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In a message dated 08/05/2002 11:42:27 PM US Eastern Standard Time,

reds_henry@... writes:

> , how many of you have other disorders/diseases

>

I have several disorders/ diseases.

Here are some to name a few.

Headaches

TMJ

Rheynauds

IBS

Restless Leg Syndrome

Fibro Fog (Very forgetful)

Hope this helps..thats just to name a few...if I could remember them all I

would name em all...lol

Allicia

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In a message dated 08/05/2002 11:42:27 PM US Eastern Standard Time,

reds_henry@... writes:

> , how many of you have other disorders/diseases

>

I have several disorders/ diseases.

Here are some to name a few.

Headaches

TMJ

Rheynauds

IBS

Restless Leg Syndrome

Fibro Fog (Very forgetful)

Hope this helps..thats just to name a few...if I could remember them all I

would name em all...lol

Allicia

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In a message dated 08/05/2002 11:42:27 PM US Eastern Standard Time,

reds_henry@... writes:

> , how many of you have other disorders/diseases

>

I have several disorders/ diseases.

Here are some to name a few.

Headaches

TMJ

Rheynauds

IBS

Restless Leg Syndrome

Fibro Fog (Very forgetful)

Hope this helps..thats just to name a few...if I could remember them all I

would name em all...lol

Allicia

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In a message dated 08/05/2002 11:58:32 PM US Eastern Standard Time,

reds_henry@... writes:

> It seems if one symptom

> goes away, something comes to replace it.

>

Isn't this the truth....it seems to me as if one part of my body quits ache'n

then I either get a new kind of ache or somewhere totally different starts

in. When Fibro set in I was working at a Big restaurant chain as a cashier

standing in one spot and by the end of the night...I couldn't walk at

all....I was carried to my car that night and carried in my house by my

ex/boyfriend because I couldn't bend at the knees. Now its pretty much left

me knees and went to ankles and wrists and fingers. I have it really bad in

the neck and shoulders. I get these horrible headaches on the left side of my

head that goes clear down into my shoulder and draws my shoulder up......gosh

it hurts....:o*(

I usually take a muscle relaxer and an anti-inflammatory and within an hour

I'm not in as much pain...but really groggy....Deffinatley seems like ya

can't win for loose'n.

I keep tell'n myself that God has a reason for everything though. Someday I

will find out.

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In a message dated 08/05/2002 11:58:32 PM US Eastern Standard Time,

reds_henry@... writes:

> It seems if one symptom

> goes away, something comes to replace it.

>

Isn't this the truth....it seems to me as if one part of my body quits ache'n

then I either get a new kind of ache or somewhere totally different starts

in. When Fibro set in I was working at a Big restaurant chain as a cashier

standing in one spot and by the end of the night...I couldn't walk at

all....I was carried to my car that night and carried in my house by my

ex/boyfriend because I couldn't bend at the knees. Now its pretty much left

me knees and went to ankles and wrists and fingers. I have it really bad in

the neck and shoulders. I get these horrible headaches on the left side of my

head that goes clear down into my shoulder and draws my shoulder up......gosh

it hurts....:o*(

I usually take a muscle relaxer and an anti-inflammatory and within an hour

I'm not in as much pain...but really groggy....Deffinatley seems like ya

can't win for loose'n.

I keep tell'n myself that God has a reason for everything though. Someday I

will find out.

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In a message dated 08/05/2002 11:58:32 PM US Eastern Standard Time,

reds_henry@... writes:

> It seems if one symptom

> goes away, something comes to replace it.

>

Isn't this the truth....it seems to me as if one part of my body quits ache'n

then I either get a new kind of ache or somewhere totally different starts

in. When Fibro set in I was working at a Big restaurant chain as a cashier

standing in one spot and by the end of the night...I couldn't walk at

all....I was carried to my car that night and carried in my house by my

ex/boyfriend because I couldn't bend at the knees. Now its pretty much left

me knees and went to ankles and wrists and fingers. I have it really bad in

the neck and shoulders. I get these horrible headaches on the left side of my

head that goes clear down into my shoulder and draws my shoulder up......gosh

it hurts....:o*(

I usually take a muscle relaxer and an anti-inflammatory and within an hour

I'm not in as much pain...but really groggy....Deffinatley seems like ya

can't win for loose'n.

