Guest guest Posted September 2, 2002 Report Share Posted September 2, 2002 I occasionally have dreadful swelling (elephant ankles) and the doctor tells me no one knows why, but I could wear support hose. Yeah, if my hands didn't hurt to pull them up and it didn't put my hips out of joint, I am sure it would work as I wore support hose for years and years until it just got too painful. I went through a real bad period where my varicose veins changed all on their own and I haven't had swelling since. So I don't know any more about it than the doctor. At least, I don't charge. Margaret (Marty) Byers , Ph.D., Retired Social Psychologist, AR. HTTP://members.aol.com/historyresearchHTTP://members.aol.com/historyrese\ arch socpsychology@..., bengeserit@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2002 Report Share Posted September 2, 2002 I occasionally have dreadful swelling (elephant ankles) and the doctor tells me no one knows why, but I could wear support hose. Yeah, if my hands didn't hurt to pull them up and it didn't put my hips out of joint, I am sure it would work as I wore support hose for years and years until it just got too painful. I went through a real bad period where my varicose veins changed all on their own and I haven't had swelling since. So I don't know any more about it than the doctor. At least, I don't charge. Margaret (Marty) Byers , Ph.D., Retired Social Psychologist, AR. HTTP://members.aol.com/historyresearchHTTP://members.aol.com/historyrese\ arch socpsychology@..., bengeserit@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2002 Report Share Posted September 2, 2002 There is some argument, I am finding, about whether or not FM is autoimmune. I have a positive ANA, myself. Do you have a positive ANA, how about rheumatoid factors? When were they last run? Just because you have FM does not mean you are free of other autoimmune problems. I am not an expert, but from my limited reading, it would seem that FMS and CMP are frequently overlying a more worrisome, more troublesome and progressive autoimmune disorder. You need to go back to the rheumatologist and ask for some other tests. It is possible that this is not just FMS, or in fact may be something else altogether. I walked around believing this was MS for three years! There is a reason they call it " practicing " medicine. The Lady Dragonfly www.theladydragonfly.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2002 Report Share Posted September 2, 2002 There is some argument, I am finding, about whether or not FM is autoimmune. I have a positive ANA, myself. Do you have a positive ANA, how about rheumatoid factors? When were they last run? Just because you have FM does not mean you are free of other autoimmune problems. I am not an expert, but from my limited reading, it would seem that FMS and CMP are frequently overlying a more worrisome, more troublesome and progressive autoimmune disorder. You need to go back to the rheumatologist and ask for some other tests. It is possible that this is not just FMS, or in fact may be something else altogether. I walked around believing this was MS for three years! There is a reason they call it " practicing " medicine. The Lady Dragonfly www.theladydragonfly.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2002 Report Share Posted September 2, 2002 There is some argument, I am finding, about whether or not FM is autoimmune. I have a positive ANA, myself. Do you have a positive ANA, how about rheumatoid factors? When were they last run? Just because you have FM does not mean you are free of other autoimmune problems. I am not an expert, but from my limited reading, it would seem that FMS and CMP are frequently overlying a more worrisome, more troublesome and progressive autoimmune disorder. You need to go back to the rheumatologist and ask for some other tests. It is possible that this is not just FMS, or in fact may be something else altogether. I walked around believing this was MS for three years! There is a reason they call it " practicing " medicine. The Lady Dragonfly www.theladydragonfly.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2002 Report Share Posted September 2, 2002 Hi... A thought came to me while reading your e-mail. Two summers ago I woke with great pain in my fingers and toes. Just the bed sheet sitting on my hands & feet drove me to tears. Anyway, after some blood tests my doctor told me that I had " gout " (sp?). He told me that this sometimes happens with fibro patients. Maybe you had something like that flare up in you. I'm not saying that that is what you had, but the swelling aspect you mentioned kinda got me to thinking. -- Thanks and Question Thanks to all for the warm welcomes. It's really nice to know that there are people who understand!!! My question is this...my dr. has told me, and the rheumatologist has told me, that fibro is not associated with any swelling. I saw the rheumatologist on Saturday, and while I was still at the office, after the visit, as I was visiting the ladies room, my wrist started hurting. I rubbed it a little, and it hurt worse. I looked at it and it was all swollen up. This happened in the time it took to walk to the ladies room and out again! Now it is bruised and swollen and painful, and my left wrist is slightly swollen. My question is, " What's up with that? " It scares me, because I know I did not injure myself in anyway, yet I am injured. I do not have any type of