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It is confirmed You ARE Normal!!!!!!!!!! If you can either watch the

self documentry or read the book Crazy Sexy Cancer. The feeling this

young lady writes about hit the nail on the head for me. What you are

feeling and trying wrap your brain around is soooooooo very normal. I

think it is a pretty universal feeling.

I am a nurse, suppose to be treating pt's not being the pt. I am still

working part time and it cracks me up, because I am " sicker " than many

of my pt's!! Some times I want to say, you get out of the bed and I

would be happy to lay down for awhile today!

PSC 5/07 stage IV Listed

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ee,

The trick here is to be honest, but don’t offer more

information than is required. Put yourself into the mindset of

saying “yes” or “no” to the specific questions.

Most interviews are written to catch specific conditions and PSC isn’t on

the radar of insurance companies and bloodwork results are what would

disqualify most. Good luck!

Rick

From:

[mailto: ] On Behalf

Of shawnee618

Sent: Saturday, January 10, 2009 7:50 AM

To:

Subject: Re: Mental shift

Wow Rick, I had no idea! I have normal labs and

no symptoms, I guess I

have a shot and should look into it.

Thank you!

>

> ee,

>

>

>

> condition of PSC is not a dealbreaker for a 10 or 20 year term

policy - only

> if the bloodwork reveals high levels. So - those of you with PSC and

> labwork that is still in the normal range - you probably have a shot at

> getting life insurance.

>

>

>

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Hi

I am a nurse, suppose to be treating pt's not being the pt. I am still

working part time and it cracks me up, because I am " sicker " than many

of my pt's!! Some times I want to say, you get out of the bed and I

would be happy to lay down for awhile today!

PSC 5/07 stage IV Listed

I work f/time in a rehab setting for people with brain injury and

mental health issues. I hear you. While I can't say my own situation

is as advanced as yours, there are days where I get very frustrated

with our patients--especially when substance abuse enters into the

picture.

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Hi

I am a nurse, suppose to be treating pt's not being the pt. I am still

working part time and it cracks me up, because I am " sicker " than many

of my pt's!! Some times I want to say, you get out of the bed and I

would be happy to lay down for awhile today!

PSC 5/07 stage IV Listed

I work f/time in a rehab setting for people with brain injury and

mental health issues. I hear you. While I can't say my own situation

is as advanced as yours, there are days where I get very frustrated

with our patients--especially when substance abuse enters into the

picture.

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Hi

I am a nurse, suppose to be treating pt's not being the pt. I am still

working part time and it cracks me up, because I am " sicker " than many

of my pt's!! Some times I want to say, you get out of the bed and I

would be happy to lay down for awhile today!

PSC 5/07 stage IV Listed

I work f/time in a rehab setting for people with brain injury and

mental health issues. I hear you. While I can't say my own situation

is as advanced as yours, there are days where I get very frustrated

with our patients--especially when substance abuse enters into the

picture.

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I am an addictions counselor and I have a very difficult time when I

get clients who are referred from the transplant centers, who just

have to show 6 months of sobriety so that they can obtain a liver

transplant. I no longer work with these clients because I find it so

difficult to keep my mouth shut.

Dawn

>

> Oh I so hear that! My FIL, who lives here, has cirrhosis and

> prostate cancer. His cancer prognosis is great, about 5 years, and

at

> 78years old that is fantastic. His cirrhosis is due to alcoholism,

and

> he still chooses to drink after being given such a good prognosis.

It

> is sad and ironic that he is 78, has cancer, and will likely die

from

> liver failure due to his choices. I don't judge him, but it sure

does

> frustrate me.

>

> ee

> >

> > I work f/time in a rehab setting for people with brain injury and

> > mental health issues. I hear you. While I can't say my own

situation

> > is as advanced as yours, there are days where I get very

frustrated

> >

>

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I wanted to add to my last comment, I actually work with co-ccurring

disorders so most of my clients have significant mental health

concerns and substance abuse but it has just gotten really difficult

to handle the transplant center clients lately. I am seeking

alternative work, but I am in private practice and we are well

established as we have been there for 15 years, this is not a good

time for change! What do you do!!

Dawn

> >

> > Oh I so hear that! My FIL, who lives here, has cirrhosis and

> > prostate cancer. His cancer prognosis is great, about 5 years,

and

> at

> > 78years old that is fantastic. His cirrhosis is due to

alcoholism,

> and

> > he still chooses to drink after being given such a good

prognosis.

> It

> > is sad and ironic that he is 78, has cancer, and will likely die

> from

> > liver failure due to his choices. I don't judge him, but it sure

> does

> > frustrate me.

> >

> > ee

> > >

> > > I work f/time in a rehab setting for people with brain injury

and

> > > mental health issues. I hear you. While I can't say my own

> situation

> > > is as advanced as yours, there are days where I get very

> frustrated

> > >

> >

>

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I wanted to add to my last comment, I actually work with co-ccurring

disorders so most of my clients have significant mental health

concerns and substance abuse but it has just gotten really difficult

to handle the transplant center clients lately. I am seeking

alternative work, but I am in private practice and we are well

established as we have been there for 15 years, this is not a good

time for change! What do you do!!

Dawn

> >

> > Oh I so hear that! My FIL, who lives here, has cirrhosis and

> > prostate cancer. His cancer prognosis is great, about 5 years,

and

> at

> > 78years old that is fantastic. His cirrhosis is due to

alcoholism,

> and

> > he still chooses to drink after being given such a good

prognosis.

> It

> > is sad and ironic that he is 78, has cancer, and will likely die

> from

> > liver failure due to his choices. I don't judge him, but it sure

> does

> > frustrate me.