I keep tell'n myself that God has a reason for everything though. Someday I

will find out.

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In a message dated 08/06/2002 12:19:38 AM US Eastern Standard Time,

reds_henry@... writes:

> By the way my husband has been on night shift for 3 weeks and my

> sleep pattern is a mess, which I dont think is helping much.

>

>

probably not...Mine is all messed up as well (sleep)...but been trying

really hard this week to get it back on track...I'm not big on taking pills

either. Last time I had a huge flare like this I ended up on about 15

different pills and was sleeping 20 hours a day so I slowly weened myself off

of those and have tried to cope with the pain as much as possible.

Allicia

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In a message dated 08/06/2002 12:19:38 AM US Eastern Standard Time,

reds_henry@... writes:

> By the way my husband has been on night shift for 3 weeks and my

> sleep pattern is a mess, which I dont think is helping much.

>

>

probably not...Mine is all messed up as well (sleep)...but been trying

really hard this week to get it back on track...I'm not big on taking pills

either. Last time I had a huge flare like this I ended up on about 15

different pills and was sleeping 20 hours a day so I slowly weened myself off

of those and have tried to cope with the pain as much as possible.

Allicia

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In a message dated 08/06/2002 12:19:38 AM US Eastern Standard Time,

reds_henry@... writes:

> By the way my husband has been on night shift for 3 weeks and my

> sleep pattern is a mess, which I dont think is helping much.

>

>

probably not...Mine is all messed up as well (sleep)...but been trying

really hard this week to get it back on track...I'm not big on taking pills

either. Last time I had a huge flare like this I ended up on about 15

different pills and was sleeping 20 hours a day so I slowly weened myself off

of those and have tried to cope with the pain as much as possible.

Allicia

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I am 22 years old. I have had this since I was about 16 yrs old., but wasn't

diagnosed til I was 20. Doctors say that its not a progressive disease, but I

have heard many many people agree that it does get worse as you get older,

but there is and always will be alot of controversy on Fibro. Thats another

bad point...what works for one...doesn't work for another...there isn't a

solid method of treating this horrid disease unfortunately.

Yes it is very irrating when one day you can almost run around the block (ok

maybe I'm exaggerating) and the next day you can't even tie your shoes

because your fingers are kill'n you.

As far as the diet changes go...The only thing that I have really

done...which I need to do more...is cut out all caffeine, sugar, and almost

all red meats. everyonce in awhile I will cheat, but not very often. If I

drink one pop I can feel it within 20 min. of drinking it.

Mick is the woman to talk to about the dieting...she has had alot of luck

with a vegan diet. My parents have done that and have had alot of luck as

well. It is expensive, but worth the $$ if you have it.

Well I'm gonna try to hit the bed....I hope this helps you....If you ever

need to talk Drop me a line...I'm online alot ....lots of *gentle* hugzz

Allicia

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I am 22 years old. I have had this since I was about 16 yrs old., but wasn't

diagnosed til I was 20. Doctors say that its not a progressive disease, but I

have heard many many people agree that it does get worse as you get older,

but there is and always will be alot of controversy on Fibro. Thats another

bad point...what works for one...doesn't work for another...there isn't a

solid method of treating this horrid disease unfortunately.

Yes it is very irrating when one day you can almost run around the block (ok

maybe I'm exaggerating) and the next day you can't even tie your shoes

because your fingers are kill'n you.

As far as the diet changes go...The only thing that I have really

done...which I need to do more...is cut out all caffeine, sugar, and almost

all red meats. everyonce in awhile I will cheat, but not very often. If I

drink one pop I can feel it within 20 min. of drinking it.

Mick is the woman to talk to about the dieting...she has had alot of luck

with a vegan diet. My parents have done that and have had alot of luck as

well. It is expensive, but worth the $$ if you have it.

Well I'm gonna try to hit the bed....I hope this helps you....If you ever

need to talk Drop me a line...I'm online alot ....lots of *gentle* hugzz

Allicia

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Hello ,

I am so sorry for all that you have endured because of these dreaded illnesses,

but one thing about it, you have come to the right place for support!

