Guest guest Posted January 9, 2009 Report Share Posted January 9, 2009 It is confirmed You ARE Normal!!!!!!!!!! If you can either watch the self documentry or read the book Crazy Sexy Cancer. The feeling this young lady writes about hit the nail on the head for me. What you are feeling and trying wrap your brain around is soooooooo very normal. I think it is a pretty universal feeling. I am a nurse, suppose to be treating pt's not being the pt. I am still working part time and it cracks me up, because I am " sicker " than many of my pt's!! Some times I want to say, you get out of the bed and I would be happy to lay down for awhile today! PSC 5/07 stage IV Listed Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 ee, The trick here is to be honest, but don’t offer more information than is required. Put yourself into the mindset of saying “yes” or “no” to the specific questions. Most interviews are written to catch specific conditions and PSC isn’t on the radar of insurance companies and bloodwork results are what would disqualify most. Good luck! Rick From: [mailto: ] On Behalf Of shawnee618 Sent: Saturday, January 10, 2009 7:50 AM To: Subject: Re: Mental shift Wow Rick, I had no idea! I have normal labs and no symptoms, I guess I have a shot and should look into it. Thank you! > > ee, > > > > condition of PSC is not a dealbreaker for a 10 or 20 year term policy - only > if the bloodwork reveals high levels. So - those of you with PSC and > labwork that is still in the normal range - you probably have a shot at > getting life insurance. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 Hi I am a nurse, suppose to be treating pt's not being the pt. I am still working part time and it cracks me up, because I am " sicker " than many of my pt's!! Some times I want to say, you get out of the bed and I would be happy to lay down for awhile today! PSC 5/07 stage IV Listed I work f/time in a rehab setting for people with brain injury and mental health issues. I hear you. While I can't say my own situation is as advanced as yours, there are days where I get very frustrated with our patients--especially when substance abuse enters into the picture. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 Hi I am a nurse, suppose to be treating pt's not being the pt. I am still working part time and it cracks me up, because I am " sicker " than many of my pt's!! Some times I want to say, you get out of the bed and I would be happy to lay down for awhile today! PSC 5/07 stage IV Listed I work f/time in a rehab setting for people with brain injury and mental health issues. I hear you. While I can't say my own situation is as advanced as yours, there are days where I get very frustrated with our patients--especially when substance abuse enters into the picture. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 Hi I am a nurse, suppose to be treating pt's not being the pt. I am still working part time and it cracks me up, because I am " sicker " than many of my pt's!! Some times I want to say, you get out of the bed and I would be happy to lay down for awhile today! PSC 5/07 stage IV Listed I work f/time in a rehab setting for people with brain injury and mental health issues. I hear you. While I can't say my own situation is as advanced as yours, there are days where I get very frustrated with our patients--especially when substance abuse enters into the picture. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 I am an addictions counselor and I have a very difficult time when I get clients who are referred from the transplant centers, who just have to show 6 months of sobriety so that they can obtain a liver transplant. I no longer work with these clients because I find it so difficult to keep my mouth shut. Dawn > > Oh I so hear that! My FIL, who lives here, has cirrhosis and > prostate cancer. His cancer prognosis is great, about 5 years, and at > 78years old that is fantastic. His cirrhosis is due to alcoholism, and > he still chooses to drink after being given such a good prognosis. It > is sad and ironic that he is 78, has cancer, and will likely die from > liver failure due to his choices. I don't judge him, but it sure does > frustrate me. > > ee > > > > I work f/time in a rehab setting for people with brain injury and > > mental health issues. I hear you. While I can't say my own situation > > is as advanced as yours, there are days where I get very frustrated > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 I wanted to add to my last comment, I actually work with co-ccurring disorders so most of my clients have significant mental health concerns and substance abuse but it has just gotten really difficult to handle the transplant center clients lately. I am seeking alternative work, but I am in private practice and we are well established as we have been there for 15 years, this is not a good time for change! What do you do!! Dawn > > > > Oh I so hear that! My FIL, who lives here, has cirrhosis and > > prostate cancer. His cancer prognosis is great, about 5 years, and > at > > 78years old that is fantastic. His cirrhosis is due to alcoholism, > and > > he still chooses to drink after being given such a good prognosis. > It > > is sad and ironic that he is 78, has cancer, and will likely die > from > > liver failure due to his choices. I don't judge him, but it sure > does > > frustrate me. > > > > ee > > > > > > I work f/time in a rehab setting for people with brain injury and > > > mental health issues. I hear you. While I can't say my own > situation > > > is as advanced as yours, there are days where I get very > frustrated > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 I wanted to add to my last comment, I actually work with co-ccurring disorders so most of my clients have significant mental health concerns and substance abuse but it has just gotten really difficult to handle the transplant center clients lately. I am seeking alternative work, but I am in private practice and we are well established as we have been there for 15 years, this is not a good time for change! What do you do!! Dawn > > > > Oh I so hear that! My FIL, who lives here, has cirrhosis and > > prostate cancer. His cancer prognosis is great, about 5 years, and > at > > 78years old that is fantastic. His cirrhosis is due to alcoholism, > and > > he still chooses to drink after being given such a good prognosis. > It > > is sad and ironic that he is 78, has cancer, and will likely die > from > > liver failure due to his choices. I don't judge him, but it sure > does > > frustrate me. > > > > ee > > > > > > I work f/time in a rehab setting for people with brain injury and > > > mental health issues. I hear you. While I can't say my own > situation > > > is as advanced as yours, there are days where I get very > frustrated > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 Nita, Hi! You're so not alone! I think all of us have days (and sometimes weeks) where we feel more like patients than people. It's definitely hard to make our minds understand what's happening to our bodies. Sometimes, I kind of think that's a good thing though, do I really want to understand