Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 I checked the comments section of Colleen's blog and found this: SommerNyte said... To Colleen's friends, family and especially her children ~ I am so sorry to hear of the great loss you have suffered. May Colleen be in peace and may you, her friends and family left behind, find comfort and peace during this time. Much love to you. 10/19/2008 12:02 A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Her last update form her carepage in September was,so upbeat. She was going home (to hear husband and kids) after her liver transplant. Its shocking how quickly liver cancer can take you. Ian (52) PSC 89 http://www.communityadvocate.com/news/2008/1031/obituaries/040.html -- Ian Cribb P.Eng. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Her last update form her carepage in September was,so upbeat. She was going home (to hear husband and kids) after her liver transplant. Its shocking how quickly liver cancer can take you. Ian (52) PSC 89 http://www.communityadvocate.com/news/2008/1031/obituaries/040.html -- Ian Cribb P.Eng. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Her last update form her carepage in September was,so upbeat. She was going home (to hear husband and kids) after her liver transplant. Its shocking how quickly liver cancer can take you. Ian (52) PSC 89 http://www.communityadvocate.com/news/2008/1031/obituaries/040.html -- Ian Cribb P.Eng. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2009 Report Share Posted January 19, 2009 -----Original Message----- Am wondering if it might be a good gesture for someone to retrieve all her posts and send them to her husband? I honestly don't know if that's a good idea or not. We’ve talked about this once before and at that time (many years ago) the general consensus then was not to share posts. Many people have more than one family member in the group, but others don’t and this (for many) is the one and only place they can come and spill their guts (pardon the pun). To violate that trust – might – at some point hit home for many of us. IF I were ill and thought for even one minute what I said here might get back to my family IF I passed away, it surely would inhibit me from baring my soul and that’s not what we’re about. I often worry about people’s privacy, with Face Book, My Space, you name it web page, it sometimes feels like people are stalking each other (and we’re had that in this group too!) I think was right to worry about giving her real name when she joined, these days ya just never know. Her email to the Mom’s group about privacy concerns hit the nail on the head too. It’s scary out there. OK I’m getting waaayyy off topic…. It’s more than likely Colleen never said a single word she wouldn’t want her family to see, she was upbeat almost all the time, but she also had a Care Page and her sewing blog too. I just don’t know…. I “think” she may have had her own reasons why she never came back to this group and told us she was so ill. She’s known many of us for a long time, I just don’t know…… If anyone decides we should go ahead and do it, please, please let Arne do it! Let him decide which emails to copy and which not to (and if he does or doesn’t want to edit anything out). I trust his judgment, sensibility and caring nature. I’m sure the emails before she got married would be the happiest. (And I for one wouldn’t mind editing anything completely off the web site if she expressed any fear, pain or too much worry. I’m going back to the couch now (my home away from home for the last 3 days) …. word of caution…. flu shots do not protect you from getting the worlds worse cold. If only we had brought stock in Kleenex and Nyquil. Oh well it’s suppose to be 76 this week! Barb running red nose in Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2009 Report Share Posted January 19, 2009 -----Original Message----- Am wondering if it might be a good gesture for someone to retrieve all her posts and send them to her husband? I honestly don't know if that's a good idea or not. We’ve talked about this once before and at that time (many years ago) the general consensus then was not to share posts. Many people have more than one family member in the group, but others don’t and this (for many) is the one and only place they can come and spill their guts (pardon the pun). To violate that trust – might – at some point hit home for many of us. IF I were ill and thought for even one minute what I said here might get back to my family IF I passed away, it surely would inhibit me from baring my soul and that’s not what we’re about. I often worry about people’s privacy, with Face Book, My Space, you name it web page, it sometimes feels like people are stalking each other (and we’re had that in this group too!) I think was right to worry about giving her real name when she joined, these days ya just never know. Her email to the Mom’s group about privacy concerns hit the nail on the