Guest guest Posted July 5, 2004 Report Share Posted July 5, 2004 Hi everyone Hope you all had a good holiday. Ok here goes: For the past month now, I've been in a flare. Currently taking: Prednisone, CellCept and Plaquenil among other things. I saw my rheumy last week which is when he added the Plaquenil again. Apparently alot of my syptoms are neuro related. BUT i am absolutely suffering with muscle cramps and aching...fatigue, insomnia etc... My MD said he didnt want to use Cytoxan yet as it doesnt seem to help with the neuro stuff. I hate calling the office cause I feel like a pest but I am really suffering.In the past, I would have went to the hospital. But with my daughter being 2 and totally attached to me , I dont even want to consider it. I am afraid though, because usually when I feel this bad, I do end up in the hosp for a week or so. I read online about Imuran and how some people use it for joints etc,, I guess at this point I am grateful for any advice. On a side note...things at home are not much better. I tried to talk to my mom about it - hoping maybe she would offer to babysit or something, but I swear I feel like my words are another language to her. We have always been super close, she's my best friend...but she cant seem to acknowledge that I have this disease. She can clearly see that I am miserable yet she never even asks how I am feeling. Sorry to go on so much. I guess I am just feeling very sorry for myself right now. Thanks for listening. Meg Quote Link to comment Share on other sites More sharing options...
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