Re: Cinda

[Guest guest]

Cinda, have you tried guifenesin? Seems like that is

one thing that seems to help a lot of us. Watch those

meds, too much can cause you to sleep too much. Sleep

exacerabates fibro because without restive sleep your

body cannot heal. Take care and continue to connect.

We can relate. Star

--- queenbee30525 gwelch@...> wrote:

> Hello everyone. My name is Cinda. I am 33 yrs old,

> married for 16

> years and have a 13 year old daughter. I live in

> Northesat Georgia (

> beautiful foothills of the Appalachia )

> I was diagnosed with CFIDS about 11 years ago -

> after several years

> of up & down health and job interuptions. at that

> time Doc said "

> Nothing that I can do "

> I was also diagnosed with FM about 2 years ago -

> different Doc that

> did not know much about CFIDS - therefor did not

> really recognize

> it !!!

> Have recently seen a new Doc in Atlanta, GA that

> works with both. But

> does very little lab work or X-rays ( which are

> needed with

> disability claims). I have been pretty much rated

> extremely severe -

> but am still fighting with short term disability (

> from work) despite

> the fact that I can't even drive myself to work,

> much less stay and

> do any type of work.

>

> Other conditions include: Migraines & constant

> headache, Chemical

> sensitivities, Light, sound, & smell sensitivities,

> tempature and

> humidity sensitivities, tons of medicine allergies,

> sleep problems -

> sleep for long periods of time due to fatigue

> alternating with long

> periods ( up to 54 hours) of NO sleep, Esophageal

> reflux with

> constriction, ulcers, Spasmatic colon/intestine -

> functional bowel

> disease, internal hemorrhoids, borderline thyroid

> disorder,

> hypoglycemic, Mitral valve prolapse with water

> retention and chest

> pains, panic attacks, sicca syndrome, raynaud's

> phenomenon,

> vulvodynia, vestibular dysfunction, urethral

> syndrome, arthritis,

> cognitive impairments, all 18 tender points,

> multiple trigger points,

> early menopause ( began at age 19 ) hysterectomy at

> age 25 due to

> cysts, endometriosis and menapause, oopherectomy

> last year due to

> tumors, the list goes on. Many of which have been

> noted by the Doc -

> others have just been spoken by him. the later being

> one of the

> problems with insurance claims !!!!!!!

>

> I have tried many meds and treatment - all of which

> have failed.

>

> I will be seeing a new Doc this week for complete

> physical, x-rays,

> blood work and EKG. I used to work with this Doc

> years ago and

> hopefully he will be open minded. Does anyone have

> suggestions of

> particular test that might be helpful? Once

> diagnosed with FM/CFIDS

> many doc's put all things under this umbrella - not

> considering some

> symptoms could be managed - thus giving us some

> releif. So this time

> I am going outside of the FM/CFIDS box to try to

> eliminate or

> medicate some of these things.

>

> Gentle Hugs to you all & I look forward to chatting

> with you,

> Cinda

>

>

>

=====

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