head too. It’s scary out there. OK I’m getting waaayyy off topic…. It’s more than likely Colleen never said a single word she wouldn’t want her family to see, she was upbeat almost all the time, but she also had a Care Page and her sewing blog too. I just don’t know…. I “think” she may have had her own reasons why she never came back to this group and told us she was so ill. She’s known many of us for a long time, I just don’t know…… If anyone decides we should go ahead and do it, please, please let Arne do it! Let him decide which emails to copy and which not to (and if he does or doesn’t want to edit anything out). I trust his judgment, sensibility and caring nature. I’m sure the emails before she got married would be the happiest. (And I for one wouldn’t mind editing anything completely off the web site if she expressed any fear, pain or too much worry. I’m going back to the couch now (my home away from home for the last 3 days) …. word of caution…. flu shots do not protect you from getting the worlds worse cold. If only we had brought stock in Kleenex and Nyquil. Oh well it’s suppose to be 76 this week! Barb running red nose in Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2009 Report Share Posted January 19, 2009 -----Original Message----- Am wondering if it might be a good gesture for someone to retrieve all her posts and send them to her husband? I honestly don't know if that's a good idea or not. We’ve talked about this once before and at that time (many years ago) the general consensus then was not to share posts. Many people have more than one family member in the group, but others don’t and this (for many) is the one and only place they can come and spill their guts (pardon the pun). To violate that trust – might – at some point hit home for many of us. IF I were ill and thought for even one minute what I said here might get back to my family IF I passed away, it surely would inhibit me from baring my soul and that’s not what we’re about. I often worry about people’s privacy, with Face Book, My Space, you name it web page, it sometimes feels like people are stalking each other (and we’re had that in this group too!) I think was right to worry about giving her real name when she joined, these days ya just never know. Her email to the Mom’s group about privacy concerns hit the nail on the head too. It’s scary out there. OK I’m getting waaayyy off topic…. It’s more than likely Colleen never said a single word she wouldn’t want her family to see, she was upbeat almost all the time, but she also had a Care Page and her sewing blog too. I just don’t know…. I “think” she may have had her own reasons why she never came back to this group and told us she was so ill. She’s known many of us for a long time, I just don’t know…… If anyone decides we should go ahead and do it, please, please let Arne do it! Let him decide which emails to copy and which not to (and if he does or doesn’t want to edit anything out). I trust his judgment, sensibility and caring nature. I’m sure the emails before she got married would be the happiest. (And I for one wouldn’t mind editing anything completely off the web site if she expressed any fear, pain or too much worry. I’m going back to the couch now (my home away from home for the last 3 days) …. word of caution…. flu shots do not protect you from getting the worlds worse cold. If only we had brought stock in Kleenex and Nyquil. Oh well it’s suppose to be 76 this week! Barb running red nose in Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2009 Report Share Posted January 19, 2009 I couldn’t agree more with Barb. When I post here, I am talking to my “PSC partners” and I know that you are on the same journey that I am on with this disease. I have (and will) ask questions, make statements, vent frustrations, etc. that I wouldn’t want my friends or family to read if I were to “move on.” Although my family and friends are all very supportive, loving people – they don’t really KNOW what PSC is like and most of you here do. So, there is a pretense and common understanding here that a lot of us cannot even have with our own families and friends. Rick From: [mailto: ] On Behalf Of Barb Henshaw Sent: Monday, January 19, 2009 2:19 PM To: Subject: RE: Re: Colleen -----Original Message----- Am wondering if it might be a good gesture for someone to retrieve all her posts and send them to her husband? I honestly don't know if that's a good idea or not. We’ve talked about this once before and at that time (many years ago) the general consensus then was not to share posts. Many people have more than one family member in the group, but others don’t and this (for many) is the one and only place they can come and spill their guts (pardon the pun). To violate that trust – might – at some point hit home for many of us. IF I were ill and thought for even one minute what I said here might get back to my family IF I passed away, it surely would inhibit me from baring my