RE: Unsure Where To Go From Here

[Guest guest]

Dear ,

Well weither you have fibro or not, you have gotten a lesson in how us

fibromites are treated and mistreated! I am sorry this has happened to you!

We battle doctors and medical systems that fail us and others all the time,

but we somehow take the blame for it all. What you need to do is write and

keep copies of all letters. You need to write to each doctor about what

happened step by step. Who you talked to and when. Give as much detail as

you can. Do not be afriad of steping on toes for the only toes that are

getting steped on here are your own. As you said, the relationship with your

primary doctor may be tainted, but if you can explain to the primary doctor

he/she may understand as you have never asked for or used pain medications

before this and that should be proven in your records. You also at this time

need a copy of all your records in case your relationship with the doctor has

been tainted. You need to do what they are now doing, which is covering your

tail end.

This happens all the time and many do not get medications at all because

doctors are afraid to priscribe them because they may lose their practice for

prescribing hard core meds that the government is claiming to be a part of

the drug war they are fighting in this country. We who live in pain need to

watch our tail ends as well as the doctors do and fight for rights. Your

history is recorded and you can prove that you did not abuse medications.

Next time anyone but a doctor tells you how to use medications priscribed by

the doctor ask for it in writing or insist on talking to the doctor.

I am amazed that the rhumey priscribed the medication that she did the first

time she saw you! I think she may have rethought things and thought she made

a mistake in doing so and that you were a druggie and she tiped the scale and

makes herself look bad by pointing the finger at you when she should have

talked to your primary doctor to see if there were a history of pain

medications being priscribed for you. You are not at fault and need

assistance, but it sounds like you better learn to fight for yourself here

and now, the first time it happens or these things WILL be a part of your

records. The next thing you need to do is record all this and ask that her

report be taken from your records or you will talk to a lawyer about her

defermation of your charactor and such.

One thing us fibromites have to be is real mighty in the war we wage against

an unfair system filled with doctors being taught in medical school that

though we may have a title for an illness we claim to have, it is mostly in

our heads and a waste basket dx. If you don't believe me, I can show you a

site of medical people that teach in North Carolyna at a medical school, that

fibro is in our heads.

Good luck to you and I hope I haven't depressed you more, but many of us go

through this and I don't mix words and always say it the way I see it. My

heart goes out to you .

Donna/ Colorado

[Guest guest]

Dear ,

Well weither you have fibro or not, you have gotten a lesson in how us

fibromites are treated and mistreated! I am sorry this has happened to you!

We battle doctors and medical systems that fail us and others all the time,

but we somehow take the blame for it all. What you need to do is write and

keep copies of all letters. You need to write to each doctor about what

happened step by step. Who you talked to and when. Give as much detail as

you can. Do not be afriad of steping on toes for the only toes that are

getting steped on here are your own. As you said, the relationship with your

primary doctor may be tainted, but if you can explain to the primary doctor

he/she may understand as you have never asked for or used pain medications

before this and that should be proven in your records. You also at this time

need a copy of all your records in case your relationship with the doctor has

been tainted. You need to do what they are now doing, which is covering your

tail end.

This happens all the time and many do not get medications at all because

doctors are afraid to priscribe them because they may lose their practice for

prescribing hard core meds that the government is claiming to be a part of

the drug war they are fighting in this country. We who live in pain need to

watch our tail ends as well as the doctors do and fight for rights. Your

history is recorded and you can prove that you did not abuse medications.

Next time anyone but a doctor tells you how to use medications priscribed by

the doctor ask for it in writing or insist on talking to the doctor.

I am amazed that the rhumey priscribed the medication that she did the first

time she saw you! I think she may have rethought things and thought she made

a mistake in doing so and that you were a druggie and she tiped the scale and

makes herself look bad by pointing the finger at you when she should have

talked to your primary doctor to see if there were a history of pain

medications being priscribed for you. You are not at fault and need

assistance, but it sounds like you better learn to fight for yourself here

and now, the first time it happens or these things WILL be a part of your

records. The next thing you need to do is record all this and ask that her

report be taken from your records or you will talk to a lawyer about her

defermation of your charactor and such.

