicated of so many years of illness. The first hour visit I went to the city for. Then I became so sick from the trip that they were kind enough to understand and they did the other two hours over the phone. I am not going for another study because we know what showed up. Not every sleep disorder requires a sleep study. I don't think your sleep study was done properly or they may not even be certified. Anywhere you go, make sure of their reputation and that they are certified. Good luck!! Andi << Hi Andi, AAAAH, stupid sleep tests! I agree, I never, ever want to do one again! Unfortunately, my results came back inconclusive and they want me to do another one. It would cost me over $2000 to have another sleep test taken and there is no way I can handle that right now. My doctor thinks I have either sleep apnea or narcolepsy and/or cronic fatigue... So far all tests are inconclusive and I am very frusterated. I fall asleep driving half the time and lately I've been so tired I fall asleep in meetings at work!! That is so incredibly embarrassing and makes me look horrible, especially since I just started this job not too long ago!! *sigh* Charity >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 Hi Charity: My previous sleep study came out inconclusive. I did find out I had Restless Leg Sydrome and Periodic Limb Movements and that I slept excellent. That was the funniest one. They charged Medicare $5,000 which they didn't pay and only paid $2,000 and they did nothing for me. I am at a new sleep clinic. I think if they want you to do a new sleep study, they should eat up the cost because they didn't do something right. I would never go back there even if you decide to go back for one. I have two cousins with sleep apnea and they show up very clearly. Narcolepsy is a possibility and they were very careless to let you leave and drive thinking you may have Narcolepsy. Because I pushed myself for years at work, due to there not being a diagnosis called CFS/FMS, I finally completely broke down. I was so deathly sick with two years of bronchitis and pneumonia that when I finally went on SSDI and had to stop working, as sick as I was, I realized I should have stopped working years before but I could not get SSDI. If you have CFS/FMS, you may be overdoing it by still working and stressing yourself out. I am very frightened when you talk about driving and narcolepsy. I have a good idea. This is what I did now. Why not try a consultation with another sleep clinic. No sleep study, just a consultation. Where I am now which is one of the top hospitals in NYC, it took them 3 days to get my full history because I became so complicated of so many years of illness. The first hour visit I went to the city for. Then I became so sick from the trip that they were kind enough to understand and they did the other two hours over the phone. I am not going for another study because we know what showed up. Not every sleep disorder requires a sleep study. I don't think your sleep study was done properly or they may not even be certified. Anywhere you go, make sure of their reputation and that they are certified. Good luck!! Andi << Hi Andi, AAAAH, stupid sleep tests! I agree, I never, ever want to do one again! Unfortunately, my results came back inconclusive and they want me to do another one. It would cost me over $2000 to have another sleep test taken and there is no way I can handle that right now. My doctor thinks I have either sleep apnea or narcolepsy and/or cronic fatigue... So far all tests are inconclusive and I am very frusterated. I fall asleep driving half the time and lately I've been so tired I fall asleep in meetings at work!! That is so incredibly embarrassing and makes me look horrible, especially since I just started this job not too long ago!! *sigh* Charity >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 : I am also sorry for your problems. I have been sick since I am 21 years old. I am now middle aged but not ready to talk about age. I know what it is to be sick young and it isn't fair but there is always worse around us somewhere. Thank you for your good wishes and I will keep everyone informed because this is important for all of us. Andi << Andi, I do wish you lots of luck...let me know the kind of results that you get....I might consider going to a sleep clinic myself. I think I have restless leg syndrome as well..my current b/f and my ex b/f is/was all the time telling me I kick and move my legs alot in my sleep I also grind me teeth. I have TMJ bbaaddd. (no I'm not a sheep..hee hee) Please do keep me updated and I wish you the bestest of luck..hugzzz Allicia>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 : I am also sorry for your problems. I have been sick since I am 21 years old. I am now middle aged but not ready to talk about age. I know what it is to be sick young and it isn't fair but there is always worse around us somewhere. Thank you for your good wishes and I will keep everyone informed because this is important for all of us. Andi << Andi, I do wish you lots of luck...let me know the kind of results that you get....I might consider going to a sleep clinic