soul and that’s not what we’re about. I often worry about people’s privacy, with Face Book, My Space, you name it web page, it sometimes feels like people are stalking each other (and we’re had that in this group too!) I think was right to worry about giving her real name when she joined, these days ya just never know. Her email to the Mom’s group about privacy concerns hit the nail on the head too. It’s scary out there. OK I’m getting waaayyy off topic…. It’s more than likely Colleen never said a single word she wouldn’t want her family to see, she was upbeat almost all the time, but she also had a Care Page and her sewing blog too. I just don’t know…. I “think” she may have had her own reasons why she never came back to this group and told us she was so ill. She’s known many of us for a long time, I just don’t know…… If anyone decides we should go ahead and do it, please, please let Arne do it! Let him decide which emails to copy and which not to (and if he does or doesn’t want to edit anything out). I trust his judgment, sensibility and caring nature. I’m sure the emails before she got married would be the happiest. (And I for one wouldn’t mind editing anything completely off the web site if she expressed any fear, pain or too much worry. I’m going back to the couch now (my home away from home for the last 3 days) …. word of caution…. flu shots do not protect you from getting the worlds worse cold. If only we had brought stock in Kleenex and Nyquil. Oh well it’s suppose to be 76 this week! Barb running red nose in Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2009 Report Share Posted January 19, 2009 I couldn’t agree more with Barb. When I post here, I am talking to my “PSC partners” and I know that you are on the same journey that I am on with this disease. I have (and will) ask questions, make statements, vent frustrations, etc. that I wouldn’t want my friends or family to read if I were to “move on.” Although my family and friends are all very supportive, loving people – they don’t really KNOW what PSC is like and most of you here do. So, there is a pretense and common understanding here that a lot of us cannot even have with our own families and friends. Rick From: [mailto: ] On Behalf Of Barb Henshaw Sent: Monday, January 19, 2009 2:19 PM To: Subject: RE: Re: Colleen -----Original Message----- Am wondering if it might be a good gesture for someone to retrieve all her posts and send them to her husband? I honestly don't know if that's a good idea or not. We’ve talked about this once before and at that time (many years ago) the general consensus then was not to share posts. Many people have more than one family member in the group, but others don’t and this (for many) is the one and only place they can come and spill their guts (pardon the pun). To violate that trust – might – at some point hit home for many of us. IF I were ill and thought for even one minute what I said here might get back to my family IF I passed away, it surely would inhibit me from baring my soul and that’s not what we’re about. I often worry about people’s privacy, with Face Book, My Space, you name it web page, it sometimes feels like people are stalking each other (and we’re had that in this group too!) I think was right to worry about giving her real name when she joined, these days ya just never know. Her email to the Mom’s group about privacy concerns hit the nail on the head too. It’s scary out there. OK I’m getting waaayyy off topic…. It’s more than likely Colleen never said a single word she wouldn’t want her family to see, she was upbeat almost all the time, but she also had a Care Page and her sewing blog too. I just don’t know…. I “think” she may have had her own reasons why she never came back to this group and told us she was so ill. She’s known many of us for a long time, I just don’t know…… If anyone decides we should go ahead and do it, please, please let Arne do it! Let him decide which emails to copy and which not to (and if he does or doesn’t want to edit anything out). I trust his judgment, sensibility and caring nature. I’m sure the emails before she got married would be the happiest. (And I for one wouldn’t mind editing anything completely off the web site if she expressed any fear, pain or too much worry. I’m going back to the couch now (my home away from home for the last 3 days) …. word of caution…. flu shots do not protect you from getting the worlds worse cold. If only we had brought stock in Kleenex and Nyquil. Oh well it’s suppose to be 76 this week! Barb running red nose in Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2009 Report Share Posted January 19, 2009 < > But Colleen DID come back to this group and tell us she'd been quite ill. She came back in April 08. Her PSC and UC were so bad over the winter of 07-08, she said she wanted " to die. " She was looking for support and help, and this group gave it to her, and she gave back just as much. However, when things