Cheryl

[Guest guest]

Hi hon, thank you for the well wishes and such they are greatly

appreciated. I promise to take it easy =)

You take care of yourself as well.

Take care hon,

Deanna

> Dear Deanna

> We are all so glad you made it home. I am so sorry you have been

so ill.

> We were all scared for you and many prayers were sent up. How in

the heck

> do they expect you to get well from throat surgery when they keep

making you

> talk? You poor thing! Thank God for your mom! Thank you for the

letter,

> we were anxious to hear from you.

> Love, your Lupie friend, Cheryl in CA

> http://www.smileycentral.com/?partner=ZSzeb001> Shy Girl

>

> _____

>

> From: Deanna [mailto:tigerice@r...]

> Sent: Sunday, August 15, 2004 9:30 PM

> To: Amber S. ; Barb H; Barbara Z; Dave H; a; Judy; P ;

Kerry;

> LeeAnne ; Liz; Lupies ; Mike; ; Mojo; Normi; a B;

Ray;

> ; Sue & Ginny; Tom & Gretchen

> Subject: My new health problems grrrrrr

>

>

> had surgery Wednesday, spent 5 ½ hours in recovery due to my

oxygen level –

> I was suppose to be admitted but they felt I was good enough to go

home (BOY

> where they wrong!)

> Brother. Well after BB she said I just didn't look right and did

not like

> the way I was sounding with my breathing. She went up and got her

> stethoscope (mom's a nurse) listened to me and said to me " How long

have you

> been breathing like this? " " I said well since yesterday but I

didn't want to

> bother you because I knew you had to work and such and I knew how

tired you

> were " She said " Oh no I have got to get you to the hospital " So off

we went.

> (and many of you know how much I hate going but I knew there was no

fighting

> mom on this one)

> We get to the hospital; my oxygen level at the time during triage

was 94 so

> they made me sit in the waiting room for two hours.get chest x-rays

and

> throat x-rays and then one of the doctors came back and said – " we

have to

> admit you, but we can't take you up until you are stable. " Now it

is like

> 3am and I told my mom to go home that there wasn't anything for her

to do

> but sit around and I would feel better if she were at home in bed –

she

> didn't want to leave me – I finally talked her into leaving at

4:30am – They

> finally took me up to my room at 6am Friday morning. (Now I have

had no

> sleep Tues, Weds, Thurs. Still on the heart machine, oxygen, etc.)

I am

> exhausted yet I had 3 more doctors to see plus more respiratory

treatments

> to go thru – Finally around 12pm Friday I am finally left alone –

(remember

> I am not suppose to be speaking but none of the doctors, nurses,

etc. care

> about that so make me talk) my throat is killing me but hey

apparently my

> throat surgery didn't matter to them. So as the day goes by and

doctors come

> and go one doctor tells me I need a pace maker that my heart rate is

> registering at 38 – 40 which is NOT good. Of course I can't get off

the

> oxygen, to finally get off the oxygen Saturday afternoon and made

it thru

> the night without it – So when he came in Sunday he asked how I

felt and if

> I would obey his wishes if he were to let me go home :-)

> He says my heart rate is fine while I am asleep it is when I am

awake that

> is goes wacky :-) He said but you also don't sleep too much – I was

like –

> not like I don't try. But he says he wants me to try to rest as

much as

> possible, when I get lightheaded and dizzy I need to lay down bla

bla bla I

> also need to talk with my medical team about getting an oxygen

thing here at

> home plus one of those O2 meters that will tell me what my stats

are here at

> home to have as an emergency. Of course I have a whole new regimen

of meds I

> have to go on – oh joy more freaking meds…..

> So I was finally released and will be on the phone tomorrow with

the heart

> dr, lupus dr, and pcp to get things all set up. But looks like my

heart

> doesn't want to co-operate. Deanna

> LUPUS Serenity Prayer...

> Lord, grant me the serenity to accept the things I cannot change,

the

> courage to change the things I can, and the wisdom to hide the

bodies of

> doctors I shot when they said, You're perfectly healthy, it's all

in your

> head "