Guest guest Posted July 14, 2002 Report Share Posted July 14, 2002 Yes, I want to know what is working for people. If nobody has anything that is working, then I'd suggest we be our own guinea pigs and try different things and report back to the group. I have CFS. I was in really bad shape for a while. Lately my energy has been higher and I do feel better. I've been doing everything: I have a spiritual friend who sends me energy regularly. I have a psychic friend who sends energy. I wear magnets on my pinky fingers frequently. (Easy to make. Found a woman on the net who said it helped fibromyalgia alot.) I go to a chiropractor and am getting treated for heavy metals, candida, adrenal exhaustion. I've been working on emotional issues and releasing blocked energy. Just started a book on how to do chi gong. I've changed my diet. Less carbohydrates, a little more protein. Pretty much have given up sugar. Am using a product by Integris which helped me give up the sugar. I have had really bad hypoglycemia for years and would sugar binge. I drink more water and use a high quality sea salt. I just completed a parasite cleanse. I take superfoods instead of vitamins. I go outside for walks barefoot almost daily. I eliminated many household chemicals. I cook mostly from scratch. I eat more Ezekial bread than regular bread. I test my acid/alkaline balance with pH paper. I found a health dowser in India. I am going to get together a picture and info about my diet, etc. and he will give me his input- free. I attend a drumming circle periodically. I meditate some. I tried zapping but didn't notice anything. (Hulda ) I put together a website on CFS and Fibromyalgia with everything I can find about it that is useful. I've probably left some stuff out but I think you get the picture. Peace be yours, barb ---------------------------------------------------------------------------- ---- Barbara F. , Sandusky, Ohio 44870 ---------------------------------------------------------------------------- ---- Barb's index to her websites: http://sanduskyohio.org Barb's Vaudeville: http://barbfeick.tripod.com/vaudeville/ Barb's Instruments: http://barbfeick.tripod.com/instruments/ Computerized Electro Dermal Screening: http://barbfeick.tripod.com/ceds/ Firelands Dulcimer Club: http://barbfeick.tripod.com/dulcimer/ Got chronic fatigue syndrome?: http://barbfeick.tripod.com/chronicfatigue/ Ohio Buckeye Dowsers: http://barbfeick.tripod.com/dowsing/ Sandusky Self Health: http://barbfeick.tripod.com/selfhealth/ SHS Class of 1970: http://barbfeick.tripod.com/shs1970/ ---------------------------------------------------------------------------- ---- What do you Do? Hello, I know that this information has probably been given out in other e-mails but i missed some of those and the new member will find this informative. I am trying to figure out what to do regarding the Fibromyalgia. I was hoping that if everyone who wants to please explain past, present and possible future treatments. Such as what kind of medications you have taken and if they worked or not, techniques used to decrease pain that worked or not, techniques used for trying to sleep at night which worked or not and anything else that you have found useful or not useful for yourself. I think this information would be useful to my self and others, because someone might of tried something that worked and it could work for others. Of course everyone's body is different and reacts different to treatments, but it's worth a try. Please share, Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2002 Report Share Posted July 14, 2002 Yes, I want to know what is working for people. If nobody has anything that is working, then I'd suggest we be our own guinea pigs and try different things and report back to the group. I have CFS. I was in really bad shape for a while. Lately my energy has been higher and I do feel better. I've been doing everything: I have a spiritual friend who sends me energy regularly. I have a psychic friend who sends energy. I wear magnets on my pinky fingers frequently. (Easy to make. Found a woman on the net who said it helped fibromyalgia alot.) I go to a chiropractor and am getting treated for heavy metals, candida, adrenal exhaustion. I've been working on emotional issues and releasing blocked energy. Just started a book on how to do chi gong. I've changed my diet. Less carbohydrates, a little more protein. Pretty much have given up sugar. Am using a product by Integris which helped me give up the sugar. I have had really bad hypoglycemia for years and would sugar binge. I drink more water and use a high quality sea salt. I just completed a parasite cleanse. I take superfoods instead of vitamins. I go outside for walks