reached a critical juncture after her surgery in August, I can completely understand why she only posted once or twice after that (if I recall correctly). < > AMEN to that! My thoughts exactly Barb! Arne should be the one, if anyone should handle this. Things like this also need to be decided on a case-by-case basis. And Lord knows none of us want to see any more cases! Sorry you're on the couch Barb. Ever tried Soduku? Wife of Fred, PSC, 03/04, UC, 03/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2009 Report Share Posted January 19, 2009 < > But Colleen DID come back to this group and tell us she'd been quite ill. She came back in April 08. Her PSC and UC were so bad over the winter of 07-08, she said she wanted " to die. " She was looking for support and help, and this group gave it to her, and she gave back just as much. However, when things reached a critical juncture after her surgery in August, I can completely understand why she only posted once or twice after that (if I recall correctly). < > AMEN to that! My thoughts exactly Barb! Arne should be the one, if anyone should handle this. Things like this also need to be decided on a case-by-case basis. And Lord knows none of us want to see any more cases! Sorry you're on the couch Barb. Ever tried Soduku? Wife of Fred, PSC, 03/04, UC, 03/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2009 Report Share Posted January 19, 2009 < > But Colleen DID come back to this group and tell us she'd been quite ill. She came back in April 08. Her PSC and UC were so bad over the winter of 07-08, she said she wanted " to die. " She was looking for support and help, and this group gave it to her, and she gave back just as much. However, when things reached a critical juncture after her surgery in August, I can completely understand why she only posted once or twice after that (if I recall correctly). < > AMEN to that! My thoughts exactly Barb! Arne should be the one, if anyone should handle this. Things like this also need to be decided on a case-by-case basis. And Lord knows none of us want to see any more cases! Sorry you're on the couch Barb. Ever tried Soduku? Wife of Fred, PSC, 03/04, UC, 03/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2009 Report Share Posted January 19, 2009 I agree with Barb that I would want this to be a safe place; however, if it were determined to that sending them was okay, maybe we should ask the husband first. he may not be in a place to receive them and we should not do more harm then good. He also may have an idea as to her wishes about privacy. Just my thoughts, but I want some one to ask my family before sending my posts to them. Dawn > > -----Original Message----- > Am wondering if it might be a good gesture for someone to retrieve all > her posts and send them to her husband? I honestly don't know if that's > a good idea or not. > > We've talked about this once before and at that time (many years ago) > the general consensus then was not to share posts. Many people have > more than one family member in the group, but others don't and this (for > many) is the one and only place they can come and spill their guts > (pardon the pun). To violate that trust - might - at some point hit > home for many of us. IF I were ill and thought for even one minute what > I said here might get back to my family IF I passed away, it surely > would inhibit me from baring my soul and that's not what we're about. > > I often worry about people's privacy, with Face Book, My Space, you name > it web page, it sometimes feels like people are stalking each other (and > we're had that in this group too!) I think was right to worry > about giving her real name when she joined, these days ya just never > know. Her email to the Mom's group about privacy concerns hit the nail > on the head too. It's scary out there. OK I'm getting waaayyy off > topic.. > > It's more than likely Colleen never said a single word she wouldn't want > her family to see, she was upbeat almost all the time, but she also had > a Care Page and her sewing blog too. I just don't know.. I " think " she > may have had her own reasons why she never came back to this group and > told us she was so ill. She's known many of us for a long time, I just > don't know.. > > If anyone decides we should go ahead and do it, please, please let Arne > do it! Let him decide which emails to copy and which not to (and if he > does or doesn't want to edit anything out). I trust his judgment, > sensibility and caring nature. I'm sure the emails before she got > married would be the happiest. (And I for one wouldn't mind editing > anything completely off the web site if she expressed any fear, pain or > too much worry. > > I'm going back to the couch now (my home away from home for the last 3 > days) .. word of caution.. flu shots do not protect you from getting the > worlds worse cold. If only we had brought stock in Kleenex and Nyquil. > Oh well it's suppose to be 76 this