arthritis or rheumatism or any inflamatory disease, AND, just to be on the safe side, I'm on one course of steroids " just in case " I do have any swelling in my joints or tendons, since I did have pain. I have one pill left of 11 to take. Can't figure this one out. I began having a panic attack in the tub yesterday, imagining I had broken my wrist and had bone cancer...my f-i-l just died of bone cancer last November at age 59. I was taking care of him all the time, taking him to his appoitments, giving him shots and medications, the whole works. He died in his sleep, my husband found him, he was not expected to die, his dr. said his cancer was not terminal. Anyway, my irrational fear sets in, that I caught cancer from him, although I know it's impossible, and I've just had every test under the sun and know I don't have cancer. My husband had to tell me, you don't have cancer, you're fine, there's nothing wrong. My f-i-l's first sign of bone cancer was back pain and x-ray showed cracked vertebrae that he had no idea when or how it happened. It's just like a bad night mare. Thanks again for letting me vent. What a great place this is! Nancie ===== Nancie Healthy Homes mean Healthy Children, which lead to a Healthy Future Work from home...ask me how! http://nanciet.themomteam.com __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2002 Report Share Posted September 2, 2002 Hi... A thought came to me while reading your e-mail. Two summers ago I woke with great pain in my fingers and toes. Just the bed sheet sitting on my hands & feet drove me to tears. Anyway, after some blood tests my doctor told me that I had " gout " (sp?). He told me that this sometimes happens with fibro patients. Maybe you had something like that flare up in you. I'm not saying that that is what you had, but the swelling aspect you mentioned kinda got me to thinking. -- Thanks and Question Thanks to all for the warm welcomes. It's really nice to know that there are people who understand!!! My question is this...my dr. has told me, and the rheumatologist has told me, that fibro is not associated with any swelling. I saw the rheumatologist on Saturday, and while I was still at the office, after the visit, as I was visiting the ladies room, my wrist started hurting. I rubbed it a little, and it hurt worse. I looked at it and it was all swollen up. This happened in the time it took to walk to the ladies room and out again! Now it is bruised and swollen and painful, and my left wrist is slightly swollen. My question is, " What's up with that? " It scares me, because I know I did not injure myself in anyway, yet I am injured. I do not have any type of arthritis or rheumatism or any inflamatory disease, AND, just to be on the safe side, I'm on one course of steroids " just in case " I do have any swelling in my joints or tendons, since I did have pain. I have one pill left of 11 to take. Can't figure this one out. I began having a panic attack in the tub yesterday, imagining I had broken my wrist and had bone cancer...my f-i-l just died of bone cancer last November at age 59. I was taking care of him all the time, taking him to his appoitments, giving him shots and medications, the whole works. He died in his sleep, my husband found him, he was not expected to die, his dr. said his cancer was not terminal. Anyway, my irrational fear sets in, that I caught cancer from him, although I know it's impossible, and I've just had every test under the sun and know I don't have cancer. My husband had to tell me, you don't have cancer, you're fine, there's nothing wrong. My f-i-l's first sign of bone cancer was back pain and x-ray showed cracked vertebrae that he had no idea when or how it happened. It's just like a bad night mare. Thanks again for letting me vent. What a great place this is! Nancie ===== Nancie Healthy Homes mean Healthy Children, which lead to a Healthy Future Work from home...ask me how! http://nanciet.themomteam.com __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2002 Report Share Posted September 2, 2002 Hi... A thought came to me while reading your e-mail. Two summers ago I woke with great pain in my fingers and toes. Just the bed sheet sitting on my hands & feet drove me to tears. Anyway, after some blood tests my doctor told me that I had " gout " (sp?). He told me that this sometimes happens with fibro patients. Maybe you had something like that flare up in you. I'm not saying that that is what you had, but the swelling aspect you mentioned kinda got me to thinking. -- Thanks and Question Thanks to all for the warm welcomes. It's really nice to know that there are people who understand!!! My question is this...my dr. has told me, and the rheumatologist has told me, that fibro is not associated with any swelling. I saw the rheumatologist on Saturday, and while I was still at the office, after the visit, as I was visiting the ladies room, my wrist started hurting. I rubbed it a little, and it hurt worse. I looked at it and it was all swollen up. This happened in the time it took to walk to the ladies room and out again! Now it is bruised and swollen and painful, and my left wrist is slightly swollen. My question is, " What's up with that? " It scares me, because I know I did not injure myself in anyway, yet I am injured. I do not have any type of arthritis or rheumatism or any inflamatory disease, AND, just to be on the safe side, I'm on one course of steroids " just in case " I do