One thing us fibromites have to be is real mighty in the war we wage against

an unfair system filled with doctors being taught in medical school that

though we may have a title for an illness we claim to have, it is mostly in

our heads and a waste basket dx. If you don't believe me, I can show you a

site of medical people that teach in North Carolyna at a medical school, that

fibro is in our heads.

Good luck to you and I hope I haven't depressed you more, but many of us go

through this and I don't mix words and always say it the way I see it. My

heart goes out to you .

Donna/ Colorado

[Guest guest]

Dear ,

Well weither you have fibro or not, you have gotten a lesson in how us

fibromites are treated and mistreated! I am sorry this has happened to you!

We battle doctors and medical systems that fail us and others all the time,

but we somehow take the blame for it all. What you need to do is write and

keep copies of all letters. You need to write to each doctor about what

happened step by step. Who you talked to and when. Give as much detail as

you can. Do not be afriad of steping on toes for the only toes that are

getting steped on here are your own. As you said, the relationship with your

primary doctor may be tainted, but if you can explain to the primary doctor

he/she may understand as you have never asked for or used pain medications

before this and that should be proven in your records. You also at this time

need a copy of all your records in case your relationship with the doctor has

been tainted. You need to do what they are now doing, which is covering your

tail end.

This happens all the time and many do not get medications at all because

doctors are afraid to priscribe them because they may lose their practice for

prescribing hard core meds that the government is claiming to be a part of

the drug war they are fighting in this country. We who live in pain need to

watch our tail ends as well as the doctors do and fight for rights. Your

history is recorded and you can prove that you did not abuse medications.

Next time anyone but a doctor tells you how to use medications priscribed by

the doctor ask for it in writing or insist on talking to the doctor.

I am amazed that the rhumey priscribed the medication that she did the first

time she saw you! I think she may have rethought things and thought she made

a mistake in doing so and that you were a druggie and she tiped the scale and

makes herself look bad by pointing the finger at you when she should have

talked to your primary doctor to see if there were a history of pain

medications being priscribed for you. You are not at fault and need

assistance, but it sounds like you better learn to fight for yourself here

and now, the first time it happens or these things WILL be a part of your

records. The next thing you need to do is record all this and ask that her

report be taken from your records or you will talk to a lawyer about her

defermation of your charactor and such.

One thing us fibromites have to be is real mighty in the war we wage against

an unfair system filled with doctors being taught in medical school that

though we may have a title for an illness we claim to have, it is mostly in

our heads and a waste basket dx. If you don't believe me, I can show you a

site of medical people that teach in North Carolyna at a medical school, that

fibro is in our heads.

Good luck to you and I hope I haven't depressed you more, but many of us go

through this and I don't mix words and always say it the way I see it. My

heart goes out to you .

Donna/ Colorado

[Guest guest]

,

I think you need to make a complaint against both doctors for not being

responsive to your needs and letters. I am not sure who we file formal

complaints with. I hope someone on the list will give you better direction

where that is concerned. Don't worry about what some other doctor will think

though. You may want to start with finding a new primary. Get out the list of

possible doctors covered by your insurance and start calling. Ask the

receptionists if the doctor is knowledgable about Fibro and do they do much work

with Fibro patients or do they usually send them elsewhere. I am where you are

at now. I don't have an official diagnosis. I have never even taken anything

stronger than Tylenol. I started with a doctor that is doing tests, but he

hasn't gotten back with me and I am unhappy about the long wait. If I need to

look for someone that is better at getting back with me I will.

ttyl

Suzi

[Guest guest]

You can follow up with the American Medical Association, the Better Business

Bureau, and the Office of the Attorney General.

Missy

> ,

> I think you need to make a complaint against both doctors for not being

> responsive to your needs and letters. I am not sure who we file formal

> complaints with. I hope someone on the list will give you better direction

> where that is concerned. Don't worry about what some other doctor will

> think though. You may want to start with finding a new primary. Get out

> the list of possible doctors covered by your insurance and start calling.