myself. I think I have restless leg syndrome as well..my current b/f and my ex b/f is/was all the time telling me I kick and move my legs alot in my sleep I also grind me teeth. I have TMJ bbaaddd. (no I'm not a sheep..hee hee) Please do keep me updated and I wish you the bestest of luck..hugzzz Allicia>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 : I am also sorry for your problems. I have been sick since I am 21 years old. I am now middle aged but not ready to talk about age. I know what it is to be sick young and it isn't fair but there is always worse around us somewhere. Thank you for your good wishes and I will keep everyone informed because this is important for all of us. Andi << Andi, I do wish you lots of luck...let me know the kind of results that you get....I might consider going to a sleep clinic myself. I think I have restless leg syndrome as well..my current b/f and my ex b/f is/was all the time telling me I kick and move my legs alot in my sleep I also grind me teeth. I have TMJ bbaaddd. (no I'm not a sheep..hee hee) Please do keep me updated and I wish you the bestest of luck..hugzzz Allicia>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 Colette: I take Celexa for depression and also take Oxycontin for pain. I take pure Oxycontin without Tylenol in it or anything else. It helps me tremendously. Why not check into pure Oxycontin. I take 160mg 2x a day and the pain always starts with my Restless Leg Syndrome. If MS Contin helps you, then I would not rock the boat. How does Effexor work for you?? What about side effects?? Andi << I also take Effexor with MS Contin (morphine). Oxycontin contains Tylenol, and T. gives me restless legs. About 40% of Fibro patients have RLS (restless limbs syndrome.) Colette>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 Colette: I take Celexa for depression and also take Oxycontin for pain. I take pure Oxycontin without Tylenol in it or anything else. It helps me tremendously. Why not check into pure Oxycontin. I take 160mg 2x a day and the pain always starts with my Restless Leg Syndrome. If MS Contin helps you, then I would not rock the boat. How does Effexor work for you?? What about side effects?? Andi << I also take Effexor with MS Contin (morphine). Oxycontin contains Tylenol, and T. gives me restless legs. About 40% of Fibro patients have RLS (restless limbs syndrome.) Colette>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 Colette: I take Celexa for depression and also take Oxycontin for pain. I take pure Oxycontin without Tylenol in it or anything else. It helps me tremendously. Why not check into pure Oxycontin. I take 160mg 2x a day and the pain always starts with my Restless Leg Syndrome. If MS Contin helps you, then I would not rock the boat. How does Effexor work for you?? What about side effects?? Andi << I also take Effexor with MS Contin (morphine). Oxycontin contains Tylenol, and T. gives me restless legs. About 40% of Fibro patients have RLS (restless limbs syndrome.) Colette>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 Allicia wrote, > I also grind me > teeth. I have TMJ bbaaddd. > > Do you wear a night guard? This will keep you from grinding you teeth. I > have one but I got it to late. I have ground my teeth down about 1/3. So > if you don't have one, you would be well advised to get one. Take care, Irene Books may well be the only true magic Alice Hoffman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 Allicia wrote, > I also grind me > teeth. I have TMJ bbaaddd. > > Do you wear a night guard? This will keep you from grinding you teeth. I > have one but I got it to late. I have ground my teeth down about 1/3. So > if you don't have one, you would be well advised to get one. Take care, Irene Books may well be the only true magic Alice Hoffman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 Allicia wrote, > I also grind me > teeth. I have TMJ bbaaddd. > > Do you wear a night guard? This will keep you from grinding you teeth. I > have one but I got it to late. I have ground my teeth down about 1/3. So > if you don't have one, you would be well advised to get one. Take care, Irene Books may well be the only true magic Alice Hoffman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 In a message dated 08/19/2002 1:48:38 PM US Eastern Standard Time, patidu@... writes: > Do you wear a night guard? Irene, Yes I have one, but it causes my face to hurt like Hell...I'm not sure why, but I will wake up in the middle of the night and I have scurry through the bed trying to find it....because I have taken it off in my sleep. Allicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 In a message dated 08/19/2002 1:48:38 PM US Eastern Standard Time, patidu@... writes: > Do you wear a night guard? Irene, Yes I have one, but it causes my face to hurt like Hell...I'm not sure why, but I will wake up in the middle of the night and I have scurry through the bed trying to find it....because I have taken it off in my sleep. Allicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 In a message dated 08/19/2002 1:48:38 PM US Eastern Standard Time, patidu@... writes: > Do you wear a