have any swelling in my joints or tendons, since I did have pain. I have one pill left of 11 to take. Can't figure this one out. I began having a panic attack in the tub yesterday, imagining I had broken my wrist and had bone cancer...my f-i-l just died of bone cancer last November at age 59. I was taking care of him all the time, taking him to his appoitments, giving him shots and medications, the whole works. He died in his sleep, my husband found him, he was not expected to die, his dr. said his cancer was not terminal. Anyway, my irrational fear sets in, that I caught cancer from him, although I know it's impossible, and I've just had every test under the sun and know I don't have cancer. My husband had to tell me, you don't have cancer, you're fine, there's nothing wrong. My f-i-l's first sign of bone cancer was back pain and x-ray showed cracked vertebrae that he had no idea when or how it happened. It's just like a bad night mare. Thanks again for letting me vent. What a great place this is! Nancie ===== Nancie Healthy Homes mean Healthy Children, which lead to a Healthy Future Work from home...ask me how! http://nanciet.themomteam.com __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2002 Report Share Posted September 2, 2002 Nanci wrote, > My question is this...my dr. has told me, and the > rheumatologist has told me, that fibro is not > associated with any swelling > > I don't agree with your doctor. I do have swelling in my hands and fingers > at times. My fingers will feel like sausages. My feet and my ankles also > swell. I do have polyarthritis but I feel that the swelling comes from the > fibro. > > > > Women's propensity to share is confidences is universal. We confirm our > reality by sharing. > > Barbara Grizzuti on Take care, Irene Books may well be the only true magic Alice Hoffman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2002 Report Share Posted September 2, 2002 Nanci wrote, > My question is this...my dr. has told me, and the > rheumatologist has told me, that fibro is not > associated with any swelling > > I don't agree with your doctor. I do have swelling in my hands and fingers > at times. My fingers will feel like sausages. My feet and my ankles also > swell. I do have polyarthritis but I feel that the swelling comes from the > fibro. > > > > Women's propensity to share is confidences is universal. We confirm our > reality by sharing. > > Barbara Grizzuti on Take care, Irene Books may well be the only true magic Alice Hoffman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2002 Report Share Posted September 2, 2002 In a message dated 09/02/2002 12:15:38 PM US Eastern Standard Time, whocanitbenow75@... writes: > This happened in the time it took to > walk to the ladies room and out again! I think I would of walked ma lil' happy butt back in there and say LOOK!! look at this and tell me what is causing incidents like this to happen....Doc!!!...lol but thats just me...lol, but I wonder what would cause that to happen..?? What did your RA Titer come back?? That is interesting your body would swell, but ya know I had the same incident when I was diagnosed with Fibro. Here's the story I was working at Cracker Barrel as a cashier..standing on my feet for 8 - 10 hours a night. well one night my legs and feet started hurting terribly bad and every hour I was going back to the managers office to get Tylenol and advil...or whatever I could get my hands on..well by the time 9:30 rolled around I could no longer walk...I was litterally stuck in one place..I couldn't bend my knees....they had swelled to the size of watermelons...along with my ankles...they called my b/f at the time and he drove down and picked me up and drove me back home because I litterally couldn't walk....I couldn't bend at any of my joints below my hips. It was horrible...so I went to family doc...they ordered blood test. RA factor came back positive so went to a Rheumy a month later RA Titer then came back neg. so they diagnosed me with Fibro. I usually don't have too much swelling now days, but I did when first Diagnosed....it was bad and very painful also. So I understand the swelling thing, but doesn't know why that happens either. I feel for ya girl. Hugzz hope you feel better. Allicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2002 Report Share Posted September 2, 2002 In a message dated 09/02/2002 12:15:38 PM US Eastern Standard Time, whocanitbenow75@... writes: > This happened in the time it took to > walk to the ladies room and out again! I think I would of walked ma lil' happy butt back in there and say LOOK!! look at this and tell me what is causing incidents like this to happen....Doc!!!...lol but thats just me...lol, but I wonder what would cause that to happen..?? What did your RA Titer come back?? That is interesting your body would swell, but ya know I had the same incident when I was diagnosed with Fibro. Here's the story I was working at Cracker Barrel as a cashier..standing on my feet for 8 - 10 hours a night. well one night my legs and feet started hurting terribly bad and every hour I was going back to the managers office to get Tylenol and advil...or whatever I could get my hands on..well by the time 9:30 rolled around I could no longer walk...I was litterally stuck in one place..I couldn't bend my knees....they had swelled to the size of watermelons...along with my ankles...they called my b/f at the time and he drove down and picked