week! > > Barb running red nose in Texas > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2009 Report Share Posted January 19, 2009 I agree with Barb that I would want this to be a safe place; however, if it were determined to that sending them was okay, maybe we should ask the husband first. he may not be in a place to receive them and we should not do more harm then good. He also may have an idea as to her wishes about privacy. Just my thoughts, but I want some one to ask my family before sending my posts to them. Dawn > > -----Original Message----- > Am wondering if it might be a good gesture for someone to retrieve all > her posts and send them to her husband? I honestly don't know if that's > a good idea or not. > > We've talked about this once before and at that time (many years ago) > the general consensus then was not to share posts. Many people have > more than one family member in the group, but others don't and this (for > many) is the one and only place they can come and spill their guts > (pardon the pun). To violate that trust - might - at some point hit > home for many of us. IF I were ill and thought for even one minute what > I said here might get back to my family IF I passed away, it surely > would inhibit me from baring my soul and that's not what we're about. > > I often worry about people's privacy, with Face Book, My Space, you name > it web page, it sometimes feels like people are stalking each other (and > we're had that in this group too!) I think was right to worry > about giving her real name when she joined, these days ya just never > know. Her email to the Mom's group about privacy concerns hit the nail > on the head too. It's scary out there. OK I'm getting waaayyy off > topic.. > > It's more than likely Colleen never said a single word she wouldn't want > her family to see, she was upbeat almost all the time, but she also had > a Care Page and her sewing blog too. I just don't know.. I " think " she > may have had her own reasons why she never came back to this group and > told us she was so ill. She's known many of us for a long time, I just > don't know.. > > If anyone decides we should go ahead and do it, please, please let Arne > do it! Let him decide which emails to copy and which not to (and if he > does or doesn't want to edit anything out). I trust his judgment, > sensibility and caring nature. I'm sure the emails before she got > married would be the happiest. (And I for one wouldn't mind editing > anything completely off the web site if she expressed any fear, pain or > too much worry. > > I'm going back to the couch now (my home away from home for the last 3 > days) .. word of caution.. flu shots do not protect you from getting the > worlds worse cold. If only we had brought stock in Kleenex and Nyquil. > Oh well it's suppose to be 76 this week! > > Barb running red nose in Texas > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2009 Report Share Posted January 19, 2009 I agree with Barb that I would want this to be a safe place; however, if it were determined to that sending them was okay, maybe we should ask the husband first. he may not be in a place to receive them and we should not do more harm then good. He also may have an idea as to her wishes about privacy. Just my thoughts, but I want some one to ask my family before sending my posts to them. Dawn > > -----Original Message----- > Am wondering if it might be a good gesture for someone to retrieve all > her posts and send them to her husband? I honestly don't know if that's > a good idea or not. > > We've talked about this once before and at that time (many years ago) > the general consensus then was not to share posts. Many people have > more than one family member in the group, but others don't and this (for > many) is the one and only place they can come and spill their guts > (pardon the pun). To violate that trust - might - at some point hit > home for many of us. IF I were ill and thought for even one minute what > I said here might get back to my family IF I passed away, it surely > would inhibit me from baring my soul and that's not what we're about. > > I often worry about people's privacy, with Face Book, My Space, you name > it web page, it sometimes feels like people are stalking each other (and > we're had that in this group too!) I think was right to worry > about giving her real name when she joined, these days ya just never > know. Her email to the Mom's group about privacy concerns hit the nail > on the head too. It's scary out there. OK I'm getting waaayyy off > topic.. > > It's more than likely Colleen never said a single word she wouldn't want > her family to see, she was upbeat almost all the time, but she also had > a Care Page and her sewing blog too. I just don't know.. I " think " she > may have had her own reasons why she never came back to this group and > told us she was so ill. She's known many of us for a long time, I just > don't know.. > > If anyone