> Ask the receptionists if the doctor is knowledgable about Fibro and do they

> do much work with Fibro patients or do they usually send them elsewhere. I

> am where you are at now. I don't have an official diagnosis. I have never

> even taken anything stronger than Tylenol. I started with a doctor that is

> doing tests, but he hasn't gotten back with me and I am unhappy about the

> long wait. If I need to look for someone that is better at getting back

> with me I will.

>

> ttyl

> Suzi

>

[Guest guest]

You can follow up with the American Medical Association, the Better Business

Bureau, and the Office of the Attorney General.

Missy

> ,

> I think you need to make a complaint against both doctors for not being

> responsive to your needs and letters. I am not sure who we file formal

> complaints with. I hope someone on the list will give you better direction

> where that is concerned. Don't worry about what some other doctor will

> think though. You may want to start with finding a new primary. Get out

> the list of possible doctors covered by your insurance and start calling.

> Ask the receptionists if the doctor is knowledgable about Fibro and do they

> do much work with Fibro patients or do they usually send them elsewhere. I

> am where you are at now. I don't have an official diagnosis. I have never

> even taken anything stronger than Tylenol. I started with a doctor that is

> doing tests, but he hasn't gotten back with me and I am unhappy about the

> long wait. If I need to look for someone that is better at getting back

> with me I will.

>

> ttyl

> Suzi

>

[Guest guest]

You can follow up with the American Medical Association, the Better Business

Bureau, and the Office of the Attorney General.

Missy

> ,

> I think you need to make a complaint against both doctors for not being

> responsive to your needs and letters. I am not sure who we file formal

> complaints with. I hope someone on the list will give you better direction

> where that is concerned. Don't worry about what some other doctor will

> think though. You may want to start with finding a new primary. Get out

> the list of possible doctors covered by your insurance and start calling.

> Ask the receptionists if the doctor is knowledgable about Fibro and do they

> do much work with Fibro patients or do they usually send them elsewhere. I

> am where you are at now. I don't have an official diagnosis. I have never

> even taken anything stronger than Tylenol. I started with a doctor that is

> doing tests, but he hasn't gotten back with me and I am unhappy about the

> long wait. If I need to look for someone that is better at getting back

> with me I will.

>

> ttyl

> Suzi

>

[Guest guest]

--- - find:

a combination of magnesium, malic acid, manganese - ask at a health

food store. This might eventually, if you take it religiously,

eventually improve your bowels and your pain level in your muscles.

E-mail me at territa58@... if you want to know where I get

mine. Sleep and nutrition and a good drug for the worst of your days

are very important things. I started walking when I felt like I

couldn't go another step and then I did stretches I learned at

physical therapy. PT is very expensive. Ask you library about

a " back health " videotape or DVD or maybe some yoga (that offers

different levels-definitely beginner). I know you do a lot of moving

because you're a mom. Move for you 45 minutes to an hour a day. I

have 2 kids still home and 2 grown and 3 grand kids. Reading your

post, I remember how I felt 10 years ago.

I am now working full time, going to school 8 cu a qtr., and

coordinating my child with disabilities' care. 10 years ago I felt

like I was gonna DIE! I'm kicking back. I have my total gym that I

can do at my level of choice. I take my nutrients and my elavil and

effexor. I know somedays that I am gonna have to see if I can make

it at work. I usually know by 10:00. A few days out of the year, I

end up going home. (usually heaviest day of menses; perimenopause).

I live with the pain. Its part of me now.

I feel the most for those young people who have this. I had a good

early adulthood, with softball, volleyball, etc. Then fibro...

Well, now on Friday, as I pass the graying joggers, I pat my 6-pack

and I am glad I'm going with the flow. I'd rather croak in my lazy

boy than on the side of the road. If its not an emergency, I don't

run! Bottom line? Yeah, you're gonna have some bad days...you'll

appreciate the good ones that much more.