me up and drove me back home because I litterally couldn't walk....I couldn't bend at any of my joints below my hips. It was horrible...so I went to family doc...they ordered blood test. RA factor came back positive so went to a Rheumy a month later RA Titer then came back neg. so they diagnosed me with Fibro. I usually don't have too much swelling now days, but I did when first Diagnosed....it was bad and very painful also. So I understand the swelling thing, but doesn't know why that happens either. I feel for ya girl. Hugzz hope you feel better. Allicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2002 Report Share Posted September 2, 2002 In a message dated 09/02/2002 12:15:38 PM US Eastern Standard Time, whocanitbenow75@... writes: > This happened in the time it took to > walk to the ladies room and out again! I think I would of walked ma lil' happy butt back in there and say LOOK!! look at this and tell me what is causing incidents like this to happen....Doc!!!...lol but thats just me...lol, but I wonder what would cause that to happen..?? What did your RA Titer come back?? That is interesting your body would swell, but ya know I had the same incident when I was diagnosed with Fibro. Here's the story I was working at Cracker Barrel as a cashier..standing on my feet for 8 - 10 hours a night. well one night my legs and feet started hurting terribly bad and every hour I was going back to the managers office to get Tylenol and advil...or whatever I could get my hands on..well by the time 9:30 rolled around I could no longer walk...I was litterally stuck in one place..I couldn't bend my knees....they had swelled to the size of watermelons...along with my ankles...they called my b/f at the time and he drove down and picked me up and drove me back home because I litterally couldn't walk....I couldn't bend at any of my joints below my hips. It was horrible...so I went to family doc...they ordered blood test. RA factor came back positive so went to a Rheumy a month later RA Titer then came back neg. so they diagnosed me with Fibro. I usually don't have too much swelling now days, but I did when first Diagnosed....it was bad and very painful also. So I understand the swelling thing, but doesn't know why that happens either. I feel for ya girl. Hugzz hope you feel better. Allicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2002 Report Share Posted September 3, 2002 Hi there, Quick email, first day at back at school here. I always suffer from swelling hands, knees and feet. And yet the blood tests showed no athritic swelling.... So he just said it was the Fibro. Hugs Odette Thanks and Question Thanks to all for the warm welcomes. It's really nice to know that there are people who understand!!! My question is this...my dr. has told me, and the rheumatologist has told me, that fibro is not associated with any swelling. I saw the rheumatologist on Saturday, and while I was still at the office, after the visit, as I was visiting the ladies room, my wrist started hurting. I rubbed it a little, and it hurt worse. I looked at it and it was all swollen up. This happened in the time it took to walk to the ladies room and out again! Now it is bruised and swollen and painful, and my left wrist is slightly swollen. My question is, " What's up with that? " It scares me, because I know I did not injure myself in anyway, yet I am injured. I do not have any type of arthritis or rheumatism or any inflamatory disease, AND, just to be on the safe side, I'm on one course of steroids " just in case " I do have any swelling in my joints or tendons, since I did have pain. I have one pill left of 11 to take. Can't figure this one out. I began having a panic attack in the tub yesterday, imagining I had broken my wrist and had bone cancer...my f-i-l just died of bone cancer last November at age 59. I was taking care of him all the time, taking him to his appoitments, giving him shots and medications, the whole works. He died in his sleep, my husband found him, he was not expected to die, his dr. said his cancer was not terminal. Anyway, my irrational fear sets in, that I caught cancer from him, although I know it's impossible, and I've just had every test under the sun and know I don't have cancer. My husband had to tell me, you don't have cancer, you're fine, there's nothing wrong. My f-i-l's first sign of bone cancer was back pain and x-ray showed cracked vertebrae that he had no idea when or how it happened. It's just like a bad night mare. Thanks again for letting me vent. What a great place this is! Nancie ===== Nancie Healthy Homes mean Healthy Children, which lead to a Healthy Future Work from home...ask me how! http://nanciet.themomteam.com __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2002 Report Share Posted September 3, 2002 Hi Nancie, I also have pain in my hands and wrists all the time. Although I'm not quite sure if it's from the Lupus, Fibro, or MS or all of the above! lol It's great that you joined the group! Hope you like it here. Email me anytime! soft hugs, Annie C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2002 Report Share Posted September 3, 2002 Hi Nancie, I also have pain in my hands and wrists all the time. Although I'm not quite sure if it's from the Lupus, Fibro, or MS or all of the above! lol It's great that you joined the group! Hope you like it here. Email me anytime! soft hugs, Annie C. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.