decides we should go ahead and do it, please, please let Arne > do it! Let him decide which emails to copy and which not to (and if he > does or doesn't want to edit anything out). I trust his judgment, > sensibility and caring nature. I'm sure the emails before she got > married would be the happiest. (And I for one wouldn't mind editing > anything completely off the web site if she expressed any fear, pain or > too much worry. > > I'm going back to the couch now (my home away from home for the last 3 > days) .. word of caution.. flu shots do not protect you from getting the > worlds worse cold. If only we had brought stock in Kleenex and Nyquil. > Oh well it's suppose to be 76 this week! > > Barb running red nose in Texas > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2009 Report Share Posted January 20, 2009 I personally think it's dead wrong to forward someone else's posts without permission. It's just plain lack of etiquette. I'm sure her family members have a ton of wonderful memories without needing to us to pass on her private posts here. If she wanted them to read her stuff, they would already have access to it and be here reading. Perhaps she gave them access to her blogs or info on how to login to her yahoo accounts. But I think we should remember that we have passwords to protect our privacy when we log in to these places. If we go ahead and forward other member's posts to people outside the group, we are defeating the very security measures set up to protect us. Yes, I know that nothing we post here is ever completely secure, but why would we want to set the example that passing on our posts is okay? mdwblaze wrote: I agree with Barb that I would want this to be a safe place; however, if it were determined to that sending them was okay, maybe we should ask the husband first. he may not be in a place to receive them and we should not do more harm then good. He also may have an idea as to her wishes about privacy. Just my thoughts, but I want some one to ask my family before sending my posts to them. Dawn > > -----Original Message----- > Am wondering if it might be a good gesture for someone to retrieve all > her posts and send them to her husband? I honestly don't know if that's > a good idea or not. > > We've talked about this once before and at that time (many years ago) > the general consensus then was not to share posts. Many people have > more than one family member in the group, but others don't and this (for > many) is the one and only place they can come and spill their guts > (pardon the pun). To violate that trust - might - at some point hit > home for many of us. IF I were ill and thought for even one minute what > I said here might get back to my family IF I passed away, it surely > would inhibit me from baring my soul and that's not what we're about. > > I often worry about people's privacy, with Face Book, My Space, you name > it web page, it sometimes feels like people are stalking each other (and > we're had that in this group too!) I think was right to worry > about giving her real name when she joined, these days ya just never > know. Her email to the Mom's group about privacy concerns hit the nail > on the head too. It's scary out there. OK I'm getting waaayyy off > topic.. > > It's more than likely Colleen never said a single word she wouldn't want > her family to see, she was upbeat almost all the time, but she also had > a Care Page and her sewing blog too. I just don't know.. I "think" she > may have had her own reasons why she never came back to this group and > told us she was so ill. She's known many of us for a long time, I just > don't know.. > > If anyone decides we should go ahead and do it, please, please let Arne > do it! Let him decide which emails to copy and which not to (and if he > does or doesn't want to edit anything out). I trust his judgment, > sensibility and caring nature. I'm sure the emails before she got > married would be the happiest. (And I for one wouldn't mind editing > anything completely off the web site if she expressed any fear, pain or > too much worry. > > I'm going back to the couch now (my home away from home for the last 3 > days) .. word of caution.. flu shots do not protect you from getting the > worlds worse cold. If only we had brought stock in Kleenex and Nyquil. > Oh well it's suppose to be 76 this week! > > Barb running red nose in Texas > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2009 Report Share Posted January 20, 2009 I personally think it's dead wrong to forward someone else's posts without permission. It's just plain lack of etiquette. I'm sure her family members have a ton of wonderful memories without needing to us to pass on her private posts here. If she wanted them to read her stuff, they would already have access to it and be here reading. Perhaps she gave them access to her blogs or info on how to login to her yahoo accounts. But I think we should remember that we have passwords