In @y..., MrsHuggies@a... wrote:

> Hello All,

>

> I am new to this group. Here is my situation. I have been having

joint and

> muscle pain intermittently for several years. Recently during my

pregnancy,

> the joint pain became quite severe, affecting all of my joints.

They chalked

> it up to fluid retention. After delivering my son, it did not go

away. They

> did all the bloodwork for RA, lupus, etc. and all came back

negative. My

> primary care doctor sent me to a rheumatologist. She said my exam

was

> " remarkably normal " but never even brought up FM and never did any

trigger

> point palpation. She prescribed me Percocet 5 mg and told me to

come back in

> 2 months. Well, they couldn't get me the next appt until 3 months

later.

> During that time, the pain became more intense and besides being in

my

> joints, was also in my muscles. I even have pain in my chest when

taking

> deep breaths. Even the backs of my thighs hurt when I sit on the

toilet. In

> addition to that, I also began experiencing bowel symptoms...what

basically

> felt like diarrhea cramping, almost daily. I have also always had

restless

> leg syndrome. The pain was so bad that I was having difficulty

getting

> through the demands of the day, especially with a new baby. I

called the

> rheumatologist to discuss the increasing and changing nature of my

symptoms

> and several times was told she was on vacation. Finally, I called

at a time

> when she was there. I broke down on the phone with the person who

answered

> and explained my frustration. I wanted to speak with the doctor

about what

> could possibly be wrong with me and if there was any other

treatment that may

> work. At the time I was only taking one percocet at night. This

was giving

> me temporary relief. I fully expected the doctor to call me back

but instead

> the receptionist called back and said she had spoken with the

doctor and the

> doctor had said that percocet was all she could offer me because I

was still

> nursing my baby. I told the receptionist that it was only giving

me

> temporary relief though. She said that the prescription said I

could take it

> every 8 hours and that's what I should do. I explained to her that

I didn't

> have enough medication to do that because I wasn't due back to the

office for

> another 2 months. She said that would be no problem, just call for

a refill.

> Well, instead of taking it every 8 hours as instructed, I took one

at night

> and one in the morning. It was giving me a few hours of reduced

pain so I

> could get some things done. Well, when I called for a refill (had

gone

> through 60 in a month and a half), the doctor called me back and

left a

> message on my voicemail scolding me for abusing pain medication.

She said

> that she had called my primary care doctor and told him the

situation. I was

> floored. I had not even gotten to talk to this woman since my

initial visit

> of only 15 minutes with her. I had tried desperately all those

times to get

> her to discuss what was going on with me and I could never get her

to call me

> back. I wasn't even taking as much as the prescription had said.

Well, I

> wrote a letter to her explaining how wrong I thought her treatment

of me had

> been and sent a copy of it to my primary care doctor. Neither of

them ever

> called me back. So now, I don't even want to go back to my primary

care

> doctor because I feel the relationship has been tainted. In all

the years I

> have been going to him, I have never asked for pain medication. I

hadn't

> even asked this rheumatologist. So I don't know where to proceed

from here.

> I really think FM is what I have based on my symptoms and

everything I have

> read. I really think I need to see a doctor knowledgeable about it

and at

> least get a diagnosis. I don't care about " getting pain

medication " , I just

> want to feel better. How can I go about finding a primary care

doctor

> knowledgeable about this? The only doctors I can find who are

supposedly

> knowledgeable about it are specialists and so I would need a

referral from a

> primary care doctor. And now I am also afraid that this whole

thing is in my

> medical records and so any doctor I go to will right away think I

am some

> kind of drug addict. I am a high school biology teacher, a devoted

mother,

> and I am married to a police officer. I am hardly a drug addict.

I am just

> so horrified this has happened. Any advice? Sorry this is so

long...I am

> just so desperate for some help. I can't keep living like this,

it's

> wearing me out and making me depressed. Thanks in advance.

>

> *~*~*~*~*~*~*~*~*~

>

> YYYYMy Gifts From GodYYYY

> Hannah 12/96 & Hunter 3/02

>

>

>

>

>

[Guest guest]

--- - find:

a combination of magnesium, malic acid, manganese - ask at a health

food store. This might eventually, if you take it religiously,

eventually improve your bowels and your pain level in your muscles.