In addition to FMS I was also diagnosed with CFS, IBS, TMJ, hypoglycemia and

eventually liver and kidneys failing. When I was 29 I was diagnosed with

Endometriosis but after a complete hysterectomy I have had no symptoms of it.

I removed all caffeine from my diet except I do have 1 1/2 cups of coffee each

morning. I am a smoker and have tried numerous times to quit, but failed. I

absolutely do not drink any pop at all.....ever. And for the most part I am a

vegan and since starting the diet change have been symptom free from all that I

was diagnosed with for over 5 months now. Before the diet change I had been

pretty much bedridden for 4 years. Now I have more energy and more strength

than anyone in my family. They even get colds etc, but not me!!! Woo Hoo!! What

a rush that is!!

Peace and blessings to you always,

Mick

reds_henry reds_henry@...> wrote: -Hi, another question, how many of

you have other disorders/diseases

as well as fibromyalgia? I also have endometriosis which has been

controlled well over the past 2 years with birth control therapy.

-- In @y..., " reds_henry " wrote:

> Hello! I am a just turned 30 year old female. I was diagnosed with

> fibromyalgia during the summer of 2000 I have always had neck and

> upper back pain, but started having a painful middle finger on my

> left hand along with the back pain. It was not swollen but felt

stiff

> and painful all the time. I had a bad spell in Nov. of 00. I woke

up

> and could not lift up out of bed due to horrible right shoulder

pain.

> My husband massaged my shoulder for 2 months before it went away.

So

> far I am functional, just in constant dull pain. My youngest son

was

> diagnosed with Legg Calve Perthes disease last year and I had to do

> therapy with him 3 times a day for a year. Between the worrying and

> therapy I did with him I ended up on zoloft and nerve pills, but

have

> since quit those. As I get older and when stress comes up I become

> less functional. It isnt real bad pain, but mostly exhaustion, I

> think from dealing with constant low grade pain. If I do alot in a

> day the next day I am wiped out. One thing about this disorder I do

> know is that I quit smoking for 2 months and didnt have any pain

> after a few weeks of not smoking. How many of you are smokers? Does

> exercise work? How about giving up caffeine? I drink 10 cans of

pepsi

> a day. I am not overweight. 5'4 " and 120 lbs. I feel if I would

gain

> weight I wouldnt be able to carry myself around. I am a very high

> strung nervous person. I am tired of being tired and dont want to

> take medication. I am starting to feel as if I cant do as much as I

> once could and my husband can work circles around me and I am tired

> of it. He will work all day as a cement finisher (hard work) and

then

> come home and help me clean and do kids homework. I appreciate his

> help, but he shouldnt have to do as much as he does. I wake up

> feeling like someone beat me in my sleep. I will welcome any

replies.

> Thanks

>

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Hello ,

I am so sorry for all that you have endured because of these dreaded illnesses,

but one thing about it, you have come to the right place for support!

In addition to FMS I was also diagnosed with CFS, IBS, TMJ, hypoglycemia and

eventually liver and kidneys failing. When I was 29 I was diagnosed with

Endometriosis but after a complete hysterectomy I have had no symptoms of it.

I removed all caffeine from my diet except I do have 1 1/2 cups of coffee each

morning. I am a smoker and have tried numerous times to quit, but failed. I

absolutely do not drink any pop at all.....ever. And for the most part I am a

vegan and since starting the diet change have been symptom free from all that I

was diagnosed with for over 5 months now. Before the diet change I had been

pretty much bedridden for 4 years. Now I have more energy and more strength

than anyone in my family. They even get colds etc, but not me!!! Woo Hoo!! What

a rush that is!!

Peace and blessings to you always,

Mick

reds_henry reds_henry@...> wrote: -Hi, another question, how many of

you have other disorders/diseases

as well as fibromyalgia? I also have endometriosis which has been

controlled well over the past 2 years with birth control therapy.

-- In @y..., " reds_henry " wrote:

> Hello! I am a just turned 30 year old female. I was diagnosed with

> fibromyalgia during the summer of 2000 I have always had neck and

> upper back pain, but started having a painful middle finger on my

> left hand along with the back pain. It was not swollen but felt

stiff

> and painful all the time. I had a bad spell in Nov. of 00. I woke

up

> and could not lift up out of bed due to horrible right shoulder

pain.

> My husband massaged my shoulder for 2 months before it went away.

