Guest guest Posted November 29, 2008 Report Share Posted November 29, 2008 I have never been to it. However the Mayo Clinic is supposed to be the best in the US for this (I have to reoterate that this is only hearsaySent via BlackBerry by AT&TDate: Sat, 29 Nov 2008 21:22:54 -0000To: < >Subject: NY NJ doctors? Help Hello all, thank god for this forum. My 29 year old boyfriend, was diagnosed with PSC this past week. PSC with a large lesion on the liver causing compression of the bile ducts. We are Americans living in France. We are flying home this next week to begin to seek treatments and second opinions. We have been completely blindsided by this illness (as I am sure all of you were). We are looking for help so that we can hit the ground running, literally. For those of you well informed of PSC, liver complications, and who live in the NJ/NY area, do you have suggestions of doctors to perform the stint procedure, and also liver specialists to deal with a large liver lesion (pathology of which is on its way) I know this is really a very small amount of info, but any advice of doctors in that area would be much appreciated. Thank you so very much, saracitaconnell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2008 Report Share Posted November 29, 2008 I have never been to it. However the Mayo Clinic is supposed to be the best in the US for this (I have to reoterate that this is only hearsaySent via BlackBerry by AT&TDate: Sat, 29 Nov 2008 21:22:54 -0000To: < >Subject: NY NJ doctors? Help Hello all, thank god for this forum. My 29 year old boyfriend, was diagnosed with PSC this past week. PSC with a large lesion on the liver causing compression of the bile ducts. We are Americans living in France. We are flying home this next week to begin to seek treatments and second opinions. We have been completely blindsided by this illness (as I am sure all of you were). We are looking for help so that we can hit the ground running, literally. For those of you well informed of PSC, liver complications, and who live in the NJ/NY area, do you have suggestions of doctors to perform the stint procedure, and also liver specialists to deal with a large liver lesion (pathology of which is on its way) I know this is really a very small amount of info, but any advice of doctors in that area would be much appreciated. Thank you so very much, saracitaconnell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2008 Report Share Posted November 29, 2008 I have never been to it. However the Mayo Clinic is supposed to be the best in the US for this (I have to reoterate that this is only hearsaySent via BlackBerry by AT&TDate: Sat, 29 Nov 2008 21:22:54 -0000To: < >Subject: NY NJ doctors? Help Hello all, thank god for this forum. My 29 year old boyfriend, was diagnosed with PSC this past week. PSC with a large lesion on the liver causing compression of the bile ducts. We are Americans living in France. We are flying home this next week to begin to seek treatments and second opinions. We have been completely blindsided by this illness (as I am sure all of you were). We are looking for help so that we can hit the ground running, literally. For those of you well informed of PSC, liver complications, and who live in the NJ/NY area, do you have suggestions of doctors to perform the stint procedure, and also liver specialists to deal with a large liver lesion (pathology of which is on its way) I know this is really a very small amount of info, but any advice of doctors in that area would be much appreciated. Thank you so very much, saracitaconnell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2008 Report Share Posted November 29, 2008 Welcome to the group and I hope you will get the information you need here.My son saw an expert at the Mayo in Rochester MI. but he is followed in New York by a Dr. Ira son for blood work and MRI'severy 6 months. I can't help you with the stint part of it so hopefully someone else will chime in.Dr son's number is . He is with New York Hospital.If you are coming to the states just for a second opinion and you can travel, then I would head out to Mayo,plan to stay a week and get the complete work-up.Once you decide you can ask more specific questions here about particular doctors where you are going.Best wishes for your safe travel,LeeHello all, thank god for this forum. My 29 year old boyfriend, was diagnosed with PSC this past week. PSC with a large lesion on the liver causing compression of the bile ducts. We are Americans living in France. We are flying home this next week to begin to seek treatments and second opinions. We have been completely blindsided by this illness (as I am sure all of you were).We are looking for help so that we can hit the ground running, literally.For those of you well informed of