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RE: Small-duct PSC

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I have small duct PSC - what it means is that when they do my MRCP

and Biopsies that I show that My small ducts are being destroyed but

my large ducts or the main Biliary tree has not been attacked to much

yet. For me, My last MRCP indicated that I was begining to develop

large duct PSC also. Hope this helps

Dawn

>

> How do you know if you have small or large duct PSC?  Sounds like

it is better to have small duct psc but it also sounds like small

duct PSC eventually turns into large duct PSC.  Thanks for the good

info.

>  

> Lori A.

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> ________________________________

> From:

> To:

> Sent: Tuesday, January 27, 2009 10:18:55 PM

> Subject: Small-duct PSC

>

>

> Curr Gastroenterol Rep. 2009 Feb;11(1):37- 41.

>

> Small-duct primary sclerosing cholangitis.

>

> Björnsson E

>

> Department of Internal Medicine, Section of Gastroenterology and

> Hepatology, Sahlgrenska University Hospital, Med pol II, SE-413 45

> Gothenburg, Sweden. einar.bjornsson@ medic.gu. se.

>

> Patients with cholestatic liver tests and typical histologic

features

> of primary sclerosing cholangitis (PSC) but a normal cholangiogram

> have been identified as having small-duct PSC. This subgroup of PSC

> has been less well characterized than the classic large-duct form.

> Some patients characterized as having small-duct PSC develop

> cholangiographic features of PSC during follow-up. Three papers

> published in 2002 on small-duct PSC patients suggested a better

> prognosis in patients with small-duct PSC than in those with large-

> duct PSC. However, these studies included a limited number of

> patients and had a short follow-up. A combined cohort of these

> patients with a prolonged follow-up recently confirmed these

previous

> observations. However, some patients will suffer from liver-related

> mortality or will need to undergo liver transplantation. Recurrence

> of small-duct PSC after liver transplantation has been reported.

> Cholangiocarcinoma, the most feared complication of PSC, has not

been

> described in a patient with small-duct PSC without progression

first

> to large-duct PSC. PMID: 19166657.

>

> Dave

> (father of (23); PSC 07/03; UC 08/03)

>

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Interesting article. And it's from Gothenburg, Sweden - where my relatives live. I'm familiar with Sahlgrenska Hospital - I went there when I lived in Sweden (a number of decades ago).Marie

To: From: rhodesdavid1@...Date: Wed, 28 Jan 2009 04:18:55 +0000Subject: Small-duct PSC

Curr Gastroenterol Rep. 2009 Feb;11(1):37-41.

Small-duct primary sclerosing cholangitis.

Björnsson E

Department of Internal Medicine, Section of Gastroenterology and

Hepatology, Sahlgrenska University Hospital, Med pol II, SE-413 45

Gothenburg, Sweden. einar.bjornsson (AT) medic (DOT) gu.se.

Patients with cholestatic liver tests and typical histologic features

of primary sclerosing cholangitis (PSC) but a normal cholangiogram

have been identified as having small-duct PSC. This subgroup of PSC

has been less well characterized than the classic large-duct form.

Some patients characterized as having small-duct PSC develop

cholangiographic features of PSC during follow-up. Three papers

published in 2002 on small-duct PSC patients suggested a better

prognosis in patients with small-duct PSC than in those with large-

duct PSC. However, these studies included a limited number of

patients and had a short follow-up. A combined cohort of these

patients with a prolonged follow-up recently confirmed these previous

observations. However, some patients will suffer from liver-related

mortality or will need to undergo liver transplantation. Recurrence

of small-duct PSC after liver transplantation has been reported.

Cholangiocarcinoma, the most feared complication of PSC, has not been

described in a patient with small-duct PSC without progression first

to large-duct PSC. PMID: 19166657.

Dave

(father of (23); PSC 07/03; UC 08/03)

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