So

> far I am functional, just in constant dull pain. My youngest son

was

> diagnosed with Legg Calve Perthes disease last year and I had to do

> therapy with him 3 times a day for a year. Between the worrying and

> therapy I did with him I ended up on zoloft and nerve pills, but

have

> since quit those. As I get older and when stress comes up I become

> less functional. It isnt real bad pain, but mostly exhaustion, I

> think from dealing with constant low grade pain. If I do alot in a

> day the next day I am wiped out. One thing about this disorder I do

> know is that I quit smoking for 2 months and didnt have any pain

> after a few weeks of not smoking. How many of you are smokers? Does

> exercise work? How about giving up caffeine? I drink 10 cans of

pepsi

> a day. I am not overweight. 5'4 " and 120 lbs. I feel if I would

gain

> weight I wouldnt be able to carry myself around. I am a very high

> strung nervous person. I am tired of being tired and dont want to

> take medication. I am starting to feel as if I cant do as much as I

> once could and my husband can work circles around me and I am tired

> of it. He will work all day as a cement finisher (hard work) and

then

> come home and help me clean and do kids homework. I appreciate his

> help, but he shouldnt have to do as much as he does. I wake up

> feeling like someone beat me in my sleep. I will welcome any

replies.

> Thanks

>

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Dear ,

I had been diagnosed with FMS/CFS almost 6 years ago. Many people talk of going

for weeks without the symptoms. This never happened for me....I never got a

reprieve. Docs will tell you that it is not progressive and it is not

degenerative. That is complete BS. For me it did progress. Eventually I was

also diagnosed with TMJ/IBS and hypoglycemia. And from all the different

synthetic drugs I was on over the years.....my liver and kidneys began to fail.

It that is not degenerative and progressive I don't know what is. I am 6' tall

and I weighed 115 lbs when I started my lifestyle changes 7 months ago. I am

vegan (for the most part) and now I weigh 128 lbs.

reds_henry reds_henry@...> wrote: -How old are you? Can I expect this

to get worse as I get older? I

have been a stay at home mom since my 11 year old son was born. I

also have an 8 year old son. I was hoping to work as they are getting

older. There is so much I want to do but my body doesnt want to let

me. My sons are so active. I am worried one day I wont be able to

keep up. What irritates me most about this disorder is for a week or

so I will feel great and like I am really living and then it will hit

me for a few weeks and puts me back. I wish I could figure out what

makes the symptoms lessen and what triggers it back. Have you tried

any diet changes?

-- In @y..., Allicia21@a... wrote:

> In a message dated 08/06/2002 12:19:38 AM US Eastern Standard Time,

> reds_henry@y... writes:

>

>

> > By the way my husband has been on night shift for 3 weeks and my

> > sleep pattern is a mess, which I dont think is helping much.

> >

> >

>

> probably not...Mine is all messed up as well (sleep)...but been

trying

> really hard this week to get it back on track...I'm not big on

taking pills

> either. Last time I had a huge flare like this I ended up on about

15

> different pills and was sleeping 20 hours a day so I slowly weened

myself off

> of those and have tried to cope with the pain as much as possible.

> Allicia

>

>

>

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Dear ,

I had been diagnosed with FMS/CFS almost 6 years ago. Many people talk of going

for weeks without the symptoms. This never happened for me....I never got a

reprieve. Docs will tell you that it is not progressive and it is not

degenerative. That is complete BS. For me it did progress. Eventually I was

also diagnosed with TMJ/IBS and hypoglycemia. And from all the different

synthetic drugs I was on over the years.....my liver and kidneys began to fail.

It that is not degenerative and progressive I don't know what is. I am 6' tall

and I weighed 115 lbs when I started my lifestyle changes 7 months ago. I am

vegan (for the most part) and now I weigh 128 lbs.

reds_henry reds_henry@...> wrote: -How old are you? Can I expect this

to get worse as I get older? I

have been a stay at home mom since my 11 year old son was born. I

also have an 8 year old son. I was hoping to work as they are getting

older. There is so much I want to do but my body doesnt want to let

me. My sons are so active. I am worried one day I wont be able to

keep up. What irritates me most about this disorder is for a week or

so I will feel great and like I am really living and then it will hit

me for a few weeks and puts me back. I wish I could figure out what

makes the symptoms lessen and what triggers it back. Have you tried

any diet changes?

