Re: Updated List of Q's for Doc's/Marijuana

January 9, 2009

Hi, all! I know marijuana is illegal, but I did have a doctor ask me/advise me

to try it. To be honest, I'm not sure if he intended it to be in " pill " form or

not since he said it might be cheaper to find it on my own. In any case, the

way he explained it/advised it is that marijuana could help stimulate my

appetite (I'm down to 97 pounds since getting PSC) and help to relieve a lot of

the pain I'm in. He strongly encouraged me to think about it and get back to

him. I'm not really a drugs kind of girl (ironic, I know, considering I take

50+ pills a day), so I haven't done anything about it, but I thought I'd share

that it was recommended by a doctor as a course of treatment so it may be worth

leaving it on the question list.

That's my two cents for what they're worth!

Sandi in VA

January 9, 2009

Interesting thread.

For Sandi in VA, took Marinol, marijuana in pill form, after he

had lost 40 pounds and could not taste anything. It made him ravenous,

and I feel that it saved his life since he didn't go for transplant

for 6 months after that. He said it only gave him a buzz twice, and

did make him a bit more pleasant to be around. I would not hesitate in

taking it if your doctor suggested it, but by all means, check with

your transplant team before starting it. They only recommend it when

it's come down to being a serious issue.

, wife of (psc 94, cca 2007, tx 2008)

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