barefoot almost daily. I eliminated many household chemicals. I cook mostly from scratch. I eat more Ezekial bread than regular bread. I test my acid/alkaline balance with pH paper. I found a health dowser in India. I am going to get together a picture and info about my diet, etc. and he will give me his input- free. I attend a drumming circle periodically. I meditate some. I tried zapping but didn't notice anything. (Hulda ) I put together a website on CFS and Fibromyalgia with everything I can find about it that is useful. I've probably left some stuff out but I think you get the picture. Peace be yours, barb ---------------------------------------------------------------------------- ---- Barbara F. , Sandusky, Ohio 44870 ---------------------------------------------------------------------------- ---- Barb's index to her websites: http://sanduskyohio.org Barb's Vaudeville: http://barbfeick.tripod.com/vaudeville/ Barb's Instruments: http://barbfeick.tripod.com/instruments/ Computerized Electro Dermal Screening: http://barbfeick.tripod.com/ceds/ Firelands Dulcimer Club: http://barbfeick.tripod.com/dulcimer/ Got chronic fatigue syndrome?: http://barbfeick.tripod.com/chronicfatigue/ Ohio Buckeye Dowsers: http://barbfeick.tripod.com/dowsing/ Sandusky Self Health: http://barbfeick.tripod.com/selfhealth/ SHS Class of 1970: http://barbfeick.tripod.com/shs1970/ ---------------------------------------------------------------------------- ---- What do you Do? Hello, I know that this information has probably been given out in other e-mails but i missed some of those and the new member will find this informative. I am trying to figure out what to do regarding the Fibromyalgia. I was hoping that if everyone who wants to please explain past, present and possible future treatments. Such as what kind of medications you have taken and if they worked or not, techniques used to decrease pain that worked or not, techniques used for trying to sleep at night which worked or not and anything else that you have found useful or not useful for yourself. I think this information would be useful to my self and others, because someone might of tried something that worked and it could work for others. Of course everyone's body is different and reacts different to treatments, but it's worth a try. Please share, Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2002 Report Share Posted July 14, 2002 Yes, I want to know what is working for people. If nobody has anything that is working, then I'd suggest we be our own guinea pigs and try different things and report back to the group. I have CFS. I was in really bad shape for a while. Lately my energy has been higher and I do feel better. I've been doing everything: I have a spiritual friend who sends me energy regularly. I have a psychic friend who sends energy. I wear magnets on my pinky fingers frequently. (Easy to make. Found a woman on the net who said it helped fibromyalgia alot.) I go to a chiropractor and am getting treated for heavy metals, candida, adrenal exhaustion. I've been working on emotional issues and releasing blocked energy. Just started a book on how to do chi gong. I've changed my diet. Less carbohydrates, a little more protein. Pretty much have given up sugar. Am using a product by Integris which helped me give up the sugar. I have had really bad hypoglycemia for years and would sugar binge. I drink more water and use a high quality sea salt. I just completed a parasite cleanse. I take superfoods instead of vitamins. I go outside for walks barefoot almost daily. I eliminated many household chemicals. I cook mostly from scratch. I eat more Ezekial bread than regular bread. I test my acid/alkaline balance with pH paper. I found a health dowser in India. I am going to get together a picture and info about my diet, etc. and he will give me his input- free. I attend a drumming circle periodically. I meditate some. I tried zapping but didn't notice anything. (Hulda ) I put together a website on CFS and Fibromyalgia with everything I can find about it that is useful. I've probably left some stuff out but I think you get the picture. Peace be yours, barb ---------------------------------------------------------------------------- ---- Barbara F. , Sandusky, Ohio 44870 ---------------------------------------------------------------------------- ---- Barb's index to her websites: http://sanduskyohio.org Barb's Vaudeville: http://barbfeick.tripod.com/vaudeville/ Barb's Instruments: http://barbfeick.tripod.com/instruments/ Computerized Electro Dermal Screening: http://barbfeick.tripod.com/ceds/ Firelands Dulcimer Club: http://barbfeick.tripod.com/dulcimer/ Got chronic fatigue syndrome?: http://barbfeick.tripod.com/chronicfatigue/ Ohio Buckeye Dowsers: http://barbfeick.tripod.com/dowsing/ Sandusky Self Health: http://barbfeick.tripod.com/selfhealth/ SHS Class of 1970: http://barbfeick.tripod.com/shs1970/ ---------------------------------------------------------------------------- ---- What do you Do? Hello, I know that this information has probably been given out in other e-mails but i missed some of those and the new member will find this informative. I am trying to figure out what to do regarding the Fibromyalgia. I was hoping that if everyone who wants to please explain past, present and possible future treatments. Such as what kind of medications you have taken and if they worked or not, techniques used to decrease pain that worked or not, techniques used for trying to sleep at night which worked or not and anything else that you have found useful or not useful for yourself. I think this information would be useful to my self and others, because someone might of tried something that worked and it could work for others. Of course everyone's body is different and reacts different to treatments, but it's worth a try. Please share, Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2002 Report Share Posted July 14, 2002 Hi, Well, right now I am on the following meds: Wellbutrin 150mg once a day Neurontin 600mg 4x's a day Zanaflex 2mg 2 x's a day and 4mg before bed time Women's One A Day Multitamin/Multimineral Supplement Potassium Citrucel caplets I also take Inderal 80mg 2x's a day. The inderal & neurontin help control the migraines and the neurontin helps with the pain. That's what my doc says I find that the zanaflex helps me so much. I get a good nights sleep and I don't feel as exhausted as I used to. The only thing about the zanaflex is when I take it during the day I end up taking a 2 hour nap because it knocks me out, but it does help. I was taking flexril and that didn't do a thing for me. Well, I hope that helps. Feel free to ask me anything. Have a great evening! ~ --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2002 Report Share Posted July 14, 2002 Hello! I have been suffering since February of this year.Here is what I've been through: Tests: all normal ANA thyroid creatine glucose I am trying to take 9 Magnesium Malate tablets a day. Prozac 60 mg Ultracet every 4 hours but it makes me really sick to my stomach Zanaflex 8 mg every 6-8 hours. I take a benadryl for sleep Most of the time, I just can't take too much of anything. The pain is soooo severe but when I take meds, I want to throw up. In conclusion, I haven't found anything to work. My dr refused to put me on neurontin. Sherri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2002 Report Share Posted July 15, 2002 --- I rely on a LOT of extra vitamins, most from a health food store. I take amitriptyline(elavil) for sleep, and xanax for anxiety attacks (anxiety = pain). Saw a physical therapist and continue to do the stretches I was taught. If you are not adverse to marijuana, it can help with sleep too. Some can't use it due to their work. Some feel it is abuse to use it. Can we post a health food store if they allow you to order on line? In @y..., " Moccassin " wrote: > Hello, > I know that this information has probably been given out in other e- mails but i missed some of those and the new member will find this informative. I am trying to figure out what to do regarding the Fibromyalgia. I was hoping that if everyone who wants to please explain past, present and possible future treatments. Such as what kind of medications you have taken and if they worked or not, techniques used to decrease pain that worked or not, techniques used for trying to sleep at night which worked or not and anything else that you have found useful or not useful for yourself. I think this information would be useful to my self and others, because someone might of tried something that worked and it could work for others. Of course everyone's body is different and reacts different to treatments, but it's worth a try. > Please share, Thanks > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2002 Report Share Posted July 15, 2002 --- I rely on a LOT of extra vitamins, most from a health food store. I take amitriptyline(elavil) for sleep, and xanax for anxiety attacks (anxiety = pain). Saw a physical therapist and continue to do the stretches I was taught. If you are not adverse to marijuana, it can help with sleep too. Some can't use it due to their work. Some feel it is abuse to use it. Can we post a health food store if they allow you to order on line? In @y..., " Moccassin " wrote: > Hello, > I know that this information has probably been given out in other e- mails but i missed some of those and the new member will find