night guard? Irene, Yes I have one, but it causes my face to hurt like Hell...I'm not sure why, but I will wake up in the middle of the night and I have scurry through the bed trying to find it....because I have taken it off in my sleep. Allicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 Charity wrote: > My Technician said, " You slept Great! " when he woke me > up after my test and I just wanted to throttle the > man. Isn't that the worst!?! Or the tech doing the test says something that gives you the impression that everything *isn't* quite normal, but your test results come back as " normal " and you're left wondering " why did the tech ask me that question if everything is so normal? " Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 Charity wrote: > My Technician said, " You slept Great! " when he woke me > up after my test and I just wanted to throttle the > man. Isn't that the worst!?! Or the tech doing the test says something that gives you the impression that everything *isn't* quite normal, but your test results come back as " normal " and you're left wondering " why did the tech ask me that question if everything is so normal? " Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 Hi Andi, My Technician said, " You slept Great! " when he woke me up after my test and I just wanted to throttle the man. It was the first night of nearly decent sleep I had had in six months for some reason and I had had the most incredibly vivid dream ever! However, I did not sleep in " the right position " for it to be worthwhile data. Grrr The falling asleep driving thing is brand new, as in the last 6 weeks...and it hasn't happened very often and only for that " blink of an eye " moment. My doctor is just grasping at straws at this point because I have such an incredibly hard time with sleeping and being sleepy ALL the time. The sleep test didn't come up with anything, he sent me to a lung specialist to see if it was part of my asthma and that doctor blames it on the meds my other doctor put me on for pain and wanted me to go off my pain meds. I went off my pain meds with no change to sleepiness and I was in so much pain I just cried all the time. So, who knows, I might have narcolepsy, I may also just be SO sleep deprived that my body just shuts down occasionally?? Who the bleep knows. *SIGH* I just wish some of these tests would actually come back with something solid that I could be treated for. To top it off I haven't slept in at least 7 days. This weekend was terrible and I feel like a piece of dog dooo. Charity --- cats_meow429@... wrote: > Hi Charity: > > My previous sleep study came out inconclusive. I > did find out I had > Restless Leg Sydrome and Periodic Limb Movements and > that I slept > excellent. That was the funniest one. They charged > Medicare $5,000 > which they didn't pay and only paid $2,000 and they > did nothing for me. ===== @-->-- @-->-- @-->-- @-->-- @-->-- @-->-- @-->-- @-->-- " She is like a cat in the dark, and yet she is the darkness. " Ember_Thunderwolf@... @-->-- @-->-- @-->-- @-->-- @-->-- @-->-- @-->-- @-->-- __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 Hi Andi, My Technician said, " You slept Great! " when he woke me up after my test and I just wanted to throttle the man. It was the first night of nearly decent sleep I had had in six months for some reason and I had had the most incredibly vivid dream ever! However, I did not sleep in " the right position " for it to be worthwhile data. Grrr The falling asleep driving thing is brand new, as in the last 6 weeks...and it hasn't happened very often and only for that " blink of an eye " moment. My doctor is just grasping at straws at this point because I have such an incredibly hard time with sleeping and being sleepy ALL the time. The sleep test didn't come up with anything, he sent me to a lung specialist to see if it was part of my asthma and that doctor blames it on the meds my other doctor put me on for pain and wanted me to go off my pain meds. I went off my pain meds with no change to sleepiness and I was in so much pain I just cried all the time. So, who knows, I might have narcolepsy, I may also just be SO sleep deprived that my body just shuts down occasionally?? Who the bleep knows. *SIGH* I just wish some of these tests would actually come back with something solid that I could be treated for. To top it off I haven't slept in at least 7 days. This weekend was terrible and I feel like a piece of dog dooo. Charity --- cats_meow429@... wrote: > Hi Charity: > > My previous sleep study came out inconclusive. I > did find out I had > Restless Leg Sydrome and Periodic Limb Movements and > that I slept > excellent. That was the funniest one. They charged > Medicare $5,000 > which they didn't pay and only paid $2,000 and they > did nothing for me. ===== @-->-- @-->-- @-->-- @-->-- @-->-- @-->-- @-->-- @-->-- " She is like a cat in the dark, and yet she is the darkness. " Ember_Thunderwolf@... @-->-- @-->-- @-->-- @-->-- @-->-- @-->-- @-->-- @-->-- __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 Hi Andi, My Technician said, " You slept Great! " when he woke me up after my