-- In @y..., Allicia21@a... wrote:

> In a message dated 08/06/2002 12:19:38 AM US Eastern Standard Time,

> reds_henry@y... writes:

>

>

> > By the way my husband has been on night shift for 3 weeks and my

> > sleep pattern is a mess, which I dont think is helping much.

> >

> >

>

> probably not...Mine is all messed up as well (sleep)...but been

trying

> really hard this week to get it back on track...I'm not big on

taking pills

> either. Last time I had a huge flare like this I ended up on about

15

> different pills and was sleeping 20 hours a day so I slowly weened

myself off

> of those and have tried to cope with the pain as much as possible.

> Allicia

>

>

>

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Dear ,

I had been diagnosed with FMS/CFS almost 6 years ago. Many people talk of going

for weeks without the symptoms. This never happened for me....I never got a

reprieve. Docs will tell you that it is not progressive and it is not

degenerative. That is complete BS. For me it did progress. Eventually I was

also diagnosed with TMJ/IBS and hypoglycemia. And from all the different

synthetic drugs I was on over the years.....my liver and kidneys began to fail.

It that is not degenerative and progressive I don't know what is. I am 6' tall

and I weighed 115 lbs when I started my lifestyle changes 7 months ago. I am

vegan (for the most part) and now I weigh 128 lbs.

reds_henry reds_henry@...> wrote: -How old are you? Can I expect this

to get worse as I get older? I

have been a stay at home mom since my 11 year old son was born. I

also have an 8 year old son. I was hoping to work as they are getting

older. There is so much I want to do but my body doesnt want to let

me. My sons are so active. I am worried one day I wont be able to

keep up. What irritates me most about this disorder is for a week or

so I will feel great and like I am really living and then it will hit

me for a few weeks and puts me back. I wish I could figure out what

makes the symptoms lessen and what triggers it back. Have you tried

any diet changes?

-- In @y..., Allicia21@a... wrote:

> In a message dated 08/06/2002 12:19:38 AM US Eastern Standard Time,

> reds_henry@y... writes:

>

>

> > By the way my husband has been on night shift for 3 weeks and my

> > sleep pattern is a mess, which I dont think is helping much.

> >

> >

>

> probably not...Mine is all messed up as well (sleep)...but been

trying

> really hard this week to get it back on track...I'm not big on

taking pills

> either. Last time I had a huge flare like this I ended up on about

15

> different pills and was sleeping 20 hours a day so I slowly weened

myself off

> of those and have tried to cope with the pain as much as possible.

> Allicia

>

>

>

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I expect this to get worse as I get older?

--------------------------------------------------------------------------------

,

Hi, I waited to post thinking that others more " qualified " would respond.

Anyway, the only answer I can give you is one from my own perspective.

The same things that work for one person may or may not work for you. You kind

of have to try them and see which works best for you.

I am 40 with an 11 & 5 year old. I work part time now. (I used to work full

time, what a nightmare!) I also feel like someone has beat me up when I arise in

the morning. I have found that a tricyclic antidepressant like Effexor XR 150mg

per day, works for me. However, I do have my bad days also. I must pace myself

where any physical work is concerned. My husband and children help me out around

the house.

I understand you being concerned about becoming addicted to Xanax. I also take

that as needed. I have been using it since 1998 and have not become addicted in

the least. Believe me, I could really take advantage too. I have so many other

narcotics. But have had no problems. So my take on it would be that if you gain

some benefit from taking it, by all means do. Stress is one of the biggest

contributors of the pain cycle. If you are able to reduce your stress level by

taking an occasional Xanax, I say go for it!

I hope this helps in some small way. Again, I'm no expert. I can only give you

advice from my own viewpont. If you would like to talk one on one anytime,

e-mail me privately at genoa816@....

Take care....

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I expect this to get worse as I get older?

--------------------------------------------------------------------------------

,

Hi, I waited to post thinking that others more " qualified " would respond.

Anyway, the only answer I can give you is one from my own perspective.

The same things that work for one person may or may not work for you. You kind

of have to try them and see which works best for you.

