Advice

[Guest guest]

Hi everyone

Hope you all had a good holiday. Ok here goes: For the past month

now, I've been in a flare. Currently taking: Prednisone, CellCept and

Plaquenil among other things. I saw my rheumy last week which is when

he added the Plaquenil again. Apparently alot of my syptoms are neuro

related. BUT i am absolutely suffering with muscle cramps and

aching...fatigue, insomnia etc... My MD said he didnt want to use

Cytoxan yet as it doesnt seem to help with the neuro stuff. I hate

calling the office cause I feel like a pest but I am really

suffering.In the past, I would have went to the hospital. But with my

daughter being 2 and totally attached to me , I dont even want to

consider it. I am afraid though, because usually when I feel this

bad, I do end up in the hosp for a week or so. I read online about

Imuran and how some people use it for joints etc,, I guess at this

point I am grateful for any advice.

On a side note...things at home are not much better. I tried to talk

to my mom about it - hoping maybe she would offer to babysit or

something, but I swear I feel like my words are another language to

her. We have always been super close, she's my best friend...but she

cant seem to acknowledge that I have this disease. She can clearly

see that I am miserable yet she never even asks how I am feeling.

Sorry to go on so much. I guess I am just feeling very sorry for

myself right now. Thanks for listening.

Meg