Re: Need some advise

[Guest guest]

mslupie wrote:

I work 20 hours a week. That's really not

> much and that's what scares me. I would love to have anyone give me

> some advise as what I can do or should do. Thank you all so much.

Wow, Annie, you have all that and you can still work! That's great! I

am unable to even work a few hours out of the home, heck, I can't even

work much in my home. Unfortunately, none of us can tell you what to

do, except look after yourself the best you can. If you aren't worse

for working 20 hours, than stay with it if that's what you want to do.

I feel like I made myself worse by trying to stay working as long as I

did. I was missing a day a week by the time I quit and that was even

working part time. I just can't do it. If you're getting worse, than

maybe cutting back would be of benefit to you. If I had to do it over

again, I'd have quit sooner.

Darcy

[Guest guest]

Att: Annie C.. I luv my 6 kitties and I am from Mass. also. When I had to stop

my job also as an admin. assistant I had a sideline as a musician - isb't this

incredibly similar to you? Anyway, I worked doing music and singing and made

out pretty well and could do that as I felt up to things. Ebentually, I had to

stop and apply for my disability. That took 2 years.

My point, however, is that when you are going through this you are feeling your

way along a wall in the dark - you don't know what to expect and can't plan. If

you feel you should not work. I think you will know when the time comes. Let

me know if you want to talk more. Regards, Janet G.

mslupie wrote:Hi Everyone,

I have SLE & FMS & MS. In February I had to leave work on short term

disability because I was flaring all over the place and I barely

could get out of bed every day. You know the drill, fatigue, pain,

the whole nine yards. Anyways, I had from February to June off and I

was starting to look and feel pretty good. In the meantime, around

end of March, early April my husband thought I should try and get on

Social Security Disablity. (at that time I was still feeling

terrible) so I thought I would apply. Well in June I got denied, I

was disappointed but because I started to feel better my husband

thought it would be good if I tried to go back to work. So what I did

is got a part time job. Let me also tell you that I have my own band

and perform on weekends. Well guys, I'm starting to get scared. For

the past 3 weeks I have started going downhill again. I am very

tired, in alot of pain and running fevers. IBS, the whole kit n

kaboodle. I don't know what to do. I know the heat is certainly not

helping but I can't seem to wonder if I bit off more than I can chew

getting this part time job along with my weekend job. I really love

my band. And the other job I have is working as an Administrative

Assistant for a cymbal company! I thought that was cool working with

musical equipment to boot. I work 20 hours a week. That's really not

much and that's what scares me. I would love to have anyone give me

some advise as what I can do or should do. Thank you all so much.

Soft hugs,

Annie C.

from Mass.