Guest guest Posted January 11, 2009 Report Share Posted January 11, 2009 For those of you who have had the FISH staining, how high were your cancer markers? My son's CA 19-9 is climbing every 6 months and is now 384. His GGT is 289. He will schedule an MRI and then he will speak with his Dr. If his Dr. doesn't bring up the need for the FISH staining, should we? Also, since the high dose urso bit, he has dropped his urso for the first time from 1800 mg /day to 1500mg day and his numbers there are climbing too. ALP 311 to 455 AST 64 to 88 ALT 65 to 77 bili .9 to 1.6 high for the first time since diagnosis. His albumin also went low to 2.9 We are of course very concerned. Thanks , Lee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2009 Report Share Posted January 12, 2009 Dear and Chaim,Thank you so much for responding. Thanks Dave for the paper too.He is getting his MRI scheduled and then we shall see.I wonder now if it was a mistake to drop his urso.At one point he was on 2,000mg then when they made him change from Ursofort to Ursodiolthat changed it to 1800 then after the high dose news he went down to 1500mg.So who knows how that plays into this.LeeToo bad the nor-urso isn't ready for people to try. I would think about it for him.Dear Lee;I'm sorry to hear about Bill's rising ALP, bilirubin and CA-19-9. It's possible that this could be due to a dominant bile duct stricture: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2009 Report Share Posted January 12, 2009 Dear and Chaim,Thank you so much for responding. Thanks Dave for the paper too.He is getting his MRI scheduled and then we shall see.I wonder now if it was a mistake to drop his urso.At one point he was on 2,000mg then when they made him change from Ursofort to Ursodiolthat changed it to 1800 then after the high dose news he went down to 1500mg.So who knows how that plays into this.LeeToo bad the nor-urso isn't ready for people to try. I would think about it for him.Dear Lee;I'm sorry to hear about Bill's rising ALP, bilirubin and CA-19-9. It's possible that this could be due to a dominant bile duct stricture: Quote Link to comment Share on other sites More sharing options...
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