to protect our privacy when we log in to these places. If we go ahead and forward other member's posts to people outside the group, we are defeating the very security measures set up to protect us. Yes, I know that nothing we post here is ever completely secure, but why would we want to set the example that passing on our posts is okay? mdwblaze wrote: I agree with Barb that I would want this to be a safe place; however, if it were determined to that sending them was okay, maybe we should ask the husband first. he may not be in a place to receive them and we should not do more harm then good. He also may have an idea as to her wishes about privacy. Just my thoughts, but I want some one to ask my family before sending my posts to them. Dawn > > -----Original Message----- > Am wondering if it might be a good gesture for someone to retrieve all > her posts and send them to her husband? I honestly don't know if that's > a good idea or not. > > We've talked about this once before and at that time (many years ago) > the general consensus then was not to share posts. Many people have > more than one family member in the group, but others don't and this (for > many) is the one and only place they can come and spill their guts > (pardon the pun). To violate that trust - might - at some point hit > home for many of us. IF I were ill and thought for even one minute what > I said here might get back to my family IF I passed away, it surely > would inhibit me from baring my soul and that's not what we're about. > > I often worry about people's privacy, with Face Book, My Space, you name > it web page, it sometimes feels like people are stalking each other (and > we're had that in this group too!) I think was right to worry > about giving her real name when she joined, these days ya just never > know. Her email to the Mom's group about privacy concerns hit the nail > on the head too. It's scary out there. OK I'm getting waaayyy off > topic.. > > It's more than likely Colleen never said a single word she wouldn't want > her family to see, she was upbeat almost all the time, but she also had > a Care Page and her sewing blog too. I just don't know.. I "think" she > may have had her own reasons why she never came back to this group and > told us she was so ill. She's known many of us for a long time, I just > don't know.. > > If anyone decides we should go ahead and do it, please, please let Arne > do it! Let him decide which emails to copy and which not to (and if he > does or doesn't want to edit anything out). I trust his judgment, > sensibility and caring nature. I'm sure the emails before she got > married would be the happiest. (And I for one wouldn't mind editing > anything completely off the web site if she expressed any fear, pain or > too much worry. > > I'm going back to the couch now (my home away from home for the last 3 > days) .. word of caution.. flu shots do not protect you from getting the > worlds worse cold. If only we had brought stock in Kleenex and Nyquil. > Oh well it's suppose to be 76 this week! > > Barb running red nose in Texas > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2009 Report Share Posted January 20, 2009 I personally think it's dead wrong to forward someone else's posts without permission. It's just plain lack of etiquette. I'm sure her family members have a ton of wonderful memories without needing to us to pass on her private posts here. If she wanted them to read her stuff, they would already have access to it and be here reading. Perhaps she gave them access to her blogs or info on how to login to her yahoo accounts. But I think we should remember that we have passwords to protect our privacy when we log in to these places. If we go ahead and forward other member's posts to people outside the group, we are defeating the very security measures set up to protect us. Yes, I know that nothing we post here is ever completely secure, but why would we want to set the example that passing on our posts is okay? mdwblaze wrote: I agree with Barb that I would want this to be a safe place; however, if it were determined to that sending them was okay, maybe we should ask the husband first. he may not be in a place to receive them and we should not do more harm then good. He also may have an idea as to her wishes about privacy. Just my thoughts, but I want some one to ask my family before sending my posts to them. Dawn > > -----Original Message----- > Am wondering if it might be a good gesture for someone to retrieve all > her posts and send them to her husband? I honestly don't know if that's > a good idea or not. > > We've talked about this once before and at that time (many years ago) > the general consensus then was not to share posts. Many people have > more than one family member in the group, but others don't and this (for > many) is the one and only place they can come and spill their guts > (pardon the pun). To violate that trust - might - at some point hit > home