PSC, liver complications, and who live in the NJ/NY area, do you have suggestions of doctors to perform the stint procedure, and also liver specialists to deal with a large liver lesion (pathology of which is on its way) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2008 Report Share Posted November 29, 2008 Welcome to the group and I hope you will get the information you need here.My son saw an expert at the Mayo in Rochester MI. but he is followed in New York by a Dr. Ira son for blood work and MRI'severy 6 months. I can't help you with the stint part of it so hopefully someone else will chime in.Dr son's number is . He is with New York Hospital.If you are coming to the states just for a second opinion and you can travel, then I would head out to Mayo,plan to stay a week and get the complete work-up.Once you decide you can ask more specific questions here about particular doctors where you are going.Best wishes for your safe travel,LeeHello all, thank god for this forum. My 29 year old boyfriend, was diagnosed with PSC this past week. PSC with a large lesion on the liver causing compression of the bile ducts. We are Americans living in France. We are flying home this next week to begin to seek treatments and second opinions. We have been completely blindsided by this illness (as I am sure all of you were).We are looking for help so that we can hit the ground running, literally.For those of you well informed of PSC, liver complications, and who live in the NJ/NY area, do you have suggestions of doctors to perform the stint procedure, and also liver specialists to deal with a large liver lesion (pathology of which is on its way) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2008 Report Share Posted November 29, 2008 Welcome to the group and I hope you will get the information you need here.My son saw an expert at the Mayo in Rochester MI. but he is followed in New York by a Dr. Ira son for blood work and MRI'severy 6 months. I can't help you with the stint part of it so hopefully someone else will chime in.Dr son's number is . He is with New York Hospital.If you are coming to the states just for a second opinion and you can travel, then I would head out to Mayo,plan to stay a week and get the complete work-up.Once you decide you can ask more specific questions here about particular doctors where you are going.Best wishes for your safe travel,LeeHello all, thank god for this forum. My 29 year old boyfriend, was diagnosed with PSC this past week. PSC with a large lesion on the liver causing compression of the bile ducts. We are Americans living in France. We are flying home this next week to begin to seek treatments and second opinions. We have been completely blindsided by this illness (as I am sure all of you were).We are looking for help so that we can hit the ground running, literally.For those of you well informed of PSC, liver complications, and who live in the NJ/NY area, do you have suggestions of doctors to perform the stint procedure, and also liver specialists to deal with a large liver lesion (pathology of which is on its way) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2008 Report Share Posted November 29, 2008 , Welcome, we are sorry about your boyfriend's diagnosis, but we are glad you found us. I personally can recommend any doctors in the NY area because I live on the other side of the continent, but I can offer you encouragement, I was first diagnosed with PSC and had the bile ducts outside the liver when I was 33. That was 19 years ago. Although PSC progresses differently in all of us they are continuously making advances. Our prayers and well wishes are with you and your boyfriend. Ian (52) PSC 89 Hello all, thank god for this forum. My 29 year old boyfriend, was diagnosed with PSC this past week. PSC with a large lesion on the liver causing compression of the bile ducts. We are Americans living in France. We are flying home this next week to begin to seek treatments and second opinions. We have been completely blindsided by this illness (as I am sure all of you were).We are looking for help so that we can hit the ground running, literally.For those of you well informed of PSC, liver complications, and who live in the NJ/NY area, do you have suggestions of doctors to perform the stint procedure, and also liver specialists to deal with a large liver lesion (pathology of which is on its way)I know this is really a very small amount of info, but any advice of doctors in that area would be much appreciated. Thank you so very much,saracitaconnell -- Ian Cribb P.Eng. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2008 Report Share Posted November 29, 2008 If you are willing to travel to Philadelphia, my son sees Dr. Makar at the Hospital of the University of Pennsylvania. We have been very pleased with the care he has received there. When we were looking for a new Dr. the Hospital of the University of Pennsylvania was highly recommended. Good Luck! Beth (Marco's Mom) Please be a Blood and Organ Donor! Subject: NY NJ doctors? HelpTo: Date: Saturday, November 29, 2008, 4:22 PM Hello all, thank god for this forum. My 29 year old boyfriend, was diagnosed with PSC this past week. PSC with a large lesion on the liver causing compression of the bile ducts. We are Americans living in France. We are flying home this next week to begin to seek treatments and second opinions. We have been completely blindsided by this illness (as I am sure all of you were).We are looking for help so that we can hit the ground running, literally.For those of you well informed of PSC, liver complications, and who live in the NJ/NY area, do you have suggestions of doctors to perform the stint procedure, and also liver specialists to deal with a large liver lesion (pathology of which is on its way)I know this is really a very small amount of info, but any advice of doctors in that area would be much appreciated. Thank you so very much,saracitaconnell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2008 Report Share Posted November 29, 2008 My husband and son go to Dr. Hillel Tobias, he is located on East 30th Street between 2nd and 3rd avenues in NYC and his phone # is . He is a hepatologist affiliated with NYU medical center. NY NJ doctors? Help Hello all, thank god for this forum. My 29 year old boyfriend, was diagnosed with PSC this past week. PSC with a large lesion on the liver causing compression of the bile ducts. We are Americans living in France. We are flying home this next week to begin to seek treatments and second opinions. We have been completely blindsided by this illness (as I am sure all of you were). We are looking for help so that we can hit the ground running, literally. For those of you well informed of PSC, liver complications, and who live in the NJ/NY area, do you have suggestions of doctors to perform the stint procedure, and also liver specialists to deal with a large liver lesion (pathology of which is on its way) I know=2 0this is really a very small amount of info, but any advice of doctors in that area would be much appreciated. Thank you so very much, saracitaconnell Tis the season to save your money! Get the new AOL Holiday Toolbar for money saving offers and gift ideas. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2008 Report Share Posted November 29, 2008 My husband and son go to Dr. Hillel Tobias, he is located on East 30th Street between 2nd and 3rd avenues in NYC and his phone # is . He is a hepatologist affiliated with NYU medical center. NY NJ doctors? Help Hello all, thank god for this forum. My 29 year old boyfriend, was diagnosed with PSC this past week. PSC with a large lesion on the liver causing compression of the bile ducts. We are Americans living in France. We are flying home this next week to begin to seek treatments and second opinions. We have been completely blindsided by this illness (as I am sure all of you were). We are looking for help so that we can hit the ground running, literally. For those of you well informed of PSC, liver complications, and who live in the NJ/NY area, do you have suggestions of doctors to perform the stint procedure, and also liver specialists to deal with a large liver lesion (pathology of which is on its way) I know=2 0this is really a very small amount of info, but any advice of doctors in that area would be much appreciated. Thank you so very much, saracitaconnell Tis the season to save your money! Get the new AOL Holiday Toolbar for money saving offers and gift ideas. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2008 Report Share Posted November 30, 2008 I go to Dr. Schiano, he is located on 5 East 98th Street 11 floor in NYC and his phone # is . He works in the Mount Sinai Medical Center. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2008 Report Share Posted November 30, 2008 I go to Dr. Schiano, he is located on 5 East 98th Street 11 floor in NYC and his phone # is . He works in the Mount Sinai Medical Center. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2008 Report Share Posted November 30, 2008 I go to Dr. Schiano, he is located on 5 East 98th Street 11 floor in NYC and his phone # is . He works in the Mount Sinai Medical Center. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2008 Report Share Posted November 30, 2008 How do you find Dr. Schiano? Also haveb you heard of Dr berman at Mt Sinai? I am not sure he is at the address of Dr Schiano 5 e 98th. I have two docs at that address. And I am currently considering a new doctor. ShaulPSC UCSent via BlackBerry by AT&TFrom: "ryszardglowiak" Date: Sun, 30 Nov 2008 22:51:57 -0000To: < >Subject: Re: NY NJ doctors? Help I go to Dr. Schiano, he is located on 5 East 98th Street 11 floor in NYC and his phone # is . He works in the Mount Sinai Medical Center. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2008 Report Share Posted November 30, 2008 How do you find Dr. Schiano? Also haveb you heard of Dr berman at Mt Sinai? I am not sure he is at the address of Dr Schiano 5 e 98th. I have two docs at that address. And I am currently considering a new doctor. ShaulPSC UCSent via BlackBerry by AT&TFrom: "ryszardglowiak" Date: Sun, 30 Nov 2008 22:51:57 -0000To: < >Subject: Re: NY NJ doctors? Help I go to Dr. Schiano, he is located on 5 East 98th Street 11 floor in NYC and his phone # is . He works in the Mount Sinai Medical Center. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2008 Report Share Posted December 1, 2008 Hi. Janet from Jersey here. My gastro's name is Dr. Kanaga Sundaram and he has a private office in Union, New Jersey. 2555 Avenue, Suite D-13, Union, N.J. 07083. Ph: . He is also on staff at Overlook Hospital. He has had many PSC patients and is well experienced with the disease. I hope this is helpful. > > Hello all, thank god for this forum. My 29 year old boyfriend, was diagnosed with PSC > this past week. PSC with a large lesion on the liver causing compression of the bile ducts. We > are Americans living in France. We are flying home this next week to begin to seek treatments > and second opinions. We have been completely blindsided by this illness (as I am sure all of > you were). > > We are looking for help so that we can hit the ground running, literally. > For those of you well informed of PSC, liver complications, and who live in the NJ/NY area, do > you have suggestions of doctors to perform the stint procedure, and also liver specialists to > deal with a large liver lesion (pathology of which is on its way) > > I know this is really a very small amount of info, but any advice of doctors in that area would > be much appreciated. > > Thank you so very much, > saracitaconnell > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2008 Report Share Posted December 1, 2008 Hi. Janet from Jersey here. My gastro's name is Dr. Kanaga Sundaram and he has a private office in Union, New Jersey. 2555 Avenue, Suite D-13, Union, N.J. 07083. Ph: . He is also on staff at Overlook Hospital. He has had many PSC patients and is well experienced with the disease. I hope this is helpful. > > Hello all, thank god for this forum. My 29 year old boyfriend, was diagnosed with PSC > this past week. PSC with a large lesion on the liver causing compression of the bile ducts. We > are Americans living in France. We are flying home this next week to begin to seek treatments > and second opinions. We have been completely blindsided by this illness (as I am sure all of > you were). > > We are looking for help so that we can hit the ground running, literally. > For those of you well informed of PSC, liver complications, and who live in the NJ/NY area, do > you have suggestions of doctors to perform the stint procedure, and also liver specialists to > deal with a large liver lesion (pathology of which is on its way) > > I know this is really a very small amount of info, but any advice of doctors in that area would > be much appreciated. > > Thank you so very much, > saracitaconnell > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2008 Report Share Posted December 1, 2008 Hi. Janet from Jersey here. My gastro's name is Dr. Kanaga Sundaram and he has a private office in Union, New Jersey. 2555 Avenue, Suite D-13, Union, N.J. 07083. Ph: . He is also on staff at Overlook Hospital. He has had many PSC patients and is well experienced with the disease. I hope this is helpful. > > Hello all, thank god for this forum. My 29 year old boyfriend, was diagnosed with PSC > this past week. PSC with a large lesion on the liver causing compression of the bile ducts. We > are Americans living in France. We are flying home this next week to begin to seek treatments > and second opinions. We have been completely blindsided by this illness (as I am sure all of > you were). > > We are looking for help so that we can hit the ground running, literally. > For those of you well informed of PSC, liver complications, and who live in the NJ/NY area, do > you have suggestions of doctors to perform the stint procedure, and also liver specialists to > deal with a large liver lesion (pathology of which is on its way) > > I know this is really a very small amount of info, but any advice of doctors in that area would > be much appreciated. > > Thank you so very much, > saracitaconnell > Quote Link to comment Share on other sites More sharing options...
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