this informative. I am trying to figure out what to do regarding the Fibromyalgia. I was hoping that if everyone who wants to please explain past, present and possible future treatments. Such as what kind of medications you have taken and if they worked or not, techniques used to decrease pain that worked or not, techniques used for trying to sleep at night which worked or not and anything else that you have found useful or not useful for yourself. I think this information would be useful to my self and others, because someone might of tried something that worked and it could work for others. Of course everyone's body is different and reacts different to treatments, but it's worth a try. > Please share, Thanks > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 > Can we post a health food store if > they allow you to order on line? > I don't think so but you can always ask missy. I take morphine for pain and I take Vicodon for breakthrough pain. I also take Klonopin 1 1/2 MG in the morning and at lunch and 3MGs at bedtime. 150 mg of Effexor XR in the morning and 75 mg at noon. The doctor has been giveing me samples because I have to pay full price for them. I take 45 mg Remeron at bedtime. And to finish up, Adderall in the morning and I take 20 mgs later in the morning. I have a terrible problem with fatigue and energy and I hate to go anywhere. He is afraid that I am going to not want to go anywhere but just stay home so he is trying to push my energy level. I leave for a week in London at the end of next week and I feel so tired that I haven't any excited feelings about going there as I usually do. But I promised my granddaughters that I would go with them and there mother. They want me to go with them because I am grammie and grammie goes places with them and also I have been there so many time that I know London. My daughter went with me last year and she can get around so there are some things that I will not be going to. The Tower of London for one. We are going to see The Phantom of the Opera there and we are going to Stratford upon Avon to see a play there. I like Stratford and I have spent a lot of time there too. Take care, Irene Books may well be the only true magic Alice Hoffman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 > Can we post a health food store if > they allow you to order on line? > I don't think so but you can always ask missy. I take morphine for pain and I take Vicodon for breakthrough pain. I also take Klonopin 1 1/2 MG in the morning and at lunch and 3MGs at bedtime. 150 mg of Effexor XR in the morning and 75 mg at noon. The doctor has been giveing me samples because I have to pay full price for them. I take 45 mg Remeron at bedtime. And to finish up, Adderall in the morning and I take 20 mgs later in the morning. I have a terrible problem with fatigue and energy and I hate to go anywhere. He is afraid that I am going to not want to go anywhere but just stay home so he is trying to push my energy level. I leave for a week in London at the end of next week and I feel so tired that I haven't any excited feelings about going there as I usually do. But I promised my granddaughters that I would go with them and there mother. They want me to go with them because I am grammie and grammie goes places with them and also I have been there so many time that I know London. My daughter went with me last year and she can get around so there are some things that I will not be going to. The Tower of London for one. We are going to see The Phantom of the Opera there and we are going to Stratford upon Avon to see a play there. I like Stratford and I have spent a lot of time there too. Take care, Irene Books may well be the only true magic Alice Hoffman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 I usually let this stuff pass if...You don't own the store, and you don't shove it down everyone's throat! LOL Heck, I am always looking for new places to order my vegan products! Missy > > Can we post a health food store if > > they allow you to order on line? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 I usually let this stuff pass if...You don't own the store, and you don't shove it down everyone's throat! LOL Heck, I am always looking for new places to order my vegan products! Missy > > Can we post a health food store if > > they allow you to order on line? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 I usually let this stuff pass if...You don't own the store, and you don't shove it down everyone's throat! LOL Heck, I am always looking for new places to order my vegan products! Missy > > Can we post a health food store if > > they allow you to order on line? > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.