E-mail me at territa58@... if you want to know where I get

mine. Sleep and nutrition and a good drug for the worst of your days

are very important things. I started walking when I felt like I

couldn't go another step and then I did stretches I learned at

physical therapy. PT is very expensive. Ask you library about

a " back health " videotape or DVD or maybe some yoga (that offers

different levels-definitely beginner). I know you do a lot of moving

because you're a mom. Move for you 45 minutes to an hour a day. I

have 2 kids still home and 2 grown and 3 grand kids. Reading your

post, I remember how I felt 10 years ago.

I am now working full time, going to school 8 cu a qtr., and

coordinating my child with disabilities' care. 10 years ago I felt

like I was gonna DIE! I'm kicking back. I have my total gym that I

can do at my level of choice. I take my nutrients and my elavil and

effexor. I know somedays that I am gonna have to see if I can make

it at work. I usually know by 10:00. A few days out of the year, I

end up going home. (usually heaviest day of menses; perimenopause).

I live with the pain. Its part of me now.

I feel the most for those young people who have this. I had a good

early adulthood, with softball, volleyball, etc. Then fibro...

Well, now on Friday, as I pass the graying joggers, I pat my 6-pack

and I am glad I'm going with the flow. I'd rather croak in my lazy

boy than on the side of the road. If its not an emergency, I don't

run! Bottom line? Yeah, you're gonna have some bad days...you'll

appreciate the good ones that much more.

In @y..., MrsHuggies@a... wrote:

> Hello All,

>

> I am new to this group. Here is my situation. I have been having

joint and

> muscle pain intermittently for several years. Recently during my

pregnancy,

> the joint pain became quite severe, affecting all of my joints.

They chalked

> it up to fluid retention. After delivering my son, it did not go

away. They

> did all the bloodwork for RA, lupus, etc. and all came back

negative. My

> primary care doctor sent me to a rheumatologist. She said my exam

was

> " remarkably normal " but never even brought up FM and never did any

trigger

> point palpation. She prescribed me Percocet 5 mg and told me to

come back in

> 2 months. Well, they couldn't get me the next appt until 3 months

later.

> During that time, the pain became more intense and besides being in

my

> joints, was also in my muscles. I even have pain in my chest when

taking

> deep breaths. Even the backs of my thighs hurt when I sit on the

toilet. In

> addition to that, I also began experiencing bowel symptoms...what

basically

> felt like diarrhea cramping, almost daily. I have also always had

restless

> leg syndrome. The pain was so bad that I was having difficulty

getting

> through the demands of the day, especially with a new baby. I

called the

> rheumatologist to discuss the increasing and changing nature of my

symptoms

> and several times was told she was on vacation. Finally, I called

at a time

> when she was there. I broke down on the phone with the person who

answered

> and explained my frustration. I wanted to speak with the doctor

about what

> could possibly be wrong with me and if there was any other

treatment that may

> work. At the time I was only taking one percocet at night. This

was giving

> me temporary relief. I fully expected the doctor to call me back

but instead

> the receptionist called back and said she had spoken with the

doctor and the

> doctor had said that percocet was all she could offer me because I

was still

> nursing my baby. I told the receptionist that it was only giving

me

> temporary relief though. She said that the prescription said I

could take it

> every 8 hours and that's what I should do. I explained to her that

I didn't

> have enough medication to do that because I wasn't due back to the

office for

> another 2 months. She said that would be no problem, just call for

a refill.

> Well, instead of taking it every 8 hours as instructed, I took one

at night

> and one in the morning. It was giving me a few hours of reduced

pain so I

> could get some things done. Well, when I called for a refill (had

gone

> through 60 in a month and a half), the doctor called me back and

left a

> message on my voicemail scolding me for abusing pain medication.

She said

> that she had called my primary care doctor and told him the

situation. I was

> floored. I had not even gotten to talk to this woman since my

initial visit

> of only 15 minutes with her. I had tried desperately all those

times to get

> her to discuss what was going on with me and I could never get her

to call me

> back. I wasn't even taking as much as the prescription had said.