what's in front of me? One of the things I have the most trouble with is the fact that in my case I need a deceased child donor. How can you hope for a new liver and bile ducts when you know a child has to die? It hasn't even happened yet (and I don't know when it will), but I've already got a bit of survivor's guilt going on and I can't even imagine how it might intensify! I think the only things we can do is live our lives the best we can and be grateful for all the good things we have like our friends, family, and this (and other) support groups! Sandi in VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 Nita, Hi! You're so not alone! I think all of us have days (and sometimes weeks) where we feel more like patients than people. It's definitely hard to make our minds understand what's happening to our bodies. Sometimes, I kind of think that's a good thing though, do I really want to understand what's in front of me? One of the things I have the most trouble with is the fact that in my case I need a deceased child donor. How can you hope for a new liver and bile ducts when you know a child has to die? It hasn't even happened yet (and I don't know when it will), but I've already got a bit of survivor's guilt going on and I can't even imagine how it might intensify! I think the only things we can do is live our lives the best we can and be grateful for all the good things we have like our friends, family, and this (and other) support groups! Sandi in VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 Nita, Hi! You're so not alone! I think all of us have days (and sometimes weeks) where we feel more like patients than people. It's definitely hard to make our minds understand what's happening to our bodies. Sometimes, I kind of think that's a good thing though, do I really want to understand what's in front of me? One of the things I have the most trouble with is the fact that in my case I need a deceased child donor. How can you hope for a new liver and bile ducts when you know a child has to die? It hasn't even happened yet (and I don't know when it will), but I've already got a bit of survivor's guilt going on and I can't even imagine how it might intensify! I think the only things we can do is live our lives the best we can and be grateful for all the good things we have like our friends, family, and this (and other) support groups! Sandi in VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 When I received my new liver I talked to the hospital chaplain about feeling guilty that sopmeone died and I benefitted from it. He told me that I was the silver lining around a cloud of unhappines for a family. That a sensless tragedy had a bit of meaning and hope because other lives were improved and made better. It is a comfort. Take care MizKit Re: Mental shift Nita, Hi! You're so not alone! I think all of us have days (and sometimes weeks) where we feel more like patients than people. It's definitely hard to make our minds understand what's happening to our bodies. Sometimes, I kind of think that's a good thing though, do I really want to understand what's in front of me? One of the things I have the most trouble with is the fact that in my case I need a deceased child donor. How can you hope for a new liver and bile ducts when you know a child has to die? It hasn't even happened yet (and I don't know when it will), but I've already got a bit of survivor's guilt going on and I can't even imagine how it might intensify! I think the only things we can do is live our lives the best we can and be grateful for all the good things we have like our friends, family, and this (and other) support groups! Sandi in VA Listen to 350+ music, sports, news radio stations FREE while you browse.Start Listening Now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 Sandi, I hear you. Being a small women I was told that my greatest difficulty in getting a liver will be that I need a small liver too. Most likely from a child or young teen. I have a few friends that have lost children unexpectedly and knowing their pain, makes it hard for me realizing that some family may go throught that and I would benefit from their loss. I just have to go with the belief if I am meant to get a liver I will and if not I've heard that heaven is a pretty nice place and either way will be okay. And pray everyday that my family will be okay too. But today I am still here and somedays I even have a good day! PSC 5/07 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 Hi ee > Oh I so hear that! My FIL, who lives here, has cirrhosis and prostate cancer. His cancer prognosis is great, about 5 years, and at 78years old that is fantastic. His cirrhosis is due to alcoholism, and he still chooses to drink after being given such a good prognosis. It is sad and ironic that he is 78, has cancer, and will likely die from liver failure due to his choices. I don't judge him, but it sure does frustrate me. ee My paternal grandfather pretty much drank until the day he died--and he lived to a ripe old age--but wasn't a pleasant individual as long as I can remember. I imagine his liver was pretty much pickled when he passed away .... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 I know, some people can just kill themselves for decades! It just ain't fair lol. I have lamented several times since diagnosis, that after all the alcoholics I have known and put up with in my life, I get liver disease! Pfft! lol > > Hi ee > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 I know, some people can just kill themselves for decades! It just ain't fair lol. I have lamented several times since diagnosis, that after all the alcoholics I have known and put up with in my life, I get liver disease! Pfft! lol > > Hi ee > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 I know, some people can just kill themselves for decades! It just ain't fair lol. I have lamented several times since diagnosis, that after all the alcoholics I have known and put up with in my life, I get liver disease! Pfft! lol > > Hi ee > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 That’s funny – me too ======================= I have lamented several times since diagnosis, that after all the alcoholics I have known and put up with in my life, I get liver disease! Pfft! lol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2009 Report Share Posted January 11, 2009 Hi! I thought I'd chime in again on the " guilt " thing. I don't feel guilty that someone had to die for me to have a liver. That's not in my hands and I truly believe that to donate organs is a gift. I've been a donor since I was 16 years old and I believe everyone should give somebody else that gift if possible. I feel like it's an honor in a way to allow somebody else to live on through me or for somebody else to allow me to live on through them. What I feel a bit guilty about is the fact that I'm sort of wishing for somebody to be ill or die when I wish to get a new liver and ductwork. Does that make sense to anyone? Sandi in VA Quote Link to comment Share on other sites More sharing options...
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