I am 40 with an 11 & 5 year old. I work part time now. (I used to work full

time, what a nightmare!) I also feel like someone has beat me up when I arise in

the morning. I have found that a tricyclic antidepressant like Effexor XR 150mg

per day, works for me. However, I do have my bad days also. I must pace myself

where any physical work is concerned. My husband and children help me out around

the house.

I understand you being concerned about becoming addicted to Xanax. I also take

that as needed. I have been using it since 1998 and have not become addicted in

the least. Believe me, I could really take advantage too. I have so many other

narcotics. But have had no problems. So my take on it would be that if you gain

some benefit from taking it, by all means do. Stress is one of the biggest

contributors of the pain cycle. If you are able to reduce your stress level by

taking an occasional Xanax, I say go for it!

I hope this helps in some small way. Again, I'm no expert. I can only give you

advice from my own viewpont. If you would like to talk one on one anytime,

e-mail me privately at genoa816@....

Take care....

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Guest guest

I expect this to get worse as I get older?

--------------------------------------------------------------------------------

,

Hi, I waited to post thinking that others more " qualified " would respond.

Anyway, the only answer I can give you is one from my own perspective.

The same things that work for one person may or may not work for you. You kind

of have to try them and see which works best for you.

I am 40 with an 11 & 5 year old. I work part time now. (I used to work full

time, what a nightmare!) I also feel like someone has beat me up when I arise in

the morning. I have found that a tricyclic antidepressant like Effexor XR 150mg

per day, works for me. However, I do have my bad days also. I must pace myself

where any physical work is concerned. My husband and children help me out around

the house.

I understand you being concerned about becoming addicted to Xanax. I also take

that as needed. I have been using it since 1998 and have not become addicted in

the least. Believe me, I could really take advantage too. I have so many other

narcotics. But have had no problems. So my take on it would be that if you gain

some benefit from taking it, by all means do. Stress is one of the biggest

contributors of the pain cycle. If you are able to reduce your stress level by

taking an occasional Xanax, I say go for it!

I hope this helps in some small way. Again, I'm no expert. I can only give you

advice from my own viewpont. If you would like to talk one on one anytime,

e-mail me privately at genoa816@....

Take care....

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Oh ...Don't discredit yourself! You did just fine! It is said that

fibro is not a progressive disease. Unfortunately, it is my opinion that as

we get older, our bodies naturally get progressivly more wear/tear on them,

thus causing more pain...fibro or not.

Missy

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Oh ...Don't discredit yourself! You did just fine! It is said that

fibro is not a progressive disease. Unfortunately, it is my opinion that as

we get older, our bodies naturally get progressivly more wear/tear on them,

thus causing more pain...fibro or not.

Missy

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Oh ...Don't discredit yourself! You did just fine! It is said that

fibro is not a progressive disease. Unfortunately, it is my opinion that as

we get older, our bodies naturally get progressivly more wear/tear on them,

thus causing more pain...fibro or not.

Missy

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Guest guest

writes,

>

> -Hi, another question, how many of you have other disorders/diseases

> as well as fibromyalgia?

>

> I have polyarthritis, diabetes, neuropathy in my legs, IBS and tinnitus.

> Along of course with fatigue, no energy and not sleeping very well.

Take care,

Irene

Books may well be the only true magic

Alice Hoffman

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reds_henry wrote:

>

> -Hi, another question, how many of you have other disorders/diseases

> as well as fibromyalgia? I also have endometriosis which has been

> controlled well over the past 2 years with birth control therapy.

Let's see I also have endometriosis, asthma, GERDs, IBS, migraines,

anxiety, depression, allergies, and probably a few I can't think of

right now. It use to be a joke between dh and myself that when I got to

five " faults " he was going to leave. I'm well past that mark and he's

still sticking around faithfully.

Darcy

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reds_henry wrote:

>

> -Hi, another question, how many of you have other disorders/diseases

> as well as fibromyalgia? I also have endometriosis which has been

> controlled well over the past 2 years with birth control therapy.

Let's see I also have endometriosis, asthma, GERDs, IBS, migraines,

anxiety, depression, allergies, and probably a few I can't think of

right now. It use to be a joke between dh and myself that when I got to

five " faults " he was going to leave. I'm well past that mark and he's

still sticking around faithfully.

Darcy

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