Well, I

> wrote a letter to her explaining how wrong I thought her treatment

of me had

> been and sent a copy of it to my primary care doctor. Neither of

them ever

> called me back. So now, I don't even want to go back to my primary

care

> doctor because I feel the relationship has been tainted. In all

the years I

> have been going to him, I have never asked for pain medication. I

hadn't

> even asked this rheumatologist. So I don't know where to proceed

from here.

> I really think FM is what I have based on my symptoms and

everything I have

> read. I really think I need to see a doctor knowledgeable about it

and at

> least get a diagnosis. I don't care about " getting pain

medication " , I just

> want to feel better. How can I go about finding a primary care

doctor

> knowledgeable about this? The only doctors I can find who are

supposedly

> knowledgeable about it are specialists and so I would need a

referral from a

> primary care doctor. And now I am also afraid that this whole

thing is in my

> medical records and so any doctor I go to will right away think I

am some

> kind of drug addict. I am a high school biology teacher, a devoted

mother,

> and I am married to a police officer. I am hardly a drug addict.

I am just

> so horrified this has happened. Any advice? Sorry this is so

long...I am

> just so desperate for some help. I can't keep living like this,

it's

> wearing me out and making me depressed. Thanks in advance.

>

> *~*~*~*~*~*~*~*~*~

>

> YYYYMy Gifts From GodYYYY

> Hannah 12/96 & Hunter 3/02

>

>

>

>

>

[Guest guest]

--- - find:

a combination of magnesium, malic acid, manganese - ask at a health

food store. This might eventually, if you take it religiously,

eventually improve your bowels and your pain level in your muscles.

E-mail me at territa58@... if you want to know where I get

mine. Sleep and nutrition and a good drug for the worst of your days

are very important things. I started walking when I felt like I

couldn't go another step and then I did stretches I learned at

physical therapy. PT is very expensive. Ask you library about

a " back health " videotape or DVD or maybe some yoga (that offers

different levels-definitely beginner). I know you do a lot of moving

because you're a mom. Move for you 45 minutes to an hour a day. I

have 2 kids still home and 2 grown and 3 grand kids. Reading your

post, I remember how I felt 10 years ago.

I am now working full time, going to school 8 cu a qtr., and

coordinating my child with disabilities' care. 10 years ago I felt

like I was gonna DIE! I'm kicking back. I have my total gym that I

can do at my level of choice. I take my nutrients and my elavil and

effexor. I know somedays that I am gonna have to see if I can make

it at work. I usually know by 10:00. A few days out of the year, I

end up going home. (usually heaviest day of menses; perimenopause).

I live with the pain. Its part of me now.

I feel the most for those young people who have this. I had a good

early adulthood, with softball, volleyball, etc. Then fibro...

Well, now on Friday, as I pass the graying joggers, I pat my 6-pack

and I am glad I'm going with the flow. I'd rather croak in my lazy

boy than on the side of the road. If its not an emergency, I don't

run! Bottom line? Yeah, you're gonna have some bad days...you'll

appreciate the good ones that much more.

In @y..., MrsHuggies@a... wrote:

> Hello All,

>

> I am new to this group. Here is my situation. I have been having

joint and

> muscle pain intermittently for several years. Recently during my

pregnancy,

> the joint pain became quite severe, affecting all of my joints.

They chalked

> it up to fluid retention. After delivering my son, it did not go

away. They

> did all the bloodwork for RA, lupus, etc. and all came back

negative. My

> primary care doctor sent me to a rheumatologist. She said my exam

was

> " remarkably normal " but never even brought up FM and never did any

trigger

> point palpation. She prescribed me Percocet 5 mg and told me to

come back in

> 2 months. Well, they couldn't get me the next appt until 3 months

later.

