Guest guest Posted March 22, 2009 Report Share Posted March 22, 2009 M a r n a, I like URSO, It has reduced my LFT numbers and does not causes me any side effects. The only thing I dislike about it is the cost. I was started on it in 1999 when my LFT numbers started to rise dramatically. I was put on CIPRO and Flagyl (sp?) for a couple of months, which brought my LFT numbers back to just above " normal " and started on URSO. Although the nobodies were stopped the URSO was continued. I have tried twice to stop URSO and both times my LFT numbers rose after the first month. Although I am not planning to stop URSO, I would like to try IV GLUTATHIONE, but were can I get it? I am not a nurse and don't feel comfortable taking anything intravenously without a doctor or nurse present. Ian (52) PSC 89 Wesley just went from stage 3 PSC ( Biopsy done June 2006 ) to barely 1-2 ,,,almost no inflammation.Wesley has PSC,,,,Primary Sclerosing Cholangitis,,,I have vanity I research EVERYTHING.....and Dr. Perricone is the man on skin....well Alpha Lipoic Acid makes me have great skin. Sooo in ordering the R-Lipoic Acid....I took one just as Wesley did and the next morning woke with glowing skin. Wesley is 14 and it keeps him from having acne....that and B5 ( Pantothenic Acid ) ....see these are powerful anti-inflammatories. Alpha Lipoic Acid makes glutathione....glutathione is sold to asian women to have whiter skin....and Hollywood types....like Beyonce, Janet ..... Now all the other patients with Wesley's disease are on Ursodiol....I refuse to give it to Wesley ...espescially after the Mayo Clinic came out with a study saying it caused twice as much damage to the people who took it ,,,,for example....twice as many died.....three times as many had esophageal varices..... It reduces bile acids..........well Wesley's are 4.5 ...Normal is 4.5-19.5. Also ....Wesley had a biopsy in June of 2006 showing 3rd stage liver disease.....now he just had a biopsy March 9, 2009 and it showed barely stage 1-2. THE ONLY DIFFERENCE IS NO URSO......IV GLUTATHIONE.....AND ALPHA LIPOIC ACID.....I ALSO REFUSE TO GIVE CIPRO AND FLAGYL AS THEY ARE NEUROTOXIC.....WESLEY STAYS INFECTION FREE WITH PRIMAL DEFENSE ULTRA PROBIOTICS. Now he does have a large spleen...12cm.......soo he is definately not right and his liver functions are elevated....BECAUSE HE HAS HAD PSC since HE WAS 1-2 years old....definative biopsy at age 3. Along with Ulcerative Colitis. OK,,,,I guess that was a bit much... I am a worried mom that is doing everything I can....he started LDN 8 days ago....( so did I )....we did not even taper up....He started at 3mg.....I started at 4.5 mg. We sleep fine. Never had a problem. Wesley had active Ulcerative Colitis and a low hemoglobin...one normal BM a day with no blood but on biopsy it was chronic active ulcerative colitis sooooo I wanted his immune system working right ASAP! I see Dr. Lobritto at -Stanley Columbia University and Scoliosis Ortho Dr. Vitale ,,,March 26-April 4.....in New York, NY .....I am going to lay the LDN on the line and the IV glutathione and see what they think....they are supposed to be progressive. JOHN'S HOPKINS WAS NOT ! I could not even tell them what I do. When his liver biopsy came back so good compared to 3 and a half years ago,,,they said maybe it was a bad sample. What kind of crap is that?????????? And if so....they should have at least did an MRI. ..... They saw almost no inflammation in his liver. :) MARNA -- Ian Cribb P.Eng.cell: (6...Enefen - Reviewer/Designerwww.enefen.com Quote Link to comment Share on other sites More sharing options...
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