Hi I'm a Newbie

[Guest guest]

Hello Everyone,

First of all I am a newbie to this group but I've had fibro for about

230 years. That's not a typo, it feels like 230 years. I am a 46 year

old female named Darlene. I am married, my kids are grown. I am an

army veteran (peacetime) and have been a nurse since 1983. When a bad

flare resulted in my being hospitalized, my doctor and lawyer

succeeded in getting my social security disability for me. Some

stubborn little part down inside of me keeps my nursing license

active, just in case there is ever a break through in fibro research,

but most of my nursing now-a-days is just making sure my doggies are

healthy. The rest of my time is spent in the usual fibro manner:

moaning, groaning, and complaining. I think I've become an expert in

the moaning department because sometimes one of my dogs tries to moan

with me like he thinks I'm doing a pack call or something. LOL

I have been looking for 2 different kinds of groups for fibro

support. This group seems to be the right one for the general support

I, like all fibro sufferers, need so much of. I simply started a

group for the other one because it is so specific none already

existed. I hope it's ok to give it a plug here because it isn't quite

the same as this group .... the group is FibroVets - Veterans with

Fibromyalgia. I want to invite veterans from the different branches

of the service to check it out. The goals and issues will be very

different from the ones addressed in this group. I hope this group

and FibroVets can become allies in the fibro fight.

I used to use guai for my fibro but there are so many things in over

the counter products that counter the effect of guai I couldn't

reasonably stop using all of them. So the guai wasn't a good solution

for me. I tried malic acid and magnesium supplements but that doesn't

seem to work either. My doctors at the VA give me medicine but it

seems like they are just giving me " pacifier " prescriptions like

tagamet and naprosyn. Nothing to seriously counter the pain when I'm

in a major flare up. I'm open for any of the latest thoughts on how

to bring this back under control. It seems like my bad days have

taken over my life. It feels like a bad day now is 10 times worse

than a bad day was 3 years ago, and a bad day then was 10 times worse

than a bad day was 5 years ago. I know this isn't supposed to be a

progressive type disorder, but it feels that way because I'm losing

my ability to cope with the constant pain. I can't remember when my

last good day was. Anyway, I'm asking for any advice anyone can give

me from this group on how to get the lid back on my Pandora Pain Box.

I need all the strength I can muster to deal with just daily life and

now I'm going to need even more. What I have to do with FibroVets is

major and with luck and blessings, it will help many of us. So talk

to me, my new friends, what do I need to do to turn this flare-up

back down to simmer?????

Darlene