> During that time, the pain became more intense and besides being in

my

> joints, was also in my muscles. I even have pain in my chest when

taking

> deep breaths. Even the backs of my thighs hurt when I sit on the

toilet. In

> addition to that, I also began experiencing bowel symptoms...what

basically

> felt like diarrhea cramping, almost daily. I have also always had

restless

> leg syndrome. The pain was so bad that I was having difficulty

getting

> through the demands of the day, especially with a new baby. I

called the

> rheumatologist to discuss the increasing and changing nature of my

symptoms

> and several times was told she was on vacation. Finally, I called

at a time

> when she was there. I broke down on the phone with the person who

answered

> and explained my frustration. I wanted to speak with the doctor

about what

> could possibly be wrong with me and if there was any other

treatment that may

> work. At the time I was only taking one percocet at night. This

was giving

> me temporary relief. I fully expected the doctor to call me back

but instead

> the receptionist called back and said she had spoken with the

doctor and the

> doctor had said that percocet was all she could offer me because I

was still

> nursing my baby. I told the receptionist that it was only giving

me

> temporary relief though. She said that the prescription said I

could take it

> every 8 hours and that's what I should do. I explained to her that

I didn't

> have enough medication to do that because I wasn't due back to the

office for

> another 2 months. She said that would be no problem, just call for

a refill.

> Well, instead of taking it every 8 hours as instructed, I took one

at night

> and one in the morning. It was giving me a few hours of reduced

pain so I

> could get some things done. Well, when I called for a refill (had

gone

> through 60 in a month and a half), the doctor called me back and

left a

> message on my voicemail scolding me for abusing pain medication.

She said

> that she had called my primary care doctor and told him the

situation. I was

> floored. I had not even gotten to talk to this woman since my

initial visit

> of only 15 minutes with her. I had tried desperately all those

times to get

> her to discuss what was going on with me and I could never get her

to call me

> back. I wasn't even taking as much as the prescription had said.

Well, I

> wrote a letter to her explaining how wrong I thought her treatment

of me had

> been and sent a copy of it to my primary care doctor. Neither of

them ever

> called me back. So now, I don't even want to go back to my primary

care

> doctor because I feel the relationship has been tainted. In all

the years I

> have been going to him, I have never asked for pain medication. I

hadn't

> even asked this rheumatologist. So I don't know where to proceed

from here.

> I really think FM is what I have based on my symptoms and

everything I have

> read. I really think I need to see a doctor knowledgeable about it

and at

> least get a diagnosis. I don't care about " getting pain

medication " , I just

> want to feel better. How can I go about finding a primary care

doctor

> knowledgeable about this? The only doctors I can find who are

supposedly

> knowledgeable about it are specialists and so I would need a

referral from a

> primary care doctor. And now I am also afraid that this whole

thing is in my

> medical records and so any doctor I go to will right away think I

am some

> kind of drug addict. I am a high school biology teacher, a devoted

mother,

> and I am married to a police officer. I am hardly a drug addict.

I am just

> so horrified this has happened. Any advice? Sorry this is so

long...I am

> just so desperate for some help. I can't keep living like this,

it's

> wearing me out and making me depressed. Thanks in advance.

>

> *~*~*~*~*~*~*~*~*~

>

> YYYYMy Gifts From GodYYYY

> Hannah 12/96 & Hunter 3/02

>

>

>

>

>

[Guest guest]

In a message dated 08/20/2002 5:20:00 PM US Eastern Standard Time,

territa58@... writes:

> magnesium, malic acid, manganese - ask at a health

> food store. This might eventually, if you take it religiously,

> eventually improve your bowels

I tried this...myself whhaaaaa it caused me to have the absolute worst tummy

cramps in the whole world...my irisologist put me on this because she read in

my eyes...how many times a week I went to the bathroom and she said it

deffinately wasn't enough (only 2 or 3 times a week) so she put me on that to

try to get my bowels to move.....whhaaaa mommmmyyyyyyyyy heeeeellllllppppp

I thought I was die'n but I knew I had to get better to die...I'm not saying

this will effect you the same way, but good lordy..it hurt me....Don't know

what it is, but I just can't take Magnesium. Good luck

Allicia