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Re: Still New To This

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Hi Robin

I wanted to write to you and tell you that I agree with your decisions and

understand your feelings. I have not worked since 1994 cause of all my

ailments. When you are out of work for a long period of time, it is very

difficult to get back going again, of course depending on your age. Even if

I was able to go back to work, I do not believe anyone would hire a 56 yr

old with all my problems. So depending on your age is my concern for you.

Just remember the longer you are out of work, the harder it is to find one

when/if you are able. Good Luck to you !

Sherry in SC

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  • 6 years later...
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Theresa,

 

Welcome to the group. We are all ignorant and searching for answers. I don't think the fatigue is caused by elevated ammonia levels, because many of us have fatigue without the brain fog. The IV GLUTATHIONE has not been FDA approved (they say they don't require FDA approval). M a r n a  believes it has reversed PSC in her son. I know of one other member that has tried it (says she will go for another dose) and I am another member are researching how to get it. www.glutathioneexperts.com is the website of the malefactors and they have a 1-800 number.

Ian (52) PSC 89

 

Please excuse my ignorance but we are new to all of this and I am trying hard to learn as much as I can in support of my son. I was hoping someone could help me understand if an elevated ammonia level can cause both the extreme fatigue and " fog " . Also I have read about the IV mentioned on this site. Can someone explain more to me about what it is and why it helps (how it works)?

I am also trying to find out if anyone has ever heard of having a positive mitochondrial antibody test with a diagnosis of PSC (even though mitochondrial is most commonly related to PBC, right?)Thank you all so much for being here. You are a God send and I will continue to keep all of you in my prayers.

Theresa

-- Ian Cribb  P.Eng.cell:  (6...Enefen - Reviewer/Designerwww.enefen.com

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