> >

> > ee

> > >

> > > I work f/time in a rehab setting for people with brain injury

and

> > > mental health issues. I hear you. While I can't say my own

> situation

> > > is as advanced as yours, there are days where I get very

> frustrated

> > >

> >

>

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Nita,

Hi! You're so not alone! I think all of us have days (and sometimes weeks)

where we feel more like patients than people. It's definitely hard to make our

minds understand what's happening to our bodies. Sometimes, I kind of think

that's a good thing though, do I really want to understand what's in front of

me? :) One of the things I have the most trouble with is the fact that in my

case I need a deceased child donor. How can you hope for a new liver and bile

ducts when you know a child has to die? It hasn't even happened yet (and I

don't know when it will), but I've already got a bit of survivor's guilt going

on and I can't even imagine how it might intensify!

I think the only things we can do is live our lives the best we can and be

grateful for all the good things we have like our friends, family, and this (and

other) support groups!

Sandi in VA

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Nita,

Hi! You're so not alone! I think all of us have days (and sometimes weeks)

where we feel more like patients than people. It's definitely hard to make our

minds understand what's happening to our bodies. Sometimes, I kind of think

that's a good thing though, do I really want to understand what's in front of

me? :) One of the things I have the most trouble with is the fact that in my

case I need a deceased child donor. How can you hope for a new liver and bile

ducts when you know a child has to die? It hasn't even happened yet (and I

don't know when it will), but I've already got a bit of survivor's guilt going

on and I can't even imagine how it might intensify!

I think the only things we can do is live our lives the best we can and be

grateful for all the good things we have like our friends, family, and this (and

other) support groups!

Sandi in VA

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Nita,

Hi! You're so not alone! I think all of us have days (and sometimes weeks)

where we feel more like patients than people. It's definitely hard to make our

minds understand what's happening to our bodies. Sometimes, I kind of think

that's a good thing though, do I really want to understand what's in front of

me? :) One of the things I have the most trouble with is the fact that in my

case I need a deceased child donor. How can you hope for a new liver and bile

ducts when you know a child has to die? It hasn't even happened yet (and I

don't know when it will), but I've already got a bit of survivor's guilt going

on and I can't even imagine how it might intensify!

I think the only things we can do is live our lives the best we can and be

grateful for all the good things we have like our friends, family, and this (and

other) support groups!

Sandi in VA

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When I received my new liver I talked to the hospital chaplain about feeling guilty that sopmeone died and I benefitted from it. He told me that I was the silver lining around a cloud of unhappines for a family. That a sensless tragedy had a bit of meaning and hope because other lives were improved and made better. It is a comfort.

Take care

MizKit

Re: Mental shift

Nita,

Hi! You're so not alone! I think all of us have days (and sometimes weeks) where we feel more like patients than people. It's definitely hard to make our minds understand what's happening to our bodies. Sometimes, I kind of think that's a good thing though, do I really want to understand what's in front of me? :) One of the things I have the most trouble with is the fact that in my case I need a deceased child donor. How can you hope for a new liver and bile ducts when you know a child has to die? It hasn't even happened yet (and I don't know when it will), but I've already got a bit of survivor's guilt going on and I can't even imagine how it might intensify!

I think the only things we can do is live our lives the best we can and be grateful for all the good things we have like our friends, family, and this (and other) support groups!

Sandi in VA

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Sandi,

I hear you. Being a small women I was told that my greatest difficulty

in getting a liver will be that I need a small liver too. Most likely

from a child or young teen.

I have a few friends that have lost children unexpectedly and knowing

their pain, makes it hard for me realizing that some family may go

throught that and I would benefit from their loss.

I just have to go with the belief if I am meant to get a liver I will

and if not I've heard that heaven is a pretty nice place and either way

will be okay. And pray everyday that my family will be okay too.

But today I am still here and somedays I even have a good day!

PSC 5/07

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Hi ee

> Oh I so hear that! My FIL, who lives here, has cirrhosis and

prostate cancer. His cancer prognosis is great, about 5 years, and at

78years old that is fantastic. His cirrhosis is due to alcoholism, and

he still chooses to drink after being given such a good prognosis. It

is sad and ironic that he is 78, has cancer, and will likely die from

liver failure due to his choices. I don't judge him, but it sure does

frustrate me.

ee

My paternal grandfather pretty much drank until the day he died--and

he lived to a ripe old age--but wasn't a pleasant individual as long

as I can remember. I imagine his liver was pretty much pickled when he

passed away .... :)

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I know, some people can just kill themselves for decades! It just

ain't fair lol. I have lamented several times since diagnosis, that

after all the alcoholics I have known and put up with in my life, I

get liver disease! Pfft! lol

>

> Hi ee

>

>

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I know, some people can just kill themselves for decades! It just

ain't fair lol. I have lamented several times since diagnosis, that

after all the alcoholics I have known and put up with in my life, I

get liver disease! Pfft! lol

>

> Hi ee

>

>

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I know, some people can just kill themselves for decades! It just

ain't fair lol. I have lamented several times since diagnosis, that

after all the alcoholics I have known and put up with in my life, I

get liver disease! Pfft! lol

>

> Hi ee

>

>

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That’s funny – me too

=======================

I have lamented several times since diagnosis,

that

after all the alcoholics I have known and put up with in my life, I

get liver disease! Pfft! lol

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Hi! I thought I'd chime in again on the " guilt " thing. I don't feel guilty

that someone had to die for me to have a liver. That's not in my hands and I

truly believe that to donate organs is a gift. I've been a donor since I was 16

years old and I believe everyone should give somebody else that gift if

possible. I feel like it's an honor in a way to allow somebody else to live on

through me or for somebody else to allow me to live on through them. What I

feel a bit guilty about is the fact that I'm sort of wishing for somebody to be

ill or die when I wish to get a new liver and ductwork. Does that make sense to

anyone?

Sandi in VA

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