test and I just wanted to throttle the man. It was the first night of nearly decent sleep I had had in six months for some reason and I had had the most incredibly vivid dream ever! However, I did not sleep in " the right position " for it to be worthwhile data. Grrr The falling asleep driving thing is brand new, as in the last 6 weeks...and it hasn't happened very often and only for that " blink of an eye " moment. My doctor is just grasping at straws at this point because I have such an incredibly hard time with sleeping and being sleepy ALL the time. The sleep test didn't come up with anything, he sent me to a lung specialist to see if it was part of my asthma and that doctor blames it on the meds my other doctor put me on for pain and wanted me to go off my pain meds. I went off my pain meds with no change to sleepiness and I was in so much pain I just cried all the time. So, who knows, I might have narcolepsy, I may also just be SO sleep deprived that my body just shuts down occasionally?? Who the bleep knows. *SIGH* I just wish some of these tests would actually come back with something solid that I could be treated for. To top it off I haven't slept in at least 7 days. This weekend was terrible and I feel like a piece of dog dooo. Charity --- cats_meow429@... wrote: > Hi Charity: > > My previous sleep study came out inconclusive. I > did find out I had > Restless Leg Sydrome and Periodic Limb Movements and > that I slept > excellent. That was the funniest one. They charged > Medicare $5,000 > which they didn't pay and only paid $2,000 and they > did nothing for me. ===== @-->-- @-->-- @-->-- @-->-- @-->-- @-->-- @-->-- @-->-- " She is like a cat in the dark, and yet she is the darkness. " Ember_Thunderwolf@... @-->-- @-->-- @-->-- @-->-- @-->-- @-->-- @-->-- @-->-- __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 In a message dated 08/19/2002 3:40:23 PM US Eastern Standard Time, ember_thunderwolf@... writes: > However, I did > not sleep in " the right position " for it to be > worthwhile data What is the right position??? I was thinking of going to sleep clinic to see if I have Narcolepsy. I don't really fall asleep just anywhere....I have to be comfy, but if I'm comfy I'm out like a light. Allicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 In a message dated 08/19/2002 3:40:23 PM US Eastern Standard Time, ember_thunderwolf@... writes: > However, I did > not sleep in " the right position " for it to be > worthwhile data What is the right position??? I was thinking of going to sleep clinic to see if I have Narcolepsy. I don't really fall asleep just anywhere....I have to be comfy, but if I'm comfy I'm out like a light. Allicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 In a message dated 08/20/2002 9:31:20 AM US Eastern Standard Time, ember_thunderwolf@... writes: > Obivously I'm still mad about that Charity, Don't blame ya a bit...heck its only $$....something I don't know about you, but I don't have any of ....lol Allicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 Hi Allicia, > What is the right position??? That was my question too. They said that the best position for me to be in in order for them to see if I have Sleep Apnea is on my back. I don't sleep on my back because it is not comfortable for me at all! My fibro has been in flare in my low back and SI area for years and it's nearly impossible for me to sleep on my back because I hurt so bad. But, because I did not sleep on my back for more than 5% of the night my test results are inconclusive!! You know, they talk to you through the wall half the night, why couldn't they have told me, " Hey, you in there...wake up, roll over and go back to sleep! " ??? Grrrr. Obivously I'm still mad about that Charity ===== @-->-- @-->-- @-->-- @-->-- @-->-- @-->-- @-->-- @-->-- " She is like a cat in the dark, and yet she is the darkness. " Ember_Thunderwolf@... @-->-- @-->-- @-->-- @-->-- @-->-- @-->-- @-->-- @-->-- __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 Allicia wrote, > I'm not sure > why, but I will wake up in the middle of the night and I have scurry > through > the bed trying to find it....because I have taken it off in my sleep. I do the same but as I had ground part of my teeth away, I do wear it even if I have to look for it in the middle of the night. I have found it in the closet so I guess that I throw it in my sleep as well as losing it in the bed covers. Take care, Irene Books may well be the only true magic Alice Hoffman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 Allicia wrote, > I'm not sure > why, but I will wake up in the middle of the night and I have scurry > through > the bed trying to find it....because I have taken it off in my sleep. I do the same but as I had ground part of my teeth away, I do wear it even if I have to look for it in the middle of the night. I have found it in the closet so I guess that I throw it in my sleep as well as losing it in the bed covers. Take care, Irene Books may well be the only true magic Alice Hoffman Quote Link to comment Share on other sites More sharing options...
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