for many of us. IF I were ill and thought for even one minute what > I said here might get back to my family IF I passed away, it surely > would inhibit me from baring my soul and that's not what we're about. > > I often worry about people's privacy, with Face Book, My Space, you name > it web page, it sometimes feels like people are stalking each other (and > we're had that in this group too!) I think was right to worry > about giving her real name when she joined, these days ya just never > know. Her email to the Mom's group about privacy concerns hit the nail > on the head too. It's scary out there. OK I'm getting waaayyy off > topic.. > > It's more than likely Colleen never said a single word she wouldn't want > her family to see, she was upbeat almost all the time, but she also had > a Care Page and her sewing blog too. I just don't know.. I "think" she > may have had her own reasons why she never came back to this group and > told us she was so ill. She's known many of us for a long time, I just > don't know.. > > If anyone decides we should go ahead and do it, please, please let Arne > do it! Let him decide which emails to copy and which not to (and if he > does or doesn't want to edit anything out). I trust his judgment, > sensibility and caring nature. I'm sure the emails before she got > married would be the happiest. (And I for one wouldn't mind editing > anything completely off the web site if she expressed any fear, pain or > too much worry. > > I'm going back to the couch now (my home away from home for the last 3 > days) .. word of caution.. flu shots do not protect you from getting the > worlds worse cold. If only we had brought stock in Kleenex and Nyquil. > Oh well it's suppose to be 76 this week! > > Barb running red nose in Texas > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2009 Report Share Posted January 20, 2009 Here's my opinion (FWIW). I can't imagine what the family has gone through, but I (personally) also can't imagine they'd want them. If the family asks, they can be supplied. The archives are open to any member; if someone decides to do that, they can't be stopped. Not knowing them, I'd be mortified to decide to do it and find they did NOT want them (or the reminder). Also, based on what little I know, posted communication is considered to be subject to copyright law. I have no idea what that means wrt a deceased individual. I would not do it. I'm by nature a pretty private person. Everyone heals differently - this (reminders of a loved one's communication) would not be for me. Arne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2009 Report Share Posted January 20, 2009 Here's my opinion (FWIW). I can't imagine what the family has gone through, but I (personally) also can't imagine they'd want them. If the family asks, they can be supplied. The archives are open to any member; if someone decides to do that, they can't be stopped. Not knowing them, I'd be mortified to decide to do it and find they did NOT want them (or the reminder). Also, based on what little I know, posted communication is considered to be subject to copyright law. I have no idea what that means wrt a deceased individual. I would not do it. I'm by nature a pretty private person. Everyone heals differently - this (reminders of a loved one's communication) would not be for me. Arne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2009 Report Share Posted January 20, 2009 Here's my opinion (FWIW). I can't imagine what the family has gone through, but I (personally) also can't imagine they'd want them. If the family asks, they can be supplied. The archives are open to any member; if someone decides to do that, they can't be stopped. Not knowing them, I'd be mortified to decide to do it and find they did NOT want them (or the reminder). Also, based on what little I know, posted communication is considered to be subject to copyright law. I have no idea what that means wrt a deceased individual. I would not do it. I'm by nature a pretty private person. Everyone heals differently - this (reminders of a loved one's communication) would not be for me. Arne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2009 Report Share Posted January 20, 2009 I didn’t know Colleen at all, but I’m with Arne From: [mailto: ] On Behalf Of Arne (reminders of a loved one's communication) would not be for me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2009 Report Share Posted January 20, 2009 I didn’t know Colleen at all, but I’m with Arne From: [mailto: ] On Behalf Of Arne (reminders of a loved one's communication) would not be for me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2009 Report Share Posted January 20, 2009 I didn’t know Colleen at all, but I’m with Arne From: [mailto: ] On Behalf Of Arne (reminders of a loved one's communication) would not be for me. Quote Link to comment Share on other sites More sharing options...
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