Guest guest Posted June 6, 2002 Report Share Posted June 6, 2002 I'm new to this group and have been diagnosed with Fibromyalgia after running an 18 month period of deteriorating health. I know this is not primarily a disease men get, but there I am. There were some questions e-mailed to me that I'm going to answer to hopefully benefit others. Hope to learn to cope and adjust to this. I also have Myofascial Pain Syndrome so in some ways I've been blessed as far as pain management goes. I went through a 9 month process at a pain clinic and was finally prescribed a Fentanyl patch. Since it's a narcotic, it isn't given out without a lot of other avenues tried first. But it had a remarkable effect upon severe pain, and I'm grateful for that. I know many suffer with pain and have inadequate management. On with the questions Age range: 47 Male/female: Male What are the symptoms? anxiety, some sadness, IBS, chronic headaches, dry eyes muscle weakness, chronic fatigue and severe pain, Nausea, memory and concentration issues, major sleep issues, stiffness and pain in muscles upon waking in the morning and sometimes throughout the day. Has you illness been diagnosed? Yes How long did you suffer before you got help? 18 months Is there a time that you can remember when it started? Yes Some of us have found lack of exercise we are overweight. Have you found this to be a problem also? So far, no. Are you on disability? Not yet If you are any pointers for others trying to get on disability? What have you found that helps ease the pain, warm baths, medications etc.? Fentanyl, pamelor, warmth Do you have sleep problems? How do you deal with it? YES, not very well. I was on Klonopin then it stopped working at one tablet. So the doc said I could go to two, which worked. But what happens when that stops (3,4??) So, I'm trying Pamelor at night, but the day I really drag from it. Do you have family that understands your illness? Yes, thankfully Some have found certain foods causes problems with CFS or Fibro, have you? I'm starting the search What type of Doctor have you found that has helped you the most? Pain Docs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2002 Report Share Posted June 9, 2002 Welcome to our group. It is a very nice group, I think. All of us are very supportive of each other, loving and caring. If you have any questions, just jump right in with them. You will get an answer. If you feel like venting, feel free to do that too. We all have vented at one time or another. Welcome again. Take care, Irene Books may well be the only true magic Alice Hoffman Quote Link to comment Share on other sites More sharing options...
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