Re: Oldie but Newbie to this group

[Guest guest]

Fran, I don't know where the years have gone. I am 55 this year, and still have two children at home

to raise. Some days I feel like I live in the twilight zone. I'm sure you can relate.

As for the question you asked about expected upcoming treatments, I have not had those and can't

answer the query. Perhaps another member has? Please pipe up and tell Fran what you know, guys.

Good luck with the new therapy. Loving hugs, MM

[Guest guest]

Hi Fran

Sorry to hear about your past experience. You;re right though, just

about everyone here has had some kind of terrible exoerience woith

this or another disease, sorry my typing stinks today.

Anyway - I was working for a neurolgy group before I quit for medical

reasons. We used IVIG all the time with MS patients. They toilerated

it very well and seemed to benefit from the treatment, I cant give

specifics but I know at one point my docs were considering IVIG for

me. I too have brain issues with this disease, not quite as bad as

yours seems to be. But anyway I just wanted to tell you that most of

the people I know did very well with ivig althopugh they were not

lupies so to speak. As long as the whole being hooked up to an IV

thing for a few days doesnt bother you. Good luck to you and I hope

you find the answers you;re looking for.

meg

[Guest guest]

Hi Fran

Sorry to hear about your past experience. You;re right though, just

about everyone here has had some kind of terrible exoerience woith

this or another disease, sorry my typing stinks today.

Anyway - I was working for a neurolgy group before I quit for medical

reasons. We used IVIG all the time with MS patients. They toilerated

it very well and seemed to benefit from the treatment, I cant give

specifics but I know at one point my docs were considering IVIG for

me. I too have brain issues with this disease, not quite as bad as

yours seems to be. But anyway I just wanted to tell you that most of

the people I know did very well with ivig althopugh they were not

lupies so to speak. As long as the whole being hooked up to an IV

thing for a few days doesnt bother you. Good luck to you and I hope

you find the answers you;re looking for.

meg

[Guest guest]

Hi Fran

Sorry to hear about your past experience. You;re right though, just

about everyone here has had some kind of terrible exoerience woith

this or another disease, sorry my typing stinks today.

Anyway - I was working for a neurolgy group before I quit for medical

reasons. We used IVIG all the time with MS patients. They toilerated

it very well and seemed to benefit from the treatment, I cant give

specifics but I know at one point my docs were considering IVIG for

me. I too have brain issues with this disease, not quite as bad as

yours seems to be. But anyway I just wanted to tell you that most of

the people I know did very well with ivig althopugh they were not

lupies so to speak. As long as the whole being hooked up to an IV

thing for a few days doesnt bother you. Good luck to you and I hope

you find the answers you;re looking for.

meg